BMC Palliative Care

A prospective study on the characteristics and subjects of pediatric palliative care case management provided by a hospital based palliative care team

Charissa T. Jagt – van Kampen, Marijke C. Kars, Derk A. Colenbrander, Diederik K. Bosman, Martha A. Grootenhuis, Huib N. Caron, Antoinette Y. N. Schouten-van Meeteren

Managing ‘shades of grey’: a focus group study exploring community-dwellers’ views on advance care planning in older people

Natasha Michael, Clare O’Callaghan, Emma Sayers

Limiting treatment and shortening of life: data from a cross-sectional survey in Germany on frequencies, determinants and patients’ involvement

Birte Malena Dahmen, Jochen Vollmann, Stephan Nadolny, Jan Schildmann

Enhancing the quality of life for palliative care cancer patients in Indonesia through family caregivers: a pilot study of basic skills training

Martina Sinta Kristanti, Sri Setiyarini, Christantie Effendy

Barriers to venipuncture-induced pain prevention in cancer patients: a qualitative study

Marilène Filbet, Philip Larkin, Claire Chabloz, Anne Chirac, Léa Monsarrat, Murielle Ruer, Wadih Rhondali, Cyrille Collin

Exploring healthcare assistants’ role and experience in pain assessment and management for people with advanced dementia towards the end of life: a qualitative study

Bannin De Witt Jansen, Kevin Brazil, Peter Passmore , Hilary Buchanan, Doreen Maxwell, Sonja J. McIlfatrick, Sharon M. Morgan, Max Watson, Carole Parsons

Opinions about the new law on end-of-life issues in a sample of french patients receiving palliative care

Augustin Boulanger, Théo Chabal, Marie Fichaux, Mireille Destandau, Jean Marc La Piana, Pascal Auquier, Karine Baumstarck, Sébastien Salas

Development the Care Evaluation Scale Version 2.0: a modified version of a measure for bereaved family members to evaluate the structure and process of palliative care for cancer patient

Mitsunori Miyashita, Maho Aoyama, Misato Nakahata, Yuji Yamada, Mutsumi Abe, Kazuhiro Yanagihara, Akemi Shirado, Mariko Shutoh, Yoshiaki Okamoto, Jun Hamano, Aoi Miyamoto, Saki Yoshida, Kazuki Sato, Kei Hirai, Tatsuya Morita

Factors that influence advance directives completion amongst terminally ill patients at a tertiary hospital in Kenya

Stephen Omondi, John Weru, Asim Jamal Shaikh, Gerald Yonga

Clinical trials in palliative care: a systematic review of their methodological characteristics and of the quality of their reporting

Raquel Bouça-Machado, Madalena Rosário, Joana Alarcão, Leonor Correia-Guedes, Daisy Abreu, Joaquim J. Ferreira

Clinical decision making in the recognition of dying: a qualitative interview study

Paul Taylor, Dawn Dowding, Miriam Johnson

A good resource for parents, but will clinicians use it?: Evaluation of a resource for paediatric end-of-life decision making

Clare Delany, Vicki Xafis, Lynn Gillam, Jo-anne Hughson, Jenny Hynson, Dominic Wilkinson

Undergraduate curriculum in palliative medicine at Tampere University increases students’ knowledge

Juho T. Lehto, Kati Hakkarainen, Pirkko-Liisa Kellokumpu-Lehtinen, Tiina Saarto

Measuring geographical accessibility to palliative and end of life (PEoLC) related facilities: a comparative study in an area with well-developed specialist palliative care (SPC) provision

Clare Pearson, Julia Verne, Claudia Wells, Giovanna M. Polato, Irene J Higginson, Wei Gao

The experience of providing end of life care at a children’s hospice: a qualitative study

Tracey McConnell, Sam Porter

Erratum to: When parents face the death of their child: a nationwide cross-sectional survey of parental perspectives on their child’s end-of life care

Karin Zimmermann, Eva Bergstraesser, Sandra Engberg, Anne-Sylvie Ramelet, Katrin Marfurt-Russenberger, Nicolas Von der Weid, Chantal Grandjean, Patricia Fahrni-Nater, Eva Cignacco

Primary care physicians’ educational needs and learning preferences in end of life care: A focus group study in the UK

