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Quality of Life Research
Published in: Quality of Life Research 5/2012

Open Access 01-06-2012

Capabilities and quality of life in Dutch psycho-geriatric nursing homes: an exploratory study using a proxy version of the ICECAP-O

Authors: Peter Makai, Werner B. F. Brouwer, Marc A. Koopmanschap, Anna P. Nieboer

Published in: Quality of Life Research | Issue 5/2012

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Abstract

Purpose

To validate the ICECAP-O capability measure in psycho-geriatric elderly in nursing homes, we compared the capability scores of restrained and unrestrained clients. Both nursing staff and family were used as proxies for assessing clients’ capabilities.

Method

For 122 psycho-geriatric elderly, a total of 96 nursing professionals and 68 family members completed a proxy questionnaire. We investigated the convergent and discriminant validity of the ICECAP-O and measures of care dependency, health-related quality of life, and overall quality of life. We also directly compared ICECAP-O scores of the 56 clients for whom both nursing staff and family members had completed the questionnaire.

Results

Convergent validity between ICECAP-O and care dependency, health-related, and overall quality of life measures could be established, as well as discriminant validity for the restrained and unrestrained groups. Nursing and family proxy ICECAP-O tariffs were not significantly correlated.

Discussion

ICECAP-O measures a more general concept than health-related quality of life and can differentiate between restrained and non-restrained psycho-geriatric clients. Since nurses seem to be able to assess the current quality of life of clients using the ICECAP-O more precisely than the family proxies, for now the use of nursing proxies is recommended in a nursing home setting.
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Literature
1.
Drummond, M., Schulpher, M., Torrance, G., O’Brien, B., & Stoddart, G. (2005). Methods for the economic evaluation of healthcare programmes (p. 379). Oxford: Oxford University Press.
2.
Ryan, M., Netten, A., Skatun, D., & Smith, P. (2006). Using discrete choice experiments to estimate a preference-based measure of outcome–an application to social care for older people. Journal of Health Economics, 25, 927–944.PubMedCrossRef
3.
Makai, P., Nieboer, A. B., Koopmanschap, M. A., Stolk, E., & Brouwer, W. B. F. (2011). Quality of life instruments for economic evaluations of elderly care. Draft.
4.
Nieboer, A. P., Koolman, X., & Stolk, E. A. (2010). Preferences for long-term care services: Willingness to pay estimates derived from a discrete choice experiment. Social Science and Medicine, 70, 1317–1325.PubMedCrossRef
5.
Hamers, J. (2005). Why do we use physical restraints in the elderly? Zeitschrift für Gerontologie und Geriatrie, 38, 19.
6.
7.
Sen, A. (1982). Choice, welfare and measurement (p. 440). Cambridge, MA: Harvard University Press.
8.
Coast, J., Flynn, T. N., Natarajan, L., Sproston, K., Lewis, J., Louviere, J. J., et al. (2008). Valuing the ICECAP capability index for older people. Social Science and Medicine, 67, 874–882.PubMedCrossRef
9.
Coast, J., Peters, T. J., Natarajan, L., Sproston, K., & Flynn, T. (2008). An assessment of the construct validity of the descriptive system for the ICECAP capability measure for older people. Quality of Life Research: An International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation, 17, 967–976.CrossRef
10.
Flynn, T. N., Louviere, J. J., Marley, A. A. J., Coast, J., & Peters, T. J. (2008). Rescaling quality of life values from discrete choice experiments for use as QALYs: A cautionary tale. Population Health Metrics, 6. doi:10.​1186/​1478-7954-6-6.
