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BMC Palliative Care

Issue 1/2020

Content (188 Articles)

Antidepressant Drugs Research article

A rapid positive influence of S-ketamine on the anxiety of patients in palliative care: a retrospective pilot study

Eduard Falk, Daniel Schlieper, Patrick van Caster, Matthias J. Lutterbeck, Jacqueline Schwartz, Joachim Cordes, Ina Grau, Peter Kienbaum, Martin Neukirchen

Care Research article

Nursing home staff’s perspective on end-of-life care of German nursing home residents: a cross-sectional survey

Anke Strautmann, Katharina Allers, Alexander Maximilian Fassmer, Falk Hoffmann

Open Access Suicide Research article

End-of-life decision making by Austrian physicians - a cross-sectional study

D. Jahn-Kuch, A. Domke, S. Bitsche, H. Stöger, A. Avian, K. Jeitler, N. Posch, A. Siebenhofer

Care Study protocol

Implementing the theory-based advance care planning ACP+ programme for nursing homes: study protocol for a cluster randomised controlled trial and process evaluation

Joni Gilissen, Lara Pivodic, Annelien Wendrich-van Dael, Chris Gastmans, Robert Vander Stichele, Yvonne Engels, Myrra Vernooij-Dassen, Luc Deliens, Lieve Van den Block

Care Research article

An EAPC white paper on multi-disciplinary education for spiritual care in palliative care

Megan Best, Carlo Leget, Andrew Goodhead, Piret Paal

Open Access Care Research article

Variation in the implementation of PaTz: a method to improve palliative care in general practice - a prospective observational study

Ian Koper, H. Roeline W. Pasman, Bart P. M. Schweitzer, Greet van der Zweep, Gon Uyttewaal, Bregje D. Onwuteaka-Philipsen

Open Access Correction

Correction to: Health-related quality of life and its socio-economic and cultural predictors among advanced cancer patients: evidence from the APPROACH cross-sectional survey in Hyderabad-India

Jean Jacob, Gayatri Palat, Naina Verghese, Priya Kumari, Vineela Rapelli, Sanjeeva Kumari, Chetna Malhotra, Irene Teo, Eric Finkelstein, Semra Ozdemir

Care Research article

Current status of integrating oncology and palliative care in Japan: a nationwide survey

Y. Uneno, K. Sato, T. Morita, M. Nishimura, S. Ito, M. Mori, C. Shimizu, Y. Horie, M. Hirakawa, T. E. Nakajima, S. Tsuneto, M. Muto

Care Research article

Anticancer therapy within the last 30 days of life: results of an audit and re-audit cycle from an Australian regional cancer centre

Mike Nguyen, Sean Ng Ying Kin, Evonne Shum, Alysson Wann, Babak Tamjid, Arvind Sahu, Javier Torres

Open Access Correction

Correction to: An online international comparison of thresholds for triggering a negative response to the “Surprise Question”: a study protocol

Nicola White, Linda Oostendorp, Victoria Vickerstaff, Christina Gerlach, Yvonne Engels, Maud Maessen, Christopher Tomlinson, Johan Wens, Bert Leysen, Guido Biasco, Sofia Zambrano, Steffen Eychmüller, Christina Avgerinou, Rabih Chattat, Giovanni Ottoboni, Carel Veldhoven, Patrick Stone

Open Access Care Research article

International palliative care research priorities: A systematic review

Felicity Hasson, Emma Nicholson, Deborah Muldrew, Olufikayo Bamidele, Sheila Payne, Sonja McIlfatrick

Care Technical advance

IDentification of patients in need of general and specialised PALLiative care (ID-PALL©): item generation, content and face validity of a new interprofessional screening instrument

Fabienne Teike Lüthi, Mathieu Bernard, Michel Beauverd, Claudia Gamondi, Anne-Sylvie Ramelet, Gian Domenico Borasio

Open Access Lung Cancer Research article

Implementation of the milestones communication approach for patients with limited prognosis: evaluation of intervention fidelity

Jasmin Bossert, Michel Wensing, Michael Thomas, Matthias Villalobos, Corinna Jung, Anja Siegle, Laura Hagelskamp, Nicole Deis, Jana Jünger, Katja Krug

Care Research article

The influence of spirituality on decision-making in palliative care outpatients: a cross-sectional study

Francisca Rego, Florbela Gonçalves, Susana Moutinho, Luísa Castro, Rui Nunes

Burnout Syndrome Research article

Compassion fatigue, watching patients suffering and emotional display rules among hospice professionals: a daily diary study

Igor Portoghese, Maura Galletta, Philip Larkin, Salvatore Sardo, Marcello Campagna, Gabriele Finco, Ernesto D’Aloja

Care Research article

A scoping review of initiatives to reduce inappropriate or non-beneficial hospital admissions and bed days in people nearing the end of their life: much innovation, but limited supporting evidence

Ros Taylor, Jonathan Ellis, Wei Gao, Liz Searle, Kate Heaps, Robert Davies, Claire Hawksworth, Angela Garcia-Perez, Giles Colclough, Steven Walker, Bee Wee

Multiple Sclerosis Research article

Measuring the quality of care in nursing home residents with early-onset neurodegenerative diseases: a scoping review

Joyce C. F. Heffels, Irma H. J. Everink, Mayke Oosterloo, Raymund A. C. Roos, Jos M. G. A. Schols

Open Access Research article

The assessment of spiritual well-being in cancer patients with advanced disease: which are its meaningful dimensions?

