Issue 1/2022
Content (229 Articles)
What to consider when implementing a tool for timely recognition of palliative care needs in heart failure: a context-based qualitative study
Stephanie M. C. Ament, Lisette M. van den Broek, Marieke H. J. van den Beuken-van Everdingen, Josiane J. J. Boyne, José M. C. Maessen, Sebastiaan C. A. M. Bekkers, Louise Bellersen, Hans-Peter Brunner-La Rocca, Yvonne Engels, Daisy J. A. Janssen
Being a safe place: a qualitative study exploring perceptions as to how a rural community hospice could respond to enactment of voluntary assisted dying legislation
Kirsten Auret, Terri Pikora, Kate Gersbach
Verbalizing spiritual needs in palliative care: a qualitative interview study on verbal and non-verbal communication in two Danish hospices
Sara Stage Voetmann, Niels Christian Hvidt, Dorte Toudal Viftrup
Palliative care in the pre-hospital service in Brazil: experiences of health professionals
Jacqueline Resende Boaventura, Juliana Dias Reis Pessalacia, Aridiane Alves Ribeiro, Fabiana Bolela de Souza, Priscila Kelly da Silva Neto, Maristela Rodrigues Marinho
Effect of chocolate on older patients with cancer in palliative care: a randomised controlled study
Josiane C. Vettori, Luanda G. da-Silva, Karina Pfrimer, Alceu A. Jordão, Paulo Louzada-Junior, Júlio C. Moriguti, Eduardo Ferriolli, Nereida K. C. Lima
Preference for initiation of end-of-life care discussion in Indonesia: a quantitative study
Venita Eng, Victoria Hewitt, Aria Kekalih
Healthcare providers’ perception of advance care planning for patients with critical illnesses in acute-care hospitals: a cross-sectional study
Kanako Yamamoto, Yuki Yonekura, Kazuhiro Nakayama
Dignity therapy intervention fidelity: a cross-sectional descriptive study with older adult outpatients with cancer
Tasha M. Schoppee, Lisa Scarton, Susan Bluck, Yingwei Yao, Gail Keenan, Virginia Samuels, George Fitchett, George Handzo, Harvey M. Chochinov, Linda L. Emanuel, Diana J. Wilkie
Discussing patient preferences for levels of life-sustaining treatment: development and pilot testing of a Danish POLST form
Lone Doris Tuesen, Hans-Henrik Bülow, Anne Sophie Ågård, Sverre Mainz Strøm, Erik Fromme, Hanne Irene Jensen
National strategy for palliative care of severely ill and dying people and their relatives in pandemics (PallPan) in Germany - study protocol of a mixed-methods project
C. Bausewein, F. Hodiamont, N. Berges, A. Ullrich, C. Gerlach, K. Oechsle, B. Pauli, J. Weber, S. Stiel, N. Schneider, N. Krumm, R. Rolke, C. Gebel, M. Jansky, F. Nauck, U. Wedding, B. van Oorschot, C. Roch, L. Werner, M. Fischer, M. Schallenburger, M. C. Reuters, J. Schwartz, M. Neukirchen, A. Gülay, K. Maus, B. Jaspers, L. Radbruch, M. Heckel, I. Klinger, C. Ostgathe, U. Kriesen, C. Junghanß, E. Lehmann, D. Gesell, S. Gauder, C. Boehlke, G. Becker, A. Pralong, J. Strupp, C. Leisse, K. Schloesser, R. Voltz, N. Jung, S. T. Simon
Caring for depression in the dying is complex and challenging – survey of palliative physicians
Wei Lee, Sungwon Chang, Michelle DiGiacomo, Brian Draper, Meera R. Agar, David C. Currow
Development and palliative care staff reactions to a sleep regulation educational intervention
Elizabeth Capezuti, Rana Sagha Zadeh, Michael Ames Brigham, Brooke Ana Dias, Benjamin Chanhee Kim, Evie Lengetti, Belle Erikson, Nancy Swezey, Ana C. Krieger
Identifying palliative care needs of patients with non-communicable diseases in Indonesia using the SPICT tool: a descriptive cross-sectional study
Christantie Effendy, Jony Francisco Dos Santos Silva, Retna Siwi Padmawati
Challenges faced by Chinese community nurses when providing home-based hospice and palliative care: a descriptive qualitative study
Jinxin Zhang, Yingjuan Cao, Mingzhu Su, Joyce Cheng, Nengliang Yao
Internal medicine residents’ perceptions and experiences in palliative care: a qualitative study in the United Arab Emirates
Thana Harhara, Dana Abdul Hay, Dalal S. Almansoori, Halah Ibrahim
Validity and reliability of the spiritual care competency scale for oncology nurses in Taiwan
Hui-Fen Fang, Henny Dwi Susanti, Lindelwa Portia Dlamini, Nae-Fang Miao, Min-Huey Chung
Conceptualising effective symptom management in palliative care: a novel model derived from qualitative data
Emma J. Chapman, Simon Pini, Zoe Edwards, Yousuf Elmokhallalati, Fliss E. M. Murtagh, Michael I. Bennett
COMPANION: development of a patient-centred complexity and casemix classification for adult palliative care patients based on needs and resource use – a protocol for a cross-sectional multi-centre study
Farina Hodiamont, Caroline Schatz, Daniela Gesell, Reiner Leidl, Anne-Laure Boulesteix, Friedemann Nauck, Julia Wikert, Maximiliane Jansky, Steven Kranz, Claudia Bausewein
Correction to: Identifying palliative care needs of patients with non-communicable diseases in Indonesia using the SPICT tool: a descriptive cross-sectional study
Christantie Efendy, Jony Francisco Dos Santos Silva, Retna Siwi Padmawati
Chemotherapy during the last 30 days of life and the role of palliative care referral, a single center experience
Indryas Woldie, Tarek Elfiki, Swati Kulkarni, Colvin Springer, Eric McArthur, Nicole Freeman
Advance care planning in primary care: a retrospective medical record study among patients with different illness trajectories
Yvonne A. C. Bekker, Ankie F. Suntjens, Y. Engels, H. Schers, Gert P. Westert, A. Stef Groenewoud
Barriers to recruitment into emergency department-initiated palliative care: a sub-study of a multi-site, randomized controlled trial
Julia Brickey, Mara Flannery, Allison Cuthel, Jeanne Cho, Corita R. Grudzen, Caroline Blaum, Lauren Southerland, Jason Bischof, Kei Ouchi, Marie-Carmelle Elie, Robert Swor, Karen Jubanyik, Keith S. Goldfeld, Susan E. Cohen, Arum Kim, Joseph Lowy, Jennifer S. Scherer, Nancy E. Bael, Ellin Gafford, Joshua Lakin, Paige Barker, Angela Chmielewski, Jennifer Kapo, Ada L. Rubin, Isabel Castro, Holden Caplan, Simar Kaur Randhawa, Jordan Carpenter, Gary Theroux, Rebecca Murray, Laura Stuecher, Nora Daut, Jennifer Bonito, Marie Bakitas, Romilla Batra, Juanita Booker-Vaughns, Garrett K. Chan, J. Nicholas Dionne-Odom, Patrick Dunn, Robert Galvin, Ernest A. Hopkins III, Eric David Isaacs, Constance L. Kizzie-Gillet, Margaret M. Maguire, Neha Reddy Pidatala, Dawn Rosini, William K. Vaughan, Sally Welsh, Pluscedia G. Williams, Angela Young-Brinn, Martha Navarro
A qualitative exploration of “empathic labor” in Chinese hospice nurses
Ya-Ling Wang, Zi-Wei Yang, Yue-Zhong Tang, Hui-Ling Li, Lan-Shu Zhou
Characterizing uncertainty in goals-of-care discussions among black and white patients: a qualitative study
Annie T. Chen, Shelley Tsui, Rashmi K. Sharma
The impact of respite care from the perspectives and experiences of people with amyotrophic lateral sclerosis and their care partners: a qualitative study
Julia M. Wu, Mallorie T. Tam, Kirsten Buch, Fouziah Khairati, Laurissa Wilson, Elizabeth Bannerman, Alexandra Guerrero, Andrew Eisen, Wendy Toyer, Travis Stevenson, Julie M. Robillard
The influence of symptom severity of palliative care patients on their family caregivers
