Issue 1/2024
Content (120 Articles)
Using normalization process theory to evaluate the use of patient-centred outcome measures in specialist palliative home care—a qualitative interview study
Eva Lehmann-Emele, Maximiliane Jansky, Sabina Clapham, Susanne de Wolf-Linder, Claudia Bausewein, Farina Hodiamont
Quality of life and its predictors among patients with metastatic cancer in Bangladesh: the APPROACH survey
Rubayat Rahman, Lubna Mariam, Rebecca Su, Chetna Malhotra, Semra Ozdemir
Factors related to advance directives completion among cancer patients: a systematic review
Mobina Golmohammadi, Abbas Ebadi, Hadis Ashrafizadeh, Maryam Rassouli, Salman Barasteh
From comfort zone to front-line care: perspectives and reflections of community pharmacists entering home-based palliative care
Chien-Yi Wu, Yu-Hsuan Wu, Yi-Hui Chang, Min-Shiow Tsay, Hung-Cheng Chen, Yu-Ling Kuo, Hui-Ya Hsieh
The role of specialty palliative care interdisciplinary team members in acute care decision support: a qualitative study protocol
Meredith MacMartin, Jingyi Zhang, Amber Barnato
Appropriate medication use in Dutch terminal care: study protocol of a multicentre stepped-wedge cluster randomized controlled trial (the AMUSE study)
M.A.M. van Hylckama Vlieg, I.E. Pot, H.P.J. Visser, M.A.C. Jong, M.J.D.L. van der Vorst, B.J. van Mastrigt, J.N.A. Kiers, P.P.P.H. van den Homberg, M.F. Thijs-Visser, E. Oomen-de Hoop, A. van der Heide, P.H.M. van der Kuy, C.C.D. van der Rijt, E.C.T. Geijteman
Pain management in German hospices: a cross-sectional study
Christian Volberg, Henning Schmidt-Semisch, Julian Maul, Jens Nadig, Martin Gschnell
Treatment of agitation in terminally ill patients with intranasal midazolam versus subcutaneous midazolam: study protocol for a randomised controlled open-label monocentric trial (MinTU Study)
Hanna Hirschinger, Evelyn Jaeger, Stefanie Nittka, Svetlana Hetjens, Christine Lorenz, Constanze Remi, Susanne Saussele, Wolf-K. Hofmann, Deniz Gencer, Tobias Boch
Status and predictors of medical students’ knowledge and attitude towards palliative care in Jordan: a cross-sectional study
Wejdan Y. Younis, Ayman M. Hamdan-Mansour
Correction: Exploring the adaptive leisure activities of classified nursing model in elderly colon cancer patients: a perspective on interactive care
Yun‑Zhao Lin, Po Chen, Meng‑Meng Lin, Jia‑Li Chen, Min‑Min Shi, Feng Guo
Comparing quality indicator rates for home care clients receiving palliative and end-of-life care before and during the Covid-19 pandemic
Julia Kruizinga, Kathryn Fisher, Dawn Guthrie, Melissa Northwood, Sharon Kaasalainen
“You can’t die here”: an exploration of the barriers to dying-in-place for structurally vulnerable populations in an urban centre in British Columbia, Canada
Kelli I. Stajduhar, Melissa Giesbrecht, Ashley Mollison, Kara Whitlock, Piotr Burek, Fraser Black, Jill Gerke, Naheed Dosani, Simon Colgan
Characterization of patients with brain metastases referred to palliative care
Rebecca A. Harrison, Michael Tang, Kaoswi Karina Shih, Maria Khan, Lily Pham, Aline Rozman De Moraes, Barbara J. O’Brien, Roland Bassett, Eduardo Bruera
Taiwanese family members’ bereavement experience following an expected death: a systematic review and narrative synthesis
Hui-Ju Liang, Qian Xiong, Bader Nael Remawi, Nancy Preston
Family caregivers’ preferences for support when caring for a family member with cancer in late palliative phase who wish to die at home – a grounded theory study
Toril Merete Nysaeter, Cecilia Olsson, Tuva Sandsdalen, Reidun Hov, Maria Larsson
Perspectives of telemedicine-based services among family caregivers of patients with end-of-life cancer: a qualitative study in mainland China
Junchen Guo, Xianghua Xu, Chaoyi Liu, Ying Wang, Yongyi Chen
Measuring palliative care integration in Malawi through service provision, access, and training indicators: the Waterloo Coalition Initiative
Fatia Kiyange, Mackuline Atieno, Emmanuel B. K. Luyirika, Zipporah Ali, Helena Musau, Lameck Thambo, John Y. Rhee, Eve Namisango, William E. Rosa
The complex intervention day hospice — a quality-assured study on the implementation, realization, and benefits with model character for Germany (IMPULS) using the example of “Day hospice Adiuvantes”
