The Patient - Patient-Centered Outcomes Research

Regulating Between the Notes: The US FDA and the Evolution of the Patient Voice Through Twenty-First Century Regulatory Science

Peter J. Pitts

Increasing the Patient-Centeredness of Predictive Analytics Tools

Norah L. Crossnohere, Janet E. Childerhose, Seuli Bose-Brill

Patient-Centered Core Impact Sets: What They are and Why We Need Them

Eleanor M. Perfetto, Elisabeth M. Oehrlein, T. Rosie Love, Silke Schoch, Annie Kennedy, Jennifer Bright

Methods to Summarize Discrete-Choice Experiments in a Systematic Review: A Scoping Review

Daksh Choudhary, Megan Thomas, Kevin Pacheco-Barrios, Yuan Zhang, Pablo Alonso-Coello, Holger Schünemann, Glen Hazlewood

The Impact of Patient Support Programs in Europe: A Systematic Literature Review

José Antonio Sacristán, Esther Artime, Silvia Díaz-Cerezo, Marta Comellas, Lucía Pérez-Carbonell, Luis Lizán

Concerns about the Responsiveness of Generic Measures and the Search for a “Minimally” Important Change: Today’s PRO Red Herrings

David Cella

Meaningful Improvement in General Health Outcomes with Guselkumab Treatment for Psoriatic Arthritis: Patient-Reported Outcomes Measurement Information System-29 Results from a Phase 3 Study

Ana-Maria Orbai, Laura C. Coates, Atul Deodhar, Philip S. Helliwell, Christopher T. Ritchlin, Evan Leibowitz, Alexa P. Kollmeier, Elizabeth C. Hsia, Xie L. Xu, Shihong Sheng, Yusang Jiang, Yan Liu, Chenglong Han

What Matters for Evaluating the Quality of Mental Healthcare? Identifying Important Aspects in Qualitative Focus Groups with Service Users and Frontline Mental Health Professionals

Philip A. Powell, Donna Rowen

Patient Medication Preferences for Managing Dry Eye Disease: The Importance of Medication Side Effects

Semra Ozdemir, Sharon Wan Jie Yeo, Jia Jia Lee, Adithya Bhaskar, Eric Finkelstein, Louis Tong

Interpreting Within-Patient Changes on the EORTC QLQ-C30 and EORTC QLQ-LC13

Cheryl D. Coon, Michael Schlichting, Xinke Zhang

Development of an Item Bank to Assess Patient-Reported Outcomes: Signs, Symptoms, and Impacts of COVID-19

Matthew Reaney, James Turnbull, Jean Paty, Karli Heuer, Chad Gwaltney

Opportunities to Improve Long COVID Care: Implications from Semi-structured Interviews with Black Patients

Rachel S. Bergmans, Keiyana Chambers-Peeple, Deena Aboul-Hassan, Samantha Dell’Imperio, Allie Martin, Riley Wegryn-Jones, Lillian Z. Xiao, Christine Yu, David A. Williams, Daniel J. Clauw, Melissa DeJonckheere

13th Meeting of the International Academy of Health Preference Research