Inmaculada Valero-Cantero, Cristina Casals, Yolanda Carrión-Velasco, Francisco Javier Barón-López, Francisco Javier Martínez-Valero, María Ángeles Vázquez-Sánchez
Impact of ambulatory palliative care on symptoms and service outcomes in cancer patients: a retrospective cohort study
Rajvi Shah, Ekavi N. Georgousopoulou, Ziad Al-Rubaie, Merlina Sulistio, Hoong Tee, Adelaide Melia, Natasha Michael
Navigating a newly diagnosed cancer through clinician-facilitated discussions of health-related patient values: a qualitative analysis
Kathleen A. Lynch, Camila Bernal, Danielle R. Romano, Paul Shin, Judith E. Nelson, Molly Okpako, Kelley Anderson, Elizabeth Cruz, Anjali V. Desai, Virginia M. Klimek, Andrew S. Epstein
The relationship between anticipatory grief and illness uncertainty among Chinese family caregivers of patients with advanced lung cancer: a cross-sectional study
Jiaojiao Li, Di Sun, Xu Zhang, Lihua Zhao, Yanling Zhang, Hongmei Wang, Ni Ni, Guichun Jiang
A scoping review of the evidence for community-based dementia palliative care services and their related service activities
Niamh O’Connor, Siobhan Fox, W George Kernohan, Jonathan Drennan, Suzanne Guerin, Aileen Murphy, Suzanne Timmons
The level of knowledge about palliative care in Iranian patients with cancer
Dadgari Atena, Bagheri Imane, Rassouli Maryam, Salmani Naiire, Tahani Fatemeh
Personal positioning of oncology patients in palliative care: a mixed-methods study
Hellen Luiza Meireles Silva, Pedro Henrique Martins Valério, Cristiano Roque Antunes Barreira, Fernanda Maris Peria
Similarities and differences between China and Sweden regarding the core features of palliative care for people aged 60 or older: a systematic scoping review
Gerd Ahlström, Hongli Huang, Yu Luo, Christina Bökberg, Birgit H. Rasmussen, Eva I. Persson, Lian Xue, Le Cai, Pingfen Tang, Magnus Persson, Jingjing Huang
General population-based study on preferences towards end-of-life care in Southern Thailand: a cross-sectional survey
Aimorn Jiraphan, Jarurin Pitanupong
Oncologist responses to advanced cancer patients’ lived illness experiences and effects: an applied conversation analysis study
Jacqueline van Meurs, Wyke Stommel, Carlo Leget, Joep van de Geer, Evelien Kuip, Kris Vissers, Yvonne Engels, Anne Wichmann
What are the personal last wishes of people with a life-limiting illness? Findings from a longitudinal observational study in specialist palliative care
Anneke Ullrich, Wiebke Hollburg, Holger Schulz, Sven Goldbach, Annette Rommel, Marten Müller, Denise Kirsch, Katrin Kopplin-Foertsch, Julia Messerer, Louise König, Frank Schulz-Kindermann, Carsten Bokemeyer, Karin Oechsle
Strategies for knowledge translation of a palliative approach outside specialized palliative care services: a scoping review
Joakim Öhlén, Susanna Böling, Hanan HamdanAlshehri, Margareta Brännström, Ingela Henoch, Eva Hessman, Stefan Nilsson, Anneli Ozanne
Finnish nursing students’ perceptions of the development needs in palliative care education and factors influencing learning in undergraduate nursing studies – a qualitative study
Minna Hökkä, Juho T. Lehto, Helvi Kyngäs, Tarja Pölkki
Supportive and palliative care indicators tool (SPICT™) in a Danish healthcare context: translation, cross-cultural adaptation, and content validation
Heidi Bergenholtz, Anna Weibull, Mette Raunkiær
Evaluation of efficacy and safety of subcutaneous acetaminophen in geriatrics and palliative care (APAPSUBQ)
Joe El Khoury, Sani Hlais, Mariana Helou, Marie-Claire Mouhawej, Serge Barmo, Patricia Fadel, Aline Tohme
Gathering policymakers’ perspectives as an essential step in planning and implementing palliative care services at a national level: an example from a resource-limited country
Hammoda Abu-Odah, Alex Molassiotis, Justina Yat Wa Liu
Palliative care training: a national study of internal medicine residency program directors in the United Arab Emirates
Halah Ibrahim, Thana Harhara
Intensive end-of-life care in acute leukemia from a French national hospital database study (2017–2018)
Sébastien Salas, Vanessa Pauly, Margaux Damge, Veronica Orleans, Guillaume Fond, Régis Costello, Laurent Boyer, Karine Baumstarck
Does ethnicity affect pain management for people with advanced disease? A mixed methods cross-national systematic review of ‘very high’ Human Development Index English-speaking countries
Gemma Clarke, Emma Chapman, Jodie Crooks, Jonathan Koffman, Shenaz Ahmed, Michael I. Bennett
Advance directives in patients with head and neck cancer - status quo and factors influencing their creation
Moritz Allner, Magdalena Gostian, Matthias Balk, Robin Rupp, Clarissa Allner, Konstantinos Mantsopoulos, Christoph Ostgathe, Heinrich Iro, Markus Hecht, Antoniu-Oreste Gostian
Translation, adaptation, and validation of the Self-efficacy in Palliative Care scale (SEPC) for use in Swedish healthcare settings
Lisa Granat, Sofia Andersson, Emina Hadziabdic, Margareta Brännström, Anna Sandgren
Preferences for home care to enable home death among adult patients with cancer in late palliative phase – a grounded theory study
Toril Merete Nysæter, Cecilia Olsson, Tuva Sandsdalen, Bodil Wilde-Larsson, Reidun Hov, Maria Larsson
Making room for life and death at the same time – a qualitative study of health and social care professionals’ understanding and use of the concept of paediatric palliative care
Anette Winger, Elena Albertini Früh, Heidi Holmen, Lisbeth Gravdal Kvarme, Anja Lee, Vibeke Bruun Lorentsen, Nina Misvær, Kirsti Riiser, Simen A. Steindal
Evaluating quality of care at the end of life and setting best practice performance standards: a population-based observational study using linked routinely collected administrative databases
Mariska G. Oosterveld-Vlug, Marianne J. Heins, Manon S. A. Boddaert, Yvonne Engels, Agnes van der Heide, Bregje D. Onwuteaka-Philipsen, Anna K. L. Reyners, Anneke L. Francke
Palliative radiotherapy for gastric cancer bleeding: a multi-institutional retrospective study
Kazuya Takeda, Toru Sakayauchi, Masaki Kubozono, Yu Katagiri, Rei Umezawa, Takaya Yamamoto, Yojiro Ishikawa, Noriyoshi Takahashi, Yu Suzuki, Keita Kishida, Keiichi Jingu
Palliative Care education in Armenia: perspectives of first-year Armenian physician residents
Carolin Hagedorn, Artashes Tadevosyan, Stephen Mason, Frank Elsner
Chief complaints of patients with cancer who visit the emergency department over their oncologist’s outpatient clinic in South Korea
Min Hyun Son, Han Sol Chung
Palliative care in Uganda: quantitative descriptive study of key palliative care indicators 2018-2020
Ainur Kagarmanova, Mark Donald Mwesiga, Matthew L. Sisk, Cynthia Kabagambe, Sheba Nyakaisiki, Tom Marentette, Lacey N. Ahern
The training effects of a continuing education program on nurses’ knowledge and attitudes to palliative care: a cross sectional study
Xian Chen, Yuxi Zhang, Anne Arber, Xiaorong Huo, Jin Liu, Cuihua Sun, Ling Yuan, Xuemei Wang, Dan Wang, Jinfeng Wu, Junjie Du
Palliative sedation for children at end of life: a retrospective cohort study