11.
Grewal, I., Lewis, J., Flynn, T., Brown, J., Bond, J., & Coast, J. (2006). Developing attributes for a generic quality of life measure for older people: Preferences or capabilities? Social Science and Medicine, 62, 1891–1901.PubMedCrossRef
12.
Macdonald, A., & Cooper, B. (2007). Long-term care and dementia services: An impending crisis. Age and Ageing, 36, 16–22.PubMedCrossRef
13.
Kwasky, A. N., Harrison, B. E., & Whall, A. L. (2010). Quality of life and dementia: An integrated review of literature. Alzheimer’s Care Today, 11, 186–195.
14.
Banerjee, S., Samsi, K., Petrie, C. D., Alvir, J., Treglia, M., Schwam, E. M., et al. (2009). What do we know about quality of life in dementia? A review of the emerging evidence on the predictive and explanatory value of disease specific measures of health related quality of life in people with dementia. International Journal of Geriatric Psychiatry, 24, 15–24.PubMedCrossRef
15.
Brod, M., Stewart, A. L., Sands, L., & Walton, P. (1999). Conceptualization and measurement of quality of life in dementia: The dementia quality of life instrument (DQoL). The Gerontologist, 39, 25–36.PubMedCrossRef
16.
17.
Logsdon, R. G., Gibbons, L. E., McCurry, S. M., & Teri, L. (1999). Quality of life in alzheimer’s disease: Patient and caregiver reports. Journal of Mental Health and Aging, 5, 21–32.
18.
Selai, C. C. E. (2001). Assessing quality of life in dementia: Preliminary psychometric testing of the quality of life assessment schedule (QOLAS). Neuropsychological Rehabilitation, 11, 219–243.CrossRef
19.
Smith, S. C., Lamping, D. L., Banerjee, S., Harwood, R. H., Foley, B., Smith, P., et al. (2007). Development of a new measure of health-related quality of life for people with dementia: DEMQOL. Psychological Medicine, 37, 737.PubMedCrossRef
20.
Ettema, T. P., Dröes, R., de Lange, J., Mellenbergh, G. J., & Ribbe, M. W. (2007). QUALIDEM: Development and evaluation of a dementia specific quality of life instrument. scalability, reliability and internal structure. International Journal of Geriatric Psychiatry, 22, 549–556.PubMedCrossRef
21.
Hoe, J., Katona, C., Roch, B., & Livingston, G. (2005). Use of the QOL-AD for measuring quality of life in people with severe dementia—the LASER-AD study. Age and Ageing, 34, 130–135.PubMedCrossRef
22.
Neyens, J. C. L., Dijcks, B. P. J., Twisk, J., Schols, J. M. G. A., van Haastregt, J. C. M., van den Heuvel, W. J. A., et al. (2009). A multifactorial intervention for the prevention of falls in psychogeriatric nursing home patients, a randomised controlled trial (RCT). Age and Ageing, 38, 194–199.PubMedCrossRef
23.
Pickard, A. S., & Knight, S. J. (2005). Proxy evaluation of health-related quality of life: A conceptual framework for understanding multiple proxy perspectives. Medical Care, 43, 493–499.PubMedCrossRef
24.
Strating, M. M. H., Zuiderent, T., Nieboer, A. P., & Bal, R. A. (2008). Evaluating the care for better collaborative. Results of the first year of evaluation, pp. 1–132.
25.
Strating, M. M. H., Nieboer, A. P., Zuiderent-Jerak, T., & Bal, R. A. (2011). Creating effective quality-improvement collaboratives: A multiple case study. BMJ Quality and Safety, 20, 344–350.PubMedCrossRef
26.
Burgerlijke wetboek [civil code of the netherlands]. (1992). Article 446–Article 468.
27.
Miller, F. G., & Emanuel, E. J. (2008). Quality-improvement research and informed consent. New England Journal of Medicine, 358, 765–767.PubMedCrossRef
28.
EuroQol. (1990). A new facility for the measurement of health-related quality of life. The EuroQol group. Health Policy, 16, 199–208.
29.
Jonsson, L., Andreasen, N., Kilander, L., Soininen, H., Waldemar, G., Nygaard, H., et al. (2006). Patient- and proxy-reported utility in alzheimer disease using the EuroQoL. Alzheimer Disease and Associated Disorders, 20, 49–55.PubMedCrossRef
