Skip to main content
Top
Published in: Quality of Life Research 6/2020

Open Access 01-06-2020 | Review

Capability instruments in economic evaluations of health-related interventions: a comparative review of the literature

Authors: Timea Mariann Helter, Joanna Coast, Agata Łaszewska, Tanja Stamm, Judit Simon

Published in: Quality of Life Research | Issue 6/2020

Login to get access

Abstract

Purpose

Given increasing interest in using the capability approach for health economic evaluations and a growing literature, this paper aims to synthesise current information about the characteristics of capability instruments and their application in health economic evaluations.

Methods

A systematic literature review was conducted to assess studies that contained information on the development, psychometric properties and valuation of capability instruments, or their application in economic evaluations.

Results

The review identified 98 studies and 14 instruments for inclusion. There is some evidence on the psychometric properties of most instruments. Most papers found moderate-to-high correlation between health and capability measures, ranging between 0.41 and 0.64. ASCOT, ICECAP-A, -O and -SCM instruments have published valuation sets, most frequently developed using best–worst scaling. Thirteen instruments were originally developed in English and one in Portuguese; however, some translations to other languages are available. Ten economic evaluations using capability instruments were identified. The presentation of results show a lack of consensus regarding the most appropriate way to use capability instruments in economic evaluations with discussion about capability-adjusted life years (CALYs), years of capability equivalence and the trade-off between maximisation of capability versus sufficient capability.