Elisa Rabitti, Silvio Cavuto, Luca Iani, Simona Ottonelli, Francesco De Vincenzo, Massimo Costantini

Open Access Care Research article

Underlying goals of advance care planning (ACP): a qualitative analysis of the literature

Nienke Fleuren, Marja F. I. A. Depla, Daisy J. A. Janssen, Martijn Huisman, Cees M. P. M. Hertogh

Open Access Pediatrics Research article

When a child dies: a systematic review of well-defined parent-focused bereavement interventions and their alignment with grief- and loss theories

Eline M. Kochen, Floor Jenken, Paul A. Boelen, Laura M. A. Deben, Jurrianne C. Fahner, Agnes van den Hoogen, Saskia C. C. M. Teunissen, Karin Geleijns, Marijke C. Kars

Care Research article

Coping and wellbeing in bereavement: two core outcomes for evaluating bereavement support in palliative care

Emily Harrop, Hannah Scott, Stephanie Sivell, Kathy Seddon, Jim Fitzgibbon, Fiona Morgan, Sara Pickett, Anthony Byrne, Annmarie Nelson, Mirella Longo

Care Research article

Development and testing of an informative guide about palliative care for family caregivers of people with advanced dementia

Lina Riedl, Manuela Bertok, Julia Hartmann, Julia Fischer, Carola Rossmeier, Andreas Dinkel, Marion Ortner, Janine Diehl-Schmid

Care Research article

First referral to an integrated onco-palliative care program: a retrospective analysis of its timing

Claire Barth, Isabelle Colombet, Vincent Montheil, Olivier Huillard, Pascaline Boudou-Rouquette, Camille Tlemsani, Jérôme Alexandre, François Goldwasser, Pascale Vinant

Care Research article

A phenomenological study of nurses experience about their palliative approach and their use of mobile palliative care teams in medical and surgical care units in France

Agnès Oude Engberink, Maryse Mailly, Valerie Marco, Daniele Bourrie, Jean-Pierre Benezech, Josyane Chevallier, Sandrine Vanderhoeven, Remy Crosnier, Gérard Bourrel, Béatrice Lognos

Open Access Care Research article

Impact of socioeconomic status on end-of-life costs: a systematic review and meta-analysis

Caberry W. Yu, S. Mohammad Alavinia, David A. Alter

Care Research article

How to ensure basic competencies in end of life care – a mixed methods study with post-graduate trainees in primary care in Germany

Simon Schwill, Dorothee Reith, Tobias Walter, Peter Engeser, Michel Wensing, Elisabeth Flum, Joachim Szecsenyi, Katja Krug

Care Research article

The impact of the duration of the palliative care period on cancer patients with regard to the use of hospital services and the place of death: a retrospective cohort study

Outi M. Hirvonen, Riikka-Leena Leskelä, Lotta Grönholm, Olli Haltia, Samuli Voltti, Kristiina Tyynelä-Korhonen, Eeva K. Rahko, Juho T. Lehto, Tiina Saarto

Care Research article

Psychometric properties of the Czech Integrated Palliative Outcome Scale: reliability and content validity analysis

Karolina Vlckova, Eva Hoschlova, Eva Chroustova, Martin Loucka

Care Research article

Measuring quality of life in life-threatening illness – content validity and response processes of MQOL-E and QOLLTI-F in Swedish patients and family carers

Lena Axelsson, Anette Alvariza, Nina Carlsson, S. Robin Cohen, Richard Sawatzky, Kristofer Årestedt

Care Research article

Implementation of palliative care consult Service in Hungary – integration barriers and facilitators

Antal T. Zemplényi, Ágnes Csikós, Marcell Csanádi, Maureen Rutten-van Mölken, Carmen Hernandez, János G. Pitter, Thomas Czypionka, Markus Kraus, Zoltán Kaló

Open Access Care Research article

Outcomes after long-term mechanical ventilation of cancer patients

Kelly Haviland, Kay See Tan, Nadja Schwenk, Manju V. Pillai, Diane E. Stover, Robert J. Downey

Affective Disorder Research article

Fatigue, barriers to physical activity and predictors for motivation to exercise in advanced Cancer patients

J. Frikkel, M. Götte, M. Beckmann, S. Kasper, J. Hense, M. Teufel, M. Schuler, M. Tewes

Open Access Research article

A mixed methods investigation of end-of-life surrogate decisions among older adults

Eleonore Batteux, Eamonn Ferguson, Richard J. Tunney

Care Research article

The views of physicians and nurses on the potentials of an electronic assessment system for recognizing the needs of patients in palliative care

Natalia Radionova, Gerhild Becker, Regine Mayer-Steinacker, Deniz Gencer, Monika A. Rieger, Christine Preiser

Open Access Care Research article

Trauma to Transformation: the lived experience of bereaved parents of children with chronic life-threatening illnesses in Singapore

Oindrila Dutta, Geraldine Tan-Ho, Ping Ying Choo, Xinyi Casuarine Low, Poh Heng Chong, Carolyn Ng, Sashikumar Ganapathy, Andy Hau Yan Ho

Care Research article

“From good hearted community members we get volunteers” – an exploratory study of palliative care volunteers across Africa

Carolin Clara Loth, Eve Namisango, Richard Antony Powell, Katharina Henny Pabst, Mhoira Leng, Mohamed Hamada, Lukas Radbruch

Care Research article

The desire to die in palliative care: a sequential mixed methods study to develop a semi-structured clinical approach