Ulrich Kaiser, Ursula Vehling-Kaiser, Ana Hoffmann, Moritz Fiedler, Alexandra Hofbauer, Michael Rechenmacher, Anne Benning, Michael Koller, Florian Kaiser
Palliative care training in medical undergraduate education: a survey among the faculty
Kadri Suija, Stephen R. Mason, Frank Elsner, Piret Paal
The impact of a nursing spiritual care module on nursing competence: an experimental design
Ali H. Abusafia, Adam Mahmoud Salameh Khraisat, Ola K. Tableb, Khalid Al-Mugheed, Amany Anwar Alabdullah, Sally Mohammed Farghaly Abdelaliem
The impact of an integrated early palliative care telehealth intervention on the quality of life of heart failure patients: a randomized controlled feasibility study
Arvin Mirshahi, Marie Bakitas, Meysam Khoshavi, Ali Khanipour-Kencha, Seyed Mohammad Riahi, Rachel Wells, J. Nicholas Odom, Shahrzad Ghiyasvandian, Masoumeh Zakerimoghadam
Correction: A shared decision-making model in pediatric palliative care: a qualitative study of healthcare providers
Siyu Cai, Lei Cheng, Ruixin Wang, Xuan Zhou, Xiaoxia Peng
Bereaved parents’ perceptions of memory making: a qualitative meta-synthesis
Dan-dan Xu, Guang-xiong Zhang, Xin-bo Ding, Jing Ma, Ya-xi Suo, Yang-yao Peng, Ji-li Zeng, Miao Liu, Rui-tong Hou, Jin Li, Fen Hu
Dialysis decision-making process by Chinese American patients at an urban, academic medical center: a retrospective chart review
Abigail L. Lebovitz, Steven A. Schwab, Michelle M. Richardson, Klemens B. Meyer, Benjamin Sweigart, Tamara Vesel
Correction: Caring for persons with dementia: a qualitative study of the needs of carers following care recipient discharge from hospital
Janice Du Preez, Antonio Celenza, Christopher Etherton-Beer, Paula Moffat, Elissa Campbell, Glenn Arendts
Non-invasive ventilation in the care of patients with chronic obstructive pulmonary disease with palliative care needs: a scoping review
Simen A. Steindal, Kristin Hofsø, Hanne Aagaard, Kari L. Mariussen, Brith Andresen, Vivi L. Christensen, Kristin Heggdal, Marte-Marie Wallander Karlsen, Monica E. Kvande, Nina M. Kynø, Anne Kathrine Langerud, Mari Oma Ohnstad, Kari Sørensen, Marie Hamilton Larsen
Characteristics and clinical challenges in patients with substance use disorder in palliative care—experience from a tertiary center in a high-income country
Laura Marti, Ellen Hünerwadel, Bigna Hut, Sebastian M. Christ, Fabienne Däster, Markus Schettle, Annina Seiler, David Blum, Caroline Hertler
ENABLE-SG (Educate, Nurture, Advise, Before Life Ends for Singapore) as a proactive palliative care model: protocol for a hybrid type 1 effectiveness-implementation randomized wait-list controlled trial
Yu Ke, Yin Bun Cheung, Marie Bakitas, J. Nicholas Odom, Elaine Lum, Daniel Shao Weng Tan, Tira J. Tan, Eric Finkelstein, Hong Choon Oh, Siqin Zhou, Grace Meijuan Yang
Improving end-of-life care for people with dementia: a mixed-methods study
Zoi Triandafilidis, Sally Carr, Daneill Davis, Sarah Yeun-Sim Jeong, Jacinta Hensby, Daniel Wong, John Attia, Nicholas Goodwin
Children with cancer at the end of life in a middle-income country: integrated pediatric palliative care improves outcomes
María Isabel Cuervo-Suarez, Daniela Cleves, Natalia Duque-Nieto, Angélica Claros-Hulbert, Karen Molina-Gómez, Jhon Edwar Bolaños-Lopez, María Elena Tello-Cajiao, Justin N Baker, Michael J. McNeil, Ximena García-Quintero
Potentially burdensome care at the end-of-life for cancer decedents: a retrospective population-wide study
Rebecca J Mitchell, Geoffrey P Delaney, Gaston Arnolda, Winston Liauw, Jane L Phillips, Reidar P Lystad, Reema Harrison, Jeffrey Braithwaite
Developing a best-practice agenda for music therapy research to support informal carers of terminally ill patients pre- and post-death bereavement: a world café approach
Tracey McConnell, Kathryn Gillespie, Noah Potvin, Audrey Roulston, Jenny Kirkwood, Daniel Thomas, Angela McCullagh, Lorna Roche, Marcella O’Sullivan, Kate Binnie, Amy Clements-Cortés, Lauren DiMaio, Zara Thompson, Giorgos Tsiris, Ranka Radulovic, Lisa Graham-Wisener
The effectiveness of aesthetic care training on nurses’ perceptions of end-of-life care in patients with cancer: a quasi-experimental study
Sina Shahmohammadi, Parvin Mangolian shahrbabaki, Maryam Radmehr, Sedigheh Khodabandeh Shahraki