Yang Chen, Jianjun Jiang, Wei Peng, Chuan Zhang
“My life became more meaningful”: confronting one’s own end of life and its effects on well-being—a qualitative study
Helena Kukla, Angélique Herrler, Julia Strupp, Raymond Voltz
Acceptability and feasibility of a pilot randomized controlled trial of Narrative e-Writing Intervention (NeW-I) for parent-caregivers of children with chronic life-threatening illnesses in Singapore
Oindrila Dutta, Geraldine Tan-Ho, Xinyi Casuarine Low, Toh Hsiang Benny Tan, Sashikumar Ganapathy, Josip Car, Ringo Moon-Ho Ho, Chun Yan Miao, Andy Hau Yan Ho
Integrating patient- and caregiver-reported outcome measures into the daily care routines of specialised outpatient palliative care: a qualitative study (ELSAH) on feasibility, acceptability and appropriateness
Hannah Seipp, Jörg Haasenritter, Michaela Hach, Dorothée Becker, Dania Schütze, Jennifer Engler, Cornelia Ploeger, Stefan Bösner, Katrin Kuss
Cancer patients spend more time at home and more often die at home with advance care planning conversations in primary health care: a retrospective observational cohort study
Bardo Driller, Bente Talseth-Palmer, Torstein Hole, Kjell Erik Strømskag, Anne-Tove Brenne
Predicting unplanned hospital readmission in palliative outpatients (PRePP) – study protocol of a longitudinal, prospective study to identify informal caregiver-related and structural predictors
Leopold Hentschel, André Wellesen, Luisa Christin Krause, Maria von Havranek, Michael Kramer, Beate Hornemann, Martin Bornhäuser, Ulrich Schuler, Katharina Schütte
Inpatient generalist palliative care during the SARS-CoV-2 pandemic – experiences, challenges and potential solutions from the perspective of health care workers
Manuela Schallenburger, Marie Christine Reuters, Jacqueline Schwartz, Marius Fischer, Carmen Roch, Liane Werner, Claudia Bausewein, Steffen T. Simon, Birgitt van Oorschot, Martin Neukirchen
Palliative care in home health care services and hospitals – the role of the resource nurse, a qualitative study
Håkon Johansen, Vigdis Abrahamsen Grøndahl, Ann Karin Helgesen
Prescription trends at the end of life in a palliative care unit: observational study
Tatiana Peralta, Maria Margarida Castel-Branco, Paulo Reis-Pina, Isabel Vitória Figueiredo, Marília Dourado
Bereaved parents’ perspectives on their child’s end-of-life care: connecting a self-report questionnaire and interview data from the nationwide Paediatric End-of-LIfe CAre Needs in Switzerland (PELICAN) study
Karin Zimmermann, Katrin Marfurt-Russenberger, Eva Cignacco, Eva Bergstraesser
Dying in hospital in Germany – optimising care in the dying phase: study protocol for a multi-centre bottom-up intervention on ward level
Kerstin Kremeike, Anneke Ullrich, Holger Schulz, Carolin Rosendahl, Kathleen Boström, Sukhvir Kaur, Nikolas Oubaid, Christina Plathe-Ignatz, Christin Leminski, Kira Hower, Holger Pfaff, Martin Hellmich, Karin Oechsle, Raymond Voltz
An exploration of person-centred approach in end-of-life care policies in England and Japan
Chao Fang, Miho Tanaka
Long-distance caregiving at the end of life: a protocol for an exploratory qualitative study in Germany
Franziska A. Herbst, Nils Schneider, Stephanie Stiel
Correction: Oncologist responses to advanced cancer patients’ lived illness experiences and effects: an applied conversation analysis study
Jacqueline van Meurs, Wyke Stommel, Carlo Leget, Joep van de Geer, Evelien Kuip, Kris Vissers, Yvonne Engels, Anne Wichmann
Possible age-related differences in healthcare professionals’ perspectives on younger and older patients’ autonomy and decision-making in the context of sedation in specialised palliative care: exploratory secondary qualitative content and linguistic conversation analysis of interviews with healthcare professionals
Sandra Kurkowski, Maria Heckel, Larissa Pfaller, Joachim Peters, Jeremias Bazata, Eva Schildmann, Christoph Ostgathe
Analysis of the unmet needs of Palestinian advanced cancer patients and their relationship to emotional distress: results from a cross-sectional study
Hammoda Abu-Odah, Alex Molassiotis, Justina Yat Wa Liu
A prospective cohort study assessing aggressive interventions at the end-of-life among patients with solid metastatic cancer
Chetna Malhotra, Filipinas Bundoc, Isha Chaudhry, Irene Teo, Semra Ozdemir, Eric Finkelstein, Rebecca A. Dent, Nesaretnam Barr Kumarakulasinghe, Yin Bun Cheung, Rahul Malhotra, Ravindran Kanesvaran, Alethea Chung Pheng Yee, Noreen Chan, Huei Yaw Wu, Soh Mun Chin, Hum Yin Mei Allyn, Grace Meijuan Yang, Patricia Soek Hui Neo, Richard Harding, Lee Lai Heng
Meeting ethical challenges with authenticity when engaging patients and families in end-of-life and palliative care research: a qualitative study
Matthew DeCamp, Ahmed Alasmar, Stacy Fischer, Jean S. Kutner
“I want to get myself as fit as I can and not die just yet” – Perceptions of exercise in people with advanced cancer and cachexia: a qualitative study
Kelcey A. Bland, Meinir Krishnasamy, Evelyn B. Parr, Stella Mulder, Peter Martin, Luc J. C. van Loon, Prue Cormie, Natasha Michael, Eva M. Zopf
Guidance for family about comfort care in dementia: a comparison of an educational booklet adopted in six jurisdictions over a 15 year timespan
Laura Bavelaar, Adrienne McCann, Nicola Cornally, Irene Hartigan, Sharon Kaasalainen, Hana Vankova, Paola Di Giulio, Ladislav Volicer, Marcel Arcand, Jenny T. van der Steen, Kevin Brazil
Carer preferences of route of administration of transmucosal diamorphine and willingness to take part in a randomised controlled trial: an interview study (DIPPER)
Liz Jamieson, Emily Harrop, Christina Liossi, Katherine Boyce, Lorraine Mitchell, Margaret Johnson, Yogini Jani, Victoria Akinyooye, Simon S. Skene, Ian C. K. Wong, Richard F. Howard, Kate Oulton
Eleven-year retrospective study characterizing patients with severe brain damage and poor neurological prognosis -role of physicians’ attitude toward life-sustaining treatment
Haruaki Wakatake, Koichi Hayashi, Yuka Kitano, Hsiang-Chin Hsu, Toru Yoshida, Yoshihiro Masui, Yasuhiko Taira, Shigeki Fujitani
Compassion in healthcare: an updated scoping review of the literature
Sydney Malenfant, Priya Jaggi, K. Alix Hayden, Shane Sinclair
A prognostic model using the neutrophil-albumin ratio and PG-SGA to predict overall survival in advanced palliative lung cancer
Changyan Feng, Huiqing Yu, Haike Lei, Haoyang Cao, Mengting Chen, Shihong Liu
The Promoting Resilience in Stress Management (PRISM) intervention for adolescents and young adults receiving hematopoietic cell transplantation: a randomized controlled trial protocol
Kaitlyn M. Fladeboe, Samantha Scott, Liam Comiskey, Chuan Zhou, Joyce P. Yi-Frazier, Abby R. Rosenberg
The impact of death and dying on the personhood of senior nurses at the National Cancer Centre Singapore (NCCS): a qualitative study
Chong Yao Ho, Nicole-Ann Lim, Yun Ting Ong, Alexia Sze Inn Lee, Min Chiam, Gillian Phua Li Gek, Shiva Sarraf-Yazdi, Stephen Mason, Lalit Krishna
What is the effectiveness and safety of mirtazapine versus escitalopram in alleviating cancer-associated poly-symptomatology (the MIR-P study)? A mixed-method randomized controlled trial protocol