Conclusion

There has been increasing interest in applying the capability-based approach in health economic evaluations, but methodological and conceptual issues remain. There is still a need for direct comparison of the different capability instruments and for clear guidance on when and how they should be used in economic evaluations.
Appendix
Available only for authorised users
Literature
1.
go back to reference Drummond, M. F., Sculpher, M. J., Torrance, G. W., O’Brien, B. J., & Stoddart, G. L. (2005). Standard Methods for the economic evaluation of health care programme (3rd ed.). Oxford: Oxford University Press. Drummond, M. F., Sculpher, M. J., Torrance, G. W., O’Brien, B. J., & Stoddart, G. L. (2005). Standard Methods for the economic evaluation of health care programme (3rd ed.). Oxford: Oxford University Press.
2.
go back to reference Fox-Rushby, J. C. J. (2008). Approaches to measuring health and life. In J. C. J. Fox-Rushby (Ed.), Economic evaluation (pp. 85–100). Maidenhead: London School of Hygiene and Tropical Medicine, Open University Press. Fox-Rushby, J. C. J. (2008). Approaches to measuring health and life. In J. C. J. Fox-Rushby (Ed.), Economic evaluation (pp. 85–100). Maidenhead: London School of Hygiene and Tropical Medicine, Open University Press.
7.
go back to reference Sen, A. (1985). Commodities and capabilities. Amsterdam: Elsevier. ISBN 978-0-44-487730-7. Sen, A. (1985). Commodities and capabilities. Amsterdam: Elsevier. ISBN 978-0-44-487730-7.
10.
go back to reference NICE. (2017). Developing NICE guidelines: The manual 2014 (April 2017 update)—Incorporating economic evaluation. [PMG20]: National Institute for Health and Clinical Excellence. NICE. (2017). Developing NICE guidelines: The manual 2014 (April 2017 update)—Incorporating economic evaluation. [PMG20]: National Institute for Health and Clinical Excellence.
12.
go back to reference Hartley, R. J., Keen, E. M., Large, J. A., & Tedd, L. A. (1990). Search strategies. In R. J. Hartley (Ed.), Online searching: Principles and practice (pp. 153–173). London: Bowker-Saur. Hartley, R. J., Keen, E. M., Large, J. A., & Tedd, L. A. (1990). Search strategies. In R. J. Hartley (Ed.), Online searching: Principles and practice (pp. 153–173). London: Bowker-Saur.
14.
go back to reference Anand, P., & Wailoo, A. (2000). Utilities versus rights to publicly provided goods: Arguments and evidence from health care rationing. Economica,67, 543–577.CrossRef Anand, P., & Wailoo, A. (2000). Utilities versus rights to publicly provided goods: Arguments and evidence from health care rationing. Economica,67, 543–577.CrossRef
17.
go back to reference Laszewska, A., Schwab, M., Leutner, E., Oberrauter, M., Spiel, G., & Simon, J. (2019). Measuring broader wellbeing in mental health services: Validity of the German language OxCAP-MH capability instrument. Quality of Life Research,28(8), 2311–2323.PubMedPubMedCentralCrossRef Laszewska, A., Schwab, M., Leutner, E., Oberrauter, M., Spiel, G., & Simon, J. (2019). Measuring broader wellbeing in mental health services: Validity of the German language OxCAP-MH capability instrument. Quality of Life Research,28(8), 2311–2323.PubMedPubMedCentralCrossRef
29.
go back to reference Bailey, C., Kinghorn, P., Orlando, R., Armour, K., Perry, R., Jones, L., et al. (2016). The ICECAP-SCM tells you more about what I’m going through’: A think-aloud study measuring quality of life among patients receiving supportive and palliative care. Palliative Medicine,30(7), 642–652. https://doi.org/10.1177/0269216315624890.PubMedCrossRef Bailey, C., Kinghorn, P., Orlando, R., Armour, K., Perry, R., Jones, L., et al. (2016). The ICECAP-SCM tells you more about what I’m going through’: A think-aloud study measuring quality of life among patients receiving supportive and palliative care. Palliative Medicine,30(7), 642–652. https://​doi.​org/​10.​1177/​0269216315624890​.PubMedCrossRef
31.
33.
go back to reference Al-Janabi, H., Peters, T. J., Brazier, J., Bryan, S., Flynn, T. N., Clemens, S., et al. (2013). An investigation of the construct validity of the ICECAP-A capability measure. Quality of Life Research: An International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation,22(7), 1831–1840. https://doi.org/10.1007/s11136-012-0293-5.CrossRef Al-Janabi, H., Peters, T. J., Brazier, J., Bryan, S., Flynn, T. N., Clemens, S., et al. (2013). An investigation of the construct validity of the ICECAP-A capability measure. Quality of Life Research: An International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation,22(7), 1831–1840. https://​doi.​org/​10.​1007/​s11136-012-0293-5.CrossRef
36.
go back to reference Couzner, L., Crotty, M., Norman, R., & Ratcliffe, J. (2013). A comparison of the EQ-5D-3L and CECAP-O in an older post-acute patient population relative to the general population. Applied Health Economics and Health Policy,11(4), 415–425.PubMedCrossRef Couzner, L., Crotty, M., Norman, R., & Ratcliffe, J. (2013). A comparison of the EQ-5D-3L and CECAP-O in an older post-acute patient population relative to the general population. Applied Health Economics and Health Policy,11(4), 415–425.PubMedCrossRef
