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Published in: Health and Quality of Life Outcomes 1/2012

Open Access 01-12-2012 | Research

An assessment of the construct validity of the ASCOT measure of social care-related quality of life with older people

Authors: Juliette N Malley, Ann-Marie Towers, Ann P Netten, John E Brazier, Julien E Forder, Terry Flynn

Published in: Health and Quality of Life Outcomes | Issue 1/2012

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Abstract

Background

The adult social care outcomes toolkit (ASCOT) includes a preference-weighted measure of social care-related quality of life for use in economic evaluations. ASCOT has eight attributes: personal cleanliness and comfort, food and drink, control over daily life, personal safety, accommodation cleanliness and comfort, social participation and involvement, occupation and dignity. This paper aims to demonstrate the construct validity of the ASCOT attributes.

Methods

A survey of older people receiving publicly-funded home care services was conducted by face-to-face interview in several sites across England. Additional data on variables hypothesised to be related and unrelated to each of the attributes were also collected. Relationships between these variables and the attributes were analysed through chi-squared tests and analysis of variance, as appropriate, to test the construct validity of each attribute.

Results

301 people were interviewed and approximately 10% of responses were given by a proxy respondent. Results suggest that each attribute captured the extent to which respondents exercised choice in how their outcomes were met. There was also evidence for the validity of the control over daily life, occupation, personal cleanliness and comfort, personal safety, accommodation cleanliness and comfort, and social participation and involvement attributes. There was less evidence regarding the validity of the food and drink and dignity attributes, but this may be a consequence of problems finding good data against which to validate these attributes, as well as problems with the distribution of the food and drink item.

