Issue 3/2023
Content (9 Articles)
So You Want to Build Your Disease’s First Online Patient Registry: An Educational Guide for Patient Organizations Based on US and European Experience
Paul Wicks, Lindsey Wahlstrom-Edwards, Sam Fillingham, Andrea Downing, Elin Haf Davies
Systematic Review of the Effect of a One-Day Versus Seven-Day Recall Duration on Patient Reported Outcome Measures (PROMs)
Tessa Peasgood, Julia M. Caruana, Clara Mukuria
The Impact of Video-Based Educational Materials with Voiceovers on Preferences for Glucose Monitoring Technology in Patients with Diabetes: A Randomised Study
Ian P. Smith, Chiara L. Whichello, Esther W. de Bekker-Grob, Maureen P. M. H. Rutten-van Mölken, Jorien Veldwijk, G. Ardine de Wit
Comparing Outcomes of a Discrete Choice Experiment and Case 2 Best-Worst Scaling: An Application to Neuromuscular Disease Treatment
Vikas Soekhai, Bas Donkers, Jennifer Viberg Johansson, Cecilia Jimenez-Moreno, Cathy Anne Pinto, G. Ardine de Wit, Esther de Bekker-Grob
Improving Outcome-Driven Care in Multiple Myeloma Using Patient-Reported Outcomes: A Qualitative Evaluation Study
Christine Bennink, Marleen de Mul, Marjolein van der Klift, Annemiek Broijl, Lidwine Tick, Eva de Jongh, Mirjam Garvelink, Dorien Lobbezoo, Pieter Sonneveld, Jan Hazelzet
Focus Groups to Inform the Development of a Patient-Reported Outcome Measure (PROM) for Temporomandibular Joint Disorders (TMDs)
Emily Elstad, Fraser D. Bocell, Tamika Cowans Owens, Dilani Logan, Emily Melluso, Claire Viscione, San Keller, Allen Chen, Jessica Weinberg, Veronica Sansing-Foster, Leah Royce, Phillip Woods, Andrew I. Steen, Adriana Van Ineveld, Michelle Reardon, Allen Cowley, John Kusiak, Deanne Clare, Terrie Cowley, Michelle E. Tarver
Ability and Willingness to Participate in Dementia Clinical Research: A Qualitative Study
Nicole Bouranis, Sherril Gelmon, Allison Lindauer
Correction to: How Does the Public Evaluate Vaccines for Low‑Incidence, Severe‑Outcome Diseases? A General‑Population Choice Experiment
F. Reed Johnson, Angelyn Fairchild, Dale Whittington, Amit K. Srivastava, Juan Marcos Gonzalez, Liping Huang