Guillaume Economos, Marine Alexandre, Elise Perceau-Chambard, Laurent Villeneuve, Fabien Subtil, Julie Haesebaert, Olivier Glehen
“Discussion or silent accompaniment: a grounded theory study about voluntary stopping of eating and drinking in Switzerland”
Sabrina Stängle, André Fringer
Do palliative care patients and relatives think it would be acceptable to use Bispectral index (BIS) technology to monitor palliative care patients’ levels of consciousness? A qualitative exploration with interviews and focus groups for the I-CAN-CARE research programme
Anna-Maria Krooupa, Patrick Stone, Stephen McKeever, Kathy Seddon, Sarah Davis, Elizabeth L. Sampson, Adrian Tookman, Jonathan Martin, Vinnie Nambisan, Bella Vivat
Looking back: Identifying supportive care and unmet needs of parents of children receiving specialist paediatric palliative care from the bereavement perspective
Annika Bronsema, Tabea Theißen, Karin Oechsle, Julia Wikert, Gabriele Escherich, Stefan Rutkowski, Carsten Bokemeyer, Anneke Ullrich
Comparison of survival between patients receiving general outpatient palliative care and patients receiving other palliative care - analysis of data of a statutory health insurance data
Kilson Moon, Laura Rehner, Wolfgang Hoffmann, Neeltje van den Berg
Factors related to implementation of an interprofessional communication concept in thoracic oncology: a mixed-methods study
Katja Krug, Jasmin Bossert, Sophia Möllinger, Nicole Deis, Laura Unsöld, Anja Siegle, Matthias Villalobos, Laura Hagelskamp, Corinna Jung, Michael Thomas, Michel Wensing
Consultations’ demand for a hospital palliative care unit: how to increase appropriateness? Implementing and evaluating a multicomponent educational intervention aimed at increase palliative care complexity perception skill
Silvia Tanzi, Gianfranco Martucci, Cristina Autelitano, Sara Alquati, Carlo Peruselli, Giovanna Artioli
End of life care in UK care homes during the COVID-19 pandemic: a qualitative study
Kerry Hanna, Jacqueline Cannon, Mark Gabbay, Paul Marlow, Stephen Mason, Manoj Rajagopal, Justine Shenton, Hilary Tetlow, Clarissa Giebel
Correction: Possible age-related differences in healthcare professionals’ perspectives on younger and older patients’ autonomy and decision-making in the context of sedation in specialised palliative care: exploratory secondary qualitative content and linguistic conversation analysis of interviews with healthcare professionals
Sandra Kurkowski, Maria Heckel, Larissa Pfaller, Joachim Peters, Jeremias Bazata, Eva Schildmann, Christoph Ostgathe
Impact of resilience and social support on long-term grief in cancer-bereaved siblings: an exploratory study
Omid Rasouli, Unni Karin Moksnes, Trude Reinfjell, Odin Hjemdal, Mary-Elizabeth Bradley Eilertsen
The impact of covid-19 on out-of-hours adult hospice care: an online survey
Felicity Hasson, Paul Slater, Anne Fee, Tracey McConnell, Sheila Payne, Dori-Anne Finlay, Sonja McIlfatrick
Correction: Consultations’ demand for a hospital palliative care unit: how to increase appropriateness? Implementing and evaluating a multicomponent educational intervention aimed at increase palliative care complexity perception skill
Silvia Tanzi, Gianfranco Martucci, Cristina Autelitano, Sara Alquati, Carlo Peruselli, Giovanna Artioli
Psychosocial distress and the quality of life of cancer patients in two health facilities in Cameroon
Bachi-Ayukokang Ebob-Anya, Nahyeni Bassah
Control in patients with advanced cancer: an interpretative phenomenological study
Andrea Rodríguez-Prat, Denise Pergolizzi, Iris Crespo, Albert Balaguer, Josep Porta-Sales, Cristina Monforte-Royo
Improving transitions and outcomes of sepsis survivors (I-TRANSFER): a type 1 hybrid protocol
Melissa O’Connor, Erin E. Kennedy, Karen B. Hirschman, Mark E. Mikkelsen, Partha Deb, Miriam Ryvicker, Nancy A. Hodgson, Yolanda Barrón, Michael A. Stawnychy, Patrik A. Garren, Kathryn H. Bowles
Correlation between depression and intimacy in lung cancer patients and their family caregivers
Chuanzhen Li, Juan Yuan, Xiaoxiao Huang, Siwen Zhang, Yutong Hong, Jiudi Zhong
Current status of academic palliative medicine in Poland: a nationwide study
Wojciech Leppert, Aleksandra Sesiuk, Aleksandra Kotlińska–Lemieszek
“Building palliative care capacity in cancer treatment centres: a participatory action research”
Seema Rajesh Rao, Naveen Salins, Cynthia Ruth Goh, Sushma Bhatnagar
Development of the opioid self-management scale for advanced Cancer patients with pain and examination of its validity and reliability
Shiori Yoshida, Fumiko Sato, Keita Tagami, Rie Sasaki, Chikako Takahashi, Konosuke Sasaki, Shin Takahashi
Correction: Challenges faced by Chinese community nurses when providing home-based hospice and palliative care: a descriptive qualitative study
Jinxin Zhang, Yingjuan Cao, Mingzhu Su, Joyce Cheng, Nengliang Yao
Experiences of family caregivers of children with cancer while receiving home-based pediatric palliative care in Indonesia: a qualitative study
Christantie Effendy, Deby Kristiani Uligraff, Selvia Harum Sari, Fany Angraini, Lynna Chandra
Aggressiveness of care in the last days of life in the emergency department of a tertiary hospital in Korea
Jung Sun Kim, Sun Young Lee, Min Sung Lee, Shin Hye Yoo, Jeongmi Shin, Wonho Choi, Yejin Kim, Hyung Sook Han, Jinui Hong, Bhumsuk Keam, Dae Seog Heo
Cross-cultural conceptualization of a good end of life with dementia: a qualitative study
Mayumi Nishimura, Karen Harrison Dening, Elizabeth L. Sampson, Edison Iglesias de Oliveira Vidal, Wilson Correia de Abreu, Sharon Kaasalainen, Yvonne Eisenmann, Laura Dempsey, Kirsten J. Moore, Nathan Davies, Sascha R. Bolt, Judith M. M. Meijers, Natashe Lemos Dekker, Mitsunori Miyashita, Miharu Nakanishi, Takeo Nakayama, Jenny T. van der Steen
Effectiveness of the “Living with Cancer” peer self-management support program for persons with advanced cancer and their relatives: study protocol of a non-randomized stepped wedge study
K. L. Luu, F. E. Witkamp, D. Nieboer, E. M. Bakker, L. W. Kranenburg, C. C. D. van der Rijt, K. Lorig, A. van der Heide, J. A. C. Rietjens
Challenges encountered by family caregivers of prostate cancer patients in Cape Coast, Ghana: a descriptive phenomenological study
Benedicta Owoo, Jerry Paul Ninnoni, Evelyn Asamoah Ampofo, Abdul-Aziz Seidu
Equity consideration in palliative care policies, programs, and evaluation: an analysis of selected federal and South Australian documents
Sara Javanparast, Julia Anaf, Jennifer Tieman
Opportunities and challenges for advance care planning in strongly religious family-centric societies: a Focus group study of Indonesian cancer-care professionals
Diah Martina, Christina Yeni Kustanti, Rahajeng Dewantari, Noorwati Sutandyo, Rudi Putranto, Hamzah Shatri, Christantie Effendy, Agnes van der Heide, Judith A. C. Rietjens, Carin van der Rijt
Providing palliative care for residents in LTC facilities: an analysis of routine data of LTC facilities in Lower Saxony, Germany