The experience of patients with hematological malignancy in their terminal stage: a phenomenological study from Jordan’s perspective
Mohammad M. Alnaeem, Anas Shehadeh, Abdulqadir J. Nashwan
Impact of palliative care at end-of-life Covid-19 patients – a small-scale pioneering experience
João Luís Rodrigues-Ribeiro, Luísa Castro, Filipa Pinto-Ribeiro, Rui Nunes
Experiential training course on spirituality for multidisciplinary palliative care teams in a hospital setting: a feasibility study
Silvia Tanzi, Giovanna Artioli, Elisabetta Bertocchi, Giulietta Luul Balestra, Luca Ghirotto, Mario Cagna, Filippo Laurenti, Simona Sacchi
Hospitalizations and re-hospitalizations at the end-of-life among cancer patients; a retrospective register data study
J. Singh, E. K. Grov, M. Turzer, A. Stensvold
How can technology be used to support communication in palliative care beyond the covid-19 pandemic: a mixed-methods national survey of palliative care healthcare professionals
Sarah Stanley, Anne Finucane, Anthony Thompson, Amara Callistus Nwosu
Towards a set of competencies in palliative care nursing in Spain: what’s getting in the way of consensus?
Lourdes Guanter-Peris, Eulàlia Alburquerque-Medina, Montserrat Solà-Pola, Margarida Pla
Characteristics and outcomes of patients with do-not-resuscitate and physician orders for life-sustaining treatment in a medical intensive care unit: a retrospective cohort study
Song-I Lee, Ye-Rin Ju, Da Hyun Kang, Jeong Eun Lee
Exploring spirituality, religion and life philosophy among parents of children receiving palliative care: a qualitative study
Pau Miquel, Ignasi Clemente, Mario Ciccorossi
Advance care planning with older Norwegian adults in their homes: a narrative ethnographic study
Line Elida Festvåg, Beate Lie Sverre, Ørnulf Paulsen, Grethe Eilertsen
Embodied decisions unfolding over time: a meta-ethnography systematic review of people with cancer’s reasons for delaying or declining end-of-life care
Jessica Young, Antonia Lyons, Richard Egan, Kevin Dew
Primary data on symptom burden and quality of life among elderly patients at risk of dying during unplanned admissions to an NHS hospital: a cohort study using EuroQoL and the integrated palliative care outcome scale
Bridget M. Johnston, Mary Miller, Charles Normand, Magnolia Cardona, Peter May, Aoife C. Lowney
Validation of the Collett-Lester fear of death scale in occupational therapy students: psychometric testing and implications for palliative care education
Daniel Gutiérrez-Sánchez, Inmaculada López-Leiva, Stella Martín-de-las-Heras, Leticia Rubio, Jaime Martín-Martín
Serious illness communication skills training for emergency physicians and advanced practice providers: a multi-method assessment of the reach and effectiveness of the intervention
Oluwaseun Adeyemi, Alexander D. Ginsburg, Regina Kaur, Allison M. Cuthel, Nicole Zhao, Nina Siman, Keith S Goldfeld, Lillian Liang Emlet, Charles DiMaggio, Rebecca Liddicoat Yamarik, Jean-Baptiste Bouillon-Minois, Joshua Chodosh, Corita R. Grudzen, Lauren T. Southerland, Peg Gulker, Andrew Johnston, Arvind Venkat, David Chuirazzi, John O’Neill, Kelly Szabo, Rachel Urosek, Ashley Deutsch, Elizabeth Schoenfeld, Melissa Shaw, Tricia Guerino, Alayna Perko, Lauren Cameron- Comasco, Michael Banish, Pamela Sloan, Robert Swor, Ronny Otero, Aaron Elliot, Kim Reiner, Nicole Hurd, Brittany Ballaron, Kei Ouchi, Natasha Egorova, Andrew Dundin, Niza Troncoso, Robin Powell, Barbara J. Debbage, Deborah Johnson, John Powell, Julie Cooper, Doretha Graham-Brekke, Erin Zimny, Glenn Tokarski, Joseph Miller, Olive Sadia, Christopher Richardson, Jennifer Kroll, Jennifer Siller, Jessica Fleischer-Black, Karen Evelyn, Laura Stark, Lauren Gordon, Lynne Richardson, Michelle Lin, Audrey Tan, Alicia Sommer, Caitlin Loprinzi-Brauer, Heather Heaton, Laura Walker, MFernanda Bellolio, Molly Christenson, Donna Shelley, Audie Liametz, Barry Rosenthal, Ian Wittman, Kathy Peterson, Lila Hageman-Sheehan, Rajneesh Gulati, Robert Smeltz, Staci Mandola, Stephen Stark, Suchismita Datta, Susan Cohen, Tisha Thompson, Katharine Lawrence, Abraham A. Brody, Leora Horwitz, Nicholas Genes, Ashley Shreves, Deidre Bolden, Kelly Hutchinson, Maureen Gang, Rebecca Goett, Sangeeta Lamba, Eric Isaacs, Jennifer Harris, Karen Martinez, Matthew Shaw, Rebecca Murray, Rosemarie Fernandez, Shannon Bledsoe, Travis Wood, Matthew Ryan, Benjamin S. Abella, Elizabeth Long, Gabriela De Hoyos, Julie Uspal, M. Bradley Falk, Phillip Landis, Ahmed Elsayem, Cecilia Yniguez, Danielle Milling, Denise Langabeer, Sorayah Bourenane, Terri Cridge, Troy Madsen, Emilia Boutsioulis, Hannah Nofsinger, Karen Jubanyik, Theresa Cohen, Marie-Carmelle Elie