Lucy Ellen Selman, Lisa Jane Brighton, Vicky Robinson, Rob George, Shaheen A. Khan, Rachel Burman, Jonathan Koffman

To be a trained and supported volunteer in palliative care – a phenomenological study

Ulrika Söderhamn, Sylvi Flateland, Marthe Fensli, Ragnhild Skaar

Palliative gastrectomy is beneficial in selected cases of metastatic gastric cancer

Jun-Te Hsu, Jian-Ann Liao, Huei-Chieh Chuang, Tai-Di Chen, Tsung-Hsing Chen, Chia-Jung Kuo, Chun-Jung Lin, Wen-Chi Chou, Ta-Sen Yeh, Yi-Yin Jan

Critical attitudes and beliefs towards guidelines amongst palliative care professionals – results from a national survey

Helen Kalies, Rieke Schöttmer, Steffen T. Simon, Raymond Voltz, Alexander Crispin, Claudia Bausewein

Is admittance to specialised palliative care among cancer patients related to sex, age and cancer diagnosis? A nation-wide study from the Danish Palliative Care Database (DPD)

Mathilde Adsersen, Lau Caspar Thygesen, Anders Bonde Jensen, Mette Asbjoern Neergaard, Per Sjøgren, Mogens Groenvold

Identification of drug combinations administered by continuous subcutaneous infusion that require analysis for compatibility and stability

Andrew Dickman, Matthew Bickerstaff, Richard Jackson, Jennifer Schneider, Stephen Mason, John Ellershaw

A process evaluation of systematic risk and needs assessment for caregivers in specialised palliative care

Kia Toft Thomsen, Mai-Britt Guldin, Mette Kjærgaard Nielsen, Chaitali Laura Ollars, Anders Bonde Jensen

Organization-level principles and practices to support spiritual care at the end of life: a qualitative study

Paul Holyoke, Barry Stephenson

Palliative sedation challenging the professional competency of health care providers and staff: a qualitative focus group and personal written narrative study

Danièle Leboul, Régis Aubry, Jean-Michel Peter, Victor Royer, Jean-François Richard, Frédéric Guirimand

Family members of deceased palliative care patients receiving bereavement anniversary cards: a survey on the recipient’s reactions and opinions

Swantje Goebel, Sandra Stephanie Mai, Christina Gerlach, Ulrike Windschmitt, Karl-Heinz Feldmann, Martin Weber

Pain Intervention for people with Dementia in nursing homes (PID): study protocol for a quasi-experimental nurse intervention

Andrea Koppitz, Georg Bosshard, Geneviève Blanc, Hannele Hediger, Sheila Payne, Thomas Volken

Palliative care for people with dementia in the terminal phase: a mixed-methods qualitative study to inform service development

Jenny T. van der Steen, Natashe Lemos Dekker, Marie-José H. E. Gijsberts, Laura H. Vermeulen, Margje M. Mahler, B. Anne-Mei The

Keep in Touch (KIT): feasibility of using internet-based communication and information technology in palliative care

Qiaohong Guo, Beverley Cann, Susan McClement, Genevieve Thompson, Harvey Max Chochinov

The impact of the inpatient practice of continuous deep sedation until death on healthcare professionals’ emotional well-being: a systematic review

Sarah Ziegler, Hannes Merker, Margareta Schmid, Milo A. Puhan

Quality of life, psychological burden, needs, and satisfaction during specialized inpatient palliative care in family caregivers of advanced cancer patients

Anneke Ullrich, Lilian Ascherfeld, Gabriella Marx, Carsten Bokemeyer, Corinna Bergelt, Karin Oechsle

Palliative care in the neonatal unit: neonatal nursing staff perceptions of facilitators and barriers in a regional tertiary nursery

Meegan Kilcullen, Susan Ireland

What are the differences among occupational groups related to their palliative care-specific educational needs and intensity of interprofessional collaboration in long-term care homes?

