Skip to main content
Top

The Patient - Patient-Centered Outcomes Research

Issue 3/2024

Content (11 Articles)

Editorial

The Limitations of EQ-5D as a Clinical Outcome Assessment Tool

Ari Gnanasakthy, Carla Romano DeMuro

Open Access Leading Article

Key Insights into Developing Qualitative Concept Elicitation Work for Outcome Measures with Children and Young People

Samantha Husbands, Paul Mark Mitchell, Joanna Coast

Practical Application

Using Patient Preferences in Health Technology Assessment: Evaluating Quality-Adjusted Survival Equivalents (QASE) for the Quantification of Non-health Benefits

Kevin Marsh, Hannah Collacott, Jim Thomson, Jonathan Mauer, Stephen Watt, Koonal Shah, Brett Hauber, Louis Garrison, Mendwas Dzingina

Open Access Review Article

A Review of the Use of EQ-5D for Clinical Outcome Assessment in Health Technology Assessment, Regulatory Claims, and Published Literature

Caroline Shaw, Louise Longworth, Bryan Bennett, Louise McEntee-Richardson, James W. Shaw

Open Access Correction

Correction to: A Review of the Use of EQ-5D for Clinical Outcome Assessment in Health Technology Assessment, Regulatory Claims, and Published Literature

Caroline Shaw, Louise Longworth, Bryan Bennett, Louise McEntee-Richardson, James W. Shaw

Cough Original Research Article

Quality of Life in Adults with Chronic Cough: A Mixed Methods Study Informing the Development of a Quantitative Patient Preference Study

Theresa Coles, Molly McFatrich, Helen Ding, Nicole Lucas, Erin Daniell, Aparna Swaminathan, Jonathan Schelfhout, Reed Johnson

Open Access Original Research Article

Development and Testing of a Chronic-Disease Patient Experience Mapping Toolbox

Elisabeth M. Oehrlein, Silke Schoch, Kelsie Majercak, Laura Elisabeth Gressler, Ryan C. Costantino, T. Rosie Love, Eleanor M. Perfetto, Stacie Bell, Morgan Daven, Linda S. Deal, Rachel Dungan, Julie Fiol, Lori Frank, Beth Gore, Nicole Harr, Newell McElwee, Christeen Moburg, Chris L. Pashos, Roslyn F. Schneider, Jonathan Stokes, Jamie Zagorski

Open Access Parkinson's Disease Original Research Article

Attitudes Toward the Adoption of Remote Patient Monitoring and Artificial Intelligence in Parkinson’s Disease Management: Perspectives of Patients and Neurologists

Carlos Antonio Godoy Junior, Francesco Miele, Laura Mäkitie, Eleonora Fiorenzato, Maija Koivu, Lytske Jantien Bakker, Carin Uyl-de Groot, William Ken Redekop, Welmoed Kirsten van Deen

Systemic Lupus Erythematosus Original Research Article

Patients’ Preferences for Systemic Lupus Erythematosus Treatments—A Discrete Choice Experiment

Hannah Collacott, Andrea Phillips-Beyer, Nicolas Krucien, Bruno Flamion, Kevin Marsh

Open Access Original Research Article

Exploring the Factors that Drive Clinical Negligence Claims: Stated Preferences of Those Who Have Experienced Unintended Harm

Nyantara Wickramasekera, Arne Risa Hole, Donna Rowen, Allan Wailoo, Anju D. Keetharuth

Open Access Vaccination Original Research Article

From Qualitative Research to Quantitative Preference Elicitation: An Example in Invasive Meningococcal Disease

Joshua Coulter, Chiara Whichello, Sebastian Heidenreich, Brett Hauber, Christine Michaels-Igbokwe, Joseph C. Cappelleri, Paula Peyrani, Jessica Vespa Presa, Malavika Venkatraman, Katharina Schley

Live Webinar | 27-06-2024 | 18:00 (CEST)

Keynote webinar | Spotlight on medication adherence

Live: Thursday 27th June 2024, 18:00-19:30 (CEST)

WHO estimates that half of all patients worldwide are non-adherent to their prescribed medication. The consequences of poor adherence can be catastrophic, on both the individual and population level.

Join our expert panel to discover why you need to understand the drivers of non-adherence in your patients, and how you can optimize medication adherence in your clinics to drastically improve patient outcomes.

Prof. Kevin Dolgin
Prof. Florian Limbourg
Prof. Anoop Chauhan
Developed by: Springer Medicine
Obesity Clinical Trial Summary

At a glance: The STEP trials

A round-up of the STEP phase 3 clinical trials evaluating semaglutide for weight loss in people with overweight or obesity.

Developed by: Springer Medicine

Highlights from the ACC 2024 Congress

Year in Review: Pediatric cardiology

Watch Dr. Anne Marie Valente present the last year's highlights in pediatric and congenital heart disease in the official ACC.24 Year in Review session.

Year in Review: Pulmonary vascular disease

The last year's highlights in pulmonary vascular disease are presented by Dr. Jane Leopold in this official video from ACC.24.

Year in Review: Valvular heart disease

Watch Prof. William Zoghbi present the last year's highlights in valvular heart disease from the official ACC.24 Year in Review session.

Year in Review: Heart failure and cardiomyopathies

Watch this official video from ACC.24. Dr. Biykem Bozkurt discusses last year's major advances in heart failure and cardiomyopathies.