Kerstin Kremeike, Gerrit Frerich, Vanessa Romotzky, Kathleen Boström, Thomas Dojan, Maren Galushko, Kija Shah-Hosseini, Saskia Jünger, Gary Rodin, Holger Pfaff, Klaus Maria Perrar, Raymond Voltz

Care Research article

Profiles of family caregivers of patients at the end of life at home: a Q-methodological study into family caregiver’ support needs

Femmy M. Bijnsdorp, H. Roeline W. Pasman, Cécile R. L. Boot, Susanne M. van Hooft, AnneLoes van Staa, Anneke L. Francke

Open Access Research article

Palliative Performance Scale: cross cultural adaptation and psychometric validation for Polish hospice setting

Tomasz Dzierżanowski, Tomasz Gradalski, Michael Kozlowski

Care Study protocol

Early palliative care versus standard care in haematologic cancer patients at their last active treatment: study protocol of a feasibility trial

Silvia Tanzi, Stefano Luminari, Silvio Cavuto, Elena Turola, Luca Ghirotto, Massimo Costantini

Care Research article

Disseminating research findings using a massive online open course for maximising impact and developing recommendations for practice

Nancy Preston, Jeroen Hasselaar, Sean Hughes, Alex Kaley, Lisa Linge-Dahl, Ildiko Radvanyi, Phil Tubman, Karen Van Beek, Sandra Varey, Sheila Payne

Nausea Research article

The use of olanzapine as an antiemetic in palliative medicine: a systematic review of the literature

G. Saudemont, C. Prod’Homme, A. Da Silva, S. Villet, M. Reich, N. Penel, V. Gamblin

Anxiety Research article

Differences in well-being and fear of death among female hospice employees and volunteers in Hungary

Ágnes Zana, Adrienne Kegye, Edit Czeglédi, Katalin Hegedűs

Care Research article

Severe pain at the end of life: a population-level observational study

A. Meaghen Hagarty, Shirley H. Bush, Robert Talarico, Julie Lapenskie, Peter Tanuseputro

Care Study protocol

Complementary music therapy for cancer patients in at-home palliative care and their caregivers: protocol for a multicentre randomised controlled trial

Inmaculada Valero-Cantero, Francisco Javier Martínez-Valero, Milagrosa Espinar-Toledo, Cristina Casals, Francisco Javier Barón-López, María Ángeles Vázquez-Sánchez

Open Access Care Research article

Standard Operating Procedures (SOPs) for Palliative Care in German Comprehensive Cancer Centers - an evaluation of the implementation status

Sarah Lödel, Christoph Ostgathe, Maria Heckel, Karin Oechsle, Susanne Gahr

Care Research article

Effect of palliative care training on perceived self-efficacy of the nurses

Fatemeh Dehghani, Maasoumeh Barkhordari-Sharifabad, Maryam Sedaghati-kasbakhi, Hossein Fallahzadeh

Open Access Care Research article

An exploration of the experiences of professionals supporting patients approaching the end of life in medicines management at home. A qualitative study

Eleanor Wilson, Glenys Caswell, Asam Latif, Claire Anderson, Christina Faull, Kristian Pollock

Care Study protocol

Evaluation of a communication skills training to facilitate addressing palliative care related topics in advanced cancer patients: study protocol of a multicenter randomized controlled trial (PALLI-KOM)

Nele Harnischfeger, Hilke M. Rath, Anneke Ullrich, Bernd Alt-Epping, Anne Letsch, Peter Thuss-Patience, Carsten Bokemeyer, Karin Oechsle, Corinna Bergelt

Care Research article

Role of nurses in medication management at the end of life: a qualitative interview study

Bregje A. A. Huisman, Eric C. T. Geijteman, Marianne K. Dees, Noralie N. Schonewille, Margriet Wieles, Lia van Zuylen, Karolina M. Szadek, Agnes van der Heide

Care Research article

Ethical challenges in family caregivers of patients with advanced cancer – a qualitative study

Anneke Ullrich, Marianna Theochari, Corinna Bergelt, Gabriella Marx, Katharina Woellert, Carsten Bokemeyer, Karin Oechsle

Care Research article

Equity and the financial costs of informal caregiving in palliative care: a critical debate

Clare Gardiner, Jackie Robinson, Michael Connolly, Claire Hulme, Kristy Kang, Christine Rowland, Phil Larkin, David Meads, Tessa Morgan, Merryn Gott

Open Access Care Research article

Implementing volunteer-navigation for older persons with advanced chronic illness (Nav-CARE): a knowledge to action study

Barbara Pesut, Wendy Duggleby, Grace Warner, Emily Kervin, Paxton Bruce, Elisabeth Antifeau, Brenda Hooper

Care Research article

End-of-life care in a pediatric intensive care unit: the impact of the development of a palliative care unit

Sara Bobillo-Perez, Susana Segura, Monica Girona-Alarcon, Aida Felipe, Monica Balaguer, Lluisa Hernandez-Platero, Anna Sole-Ribalta, Carmina Guitart, Iolanda Jordan, Francisco Jose Cambra

Dyspnea Research article

Systematic symptom and problem assessment at admission to the palliative care ward – perspectives and prognostic impacts

Anja Coym, Anneke Ullrich, Lisa Kathrin Hackspiel, Mareike Ahrenholz, Carsten Bokemeyer, Karin Oechsle

Open Access Care Research article

Adverse events in deceased hospitalised cancer patients as a measure of quality and safety in end-of-life cancer care