30.
Cantril, H. (1966). The pattern of human concerns. New Brunswick: Rutgers University Press.
31.
Bengtsson-Tops, A., Hansson, L., Sandlund, M., Bjarnason, O., Korkeila, J., Merinder, L., et al. (2005). Subjective versus interviewer assessment of global quality of life among persons with schizophrenia living in the community: A nordic multicentre study. Quality of Life Research, 14, 221–229.PubMedCrossRef
32.
33.
Bjelland, I., Dahl, A. A., Haug, T. T., & Neckelmann, D. (2002). The validity of the hospital anxiety and depression scale: An updated literature review. Journal of Psychosomatic Research, 52, 69–77.PubMedCrossRef
34.
Carod-Artal, F. J., Coral, L. F., Trizotto, D. S., & Moreira, C. M. (2009). Self- and proxy-report agreement on the stroke impact scale. Stroke, 40, 3308–3314.PubMedCrossRef
35.
Spinhoven, P., Ormel, J., Sloekers, P. P., Kempen, G. I., Speckens, A. E., & Van Hemert, A. M. (1997). A validation study of the hospital anxiety and depression scale (HADS) in different groups of dutch subjects. Psychological Medicine, 27, 363–370.PubMedCrossRef
36.
Dijkstra, A., Buist, G., & Dassen, T. (1996). Nursing-care dependency. Development of an assessment scale for demented and mentally handicapped patients. Scandinavian Journal of Caring Sciences, 10, 137–143.PubMed
37.
Valimaki, M., Dijkstra, A., Soini, H., M-, Antila., Zanotti, R., & Dassen, T. (2004). Elderly patient’s care dependency. Hallym International Journal of Aging, 6, 79–93.CrossRef
38.
Dijkstra, A., Coleman, M., Tomas, C., Valimaki, M., & Dassen, T. (2003). Cross-cultural psychometric testing of the care dependency scale with data. Journal of Advanced Nursing, 43, 181–187.PubMedCrossRef
39.
Lee, K. J., & Carlin, J. B. (2010). Multiple imputation for missing data: Fully conditional specification versus multivariate normal imputation. American Journal of Epidemiology, 171, 624–632.PubMedCrossRef
40.
Alexopoulos, G. S., Abrams, R. C., Young, R. C., & Shamoian, C. A. (1988). Cornell scale for depression in dementia. Biological Psychiatry, 23, 271–284.PubMedCrossRef
41.
Al-Janabi, H., Flynn, T., & Coast, J. (2011). Development of a self-report measure of capability wellbeing for adults: The ICECAP-A. Quality of Life Research.
42.
Huizing, A. R., Hamers, J. P. H., Gulpers, M. J. M., & Berger, M. P. F. (2009). A cluster-randomized trial of an educational intervention to reduce the use of physical restraints with psychogeriatric nursing home residents. Journal of the American Geriatrics Society, 57, 1139–1148.PubMedCrossRef
43.
Nussbaum, M. (Ed.). (1993). The quality of life (p. 453). Oxford: Clarendon Press.
44.
Robeyns, I. (2005). The capability approach: A theoretical survey. Journal of Human Development, 6(1), 93–114.CrossRef
45.
Coast, J., Smith, R., & Lorgelly, P. (2008). Should the capability approach be applied in health economics? Health Economics, 17, 667–670.PubMedCrossRef
46.
Brouwer, W. B. F., Culyer, A. J., van Exel, N. J. A., & Rutten, F. F. H. (2008). Welfarism vs. extra-welfarism. Journal of Health Economics, 27, 325–338.PubMedCrossRef
47.
Gullone, E., & Cummins, R. A. (Eds.). (2002). Universality of subjective wellbeing indicators (p. 196). Dordrecht: Kluwer.
Metadata
Title
Capabilities and quality of life in Dutch psycho-geriatric nursing homes: an exploratory study using a proxy version of the ICECAP-O
Authors
Peter Makai
Werner B. F. Brouwer
Marc A. Koopmanschap
Anna P. Nieboer
Publication date
01-06-2012
Publisher
Springer Netherlands
Published in
Quality of Life Research / Issue 5/2012
Print ISSN: 0962-9343
Electronic ISSN: 1573-2649
DOI
https://doi.org/10.1007/s11136-011-9997-1

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