Wenke Walther, Gabriele Müller-Mundt, Birgitt Wiese, Nils Schneider, Stephanie Stiel
Evaluating the perceived added value of a threefold intervention to improve palliative care for persons experiencing homelessness: a mixed-method study among social service and palliative care professionals
Hanna T. Klop, Anke J. E. de Veer, Jaap R. G. Gootjes, Dike van de Mheen, Igor R. van Laere, Marcel T. Slockers, Bregje D. Onwuteaka-Philipsen
Physician decision-making process about withholding/withdrawing life-sustaining treatments in paediatric patients: a systematic review of qualitative evidence
Yajing Zhong, Alice Cavolo, Veerle Labarque, Chris Gastmans
Family caregivers’ concerns about advance care planning for home-dwelling people with dementia: a cross-sectional observational study in Japan
Miharu Nakanishi, Taeko Nakashima, Yuki Miyamoto, Syudo Yamasaki, Atsushi Nishida
Characteristics and factors associated with mortality in palliative patients visiting the Emergency Department of a large tertiary hospital in Thailand
Apichaya Monsomboon, Trisuchon Chongwatcharasatit, Pratamaporn Chanthong, Tipa Chakorn, Nattakarn Prapruetkit, Usapan Surabenjawong, Chok Limsuwat, Wansiri Chaisirin, Onlak Ruangsomboon
Content of Serious Illness Care conversation documentation is associated with goals of care orders—a quantitative evaluation in hospital
Seema King, Maureen Douglas, Sidra Javed, Jocelyn Semenchuk, Sunita Ghosh, Fiona Dunne, Aliza Moledina, Konrad Fassbender, Jessica Simon
How blogs support the transfer of knowledge into practice in the field of dementia palliative care: a survey of facilitators and barriers
Aphie Rukundo, Siobhan Fox, Suzanne Guerin, George Kernohan, Jonathan Drennan, Niamh O’Connor, Suzanne Timmons
A systematic scoping review on patients’ perceptions of dignity
Keith Zi Yuan Chua, Elaine Li Ying Quah, Yun Xue Lim, Chloe Keyi Goh, Jieyu Lim, Darius Wei Jun Wan, Simone Meiqi Ong, Chi Sum Chong, Kennan Zhi Guang Yeo, Laura Shih Hui Goh, Ray Meng See, Alexia Sze Inn Lee, Yun Ting Ong, Min Chiam, Eng Koon Ong, Jamie Xuelian Zhou, Crystal Lim, Simon Yew Kuang Ong, Lalit Krishna
The development and feasibility study of Multidisciplinary Timely Undertaken Advance Care Planning conversations at the outpatient clinic: the MUTUAL intervention
Eline V. T. J. van Lummel, Claudia Savelkoul, Eva L. E. Stemerdink, Dave H. T. Tjan, Johannes J. M. van Delden
Community prescribing trends and prevalence in the last year of life, for people who die from cancer
Sarah E. E. Mills, Deans Buchanan, Peter T. Donnan, Blair H. Smith
An analysis of the construct validity and responsiveness of the ICECAP-SCM capability wellbeing measure in a palliative care hospice setting
Gareth Myring, Paul Mark Mitchell, W. George Kernohan, Sonja McIlfatrick, Sarah Cudmore, Anne M. Finucane, Lisa Graham-Wisener, Alistair Hewison, Louise Jones, Joanne Jordan, Laurie McKibben, Deborah H. L. Muldrew, Shazia Zafar, Joanna Coast
Do surrogates predict patient preferences more accurately after a physician-led discussion about advance directives? A randomized controlled trial
Catarina Sampaio Martins, Iva Sousa, Cláudia Barros, Alexandra Pires, Luisa Castro, Cristina da Costa Santos, Rui Nunes
Barthel Index is a valid and reliable tool to measure the functional independence of cancer patients in palliative care
Vinício dos Santos Barros, Daniela Bassi-Dibai, César Leonardo Ribeiro Guedes, Daniel Nunes Morais, Sabrina Marinho Coutinho, Gabriel de Oliveira Simões, Letícia Padilha Mendes, Plínio da Cunha Leal, Almir Vieira Dibai-Filho
Communicating with young children who have a parent dying of a life-limiting illness: a qualitative systematic review of the experiences and impact on healthcare, social and spiritual care professionals
Lasitha M. Wickramasinghe, Zhi Zheng Yeo, Poh Heng Chong, Bridget Johnston
Contribution of Eastern Mediterranean Region countries to palliative care journals from 1991 to 2020 and its relationship to the development of palliative care
Samy A. Alsirafy, Amneh D. Hassan, Mahmoud Y. Sroor, Ismail Samy, Somaia M. A. Mousa
Finding their place – general practitioners' experiences with palliative care—a Norwegian qualitative study
Anne Fasting, Irene Hetlevik, Bente Prytz Mjølstad
Interdisciplinary staff perceptions of advance care planning in long-term care homes: a qualitative study
Shirin Vellani, Elizabeth Green, Pereya Kulasegaram, Tamara Sussman, Abby Wickson-Griffiths, Sharon Kaasalainen
Adaptation, implementation, and mixed methods evaluation of an interprofessional modular clinical practice guideline for delirium management on an inpatient palliative care unit
Shirley H. Bush, Elise Skinner, Peter G. Lawlor, Misha Dhuper, Pamela A. Grassau, José L. Pereira, Alistair R. MacDonald, Henrique A. Parsons, Monisha Kabir
Implementing Advance Care Planning for dialysis patients: HIGHway project
Giselle Rodriguez de Sosa, Amanda Nicklas, Mae Thamer, Elizabeth Anderson, Naveena Reddy, JoAnn Stevelos, Michael J. Germain, Mark L. Unruh, Dale E. Lupu
Nurses’ perceptions of barriers and supportive behaviors in end-of-life care in the intensive care unit: a cross-sectional study
Dan-dan Xu, Dan Luo, Jie Chen, Ji-li Zeng, Xiao-lin Cheng, Jin Li, Juan-juan Pei, Fen Hu
How compassionate communities are implemented and evaluated in practice: a scoping review
Katia Dumont, Isabelle Marcoux, Émilie Warren, Farah Alem, Bea Alvar, Gwenvaël Ballu, Anitra Bostock, S. Robin Cohen, Serge Daneault, Véronique Dubé, Janie Houle, Asma Minyaoui, Ghislaine Rouly, Dale Weil, Allan Kellehear, Antoine Boivin
Professionals´ readiness for change to knowledge-based palliative care at nursing homes: a qualitative follow-up study after an educational intervention
Helene Åvik Persson, Gerd Ahlström, Anna Ekwall
Acute healthcare utilization in end-of-life among Swedish brain tumor patients – a population based register study
Magnus Lindskog, Torbjörn Schultz, Peter Strang
Barriers to and facilitators of ethical encounters at the end of life in a nursing home: an ethnographic study
Bodil Holmberg, Tove Godskesen
Evaluation of an advance care planning training program for practice professionals in Japan incorporating shared decision making skills training: a prospective study of a curricular intervention
Yuko Goto, Hisayuki Miura, Yasuhiro Yamaguchi, Joji Onishi
Palliative care and healthcare utilization among deceased metastatic lung cancer patients in U.S. hospitals
Jongwha Chang, Kyu-Tae Han, Mar Medina, Sun Jung Kim
Dental needs in palliative care and problems in dental hygienist education: survey study of palliative care ward homepage, university syllabus, and academic conference abstracts
Madoka Funahara, Sakiko Soutome, Mitsunobu Otsuru, Yuki Sakamoto, Hiromi Honda, Yumiko Ikegami, Nagato Natsume, Masahiro Umeda, Atsuko Nakamichi
Quality of life in childhood advanced cancer: from conceptualization to assessment with the Advance QoL tool
Josianne Avoine-Blondin, Émilie Dumont, Marc-Antoine Marquis, Michel Duval, Serge Sultan
Where would Canadians prefer to die? Variation by situational severity, support for family obligations, and age in a national study