41.
go back to reference Deidda, M., Coll-Planas, L., Giné-Garriga, M., Guerra-Balic, M., Roqué Figuls, M. I., Tully, M. A., et al. (2018). Cost-effectiveness of exercise referral schemes enhanced by self-management strategies to battle sedentary behaviour in older adults: Protocol for an economic evaluation alongside the SITLESS three-armed pragmatic randomised controlled trial. British Medical Journal Open. https://doi.org/10.1136/bmjopen-2018-022266.CrossRef Deidda, M., Coll-Planas, L., Giné-Garriga, M., Guerra-Balic, M., Roqué Figuls, M. I., Tully, M. A., et al. (2018). Cost-effectiveness of exercise referral schemes enhanced by self-management strategies to battle sedentary behaviour in older adults: Protocol for an economic evaluation alongside the SITLESS three-armed pragmatic randomised controlled trial. British Medical Journal Open. https://​doi.​org/​10.​1136/​bmjopen-2018-022266.CrossRef
42.
go back to reference Williams, N. H., Roberts, J. L., Din, N. U., Totton, N., Charles, J. M., Hawkes, C. A., et al. (2016). Fracture in the Elderly Multidisciplinary Rehabilitation (FEMuR): A phase II randomised feasibility study of a multidisciplinary rehabilitation package following hip fracture. British Medical Journal Open. https://doi.org/10.1136/bmjopen-2016-012422.CrossRef Williams, N. H., Roberts, J. L., Din, N. U., Totton, N., Charles, J. M., Hawkes, C. A., et al. (2016). Fracture in the Elderly Multidisciplinary Rehabilitation (FEMuR): A phase II randomised feasibility study of a multidisciplinary rehabilitation package following hip fracture. British Medical Journal Open. https://​doi.​org/​10.​1136/​bmjopen-2016-012422.CrossRef
43.
go back to reference Parker, D. J., Nuttall, G. H., Bray, N., Hugill, T., Martinez-Santos, A., Edwards, R. T., et al. (2019). A randomised controlled trial and cost-consequence analysis of traditional and digital foot orthoses supply chains in a National Health Service setting: Application to feet at risk of diabetic plantar ulceration. Journal of foot and ankle research,12, 2. https://doi.org/10.1186/s13047-018-0311-0.PubMedPubMedCentralCrossRef Parker, D. J., Nuttall, G. H., Bray, N., Hugill, T., Martinez-Santos, A., Edwards, R. T., et al. (2019). A randomised controlled trial and cost-consequence analysis of traditional and digital foot orthoses supply chains in a National Health Service setting: Application to feet at risk of diabetic plantar ulceration. Journal of foot and ankle research,12, 2. https://​doi.​org/​10.​1186/​s13047-018-0311-0.PubMedPubMedCentralCrossRef
44.
go back to reference Barnes, T. R. E., Leeson, V. C., Paton, C., Costelloe, C., Simon, J., Kiss, N., et al. (2016). Antidepressant controlled trial for negative symptoms in schizophrenia (ACTIONS): A double-blind, placebo-controlled, randomised clinical trial. Health Technology Assessment,20(29), 1–45. https://doi.org/10.3310/hta20290.PubMedCrossRef Barnes, T. R. E., Leeson, V. C., Paton, C., Costelloe, C., Simon, J., Kiss, N., et al. (2016). Antidepressant controlled trial for negative symptoms in schizophrenia (ACTIONS): A double-blind, placebo-controlled, randomised clinical trial. Health Technology Assessment,20(29), 1–45. https://​doi.​org/​10.​3310/​hta20290.PubMedCrossRef
45.
go back to reference Burns T, R. J., Yeeles K, Catty J, on behalf of the Oxford Mental Health Coercion (OCTET) Programme Group (2016). Coercion in mental health: A trial of the effectiveness of community treatment orders and an investigation of informal coercion in community mental health care. Programme Grants Applied Research (Vol. 4). Burns T, R. J., Yeeles K, Catty J, on behalf of the Oxford Mental Health Coercion (OCTET) Programme Group (2016). Coercion in mental health: A trial of the effectiveness of community treatment orders and an investigation of informal coercion in community mental health care. Programme Grants Applied Research (Vol. 4).
56.
go back to reference Sacchetto, B., Aguiar, R., Vargas-Moniz, M. J., Jorge-Monteiro, M. F., Neves, M. J., Cruz, M. A., et al. (2016). The capabilities questionnaire for the community mental health context (CQ-CMH): A measure inspired by the capabilities approach and constructed through consumer-researcher collaboration. Psychiatric Rehabilitation Journal,39(1), 55–61. https://doi.org/10.1037/prj0000153.PubMedCrossRef Sacchetto, B., Aguiar, R., Vargas-Moniz, M. J., Jorge-Monteiro, M. F., Neves, M. J., Cruz, M. A., et al. (2016). The capabilities questionnaire for the community mental health context (CQ-CMH): A measure inspired by the capabilities approach and constructed through consumer-researcher collaboration. Psychiatric Rehabilitation Journal,39(1), 55–61. https://​doi.​org/​10.​1037/​prj0000153.PubMedCrossRef
57.
59.