S. Kaasalainen, T. Sussman, M. Bui, N. Akhtar-Danesh, R. D. Laporte, L. McCleary, A. Wickson Griffiths, K. Brazil, D. Parker, V. Dal Bello-Haas, A. Papaioannou, J. O’Leary

Improving hospital-based end of life care processes and outcomes: a systematic review of research output, quality and effectiveness

Amy Waller, Natalie Dodd, Martin H. N. Tattersall, Balakrishnan Nair, Rob Sanson-Fisher

Degree of dyspnoea at admission and discharge in patients with heart failure and respiratory diseases

Lourdes Vicent, Juan Manuel Nuñez Olarte, Luis Puente-Maestu, Alicia Oliva, Juan Carlos López, Andrea Postigo, Irene Martín, Raquel Luna, Francisco Fernández-Avilés, Manuel Martínez-Sellés

Integration and activity of hospital-based palliative care consultation teams: the INSIGHT multicentric cohort study

Pascale Vinant, Ingrid Joffin, Laure Serresse, Sophie Grabar, Hélène Jaulmes, Malika Daoud, Gabriel Abitbol, Pascale Fouassier, Isabelle Triol, Sylvie Rostaing, Marie-Dominique Brette, Isabelle Colombet, Anne Abel, Gabriel Abitbol, Anne Bauby, Bénédicte de Corbière, Marie-Dominique Brette, Nathalie Chaillot, Malika Daoud, Barbara Edda-Messi, Adeline Ferry, Pascale Fouassier, Pascale Gauthier, Marie-Yvonne Guillard, Hélène Jeaulmes, Charles Jousselin, Michele Levi-Soussan, Didier Mercier, Vincent Montheil, Nathalie Moreau, Delphine Prenat-Molimard, Véronique Morize, Yolaine Raffray, Pascale Tocheport, Emilie Trabuc, Dominique Varin, Fabienne Weiler

Nurse-led navigation to provide early palliative care in rural areas: a pilot study

Barbara Pesut, Brenda Hooper, Marnie Jacobsen, Barbara Nielsen, Miranda Falk, Brian P. O ‘Connor

A survey of palliative medicine education in Japan’s undergraduate medical curriculum

Yoichi Nakamura, Yusuke Takamiya, Mari Saito, Koichi Kuroko, Tatsuko Shiratsuchi, Kenzaburo Oshima, Yuko Ito, Satoshi Miyake

When a parent dies – a systematic review of the effects of support programs for parentally bereaved children and their caregivers

Ann-Sofie Bergman, Ulf Axberg, Elizabeth Hanson

Socio-cultural contexts of end- of- life conversations and decisions: bereaved family cancer caregivers’ retrospective co-constructions

Jennifer Nyawira Githaiga, Leslie Swartz

Relatives’ perceived quality of palliative care: comparisons between care settings in which patients die

Dolf de Boer, Jolien M. Hofstede, Anke J. E. de Veer, Natasja J. H. Raijmakers, Anneke L. Francke

Path modeling of knowledge, attitude and practice toward palliative care consultation service among Taiwanese nursing staff: a cross-sectional study

Hsueh-Hsing Pan, Hsiu-Ling Shih, Li-Fen Wu, Yu-Chun Hung, Chi-Ming Chu, Kwua-Yun Wang

Which online format is most effective for assisting Baby Boomers to complete advance directives? A randomised controlled trial of email prompting versus online education module

Sandra L. Bradley, Jennifer J. Tieman, Richard J. Woodman, Paddy A. Phillips

Validation of a modified VOICES survey to measure end-of-life care quality: the CaregiverVoice survey

Hsien Seow, Daryl Bainbridge, Melissa Brouwers, Gregory Pond, John Cairney

Engaging patients and families to create a feasible clinical trial integrating palliative and heart failure care: results of the ENABLE CHF-PC pilot clinical trial

Marie Bakitas, J. Nicholas Dionne-Odom, Salpy V. Pamboukian, Jose Tallaj, Elizabeth Kvale, Keith M. Swetz, Jennifer Frost, Rachel Wells, Andres Azuero, Konda Keebler, Imatullah Akyar, Deborah Ejem, Karen Steinhauser, Tasha Smith, Raegan Durant, Alan T. Kono

Can digital stories go where palliative care research has never gone before? A descriptive qualitative study exploring the application of an emerging public health research method in an indigenous palliative care context

Lisa Williams, Merryn Gott, Tess Moeke-Maxwell, Stella Black, Shuchi Kothari, Sarina Pearson, Tessa Morgan, Matua Rawiri Wharemate, Whaea Whio Hansen

What are families most grateful for after receiving palliative care? Content analysis of written documents received: a chance to improve the quality of care