Communication strategies for adults in palliative care: the speech-language therapists’ perspective
Cátia Dias, Inês Tello Rodrigues, Hernâni Gonçalves, Ivone Duarte
Spiritual care needs and their attributes among Chinese inpatients with advanced breast cancer based on the Kano model: a descriptive cross-sectional study
Zhangyi Wang, Xiaochun Tang, Liping Li, Huifang Zhou, Yue Zhu, Lamei Chen, Tao Su, Mengru Liu, Xiaoli Pang, Xiaoke Yi, Li Liu, Jingjing Liu, Mengsu Liu
Advancing screening tool for hospice needs and end-of-life decision-making process in the emergency department
Yu-Jing Wang, Chen-Yang Hsu, Amy Ming-Fang Yen, Hsiu-Hsi Chen, Chao-Chih Lai
Comparison of actigraphy with a sleep protocol maintained by professional caregivers and questionnaire-based parental judgment in children and adolescents with life-limiting conditions
Larissa Alice Kubek, Benedikt Claus, Boris Zernikow, Julia Wager
Behaviors and influencing factors of Chinese oncology nurses towards hospice care: a cross-sectional study based on social cognitive theory in 2022
Jing Zhao, Yu Wang, Binbin Xiao, Fucheng Ye, Jianfei Chen, Yingjuan Huang, Ting Li, Xiaoli Chen, Hongmei Ma, Qing Zhang, Zhijie Zou
Prognostic model for overall survival of head and neck cancer patients in the palliative phase
Arta Hoesseini, Aniel Sewnaik, Boyd N. van den Besselaar, Jang Zhang, Nikki van Leeuwen, Jose A. Hardillo, Robert Jan Baatenburg de Jong, Marinella P. J. Offerman
Music therapy for supporting informal carers of adults with life-threatening illness pre- and post-bereavement; a mixed-methods systematic review
K. Gillespie, T. McConnell, A. Roulston, N. Potvin, C. Ghiglieri, I. Gadde, M. Anderson, J. Kirkwood, D. Thomas, L. Roche, M. O.’Sullivan, A. McCullagh, L. Graham-Wisener
Digital advance care planning with severe mental illness: a retrospective observational cohort analysis of the use of an electronic palliative care coordination system
Rea Kaur Gill, Joanne Droney, Gareth Owen, Julia Riley, Lucy Stephenson
The state of transience, and its influence on the wish to die of advanced disease patients: insights from a qualitative phenomenological study
Alazne Belar, Maria Arantzamendi, Philip Larkin, Iñaki Saralegui, Yolanda Santesteban, Nerea Alonso, Marina Martínez, Carlos Centeno
Feasibility of a physical exercise intervention for patients on a palliative care unit: a critical analysis
Inken Schwonke, Nils Freitag, Paula Aschendorf, Kerstin Wucharz, Johanna Thieme, Iris Appelmann, Moritz Schumann, Frank Elsner
Practitioner perspectives on the use of acceptance and commitment therapy for bereavement support: a qualitative study
Nikolaus Willi, Anna Pancoast, Ioanna Drikaki, Xueying Gu, David Gillanders, Anne Finucane
Avoidable emergency department visits among palliative care cancer patients: novel insights from Saudi Arabia and the Middle East
Hagir Salama, Mohamed H. Omer, Areez Shafqat, Ahmed Binahmed, Ghadah Muhammed Alghamdi, Mohammed Saeed, Mohamed Madani Alfagi, Bayan Saeed Alqahtany, Feda Alshoshan, Dalia Salih, Ahmed Hashim, Mohammad Alkaiyat, Abdullah Algarni
“The great escape”: how an incident of elopement gave rise to trauma informed palliative care for a patient experiencing multiple disadvantage
Sam Quinn, Libby Ferguson, Derek Read, Naomi Richards
The influence of ambient environmental factors on breakthrough Cancer pain: insights from remote health home monitoring and a proposed data analytic approach
Nutta Homdee, John Lach, Leslie Blackhall, Virginia LeBaron
“Tie your camel first, then rely on God”: reconceptualizing Javanese Islamic values to support palliative care at home
Raditya Bagas Wicaksono, Amalia Muhaimin, Dick L. Willems, Jeannette Pols
Correction: Towards a set of competencies in palliative care nursing in Spain: what’s getting in the way of consensus?