Laura M. Funk, Corey S. Mackenzie, Maria Cherba, Nicole Del Rosario, Marian Krawczyk, Andrea Rounce, Kelli Stajduhar, S. Robin Cohen
Hospital-based evaluation of palliative care among patients with advanced cervical cancer: a cross-sectional study
Tolcha Kebebew, Annah Mosalo, Azwihangwisi Helen Mavhandu-Mudzusi
Perspectives, perceived self-efficacy, and preparedness of newly qualified physicians’ in practising palliative care—a qualitative study
Nwabata Oji, Tonia Onyeka, Olaitan Soyannwo, Piret Paal, Frank Elsner
Caregiver’s burden at the end of life of their loved one: insights from a longitudinal qualitative study among working family caregivers
Femmy M. Bijnsdorp, Bregje D. Onwuteaka-Philipsen, Cécile R. L. Boot, Allard J. van der Beek, H. Roeline W. Pasman
Demoralization level fluctuated at various time frame of radiotherapy for patients with different cancers: a longitudinal observational study
Pei-Ling Tang, Huey-Shyan Lin, Hsiu-Hung Wang, Li-Yu Hu, Fan-Hao Chou
Outpatient palliative care during the COVID-19 pandemic: a retrospective single centre analysis in Germany
Jonas Behnke, Philipp Friedrich Arndt, Michael John Cekay, Daniel Berthold, Birgit Herentin, Rio Dumitrascu, Ulf Sibelius, Bastian Eul
Psychometric validation of the death literacy index and benchmarking of death literacy level in a representative uk population sample
Lisa Graham-Wisener, Paul Toner, Rosemary Leonard, Jenny M. Groarke
Psychological distress and resilience in patients with advanced cancer during the Covid-19 pandemic: the mediating role of spirituality
Luka Mihic-Gongora, Paula Jiménez-Fonseca, Raquel Hernandez, Mireia Gil-Raga, Vilma Pacheco-Barcia, Aránzazu Manzano-Fernández, Susana Hernando-Polo, Mónica Antoñanzas-Basa, María J. Corral, María Valero-Arbizu, Caterina Calderon
Correction: Evaluation of an advance care planning training program for practice professionals in Japan incorporating shared decision making skills training: a prospective study of a curricular intervention
Yuko Goto, Hisayuki Miura, Yasuhiro Yamaguchi, Joji Onishi
The perspectives of oncology healthcare providers on the role of palliative care in a comprehensive cancer center
Trenley M. Anderson, Megan M. Farrell, Gabriel Moss, Mona Gupta, Stefanie Mooney, Katherine Daunov, Megan Savernick, Jan Frandsen, Kolby Verrona, Aryn Pecoraro, Cassandra Mance, Jorge Garcia, Richard T. Lee
Factors influencing terminal cancer patients’ autonomous DNR decision: a longitudinal statutory document and clinical database study
Ru-Yih Chen, Ying-Chun Li, Kuang-Chieh Hsueh, Fu-Wei Wang, Hong-Jhe Chen, Tzu-Ya Huang
A study to translate and validate the Thai version of the Victoria Respiratory Congestion Scale
Tuangporn Tantiwatniyom, Kittiphon Nagaviroj
Unmet needs in palliative care for patients with common non-cancer diseases: a cross-sectional study
Hyoeun Jang, Kyunghwa Lee, Sookyung Kim, Sanghee Kim
Translation, cultural adaptation, and validation of the Integrated Palliative Outcome Scale-renal (IPOS-r) to Czech
Zuzana Křemenová, Karolína Vlčková
“I want to live, but …” the desire to live and its physical, psychological, spiritual, and social factors among advanced cancer patients: evidence from the APPROACH study in India
Anjum S. Khan Joad, Arati Hota, Pratima Agarwal, Krimal Patel, Kinjal Patel, Jyotika Puri, Soye Shin
Communication skills training in advance care planning: a survey among medical students at the University of Antwerp
Mick van de Wiel, Katrien Bombeke, Annelies Janssens
Communication of palliative care needs in discharge letters from hospice providers to primary care: a multisite sequential explanatory mixed methods study
Katharine Weetman, Jeremy Dale, Sarah J. Mitchell, Claire Ferguson, Anne M. Finucane, Peter Buckle, Elizabeth Arnold, Gemma Clarke, Despoina-Elvira Karakitsiou, Tracey McConnell, Nikhil Sanyal, Anna Schuberth, Georgia Tindle, Rachel Perry, Bhajneek Grewal, Katarzyna A. Patynowska, John I. MacArtney
Modifiable factors of depressive-symptom trajectories from caregiving through bereavement
Fur-Hsing Wen, Wen-Chi Chou, Po-Jung Su, Ming-Mo Hou, Wen-Chi Shen, Mei Huang Hsu, Siew Tzuh Tang
The development of a questionnaire to assess the willingness of Chinese community health workers to implement advance care planning
Qunfang Miao, Bingyu Xing, Jingyi Li, Yanjuan Li
Medical decision-making in hospices from the viewpoint of physicians: results from two qualitative studies
Andreas Walker, Christof Breitsameter
Utilisation of after-hours telephone support in a home-based hospice service
Poh-Heng Chong, Jasmin Lee, Zhi-Zheng Yeo, Raymond Qishun Ang
The role of companion animals in advanced cancer: an interpretative phenomenological analysis
William R. G. McGhee, Martin Dempster, Lisa Graham-Wisener
“Respecting our patients’ choices”: making the organizational decision to participate in voluntary assisted dying provision: findings from semi-structured interviews with a rural community hospice board of management
Kirsten Auret, Terri J. Pikora, Kate Gersbach, Robert J. Donovan
Views of general practitioners on end-of-life care learning preferences: a systematic review
Shrikant Atreya, Soumitra S. Datta, Naveen Salins
The experiences of clinical nurses coping with patient death in the context of rising hospital deaths in China: a qualitative study
Jinxin Zhang, Yingjuan Cao, Mingzhu Su, Joyce Cheng, Nengliang Yao
Adolescents’ and young people’s needs and preferences for support when living with a parent with life-threatening cancer: a grounded theory study
Emily Bergersen, Maria Larsson, Malin Lövgren, Cecilia Olsson
Advance care planning and goals of care discussion: the perspectives of Brazilian oncologists
Laiane Moraes Dias, Mirella Rebello Bezerra, Williams Fernandes Barra, Ana Emília Vita Carvalho, Luísa Castro, Francisca Rego
Availability of and factors related to interventional procedures for refractory pain in patients with cancer: a nationwide survey
Yuko Uehara, Yoshihisa Matsumoto, Toshifumi Kosugi, Miyuki Sone, Naoki Nakamura, Akio Mizushima, Mitsunori Miyashita, Tatsuya Morita, Takuhiro Yamaguchi, Eriko Satomi
“SpezPat”- common advance directives versus disease-centred advance directives: a randomised controlled pilot study on the impact on physicians’ understanding of non-small cell lung cancer patients’ end-of-life decisions
Julia Felicitas Leni Koenig, Thomas Asendorf, Alfred Simon, Annalen Bleckmann, Lorenz Truemper, Gerald Wulf, Tobias R. Overbeck
Palliative care in the Eastern Mediterranean: comparative analysis using specific indicators
Miguel Antonio Sánchez-Cárdenas, Nasim Pourghazian, Eduardo Garralda, Danny van Steijn, Slim Slama, Edgar Benítez, Marie-Charlotte Bouësseau, Carlos Centeno
Virtual reality reduces pain in palliative care–A feasibility trial
Miriam Guenther, Dennis Görlich, Florian Bernhardt, Esther Pogatzki-Zahn, Burkhard Dasch, Janina Krueger, Philipp Lenz
A survey of hospice day services in the United Kingdom & Republic of Ireland : how did hospices offer social support to palliative care patients, pre-pandemic?