María Aparicio, Carlos Centeno, José Miguel Carrasco, Antonio Barbosa, María Arantzamendi

Honoring the voices of bereaved caregivers: a Metasummary of qualitative research

Lorraine Holtslander, Sharon Baxter, Kelly Mills, Sarah Bocking, Tina Dadgostari, Wendy Duggleby, Vicky Duncan, Peter Hudson, Agatha Ogunkorode, Shelley Peacock

Translation and cultural adaptation of the Integrated Palliative care Outcome Scale including cognitive interviewing with patients and staff

Ingela Beck, Ulrika Olsson Möller, Marlene Malmström, Anna Klarare, Henrik Samuelsson, Carina Lundh Hagelin, Birgit Rasmussen, Carl Johan Fürst

Animal-assisted therapy at a University Centre for Palliative Medicine – a qualitative content analysis of patient records

Andrea Schmitz, Melanie Beermann, Colin R. MacKenzie, Katharina Fetz, Christian Schulz-Quach

Erratum to: BMC Palliative Care, Vol. 17

Advance directives, proxy opinions, and treatment restrictions in patients with severe stroke

Floor A. S. de Kort, Marjolein Geurts, Paul L. M. de Kort, Julia H. van Tuijl, Ghislaine J. M. W. van Thiel, L. Jaap Kappelle, H. Bart van der Worp

Rehabilitation for cancer patients at Black Lion hospital, Addis Ababa, Ethiopia: a cross-sectional study

Teshager Worku, Zuriash Mengistu, Agumasie Semahegn, Gezahegn Tesfaye

Reducing hospital admissions in remote Australia through the establishment of a palliative and chronic disease respite facility

Timothy A. Carey, Mick Arundell, Kellie Schouten, John S. Humphreys, Fred Miegel, Simon Murphy, John Wakerman

Self-management support and eHealth for patients and informal caregivers confronted with advanced cancer: an online focus group study among nurses

Vina N. Slev, H. Roeline W. Pasman, Corien M. Eeltink, Cornelia F. van Uden-Kraan, Irma M. Verdonck-de Leeuw, Anneke L. Francke

Behaviors in Advance Care Planning and ACtions Survey (BACPACS): development and validation part 1

Aliya Kassam, Maureen L. Douglas, Jessica Simon, Shannon Cunningham, Konrad Fassbender, Marta Shaw, Sara N. Davison

Self-confidence and knowledge of German ICU physicians in palliative care – a multicentre prospective study

Veronika Krautheim, Andrea Schmitz, Gesine Benze, Thomas Standl, Christine Schiessl, Wolfgang Waldeyer, Alexander Hapfelmeier, Eberhard F. Kochs, Gerhard Schneider, Klaus J. Wagner, Christian M. Schulz

Factors associated with deaths in ‘Elderly Housing with Care Services’ in Japan: a cross-sectional study

Kentaro Sugimoto, Yasuko Ogata, Masayo Kashiwagi, Haruka Ueno, Yoshie Yumoto, Yuki Yonekura

Bereaved family members’ perceptions of the quality of end-of-life care across four types of inpatient care settings

Kelli Stajduhar, Richard Sawatzky, S. Robin Cohen, Daren K. Heyland, Diane Allan, Darcee Bidgood, Leah Norgrove, Anne M. Gadermann

A scoping review of palliative care for children in low- and middle-income countries

Hatoko Sasaki, Marie-Charlotte Bouesseau, Joan Marston, Rintaro Mori

Palliative care for patients with Parkinson’s disease: study protocol for a mixed methods study

Herma Lennaerts, Marieke Groot, Maxime Steppe, Jenny T. van der Steen, Marieke Van den Brand, Dorian van Amelsvoort, Kris Vissers, Marten Munneke, Bastiaan R. Bloem

Is the content of guidelines/pathways a barrier for the integration of palliative Care in Chronic Heart Failure (CHF) and chronic pulmonary obstructive disease (COPD)? A comparison with the case of cancer in Europe

Naouma Siouta, Karen Van Beek, Sheila Payne, Lukas Radbruch, Nancy Preston, Jeroen Hasselaar, Carlos Centeno, Johan Menten

Comparing doctors’ legal compliance across three Australian states for decisions whether to withhold or withdraw life-sustaining medical treatment: does different law lead to different decisions?