Lourdes Guanter‑Peris, Eulàlia Alburquerque‑Medina, Montserrat Solà‑Pola, Margarida Pla
Experiences with and needs for aftercare following the death of a loved one in the ICU: a mixed-methods study among bereaved relatives
Sophie C. Renckens, Bregje D. Onwuteaka-Philipsen, Zina Jorna, Hanna T. Klop, Chantal du Perron, Lia van Zuylen, Monique A.H. Steegers, Birkitt L. ten Tusscher, Margo M.C. van Mol, Wouter de Ruijter, H. Roeline Pasman
Development of the Parental Experience with Care for Children with Serious Illnesses (PRECIOUS) quality of care measure
Felicia Jia Ler Ang, Mihir Gandhi, Truls Ostbye, Chetna Malhotra, Rahul Malhotra, Poh Heng Chong, Zubair Amin, Cristelle Chu-Tian Chow, Teresa Shu Zhen Tan, Komal Tewani, Eric Andrew Finkelstein
Attitude of nurses towards palliative care and its associated factors in Ethiopia, systematic review and meta-analysis
Addisu Getie, Manay Ayalneh, Tigabu Munye Aytenew, Melaku Bimerew, Adam Wondmieneh
A questionnaire survey on the implementation of palliative care in the emergency department in China
Yan Li, Huadong Zhu, Jun Xu, Jing Yang
When dying does not go well: a qualitative study
Christof Breitsameter
Nurse assistants’ perception of caring for older persons who are dying in their own home
Magdalena Annersten Gershater, Josefin Brenner, Malin Nordberg, Ami Hommel
Perceived communication efficacy and unmet needs for chemotherapy-associated symptom management in patients with lung and colorectal cancer: a cross-sectional study
Kai Zeng, Yaping Zhong, Xiaofang Chen, Lili Zhang
A Dutch paediatric palliative care guideline: a systematic review and evidence-based recommendations for symptom treatment
Kim C. van Teunenbroek, Renée L. Mulder, Inge M. L. Ahout, Karen G. C. B. Bindels-de Heus, Catharina M. Delsman-van Gelder, Annemie F. S. Galimont-Collen, Marinka A. R. de Groot, Katja M. J. Heitink-Polle, Jeffry Looijestijn, Maarten O. Mensink, Selma Mulder, Jolanda H. Schieving, Antoinette Y. N. Schouten-van Meeteren, Johannes M. A. Verheijden, Hester Rippen, Brigitt C. M. Borggreve, Leontien C. M. Kremer, A. A. Eduard Verhagen, Erna M. C. Michiels, Mattijs W. Alsem, Esther M. M. van den Bergh, Govert Brinkhorst, Arno Colenbrander, Linda Corel, Jennifer van Dijk, Laurent Favié, Karin Geleijns, Saskia J. Gischler, Lisette ‘t Hart-Kerkhoffs, Hanneke Heinen, Cindy Joosen, Carla C. M. Juffermans, Hennie Knoester, Barbara de Koning, Tom de Leeuw, Hilda Mekelenkamp, Mariska P. Nieuweboer, Sebastianus B. J. Oude Ophuis, Suzanne G. M. A. Pasmans, Elise M. van de Putte, Emmy Räkers, Irma M. Rigter, Christel D. Rohrich, Elisabeth J. Ruijgrok, Kim van der Schoot, Ellen Siegers-Bennink, Henriette Sjouwke, Tanneke Snijders-Groenendijk, Suzanne van de Vathorst, Leo van Vlimmeren, Anne Weenink, Willemien de Weerd, Ilse H. Zaal-Schuller
Effects of dignity therapy on psychological distress and wellbeing of palliative care patients and family caregivers – a randomized controlled study
Annina Seiler, Manuel Amann, Caroline Hertler, Sebastian M. Christ, Markus Schettle, Barbara Meier Kaeppeli, Judith Jung-Amstutz, Christel Nigg, Bernhard C. Pestalozzi, Patrick Imesch, Reinhard Dummer, David Blum, Josef Jenewein
Impact of confrontation to patient suffering and death on wellbeing and burnout in professionals: a cross-sectional study
Anne-Catherine Delafontaine, Royce Anders, Bernard Mathieu, Cornelia Rolli Salathé, Benjamin Putois
A comparison of the prevalence of dry mouth and other symptoms using two different versions of the Edmonton Symptom Assessment System on an inpatient palliative care unit
Ragnhild Elisabeth Monsen, Anners Lerdal, Hilde Nordgarden, Caryl L. Gay, Bente Brokstad Herlofson
Integrating palliative care education in pulmonary rehabilitation: a randomized controlled study protocol