Ellinor Christin Haukland, Christian von Plessen, Carsten Nieder, Barthold Vonen

Care Research article

Supportive and palliative care indicators tool (SPICT™): content validity, feasibility and pre-test of the Italian version

Giuseppe Casale, Caterina Magnani, Renato Fanelli, Laura Surdo, Mauro Goletti, Kirsty Boyd, Daniela D’Angelo, Chiara Mastroianni, Maurizio Cancian, Marco Colotto, Antonella Di Giacomo, Giuseppe Fucito, Giorgio Gentili, Patrizia Latorre, Pierangelo Lora Aprile, Michele Massaro, Andrea Pace, Antonella Savarese, Simone Scarlata, Maria Consiglia Stefanelli, Adriana Turriziani

Open Access Care Research article

Barriers to advance care planning: a qualitative study of seriously ill Chinese patients and their families

Johnny T. K. Cheung, Doreen Au, Anthony H. F. Ip, Jenny Chan, Kenway Ng, Lok Cheung, Jacqueline Yuen, Elsie Hui, Jenny Lee, Raymond Lo, Jean Woo

Open Access Constipation Research article

Content validation of the EORTC QLQ-C15-PAL with advanced cancer patients and health care professionals from palliative care services in Chile

Leslye Rojas-Concha, Maiken Bang Hansen, Morten Aagaard Petersen, Mogens Groenvold

Research article

Characterizing patients issued DNR orders who are ultimately discharged alive: a retrospective observational study in Japan

Tomoari Mori, Katsumi Mori, Eisuke Nakazawa, Seiji Bito, Yoshiyuki Takimoto, Akira Akabayashi

Care Research article

Health and intention to leave the profession of nursing - which individual, social and organisational resources buffer the impact of quantitative demands? A cross-sectional study

Elisabeth Diehl, Sandra Rieger, Stephan Letzel, Anja Schablon, Albert Nienhaus, Luis Carlos Escobar Pinzon, Pavel Dietz

Care Research article

Midazolam sedation in palliative medicine: retrospective study in a French center for cancer control

Vincent Gamblin, Vincent Berry, Emmanuelle Tresch-Bruneel, Michel Reich, Arlette Da Silva, Stéphanie Villet, Nicolas Penel, Chloé Prod’Homme

Open Access Lung Cancer Research article

Relatives of deceased patients with metastatic lung cancer’s views on the achievement of treatment goals and the choice to start treatment: a structured telephone interview study

Adinda Mieras, Bregje D. Onwuteaka-Philipsen, Annemarie Becker-Commissaris, Jose C. M. Bos, H. Roeline W. Pasman

Open Access Care Research article

Health- and social care in the last year of life among older adults in Sweden

Jenny Hallgren, Linda Johansson, Christina Lannering, Marie Ernsth Bravell, Catharina Gillsjö

Care Research article

Expanding the 3 Wishes Project for compassionate end-of-life care: a qualitative evaluation of local adaptations

Meredith Vanstone, Thanh H. Neville, Marilyn E. Swinton, Marina Sadik, France J. Clarke, Allana LeBlanc, Benjamin Tam, Alyson Takaoka, Neala Hoad, Jennifer Hancock, Sarah McMullen, Brenda Reeve, William Dechert, Orla M. Smith, Gyan Sandhu, Julie Lockington, Deborah J. Cook

Leukocytosis Research article

Hypernatremia at admission predicts poor survival in patients with terminal cancer: a retrospective cohort study

Min-Seok Seo, In Cheol Hwang, Jaehun Jung, Hwanhee Lee, Jae Hee Choi, Jae-Yong Shim

Care Research article

Factors affecting quality of end-of-life hospital care - a qualitative analysis of free text comments from the i-CODE survey in Norway

Marit Irene Tuen Hansen, Dagny Faksvåg Haugen, Katrin Ruth Sigurdardottir, Anne Kvikstad, Catriona R. Mayland, Margrethe Aase Schaufel, Dagny Faksvåg Haugen, Katrin Ruth Sigurdardottir, Marit Irene Tuen Hansen, Karl Ove Hufthammer, Wojciech Leppert, Katarzyna Wolszczak, Eduardo Garcia Yanneo, Vilma Tripodoro, Gabriel Goldraij, Martin Weber, Christina Gerlach, Lair Zambon, Juliana Nalin Passarini, Ivete Bredda Saad, John Ellershaw, Grace Ting, Catriona Mayland, Anne Kvikstad, Eva Gravdahl, Julia Bratke, Janet Bakken, Kristin Vassbotn Guldhav

Morphine Research article

An evaluation of continuous subcutaneous infusions across seven NHS acute hospitals: is there potential for 48-hour infusions?

J. Baker, A. Dickman, S. Mason, M. Bickerstaff, R. Jackson, A. McArdle, I. Lawrence, F. Stephenson, N. Paton, J. Kirk, B. Waters, J. Ellershaw

Open Access Care Research article

Pacific meets west in addressing palliative care for Pacific populations in Aotearoa/New Zealand: a qualitative study

Sunia Foliaki, Veisinia Pulu, Hayley Denison, Mark Weatherall, Jeroen Douwes

Open Access Research article

Assessment of the effects of a multi-component, individualized physiotherapy program in patients receiving hospice services in the home

Agnieszka Ćwirlej-Sozańska, Agnieszka Wójcicka, Edyta Kluska, Anna Stachoń, Anna Żmuda

Analgesics in Dentistry Research article

Validation of the Japanese version of the barriers questionnaire II in cancer pain management: a cross-sectional study