go back to reference Rand, S., Malley, J., & Netten, A. (2012). Measuring the social care outcomes of informal carers: An interim technical report for the identifying the impact of adult social care (IIASC) Study. In C. a. L. Personal Social Services Research Unit (PSSRU) (Ed.), (Discussion paper ed.). Rand, S., Malley, J., & Netten, A. (2012). Measuring the social care outcomes of informal carers: An interim technical report for the identifying the impact of adult social care (IIASC) Study. In C. a. L. Personal Social Services Research Unit (PSSRU) (Ed.), (Discussion paper ed.).
61.
go back to reference Canaway, A., Al-Janabi, H., Kinghorn, P., Bailey, C., & Coast, J. (2017). Development of a measure (ICECAP-Close Person Measure) through qualitative methods to capture the benefits of end-of-life care to those close to the dying for use in economic evaluation. Palliative Medicine,31(1), 53–62. https://doi.org/10.1177/0269216316650616.PubMedCrossRef Canaway, A., Al-Janabi, H., Kinghorn, P., Bailey, C., & Coast, J. (2017). Development of a measure (ICECAP-Close Person Measure) through qualitative methods to capture the benefits of end-of-life care to those close to the dying for use in economic evaluation. Palliative Medicine,31(1), 53–62. https://​doi.​org/​10.​1177/​0269216316650616​.PubMedCrossRef
71.
go back to reference Milte, C. M., Walker, R., Luszcz, M. A., Lancsar, E., Kaambwa, B., & Ratcliffe, J. (2014). How important is health status in defining quality of life for older people? An exploratory study of the views of older South Australians. Applied Health Economics and Health Policy,12(1), 73–84.PubMedCrossRef Milte, C. M., Walker, R., Luszcz, M. A., Lancsar, E., Kaambwa, B., & Ratcliffe, J. (2014). How important is health status in defining quality of life for older people? An exploratory study of the views of older South Australians. Applied Health Economics and Health Policy,12(1), 73–84.PubMedCrossRef
78.
go back to reference Engel, L., Bryan, S., Noonan, V. K., & Whitehurst, D. G. T. (2018). Using path analysis to investigate the relationships between standardized instruments that measure health-related quality of life, capability wellbeing and subjective wellbeing: An application in the context of spinal cord injury. Social Science and Medicine,213, 154–164. https://doi.org/10.1016/j.socscimed.2018.07.041.PubMedCrossRef Engel, L., Bryan, S., Noonan, V. K., & Whitehurst, D. G. T. (2018). Using path analysis to investigate the relationships between standardized instruments that measure health-related quality of life, capability wellbeing and subjective wellbeing: An application in the context of spinal cord injury. Social Science and Medicine,213, 154–164. https://​doi.​org/​10.​1016/​j.​socscimed.​2018.​07.​041.PubMedCrossRef
79.
83.
86.
go back to reference Hörder, H., Gustafsson, S., Rydberg, T., Skoog, I., & Waern, M. (2016). A cross-cultural adaptation of the ICECAP-O: Test–retest reliability and item relevance in Swedish 70-year-olds. Societies,6(4), 30.CrossRef Hörder, H., Gustafsson, S., Rydberg, T., Skoog, I., & Waern, M. (2016). A cross-cultural adaptation of the ICECAP-O: Test–retest reliability and item relevance in Swedish 70-year-olds. Societies,6(4), 30.CrossRef
94.
go back to reference Mitchell, P. M., Roberts, T. E., Barton, P. M., Pollard, B. S., & Coast, J. (2013). Predicting the ICECAP-O capability index from the WOMAC osteoarthritis index: Is mapping onto capability from condition-specific health status questionnaires feasible? Medical Decision Making,33(4), 547–557. https://doi.org/10.1177/0272989x12475092.PubMedCrossRef Mitchell, P. M., Roberts, T. E., Barton, P. M., Pollard, B. S., & Coast, J. (2013). Predicting the ICECAP-O capability index from the WOMAC osteoarthritis index: Is mapping onto capability from condition-specific health status questionnaires feasible? Medical Decision Making,33(4), 547–557. https://​doi.​org/​10.​1177/​0272989x12475092​.PubMedCrossRef
96.
go back to reference Xin, Y., Lewsey, J., Gray, R., Clarke, C. E., Coast, J., Rick, C., et al. (2017). Too broad to be sensitive? Exploring the responsiveness of the ICECAP-O capability wellbeing measure compared to the EQ-5D-3L to the change of clinical and QoL aspects in people with parkinson’s. Value in Health,20(9), A763. https://doi.org/10.1016/j.jval.2017.08.2165.CrossRef Xin, Y., Lewsey, J., Gray, R., Clarke, C. E., Coast, J., Rick, C., et al. (2017). Too broad to be sensitive? Exploring the responsiveness of the ICECAP-O capability wellbeing measure compared to the EQ-5D-3L to the change of clinical and QoL aspects in people with parkinson’s. Value in Health,20(9), A763. https://​doi.​org/​10.​1016/​j.​jval.​2017.​08.​2165.CrossRef
103.
108.