M. Aurora Mendes, Daisy J. A. Janssen, Alda Marques
Measuring patients’ medical treatment preferences in advance care planning: development and validation of the Treat-Me-ACP instrument – a secondary analysis of a cluster-randomized controlled trial
Julia Jaschke, Rieke Schnakenberg, Katharina Silies, Almuth Berg, Änne Kirchner, Falk Hoffmann, Gabriele Meyer, Sascha Köpke, Juliane Köberlein-Neu
Noninvasive monitoring technologies to identify discomfort and distressing symptoms in persons with limited communication at the end of life: a scoping review
Xu Jingyuan, Hanneke J. A. Smaling, Jan W. Schoones, Wilco P. Achterberg, Jenny T. van der Steen
The roles of French community pharmacists in palliative home care
Isabelle Cuchet, Michael Dambrun, Sabrina Bedhomme, Chantal Savanovitch, Hélène Vaillant Roussel, Axelle Maneval
Symptoms and quality of life among men starting treatment for metastatic castration-resistant prostate cancer – a prospective multicenter study
Ulrika Rönningås, Maja Holm, Per Fransson, Lars Beckman, Agneta Wennman-Larsen
Adding spontaneity to organizations – what hospice volunteers contribute to everyday life in German inpatient hospice and palliative care units: a qualitative study
Armin Nassehi, Irmhild Saake, Christof Breitsameter, Anna Bauer, Niklas Barth, Isabell Reis
Core components of end-of-life care in nursing education programs: a scoping review
Zahra Taheri-Ezbarami, Fateme Jafaraghaee, Ali Karimian Sighlani, Seyed Kazem Mousavi
Identifying cancer patients who received palliative care using the SPICT-LIS in medical records: a rule-based algorithm and text-mining technique
Pawita Limsomwong, Thammasin Ingviya, Orapan Fumaneeshoat
The employment of art therapy to develop empathy and foster wellbeing for junior doctors in a palliative medicine rotation - a qualitative exploratory study on acceptability
Eng-Koon Ong, U-Tong Emily Tan, Min Chiam, Wen Shan Sim
Views of admitted palliative care patients and their clinicians on corneal donation discussions: a qualitative content analysis of semi-structured interviews
Chirag Patel, Mitchell Nicmanis, Anna Chur-Hansen, Gregory B. Crawford
Providing holistic end-of-life care for people with a history of problem substance use: a mixed methods cohort study of interdisciplinary service provision and integrated care
Lucy Webb, Gemma Yarwood, Gary Witham, Sam Wright, Sarah Galvani
What helps or hinders effective end-of-life care in adult intensive care units in Middle Eastern countries? A systematic review
Nabat Almalki, Breidge Boyle, Peter O’Halloran
Facilitators and barriers of implementing end-of-life care volunteering in a hospital in five European countries: the iLIVE study
Berivan Yildiz, Agnes van der Heide, Misa Bakan, Grethe Skorpen Iversen, Dagny Faksvåg Haugen, Tamsin McGlinchey, Ruthmarijke Smeding, John Ellershaw, Claudia Fischer, Judit Simon, Eva Vibora-Martin, Inmaculada Ruiz-Torreras, Anne Goossensen, Simon Allan, Pilar Barnestein-Fonseca, Mark Boughey, Andri Christen, Nora Lüthi, Martina Egloff, Steffen Eychmüller, Sofia C. Zambrano, Gustavo G. De Simone, Eline E. C. M. Elsten, Eric C. T. Geijteman, Iris Pot, Carin C. D. van der Rijt, Carl Johan Fürst, Birgit H. Rasmussen, Maria E. C. Schelin, Christel Hedman, Gabriel Goldraij, Svandis Iris Halfdanardottir, Valgerdur Sigurdardottir, Tanja Hoppe, Melanie Joshi, Julia Strupp, Raymond Voltz, Maria Luisa Martín-Roselló, Silvi Montilla, Verónica I. Veloso, Vilma Tripodoro, Katrin Ruth Sigurdardottir, Hugo M. van der Kuy, Lia van Zuylen, Michael Berger, Rosemary Hughes, Hana Kodba-Ceh, Ida J. Korfage, Urska Lunder, Stephen Mason, Beth Morris, Kjersti Solvåg
Cross-cultural adaptation and psychometric validation of point-of-care outcome assessment tools in Chinese palliative care clinical practice