Naoki Sakakibara, Hiroko Komatsu, Mikako Takahashi, Hideko Yamauchi, Teruo Yamauchi, Ardith Z. Doorenbos

Open Access Cytostatic Therapy Research article

Quality of life of patients with metastatic pancreatic adenocarcinoma initiating first-line chemotherapy in routine practice

Berta Laquente, Teresa Macarulla, Cristina Bugés, Marta Martín, Carlos García, Carles Pericay, Sandra Merino, Laura Visa, Teresa Martín, Manuela Pedraza, Beatriz Carnero, Raquel Guardeño, Helena Verdaguer, Alejandro Mut, David Vilanova, Adelaida García

Open Access Research article

An explorative analysis of the differences in levels of happiness between cancer patients, informal caregivers and the general population

Mayara Goulart de Camargos, Bianca Sakamoto Ribeiro Paiva, Marco Antônio de Oliveira, Paula de Souza Ferreira, Vinicius Tolentino Nardoto de Almeida, Sandra de Andrade Cadamuro, Carla Simone Leite de Almeida, Carlos Eduardo Paiva

Care Research article

A pilot evaluation of the Strengthening a Palliative Approach in Long-Term Care (SPA-LTC) program

Sharon Kaasalainen, Tamara Sussman, Genevieve Thompson, Lynn McCleary, Paulette V. Hunter, Lorraine Venturato, Abigail Wickson-Griffiths, Jenny Ploeg, Deborah Parker, Shane Sinclair, Vanina Dal Bello-Haas, Marie Earl, John J. You

Care Research article

Communication of advance care planning decisions: a retrospective cohort study of documents in general practice

Laura Panozzo, Pam Harvey, Meagan-Jane Adams, Dennis O’Connor, Bernadette Ward

Open Access Stroke Research article

Development and usability testing of Understanding Stroke, a tailored life-sustaining treatment decision support tool for stroke surrogate decision makers

Emily P. Chen, Cynthia Arslanian-Engoren, William Newhouse, Diane Egleston, Savina Sahgal, Aneesha Yande, Angela Fagerlin, Darin B. Zahuranec

Care Research article

Second opinions in medical oncology

Ian Olver, Mariko Carey, Jamie Bryant, Allison Boyes, Tiffany Evans, Rob Sanson-Fisher

Open Access Care Research article

Factors influencing the integration of a palliative approach in intensive care units: a systematic mixed-methods review

Hanan Hamdan Alshehri, Sepideh Olausson, Joakim Öhlén, Axel Wolf

Care Research article

Factors influencing GPs’ perception of specialised palliative homecare (SPHC) importance – results of a cross-sectional study

K. Stichling, M. Krause, B. Ditscheid, M. Hach, M. Jansky, M. Kaufmann, T. Lehmann, W. Meißner, F. Nauck, W. Schneider, S. Schulz, H. C. Vollmar, U. Wedding, J. Bleidorn, A. Freytag, Anna Bauer, Lia Bergmann, Bianka Ditscheid, Cornelia Eichhorn, Antje Freytag, Michaela Hach, Ulrike Hammer, Aicko Helbig, Beata Hennig, Maximiliane Jansky, Michelle Kaufmann, Markus Krause, Sabine Krauss, Thomas Lehmann, Helmut L’hoest, Srikanth Maddela, Ursula Marschall, Martial Mboulla, Winfried Meißner, Heiner Melching, Florian Mühler, Cornelia Nageler, Friedemann Nauck, Judith Rothaug, Joachim Saam, Werner Schneider, Sven Schulz, Kathleen Stichling, Horst C. Vollmar, Julia von Hayek, Ulrich Wedding, Marie-Luise Völker, Vivienne Kley, Jana Feustel, Ketura Herklotz

Open Access Care Research article

Exploring the costs, consequences and efficiency of three types of palliative care day services in the UK: a pragmatic before-and-after descriptive cohort study

Paul Mark Mitchell, Joanna Coast, Gareth Myring, Federico Ricciardi, Victoria Vickerstaff, Louise Jones, Shazia Zafar, Sarah Cudmore, Joanne Jordan, Laurie McKibben, Lisa Graham-Wisener, Anne M. Finucane, Alistair Hewison, Erna Haraldsdottir, Kevin Brazil, W. George Kernohan

Care Research article

Sense of support within the family: a cross-sectional study of family members in palliative home care

Anna Milberg, Maria Liljeroos, Rakel Wåhlberg, Barbro Krevers

Care Research article

Palliative care for nursing home patients with dementia: service evaluation and risk factors of mortality

Chih-Pang Chu, Cho-Yin Huang, Chian-Jue Kuo, Ying-Yeh Chen, Chun-Tse Chen, Tien-Wei Yang, Hsing-Cheng Liu

Care Research article

Developing and validating a questionnaire for mortality follow-back studies on end-of-life care and decision-making in a resource-poor Caribbean country

Nicholas Jennings, Kenneth Chambaere, Cheryl Cox Macpherson, Karen L. Cox, Luc Deliens, Joachim Cohen

Open Access Care Research article

Predictors and trajectories of ED visits among patients receiving palliative home care services: findings from a time series analysis (2013-2017)

Alberto Borraccino, Sara Campagna, Gianfranco Politano, Marco Dalmasso, Valerio Dimonte, Maria Michela Gianino

Care Research article

Peer support to maintain psychological wellbeing in people with advanced cancer: findings from a feasibility study for a randomised controlled trial