NM Bradley, CF Dowrick, M Lloyd-Williams
Gender differences in the intention to withhold life-sustaining treatments involving severe dementia for self and on behalf of parent or spouse
Duan-Rung Chen, Jih-Shuin Jerng, Daniel Fu-Chang Tsai, Yuchi Young
Characteristics and place of death in home care recipients in Germany – an analysis of nationwide health insurance claims data
Rieke Schnakenberg, Alexander Maximilian Fassmer, Katharina Allers, Falk Hoffmann
Palliative care symptoms, concerns and well-being of older people with frailty and complex care needs upon hospital discharge: a cross-sectional study
Kim de Nooijer, Nele Van Den Noortgate, Peter Pype, Lieve Van den Block, Lara Pivodic
The interRAI CHESS scale is comparable to the palliative performance scale in predicting 90-day mortality in a palliative home care population
Nicole Williams, Kirsten Hermans, Joachim Cohen, Anja Declercq, Ahmed Jakda, James Downar, Dawn M. Guthrie, John P. Hirdes
Psychometric evaluation of the Chinese version of advance care planning self-efficacy scale among clinical nurses
Zhen Yang, Huan Wang, Aiping Wang
Charitably funded hospices and the challenges associated with the COVID-19 pandemic: a mixed-methods study (CovPall)
Ian W Garner, Catherine Walshe, Lesley Dunleavy, Andy Bradshaw, Nancy Preston, Lorna K Fraser, Fliss EM Murtagh, Adejoke O Oluyase, Katherine E Sleeman, Mevhibe Hocaoglu, Sabrina Bajwah, Rachel L Chambers, Matthew Maddocks, Irene J Higginson
Parental perspectives on the grief and support needs of children and young people bereaved during the COVID-19 pandemic: qualitative findings from a national survey
Emily Harrop, Silvia Goss, Mirella Longo, Kathy Seddon, Anna Torrens-Burton, Eileen Sutton, Damian JJ Farnell, Alison Penny, Annmarie Nelson, Anthony Byrne, Lucy E. Selman
Prevalence and predictors of advance directive among terminally ill patients in Taiwan before enactment of Patient Right to Autonomy Act: a nationwide population-based study
Hui Yu Chang, Naomi Takemura, Pui Hing Chau, Chia-Chin Lin
Implementation of advance care planning decision aids for patients undergoing high-risk surgery: a field-testing study
Kanako Yamamoto, Toshimi Kaido, Tadao Yokoi, Gen Shimada, Takashi Taketa, Kazuhiro Nakayama
The explorations of the awareness, contemplation, self-Efficacy, and readiness of advance care planning, and its predictors in Taiwanese patients while receiving hemodialysis treatment
Li-Chen Chen, I-Te Tu, I-Chen Yu, Tao-Hsin Tung, Hsiang-Ping Huang, Yung-Chang Lin, Randal D. Beaton, Sui-Whi Jane
When cultural values meets professional values: a qualitative study of chinese nurses’ attitudes and experiences concerning death
Jiong Tu, Manxuan Shen, Ziying Li
Is progress being made on Canada’s palliative care framework and action plan? A survey of stakeholder perspectives
Barbara Pesut, Sally Thorne, Anne Huisken, David Kenneth Wright, Kenneth Chambaere, Carol Tishelman, Sunita Ghosh
Trajectories of Health-related quality of life in patients with Advanced Cancer during the Last Year of Life: findings from the COMPASS study
Jonathan Lee, Mahham Shafiq, Rahul Malhotra, Semra Ozdemir, Irene Teo, Chetna Malhotra
Association of perceived life satisfaction with attitudes toward life-sustaining treatment among the elderly in South Korea: a cross-sectional study
Il Yun, Hyunkyu Kim, Eun-Cheol Park, Suk-Yong Jang
Expert survey on coverage and characteristics of pediatric palliative care in Europe – a focus on home care
Julia Wager, Larissa Alice Kubek, Maria Brenner, Sara Calmanti, Carmel Doyle, Malin Lövgren, Ulrika Kreicbergs, Leontien Kremer, Philippe Le Moine, Guillaume Robert, Meggi Schuiling-Otten, Peter Schröder-Bäck, Eduard Verhagen, Boris Zernikow
Exploring the psychological and religious perspectives of cancer patients and their future financial planning: a Q-methodological approach
Kanwal Iqbal Khan, Qurat ul An Sabir, Ambreen Shafqat, Muhammad Aslam
Stories of paediatric palliative care: a qualitative study exploring health care professionals’ understanding of the concept
Kirsti Riiser, Heidi Holmen, Anette Winger, Simen A. Steindal, Charlotte Castor, Lisbeth Gravdal Kvarme, Anja Lee, Vibeke Bruun Lorentsen, Nina Misvaer, Elena Albertini Früh
Specialised Paediatric PAlliativE CaRe: Assessing family, healthcare professionals and health system outcomes in a multi-site context of various care settings: SPhAERA study protocol
Karin Zimmermann, Michael Simon, Katrin Scheinemann, Eva Maria Tinner Oehler, Michèle Widler, Simone Keller, Günther Fink, Stefan Mitterer, Anne-Kathrin Gerber, Stefanie von Felten, Eva Bergstraesser
The decisional balance, attitudes, and practice behaviors, its predicting factors, and related experiences of advance care planning in Taiwanese patients with advanced cancer
Yueh-Chun Chen, Hsiang-Ping Huang, Tao-Hsin Tung, Ming-Yang Lee, Randal D. Beaton, Yung-Chang Lin, Sui-Whi Jane
Correction: Charitably funded hospices and the challenges associated with the COVID-19 pandemic: a mixed-methods study (CovPall)
Ian W Garner, Catherine Walshe, Lesley Dunleavy, Andy Bradshaw, Nancy Preston, Lorna K Fraser, Fliss EM Murtagh, Adejoke O Oluyase, Katherine E Sleeman, Mevhibe Hocaoglu, Sabrina Bajwah, Rachel L Chambers, Matthew Maddocks, Irene J Higginson
Methadone switching for refractory cancer pain
Haiying Ding, Yu Song, Wenxiu Xin, Jiao Sun, Like Zhong, Qinfei Zhou, Chaoneng He, Liyan Gong, Luo Fang
Implementation of a threefold intervention to improve palliative care for persons experiencing homelessness: a process evaluation using the RE-AIM framework
Hanna T. Klop, Anke J. E. de Veer, Jaap R. G. Gootjes, Marieke Groot, Judith A. C. Rietjens, Bregje D. Onwuteaka-Philipsen
The end of life experiences of people living with socio-economic deprivation in the developed world: an integrative review
Sarah P Bowers, Ming Chin, Maire O’Riordan, Emma Carduff
Advance directives among cognitively impaired persons who had an amyloid PET scan and their care partners: a mixed-methods study
Emmanuelle Bélanger, Elyse Couch, Michaela S. Carroll, Nicole DePasquale, Emily A. Gadbois, Megan Shepherd-Banigan, Eric Jutkowitz, Courtney H. Van Houtven, Brenda L. Plassman, Terrie T. Wetle
A systematic review defining non-beneficial and inappropriate end-of-life treatment in patients with non-cancer diagnoses: theoretical development for multi-stakeholder intervention design in acute care settings
Jamie Jay-May Lo, Nicholas Graves, Joyce Huimin Chee, Zoe Jane-Lara Hildon
Correction: When cultural values meets professional values: a qualitative study of chinese nurses’ attitudes and experiences concerning death
Jiong Tu, Manxuan Shen, Ziying Li
A study of the factors associated with emergency department visits in advanced cancer patients receiving palliative care
Netsakao Dumnui, Kittiphon Nagaviroj, Thunyarat Anothaisintawee
A randomized controlled trial of a multi-modal palliative care intervention to promote advance care planning and psychological well-being among adults with advanced cancer: study protocol
Joanna J. Arch, Jill L. Mitchell, Sarah J. Schmiege, Michael E. Levin, Sarah R. Genung, Madeline S. Nealis, Regina M. Fink, Emma E. Bright, David J. Andorsky, Jean S. Kutner
Anticipatory grief and experience of providing at-home palliative care among informal caregivers of spouses in Croatia: a qualitative study
Jelena Bilić, Lea Skokandić, Livia Puljak
Assessing professional identity formation (PIF) amongst medical students in Oncology and Palliative Medicine postings: a SEBA guided scoping review