Yunyun Dai, Claire E Johnson, Jinfeng Ding, Yongyi Chen, Alanna Connolly, Lianjun Wang, Barbara A Daveson
Unlocking timely palliative care: assessing referral practices and barriers at a ghanaian teaching hospital
Tabitha Gyanewaa Quaidoo, Barbara Adu, Merri Iddrisu, Frema Osei-Tutu, Candace Baaba, Yekua Quiadoo, Collins Atta Poku
It’s about living a normal life: parents’ quality of life when their child has a life-threatening or life-limiting condition - a qualitative study
Trine Brun Kittelsen, Vibeke Bruun Lorentsen, Charlotte Castor, Anja Lee, Lisbeth Gravdal Kvarme, Anette Winger
Quality of palliative and end-of-life care: a quantitative study of temporal trends and differences according to illness trajectories in Quebec (Canada)
Arnaud Duhoux, Emilie Allard, Denis Hamel, Martin Sasseville, Sarah Dumaine, Morgane Gabet, Marie-Hélène Guertin
Experiences of patients with advanced cancer coping with chronic pain: a qualitative analysis
Wanting Xia, Meijun Ou, Yongyi Chen, Furong Chen, Mengyao Yan, Zhirui Xiao, Xianghua Xu
“Being an informal caregiver – strengthening resources”: mixed methods evaluation of a psychoeducational intervention supporting informal caregivers in palliative care
Tabea Theißen, Anneke Ullrich, Karin Oechsle, Julia Wikert, Carsten Bokemeyer, Aneta Schieferdecker
Misconception between palliative care and euthanasia among Thai general practitioners: a cross-sectional study
Lalita Chutarattanakul, Viriya Jarusukthavorn, Nisachol Dejkriengkraikul, Myo Zin Oo, Soe Sandi Tint, Chaisiri Angkurawaranon, Nutchar Wiwatkunupakarn
Impact of training on knowledge, confidence and attitude amongst community health volunteers in the provision of community-based palliative care in rural Kenya
Hussein Elias, Evelyne Kisembe, Sarah Nyariki, Ivan Kiplimo, James Amisi, Juli Boit, Allison Tarus, Naseem Mohamed, Kenneth Cornetta
Building public engagement and access to palliative care and advance care planning: a qualitative study
Rachel Black, Felicity Hasson, Paul Slater, Esther Beck, Sonja McIlfatrick
Optimizing breathlessness management in amyotrophic lateral sclerosis: insights from a comprehensive systematic review
Catarina Bico Filipe, Nuno Reis Carreira, Paulo Reis-Pina
Patients’ experiences with shared decision-making in home-based palliative care – navigation through major life decisions
Sandra Jahr Svendsen, Ellen Karine Grov, Katrine Staats
Distinct experiences and care needs of advanced cancer patients with good ECOG performance status: a qualitative phenomenological study
Ping Chen, Mingfu Ding, Changlin Li, Yujuan Long, Deng Pan, Li Ma, Taiguo Liu, Cheng Yi
Perspectives from patients with chronic lung disease on a telehealth-facilitated integrated palliative care model: a qualitative content analysis study
Jeannette Kates, Carrie Tompkins Stricker, Kristin L. Rising, Alexzandra T. Gentsch, Ellen Solomon, Victoria Powers, Venise J. Salcedo, Brooke Worster
Continuous palliative sedation until death: a qualitative study of palliative care clinicians’ experiences
Alexandra Guité-Verret, Jessica Boivin, Andrew M. R. Hanna, James Downar, Shirley H. Bush, Isabelle Marcoux, Diane Guay, Diane Tapp, Julie Lapenskie, Bruno Gagnon
End-of-life care in Germany between 2016 and 2020 – A repeated cross-sectional analysis of statutory health insurance data
Katharina van Baal, Melissa Hemmerling, Jona Theodor Stahmeyer, Stephanie Stiel, Kambiz Afshar
Chinese and Belgian pediatricians’ perspectives toward pediatric palliative care: an online survey
Yajing Zhong, Alice Cavolo, Veerle Labarque, Bernadette Dierckx de Casterlé, Chris Gastmans
Rural healthcare professionals’ participation in Medical Assistance in Dying (MAiD): beyond a binary decision