Catherine Walshe, Diane Roberts, Lynn Calman, Lynda Appleton, Robert Croft, Suzanne Skevington, Mari Lloyd-Williams, Gunn Grande, Guillermo Perez Algorta

Care Study protocol

Developing and testing a nurse-led intervention to support bereavement in relatives in the intensive care (BRIC study): a protocol of a pre-post intervention study

Margo M. C. van Mol, Sebastian Wagener, Jos M. Latour, Paul A. Boelen, Peter E. Spronk, Corstiaan A. den Uil, Judith A. C. Rietjens

Care Study protocol

Collaborative advance care planning in advanced cancer patients: col-ACP –study – study protocol of a randomised controlled trial

Carola Seifart, Martin Koch, Nico Leppin, Katharina Nagelschmidt, Jorge Riera Knorrenschild, Nina Timmesfeld, Winfried Rief, Pia von Blanckenburg

Open Access Care Study protocol

Role of norms in variation in cancer centers’ end-of-life quality: qualitative case study protocol

Kristin E. Knutzen, Karen E. Schifferdecker, Genevra F. Murray, Shama S. Alam, Gabriel A. Brooks, Nirav S. Kapadia, Rebecca Butcher, Amber E. Barnato

Open Access Research article

Factors underlying surrogate medical decision-making in middle eastern and east Asian women: a Q-methodology study

Muhammad M. Hammami, Areej Al Balkhi, Sophia S. De Padua, Kafa Abuhdeeb

Open Access Care Research article

Using the technology acceptance model to explore health provider and administrator perceptions of the usefulness and ease of using technology in palliative care

M. Nguyen, J. Fujioka, K. Wentlandt, N. Onabajo, I. Wong, R. S. Bhatia, O. Bhattacharyya, V. Stamenova

Open Access Care Study protocol

Prospective cohort study of patients with advanced cancer and their relatives on the experienced quality of care and life (eQuiPe study): a study protocol

Janneke van Roij, Myrte Zijlstra, Laurien Ham, Linda Brom, Heidi Fransen, Art Vreugdenhil, Natasja Raijmakers, Lonneke van de Poll-Franse, Art Vreugdenhil, Maggy Youssef-ELSoud, Geert-Jan Creemers, Ben van den Borne, Wouter de Jong, Arnold Baars, Marieke van den Beuken - van Everdingen, Evelien Kuip, René Bunnik, Mathijs Hendriks, Caroline Mandigers, Jean-Paul van Basten, Vivian van Kampen – van den Boogaart, Philo Werner, Lia van Zuylen, Alexander de Graeff, Anne van Lindert, Marcel Soesan, Jarmo Hunting, Arno Smals, Linda van de Winkel, Gerben Stege, Liese Verhaert, Natascha Peters, Manon Pepels, Tineke Smilde, Peter Nieboer, Sander de Hosson, Marien den Boer, Cordula Pitz, Rick Heyne, Manuel Tjin-A-Ton, Annemieke van der Padt – Pruijsten, Paul van den Berg, Frans Krouwels, Lobke van Leeuwen-Snoeks, Femke van der Meer, Allert Vos, Gerrit Jan Veldhuis, Boelo Poppema, Martine Thijs-Visser, Roxane Heller-Baan, Marjolein van Laren, Karen Maassen van den Brink, Gea Douma, Jeroen Kloover, Dirkje Sommeijer, Lemke Pronk, Ellen Janssens - van Vliet, Lilly-Ann van der Velden, Emma Hafkamp, Henk Codrington, Svitlana Tarasevych, Aart van Bochove, Annemieke van der Padt – Pruijsten, Jaap de Boer, Geraldine Vink

Open Access Cancer Therapy Research article

Use of symptom-focused oncological cancer therapies in hospices: a retrospective analysis

Ulrich Kaiser, Ursula Vehling-Kaiser, Fabian Kück, Nicolae-Catalin Mechie, Ana Hoffmann, Florian Kaiser

Open Access Care Research article

Perceptions of palliative care in a South Asian community: findings from an observational study

Naheed Dosani, Ravi Bhargava, Amit Arya, Celeste Pang, Pavinder Tut, Achal Sharma, Martin Chasen

Open Access Care Research article

Cost-effectiveness analysis of systematic fast-track transition from oncological treatment to specialised palliative care at home for patients and their caregivers: the DOMUS trial

Christine Marie Bækø Halling, Rasmus Trap Wolf, Per Sjøgren, Hans Von Der Maase, Helle Timm, Christoffer Johansen, Jakob Kjellberg

Open Access Pancreatic Cancer Research article

Perception of cancer in patients diagnosed with the most common gastrointestinal cancers

Aleksandra Czerw, Urszula Religioni, Tomasz Banaś

Open Access Care Research article

Differences in perspectives of pediatricians on advance care planning: a cross-sectional survey

In Gyu Song, Sung Han Kang, Min Sun Kim, Cho Hee Kim, Yi Ji Moon, Jung Lee

Open Access Care Research article

Co-construction of the family-focused support conversation: a participatory learning and action research study to implement support for family members whose relatives are being discharged for end-of-life care at home or in a nursing home

Sue Duke, Natasha Campling, Carl R. May, Susi Lund, Neil Lunt, Gemma Bartlett, Lucy Harris, Elizabeth Flannery, Michael Connolly, Pam Booth, Gillian Galpin, Emma Wells, Elizabeth Price, Alison Faulkner-Butcher, Leanne Petch, Chris Ward, Alison Richardson

Open Access Care Research article

What do you mean by “palliative sedation”?