go back to reference Linton, M. J., Mitchell, P. M., Al-Janabi, H., Schlander, M., Richardson, J., Iezzi, A., et al. (2018). Comparing the german translation of the ICECAP-A capability wellbeing measure to the original english version: Psychometric properties across healthy samples and seven health condition groups. Applied Research in Quality of Life. https://doi.org/10.1007/s11482-018-9681-5.CrossRef Linton, M. J., Mitchell, P. M., Al-Janabi, H., Schlander, M., Richardson, J., Iezzi, A., et al. (2018). Comparing the german translation of the ICECAP-A capability wellbeing measure to the original english version: Psychometric properties across healthy samples and seven health condition groups. Applied Research in Quality of Life. https://​doi.​org/​10.​1007/​s11482-018-9681-5.CrossRef
109.
go back to reference Handels, R. L. H., Sköldunger, A., Bieber, A., Edwards, R. T., Gonçalves-Pereira, M., Hopper, L., et al. (2018). Quality of life, care resource use, and costs of dementia in 8 European countries in a cross-sectional cohort of the actifcare study. Journal of Alzheimer’s Disease,66(3), 1027–1040. https://doi.org/10.3233/JAD-180275.PubMedCrossRef Handels, R. L. H., Sköldunger, A., Bieber, A., Edwards, R. T., Gonçalves-Pereira, M., Hopper, L., et al. (2018). Quality of life, care resource use, and costs of dementia in 8 European countries in a cross-sectional cohort of the actifcare study. Journal of Alzheimer’s Disease,66(3), 1027–1040. https://​doi.​org/​10.​3233/​JAD-180275.PubMedCrossRef
110.
go back to reference Coast, J., Bailey, C., Canaway, A., & Kinghorn, P. (2016). Measuring and valuing outcomes for care at the end of life: The capability approach. In J. Round (Ed.), Care at the end of life: An economic perspective (pp. 89–101). Cham: Springer.CrossRef Coast, J., Bailey, C., Canaway, A., & Kinghorn, P. (2016). Measuring and valuing outcomes for care at the end of life: The capability approach. In J. Round (Ed.), Care at the end of life: An economic perspective (pp. 89–101). Cham: Springer.CrossRef
111.
go back to reference Bray, N., Brand, A., Taylor, J., Hoare, Z., Dickinson, C., & Edwards, R. T. (2017). Portable electronic vision enhancement systems in comparison with optical magnifiers for near vision activities: An economic evaluation alongside a randomized crossover trial. Acta Ophthalmologica,95(5), e415–e423. https://doi.org/10.1111/aos.13255.PubMedCrossRef Bray, N., Brand, A., Taylor, J., Hoare, Z., Dickinson, C., & Edwards, R. T. (2017). Portable electronic vision enhancement systems in comparison with optical magnifiers for near vision activities: An economic evaluation alongside a randomized crossover trial. Acta Ophthalmologica,95(5), e415–e423. https://​doi.​org/​10.​1111/​aos.​13255.PubMedCrossRef
113.
go back to reference Henderson, C., Knapp, M., Fernandez, J. L., Beecham, J., Hirani, S. P., Cartwright, M., et al. (2013). Cost effectiveness of telehealth for patients with long term conditions (Whole Systems Demonstrator telehealth questionnaire study): Nested economic evaluation in a pragmatic, cluster randomised controlled trial. BMJ,346, f1035. https://doi.org/10.1136/bmj.f1035.PubMedCrossRef Henderson, C., Knapp, M., Fernandez, J. L., Beecham, J., Hirani, S. P., Cartwright, M., et al. (2013). Cost effectiveness of telehealth for patients with long term conditions (Whole Systems Demonstrator telehealth questionnaire study): Nested economic evaluation in a pragmatic, cluster randomised controlled trial. BMJ,346, f1035. https://​doi.​org/​10.​1136/​bmj.​f1035.PubMedCrossRef
114.
go back to reference Simon, J. K., Korrelboom, N., Kingdon, K., Wykes, D., Phiri, T., van der Gaag, P., Baksh, M., Steel, M. F. (unpublished manuscript). Cost-effectiveness of positive memory training (PoMeT) for the treatment of depression in schizophrenia: A within-trial economic evaluation. Simon, J. K., Korrelboom, N., Kingdon, K., Wykes, D., Phiri, T., van der Gaag, P., Baksh, M., Steel, M. F. (unpublished manuscript). Cost-effectiveness of positive memory training (PoMeT) for the treatment of depression in schizophrenia: A within-trial economic evaluation.
118.
go back to reference Forder, J., Jones, K., Glendinning, C., Caiels, J., Welch, E., Baxter, K., et al. (2012). Evaluation of the personal health budget pilot programme. Forder, J., Jones, K., Glendinning, C., Caiels, J., Welch, E., Baxter, K., et al. (2012). Evaluation of the personal health budget pilot programme.
119.
go back to reference Glendinning, C., Challis, D., Fernández, J. L., Jacobs, S., Jones, K., Knapp, M., et al. (2008). Evaluation of the Individual Budgets Pilot Programme. Glendinning, C., Challis, D., Fernández, J. L., Jacobs, S., Jones, K., Knapp, M., et al. (2008). Evaluation of the Individual Budgets Pilot Programme.
Metadata
Title
Capability instruments in economic evaluations of health-related interventions: a comparative review of the literature
Authors
Timea Mariann Helter
Joanna Coast
Agata Łaszewska
Tanja Stamm
Judit Simon
Publication date
01-06-2020
Publisher
Springer International Publishing
Published in
Quality of Life Research / Issue 6/2020
Print ISSN: 0962-9343
Electronic ISSN: 1573-2649
DOI
https://doi.org/10.1007/s11136-019-02393-5

Other articles of this Issue 6/2020

Quality of Life Research 6/2020 Go to the issue