Monique Sedgwick, Julia Brassolotto, Alessandro Manduca-Barone
Appropriate use of medication among home care adult cancer patients at end of life: a retrospective observational study
Amani El Mughrabi, Sewar S. Salmany, Batool Aljarrat, Ala’a Dabbous, Haya Ayyalawwad
Development and validation of impact of early integration of palliative care and oncology(IEI PCO) questionnaire: a survey for medical oncologists and nurses
Abdulrahman Abdulaziz Abdullah, Wafaa Mostafa Abd-El-Gawad, Sobhi Mostafa AboSerea, Fatma AbdelShakor Ali, Saima Ali
Cancer-related fatigue and activities of daily living: lessons learned from the COVID-19 pandemic
Iveth Urbano Chamorro, Julio C. de la Torre-Montero
Differences in end-of-life care patterns between types of hospice used for cancer patients: a retrospective cohort study
Il Yun, Eun-Cheol Park, Chung Mo Nam, Jaeyong Shin, Suk-Yong Jang, Sung-In Jang
Development of palliative care clinical practice guidelines and referral care pathways for primary care practitioners in Pakistan
Syeda Amrah Hashmi, Russell Seth Martins, Annum Ishtiaq, Nashia Ali Rizvi, Mohsin Ali Mustafa, Alina Pervez, Ayra Siddiqui, Syeda Fatima Shariq, Sarah Nadeem, Adil H. Haider, Muhammad Atif Waqar
Correction: “Being an informal caregiver – strengthening resources”: mixed methods evaluation of a psychoeducational intervention supporting informal caregivers in palliative care
Tabea Theißen, Anneke Ullrich, Karin Oechsle, Julia Wikert, Carsten Bokemeyer, Aneta Schieferdecker
Virtual consultations: the experience of oncology and palliative care healthcare professionals
Heledd Lewis, Mark Taubert, Annmarie Nelson
End of life decision making when home mechanical ventilation is used to sustain breathing in Motor Neurone Disease: patient and family perspectives
Eleanor Wilson, Jonathan Palmer, Alison Armstrong, Ben Messer, Edward Presswood, Christina Faull
Consensus-based recommendations for the development and expansion of palliative day care clinics in Germany: results of a Delphi study
Stephanie Stiel, Alexandra Ernst, Beate Apolinarski, Hanna A. A. Röwer, Lea de Jong, Birte Burger, Sabrina Schütte, Nils Schneider, Kathrin Damm, Jona T. Stahmeyer, Franziska A. Herbst
Barriers and drivers of public engagement in palliative care, Scoping review
Pilar Barnestein-Fonseca, Alicia Nebro-Gil, Virginia P. Aguiar-Leiva, Eva Víbora-Martín, Inmaculada Ruiz-Torreras, Maria Luisa Martín-Rosello, Agnes van der Heide, Vilma Tripodoro, Verónica I. Veloso, Silvina Montilla, Gustavo G. De Simone, Gabriel Goldraij, Mark Boughey, Michael Berger, Claudia Fischer, Judit Simon, Raymond Voltz, Melanie Joshi, Julia Strupp, Svandis Iris Halfdanardottir, Valgerdur Sigurdardottir, Berivan Yildiz, Ida J. Korfage, Anne Goossensen, C. van Zuylen, Eric C. T. Geijteman, Simon Allan, Dagny Faksvåg Haugen, Grethe Skorpen Iversen, Urska Lunder, Misa Bakan, Hana Kodba-Ceh, Carl Johan Fürst, Maria E. C. Schelin, Steffen Eychmüller, Sofia C. Zambrano, John Ellershaw, Stephen Mason, Tamsin McGlinchey, Ruthmarijke Smeding
Children with palliative care needs – the landscape of the nordic countries
Anette Winger, Heidi Holmen, Dröfn Birgisdóttir, Camilla Lykke, Malin Lövgren, Mette Asbjoern Neergaard, Marika Grönroos, Johanna Kero, Oddný Kristinsdóttir, Ásta Bjarney Pétursdóttir, Charlotte Castor
Use of the supportive and palliative care indicators tool (SPICT™) for end-of-life discussions: a scoping review
Melanie Mahura, Brigitte Karle, Louise Sayers, Felicity Dick-Smith, Rosalind Elliott
Generalist, specialist, or expert in palliative care? A cross-sectional open survey on healthcare professionals’ self-description
Ingrid van Zuilekom, Suzanne Metselaar, Fleur Godrie, Bregje Onwuteaka-Philipsen, Harmieke van Os-Medendorp