Alexander Kremling, Jan Schildmann

Open Access Care Research article

Supporting patient access to medicines in community palliative care: on-line survey of health professionals’ practice, perceived effectiveness and influencing factors

Sue Latter, Natasha Campling, Jacqueline Birtwistle, Alison Richardson, Michael I. Bennett, Sean Ewings, David Meads, Miriam Santer

Open Access Care Research article

“Teach for ethics in palliative care”: a mixed-method evaluation of a medical ethics training programme

Ludovica De Panfilis, Silvia Tanzi, Marta Perin, Elena Turola, Giovanna Artioli

Open Access Care Research article

Instrumental and affective communication with patients with limited health literacy in the palliative phase of cancer or COPD

Janneke Noordman, Lotte Schulze, Ruud Roodbeen, Gudule Boland, Liesbeth M. van Vliet, Maria van den Muijsenbergh, Sandra van Dulmen

Open Access Care Research article

South African paramedic perspectives on prehospital palliative care

Caleb Hanson Gage, Heike Geduld, Willem Stassen

Suicide Research article

Comparison of the experience of caregiving at end of life or in hastened death: a narrative synthesis review

Jane Lowers, Melissa Scardaville, Sean Hughes, Nancy J. Preston

Care Study protocol

A cluster randomized controlled trial on a multifaceted implementation strategy to promote integrated palliative care in COPD: study protocol of the COMPASSION study

Johanna M. C. Broese, Rianne M. J. J. van der Kleij, Huib A. M. Kerstjens, Els M. L. Verschuur, Yvonne Engels, Niels H. Chavannes

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Development and validation of the cancer symptoms discrimination scale: a cross-sectional survey of students in Yunnan, China

Lin-sen Feng, Zheng-jiao Dong, Ruo-yu Yan, Chang-ling Tu, Lan-yu Zhang, Jiang-yun Shen, Shi-yu Zhang

Open Access Care Research article

Patients’ experiences of eHealth in palliative care: an integrative review

Cecilia Widberg, Birgitta Wiklund, Anna Klarare

Care Research article

A mixed-method evaluation of a volunteer navigation intervention for older persons living with chronic illness (Nav-CARE): findings from a knowledge translation study

Barbara Pesut, Wendy Duggleby, Grace Warner, Paxton Bruce, Sunita Ghosh, Jayna Holroyd-Leduc, Cheryl Nekolaichuk, Jasneet Parmar

Open Access Care Research article

Impact on place of death in cancer patients: a causal exploration in southern Switzerland

Heidi Kern, Giorgio Corani, David Huber, Nicola Vermes, Marco Zaffalon, Marco Varini, Claudia Wenzel, André Fringer

Open Access Care Research article

Optimizing of a question prompt list to improve communication about the heart failure trajectory in patients, families, and health care professionals

Lisa Hjelmfors, Martje H. L. van der Wal, Maria Friedrichsen, Anna Milberg, Jan Mårtensson, Anna Sandgren, Anna Strömberg, Tiny Jaarsma

Care Research article

Phenomenological examinations of delirium in advanced cancer patients: exploratory structural equation modelling and latent profile analysis

Eun-Jung Shim, Hyeju Ha, Won-Hyoung Kim, Moon-Hee Lee, Jisun Park, Kwang-Min Lee, Kyung-Lak Son, Chan-Woo Yeom, Bong-Jin Hahm

Open Access Palliative Care Unit Research article

Melatonin to prevent delirium in patients with advanced cancer: a double blind, parallel, randomized, controlled, feasibility trial

Peter G. Lawlor, Marie T. McNamara-Kilian, Alistair R. MacDonald, Franco Momoli, Sallyanne Tierney, Nathalie Lacaze-Masmonteil, Monidipa Dasgupta, Meera Agar, Jose L. Pereira, David C. Currow, Shirley H. Bush

Open Access Care Study protocol

The efficacy of specialised rehabilitation using the Op-reha Guide for cancer patients in palliative care units: protocol of a multicentre, randomised controlled trial (JORTC-RHB02)

Nanako Nishiyama, Yoshinobu Matsuda, Noriko Fujiwara, Keisuke Ariyoshi, Shunsuke Oyamada, Keiichi Narita, Ryouhei Ishii, Satoru Iwase

Open Access Care Research article

Family experiences with palliative care for children at home: a systematic literature review

Anette Winger, Lisbeth Gravdal Kvarme, Borghild Løyland, Camilla Kristiansen, Sølvi Helseth, Ingrid H. Ravn

Open Access Research article

Nothing to lose: a grounded theory study of patients’ and healthcare professionals’ perspectives of being involved in the consent process for oncology trials with non-curative intent

Mary Murphy, Eilís McCaughan, Matthew A Carson, Monica Donovan, Richard H Wilson, Donna Fitzsimons

Care Research article

Validation of the Palliative Prognostic Index, Performance Status–Based Palliative Prognostic Index and Chinese Prognostic Scale in a home palliative care setting for patients with advanced cancer in China

Jun Zhou, Sitao Xu, Ziye Cao, Jing Tang, Xiang Fang, Ling Qin, Fangping Zhou, Yuzhen He, Xueren Zhong, Mingcai Hu, Yan Wang, Fengjuan Lu, Yongzheng Bao, Xiangheng Dai, Qiang Wu

Care Research article

Burnout and resilience among Canadian palliative care physicians

Cindy Wang, Pamela Grassau, Peter G. Lawlor, Colleen Webber, Shirley H. Bush, Bruno Gagnon, Monisha Kabir, Edward G. Spilg