Ben P. White, Lindy Willmott, Colleen Cartwright, Malcolm Parker, Gail Williams, Juliet Davis

Enhancing integrated palliative care: what models are appropriate? A cross-case analysis

Sheila Payne, Rachael Eastham, Sean Hughes, Sandra Varey, Jeroen Hasselaar, Nancy Preston

Compassionate collaborative care: an integrative review of quality indicators in end-of-life care

Kathryn Pfaff, Adelais Markaki

The relationships between the combination of person- and organization-related conditions and patients’ perceptions of palliative care quality

Tuva Sandsdalen, Sevald Høye, Ingrid Rystedt, Vigdis Abrahamsen Grøndahl, Reidun Hov, Bodil Wilde-Larsson

Images of God and attitudes towards death in relation to spiritual wellbeing: an exploratory side study of the EORTC QLQ-SWB32 validation study in palliative cancer patients

Renske Kruizinga, Michael Scherer-Rath, Johannes B. A. M. Schilderman, Mariëtte Weterman, Teresa Young, Hanneke W. M. van Laarhoven

Community-based specialist palliative care is associated with reduced hospital costs for people with non-cancer conditions during the last year of life

Katrina Spilsbury, Lorna Rosenwax

‘Worried to death’: the assessment and management of anxiety in patients with advanced life-limiting disease, a national survey of palliative medicine physicians

N. Atkin, V. Vickerstaff, B. Candy

A critical realist evaluation of a music therapy intervention in palliative care

Sam Porter, Tracey McConnell, Mike Clarke, Jenny Kirkwood, Naomi Hughes, Lisa Graham-Wisener, Joan Regan, Miriam McKeown, Kerry McGrillen, Joanne Reid

Exploring the characteristics of patients with mesothelioma who chose active symptom control over chemotherapy as first-line treatment: a prospective, observational, single centre study

Anna C. Bibby, Duneesha De Fonseka, Anna J. Morley, Emma Keenan, Alfredo Addeo, Sarah Smith, Anthony J. Edey, Nick A. Maskell

Impact of place of residence on place of death in Wales: an observational study

S. R. Ziwary, D. Samad, C. D. Johnson, R. T. Edwards

Exploring the rewards and challenges of paediatric palliative care work – a qualitative study of a multi-disciplinary children’s hospice care team

Johanna Taylor, Jan Aldridge

Oncology nurses’ perceptions of obstacles and role at the end-of-life care: cross sectional survey

Aurelija Blaževičienė, Jamesetta A. Newland, Vilija Čivinskienė, Renea L. Beckstrand

Observational study of patients in Spain with amyotrophic lateral sclerosis: correlations between clinical status, quality of life, and dignity

Yolanda Martínez-Campo, Christian Homedes, Ana Lazaro, Raquel Alarcón, David Campo, Mariona Riera, Raúl Domínguez, Mónica Povedano, Carlos Casasnovas

End of life care preferences among people of advanced age: LiLACS NZ

Merryn Gott, Rosemary Frey, Janine Wiles, Anna Rolleston, Ruth Teh, Tess Moeke-Maxwell, Ngaire Kerse

Changes in professionals’ beliefs following a palliative care implementation programme at a surgical department: a qualitative evaluation

Pia Hahne, Staffan Lundström, Helena Leveälahti, Janet Winnhed, Joakim Öhlén

Validation of the German revised version of the program in palliative care education and practice questionnaire (PCEP-GR)

Katharina Fetz, Ursula Wenzel-Meyburg, Christian Schulz-Quach

Religious leaders’ perceptions of advance care planning: a secondary analysis of interviews with Buddhist, Christian, Hindu, Islamic, Jewish, Sikh and Bahá’í leaders

Amanda Pereira-Salgado, Patrick Mader, Clare O’Callaghan, Leanne Boyd, Margaret Staples

Existential decision-making in a fatal progressive disease: how much do legal and medical frameworks matter?

Christian Weber, Barbara Fijalkowska, Katarzyna Ciecwierska, Anna Lindblad, Gisela Badura-Lotter, Peter M. Andersen, Magdalena Kuźma-Kozakiewicz, Albert C. Ludolph, Dorothée Lulé, Tomasz Pasierski, Niels Lynöe