Kelly Jia Hui Teo, Mac Yu Kai Teo, Anushka Pisupati, Rui Song Ryan Ong, Chloe Keyi Goh, Claire Hui Xian Seah, You Ru Toh, Neha Burla, Natalie Song Yi Koh, Kuang Teck Tay, Yun Ting Ong, Min Chiam, Warren Fong, Limin Wijaya, Suzanne Pei Lin Goh, Lalit Kumar Radha Krishna
Correction: Perspectives, perceived self-efficacy, and preparedness of newly qualified physicians in practising palliative care—a qualitative study
Nwabata Oji, Tonia Onyeka, Olaitan Soyannwo, Piret Paal, Frank Elsner
Just and inclusive end-of-life decision-making for long-term care home residents with dementia: a qualitative study protocol
N. Sutherland, O. St. Amant, S. Dupuis, P. Kontos, E. Wiersma, M. Brennan
Low rates of structured advance care planning documentation in electronic health records: results of a single-center observational study
Adela Wu, Robert J. Huang, Gabriela Ruiz Colón, Chris Zembrzuski, Chirag B. Patel
Advance care planning for patients with cancer and family caregivers in Indonesia: a qualitative study
Diah Martina, Christina Yeni Kustanti, Rahajeng Dewantari, Noorwati Sutandyo, Rudi Putranto, Hamzah Shatri, Christantie Effendy, Agnes van der Heide, Carin C. D. van der Rijt, Judith A. C. Rietjens
Effectiveness and cost effectiveness of palliative care interventions in people with chronic heart failure and their caregivers: a systematic review
Stephanie Hicks, Martin Davidson, Nikolaos Efstathiou, Ping Guo
Research attitudes, practice and literacy among Kenyan palliative care healthcare professionals: an observational, cross-sectional online survey
RA Powell, Z Ali, Gikaara N, Qanungo S, ES Melikam, KB Cartmell
Willingness of patients with cancer pain to participate in end-of-life decisions: a multi-center cross-sectional study from three coastal provinces in southern China
Xi Ke, Hongyu Zhu, Yu Zhang, Ling Yang, Simei Shi, Fang Zhu, Huiyu Luo
Correction: Palliative care symptoms, concerns and well-being of older people with frailty and complex care needs upon hospital discharge: a cross-sectional study
Kim de Nooijer, Nele Van Den Noortgate, Peter Pype, Lieve Van den Block, Lara Pivodic
Development of the palliative care referral system: proposal of a tool for the referral of cancer patients to specialized palliative care
Alessandra Pigni, Sara Alfieri, Augusto Tommaso Caraceni, Ernesto Zecca, Viviana Fusetti, Antonino Tallarita, Cinzia Brunelli
Prevalence and clinical characteristics of patients with Advanced Chronic Illness and Palliative Care needs, identified with the NECPAL CCOMS-ICO© Tool at a Tertiary Care Hospital
Agnès Calsina-Berna, Jordi Amblàs Novellas, Jesús González-Barboteo, Ignasi Bardés Robles, Elba Beas Alba, Marisa Martínez-Muñoz, Rafael Madariaga Sánchez, Xavier Gómez Batiste Alentorn
Towards cataloguing and characterising advance care planning and end-of-life care resources
Edric Aram Ramirez-Valdez, Clare Leong, Frances Wu, Sarah Ball, Giulia Maistrello, Graham Martin, Zoë Fritz
Psychosocial factors affecting the bereavement experience of relatives of palliative-stage cancer patients: a systematic review
Marie Hasdenteufel, Bruno Quintard
Intention of healthcare providers to use video-communication in terminal care: a cross-sectional study
Richard M. H. Evering, Marloes G. Postel, Harmieke van Os-Medendorp, Marloes Bults, Marjolein E. M. den Ouden
Structured implementation of the Supportive and Palliative Care Indicators Tool in general practice – A prospective interventional study with follow-up
Kambiz Afshar, Katharina van Baal, Birgitt Wiese, Tanja Schleef, Stephanie Stiel, Gabriele Müller-Mundt, Nils Schneider
Presuppositions, cost–benefit, collaboration, and competency impacts palliative care referral in paediatric oncology: a qualitative study
Naveen Salins, Sean Hughes, Nancy Preston
State-wide implementation of patient-reported outcome measures (PROMs) in specialized outpatient palliative care teams (ELSAH): A mixed-methods evaluation and implications for their sustainable use
Hannah Seipp, Jörg Haasenritter, Michaela Hach, Dorothée Becker, Dania Schütze, Jennifer Engler, Stefan Bösner, Katrin Kuss
The APSY-SED study: protocol of an observational, longitudinal, mixed methods and multicenter study exploring the psychological adjustment of relatives and healthcare providers of patients with cancer with continuous deep sedation until death
L. Fasse, N. Roche, C. Flahault, M. Garrouste-Orgeas, M. Ximenes, A. Pages, A. Evin, S. Dauchy, F. Scotte, JB. Le Provost, F. Blot, C. Mateus
Neurological consultations via telemedicine for specialized outpatient palliative care (SOPC) at home and in hospice (TANNE project): study protocol for a randomized controlled trial
Shirin Gatter, Kirsten Brukamp, Daniela Adolf, Jürgen Zerth, Stefan Lorenzl, Christiane Weck
Implementation of a palliative care intervention for patients with COPD – a mixed methods process evaluation of the COMPASSION study
Johanna M. C. Broese, Rianne M. J. J. van der Kleij, Els M. L. Verschuur, Huib A. M. Kerstjens, Yvonne Engels, Niels H. Chavannes
DART: diagnostic-CT-enabled planning: a randomized trial in palliative radiation therapy (study protocol)
Melissa O’Neil, Timothy K. Nguyen, Joanna Laba, Robert Dinniwell, Andrew Warner, David A. Palma
Palliative care outpatients in a German comprehensive cancer center—identifying indicators for early and late referral
S. Müller, M. Fink, J. Hense, M. R. Salvador Comino, M. Schuler, M. Teufel, M. Tewes
Hospice preference of the family decision-makers for cancer patients in China: an exploratory study
Nian Yao, Hao Chen, Xiaobin Lai
Cultural adaptation and validation of the SPICT-ES™ instrument to identify palliative care needs in Chilean older adults
Ximena Farfán-Zuñiga, Melissa Zimmermann-Vildoso
Correction: Advanced care planning during the COVID-19 pandemic: ceiling of care decisions and their implications for observational data
Sam Straw, Melanie McGinlay, Michael Drozd, Thomas A. Slater, Alice Cowley, Stephe Kamalathasan, Nicholas Maxwell, Rory A. Bird, Aaron O. Koshy, Milos Prica, Peysh A. Patel, Samuel D. Relton, John Gierula, Richard M. Cubbon, Mark T. Kearney, Klaus K. Witte
Natural language processing and network analysis in patients withdrawing from life-sustaining treatments: a retrospective cohort study
Wei-Chin Tsai, Yun-Cheng Tsai, Kuang-Cheng Kuo, Shao-Yi Cheng, Jaw-Shiun Tsai, Tai-Yuan Chiu, Hsien-Liang Huang
Characteristics of salivary cortisol and alpha-amylase as psychobiological study outcomes in palliative care research
Marco Warth, Martin Stoffel, Friederike Koehler, Hubert J. Bardenheuer, Jens Kessler, Beate Ditzen
An analysis of the experiences of bereaved relatives and health care providers following palliative sedation: a study protocol for a qualitative international multicenter case study
M. Van der Elst, S. Payne, M. Arantzamendi, N. Preston, J. Hasselaar, C. Centeno, A. Belar, B. Jaspers, H. Brunsch, S. Surges, C. Adile, J. Menten
Pain Interventions for people with dementia: a quasi-experimental study
Frank Spichiger, Thomas Volken, Georg Bosshard, Nicole Zigan, Geneviève Blanc, Andreas Büscher, Martin Nagl-Cupal, Mathieu Bernard, Eve Rubli Truchard, Philip Larkin, Andrea Koppitz
Impact of interprofessional collaborative practice in palliative care on outcomes for advanced cancer inpatients in a resource-limited setting
Pitchayapa Pornrattanakavee, Tassaya Srichan, Kasan Seetalarom, Siriwimon Saichaemchan, Nittha Oer-areemitr, Naiyarat Prasongsook