Open Access Care Research article

Advancing pediatric palliative care in a low-middle income country: an implementation study, a challenging but not impossible task

Ximena Garcia-Quintero, Luis Gabriel Parra-Lara, Angelica Claros-Hulbert, Maria Isabel Cuervo-Suarez, Wendy Gomez-Garcia, Francois Desbrandes, Natalia Arias-Casais

Care Research article

Introducing cross-cultural education in palliative care: focus groups with experts on practical strategies

Imane Semlali, Emmanuel Tamches, Pascal Singy, Orest Weber

Open Access Opioids Research article

Continuous subcutaneous infusion for pain control in dying patients: experiences from a tertiary palliative care center

Per Fürst, Staffan Lundström, Pål Klepstad, Peter Strang

Open Access Care Research article

Support practices by an interdisciplinary team in a palliative-care unit for relatives of patients in agonal phase

M. Mélin, H. Amieva, M. Frasca, C. Ouvrard, V. Berger, H. Hoarau, C. Roumiguière, B. Paternostre, N. Stadelmaier, N. Raoux, V. Bergua, B. Burucoa

Care Research article

How views of oncologists and haematologists impacts palliative care referral: a systematic review

Naveen Salins, Arunangshu Ghoshal, Sean Hughes, Nancy Preston

Open Access Care Research article

Physicians’ clinical prediction of survival in head and neck cancer patients in the palliative phase

Arta Hoesseini, Marinella P. J. Offerman, Bojou J. van de Wall-Neecke, Aniel Sewnaik, Marjan H. Wieringa, Robert J. Baatenburg de Jong

Care Research article

Patient-centered care during the last year of life: adaptation and validation of the German PACIC short form for bereaved persons as proxies (PACIC-S9-proxy)

Vera Vennedey, Gloria Dust, Nicolas Schippel, Arim Shukri, Julia Strupp, Christian Rietz, Raymond Voltz, Stephanie Stock

Open Access Care Research article

Exploration of the acceptability and usability of advance care planning tools in long term care homes

Tamara Sussman, Sharon Kaasalainen, Rennie Bimman, Harveer Punia, Nathaniel Edsell, Jess Sussman

Open Access Care Research article

Professional oral care in end-of-life patients with advanced cancers in a hospice ward: improvement of oral conditions

Ting-Ying Wu, Hsiu-Yueh Liu, Chien-Yi Wu, Hung-Cheng Chen, Shun-Te Huang, Ping-Ho Chen

Open Access Elderly Care Research article

Experiences with the Liverpool care pathway for the dying patient in nursing home residents: a mixed-method study to assess physicians’ and nurse practitioners’ perceptions

Maartje S. Klapwijk, Natashe Lemos Dekker, Monique A. A. Caljouw, Wilco P. Achterberg, Jenny T. van der Steen

Open Access Care Study protocol

Development of an international Core Outcome Set (COS) for best care for the dying person: study protocol

Sofia C. Zambrano, Dagny Faksvåg Haugen, Agnes van der Heide, Vilma A. Tripodoro, John Ellershaw, Carl Johan Fürst, Raymond Voltz, Stephen Mason, María L. Daud, Gustavo De Simone, Kerstin Kremeike, Svandis Iris Halfdanardottir, Valgerdur Sigurdardottir, Jeremy Johnson, Simon Allan, Haroon Hafeez, Catarina Simões, Katrin Ruth Sigurdardottir, Birgit H. Rasmussen, Paula Williamson, Steffen Eychmüller, A. van der Heide, E. Geijteman, L. van Zuylen, K. van der Rijt, I. Korfage, A. Goossensen, H. van der Kuy, B. Yildiz, E. Elsten, J. Ellershaw, R. M. Smeding, S. Mason, T. Mc Glinchey, R. Hughes, R. Voltz, J. Strupp, M. Joshi, C. J. Furst, B. Rasmussen, M. Schelin, U. Lunder, H. Kodba-Čeh, M. Bakan, S. Eychmüller, S. C. Zambrano, N. Lüthi, M. Egloff, A. Christen, M. Martin Rosello, P. Barnestein Fonseca, I. Ruiz, D. R. F. Haugen, K. Sigurdardottir, K. Solvag, G. Skorpen Iversen, V. Sigurdardottir, S. I. Halfdánardottir, V. Tripodoro, A. Goossensen, J. Simon, C. Fisher, M. Berger, S. Allan, M. Boughey

Care Research article

A non-lab nomogram of survival prediction in home hospice care patients with gastrointestinal cancer

Muqing Wang, Xubin Jing, Weihua Cao, Yicheng Zeng, Chaofen Wu, Weilong Zeng, Wenxia Chen, Xi Hu, Yanna Zhou, Xianbin Cai

Care Research article

Quality indicators for the evaluation of end-of-life care in Germany – a retrospective cross-sectional analysis of statutory health insurance data

Katharina van Baal, Sophie Schrader, Nils Schneider, Birgitt Wiese, Jona Theodor Stahmeyer, Sveja Eberhard, Siegfried Geyer, Stephanie Stiel, Kambiz Afshar

Care Research article

Hospice care self-efficacy among clinical medical staff working in the coronavirus disease 2019 (COVID-19) isolation wards of designated hospitals: a cross–sectional study

Ze-hong Zheng, Zhong-chen Luo, You Zhang, Wallace Chi Ho Chan, Jian-qiong Li, Jin Pang, Yu-ling Jia, Jiao Tang