Conclusions

This study provides some evidence for the construct validity of the ASCOT attributes and therefore support for ASCOT's use in economic evaluation. It also demonstrated the feasibility of its use among older people, although the need for proxy respondents in some situations suggests that developing a version that is suitable for proxies would be a useful future direction for this work. Validation of the instrument on a sample of younger social care users would also be useful.
Literature
1.
2.
go back to reference Her Majesty's Government: The Coalition: our programme for government. London: TSO; 2010. Her Majesty's Government: The Coalition: our programme for government. London: TSO; 2010.
3.
go back to reference Wittenberg R, Comas-Herrara A, King D, Malley J, Pickard L, Darton R: Future Demand for Long-Term Care, 2002 to 2041: Projections of Demand for Long-Term Care for Older People in England. Discussion Paper 2330. Canterbury: Personal Social Services Research Unit; 2006. Wittenberg R, Comas-Herrara A, King D, Malley J, Pickard L, Darton R: Future Demand for Long-Term Care, 2002 to 2041: Projections of Demand for Long-Term Care for Older People in England. Discussion Paper 2330. Canterbury: Personal Social Services Research Unit; 2006.
4.
go back to reference Wanless D: Securing Good Care for Older People. Taking a Long-Term View. London: King's Fund; 2006. Wanless D: Securing Good Care for Older People. Taking a Long-Term View. London: King's Fund; 2006.
5.
go back to reference Her Majesty's Government: Building the National Care Service. CM 7854. London: The Stationery Office; 2010. Her Majesty's Government: Building the National Care Service. CM 7854. London: The Stationery Office; 2010.
6.
go back to reference Netten A, Burge P, Malley J, Potoglou D, Towers A, Brazier J, Flynn T, Forder J, Wall B: Outcomes of Social Care for Adults: Developing a Preference-Weighted Measure. Health Technology Assessment, in press. Netten A, Burge P, Malley J, Potoglou D, Towers A, Brazier J, Flynn T, Forder J, Wall B: Outcomes of Social Care for Adults: Developing a Preference-Weighted Measure. Health Technology Assessment, in press.
7.
go back to reference De Vellis R: Scale Development: Theory and Applications. 2nd edition. London: Sage; 2003. De Vellis R: Scale Development: Theory and Applications. 2nd edition. London: Sage; 2003.
8.
go back to reference Lenert L, Kaplan RM: Validity and Interpretation of Preference-Based Measures of Health-Related Quality of Life. Medical Care 2000, 38: II138-II150.PubMed Lenert L, Kaplan RM: Validity and Interpretation of Preference-Based Measures of Health-Related Quality of Life. Medical Care 2000, 38: II138-II150.PubMed
9.
go back to reference Brazier J, Deverill M, Green C, Harper R, Booth A: A review of the use of health status measures in economic evaluation. Health Technology Assessment 1999, 3: 1–164. Brazier J, Deverill M, Green C, Harper R, Booth A: A review of the use of health status measures in economic evaluation. Health Technology Assessment 1999, 3: 1–164.
10.
go back to reference Potoglou D, Burge P, Flynn T, Netten A, Malley J, Forder J, Brazier J: Best-Worst Scaling vs. Discrete Choice Experiments: An Empirical Comparison using Social Care Data. Social Science & Medicine 2011, 72: 1717–1727. 10.1016/j.socscimed.2011.03.027CrossRef Potoglou D, Burge P, Flynn T, Netten A, Malley J, Forder J, Brazier J: Best-Worst Scaling vs. Discrete Choice Experiments: An Empirical Comparison using Social Care Data. Social Science & Medicine 2011, 72: 1717–1727. 10.1016/j.socscimed.2011.03.027CrossRef
11.
go back to reference Coast J, Peters TJ, Natarajan L, Sproston K, Flynn T: An assessment of the construct validity of the descriptive system for the ICECAP capability measure for older people. Quality of Life Research 2008, 17: 967–976. 10.1007/s11136-008-9372-zCrossRefPubMed Coast J, Peters TJ, Natarajan L, Sproston K, Flynn T: An assessment of the construct validity of the descriptive system for the ICECAP capability measure for older people. Quality of Life Research 2008, 17: 967–976. 10.1007/s11136-008-9372-zCrossRefPubMed
12.
go back to reference Information Centre for Health and Social Care: Personal Social Services Home Care Users in England aged 65 and over, 2008–09 Survey. Leeds: Information Centre for Health and Social Care; 2009. Information Centre for Health and Social Care: Personal Social Services Home Care Users in England aged 65 and over, 2008–09 Survey. Leeds: Information Centre for Health and Social Care; 2009.
13.
go back to reference EuroQol group: EuroQol -- A New facility for the measurement of health-related quality of life. Health Policy 1990, 16: 199–208.CrossRef EuroQol group: EuroQol -- A New facility for the measurement of health-related quality of life. Health Policy 1990, 16: 199–208.CrossRef
14.
go back to reference Dolan P, Gudex C, Kind P, Williams A: The time trade-off method: Results from a general population study. Health Economics 1996, 5: 141–154. 10.1002/(SICI)1099-1050(199603)5:2<141::AID-HEC189>3.0.CO;2-NCrossRefPubMed Dolan P, Gudex C, Kind P, Williams A: The time trade-off method: Results from a general population study. Health Economics 1996, 5: 141–154. 10.1002/(SICI)1099-1050(199603)5:2<141::AID-HEC189>3.0.CO;2-NCrossRefPubMed
15.
go back to reference Goldberg D, Hilller V: A scaled version of the General Health Questionnaire. Psychological Medicine 1979, 9: 139–145. 10.1017/S0033291700021644CrossRefPubMed Goldberg D, Hilller V: A scaled version of the General Health Questionnaire. Psychological Medicine 1979, 9: 139–145. 10.1017/S0033291700021644CrossRefPubMed
16.
go back to reference Goldberg D: Manual of the general health questionnaire. Windsor: NFER; 1978. Goldberg D: Manual of the general health questionnaire. Windsor: NFER; 1978.
17.
go back to reference Goldberg D: The detection of psychiatric illness by questionnaire. London: Oxford University Press; 1972. Goldberg D: The detection of psychiatric illness by questionnaire. London: Oxford University Press; 1972.
18.
go back to reference Hyde M, Wiggins RD, Higgs P, Blane DB: A measure of quality of life in early old age: The theory, development and properties of a needs satisfaction model (CASP-19). Aging & Mental Health 2003, 7: 186–194. 10.1080/1360786031000101157CrossRef Hyde M, Wiggins RD, Higgs P, Blane DB: A measure of quality of life in early old age: The theory, development and properties of a needs satisfaction model (CASP-19). Aging & Mental Health 2003, 7: 186–194. 10.1080/1360786031000101157CrossRef
19.
go back to reference Wiggins R, Netuveli G, Hyde M, Higgs P, Blane D: The Evaluation of a Self-enumerated Scale of Quality of Life (CASP-19) in the Context of Research on Ageing: A Combination of Exploratory and Confirmatory Approaches. Social Indicators Research 2008, 89: 61–77. 10.1007/s11205-007-9220-5CrossRef Wiggins R, Netuveli G, Hyde M, Higgs P, Blane D: The Evaluation of a Self-enumerated Scale of Quality of Life (CASP-19) in the Context of Research on Ageing: A Combination of Exploratory and Confirmatory Approaches. Social Indicators Research 2008, 89: 61–77. 10.1007/s11205-007-9220-5CrossRef
20.
go back to reference Malley J, Sandhu S, Netten A: Younger Adults' Understanding of Questions for a Service User Experience Survey: A Report to the Information Centre for Health and Social Care. PSSRU Discussion Paper 2360. Canterbury: Personal Social Services Research Unit; 2006. Malley J, Sandhu S, Netten A: Younger Adults' Understanding of Questions for a Service User Experience Survey: A Report to the Information Centre for Health and Social Care. PSSRU Discussion Paper 2360. Canterbury: Personal Social Services Research Unit; 2006.
21.
go back to reference Hughes ME, Waite LJ, Hawkley LC, Cacioppo JT: A Short Scale for Measuring Loneliness in Large Surveys. Research on Aging 2004, 26: 655–672. 10.1177/0164027504268574PubMedCentralCrossRefPubMed Hughes ME, Waite LJ, Hawkley LC, Cacioppo JT: A Short Scale for Measuring Loneliness in Large Surveys. Research on Aging 2004, 26: 655–672. 10.1177/0164027504268574PubMedCentralCrossRefPubMed
22.
go back to reference Leyden KM: Social Capital and the Built Environment: The Importance of Walkable Neighbourhoods. American Journal of Public Health 2003, 93: 1546–1551. 10.2105/AJPH.93.9.1546PubMedCentralCrossRefPubMed Leyden KM: Social Capital and the Built Environment: The Importance of Walkable Neighbourhoods. American Journal of Public Health 2003, 93: 1546–1551. 10.2105/AJPH.93.9.1546PubMedCentralCrossRefPubMed
23.
go back to reference Walker RB, Hiller JE: Places and health: A qualitative study to explore how older women living alone perceive the social and physical dimensions of their neighbourhoods. Social Science & Medicine 2007, 65: 1154–1165. 10.1016/j.socscimed.2007.04.031CrossRef Walker RB, Hiller JE: Places and health: A qualitative study to explore how older women living alone perceive the social and physical dimensions of their neighbourhoods. Social Science & Medicine 2007, 65: 1154–1165. 10.1016/j.socscimed.2007.04.031CrossRef
24.
go back to reference Aronson J: Elderly people's accounts of home care rationing: missing voices in long-term care policy debates. Ageing & Society 2002, 22: 399–418.CrossRef Aronson J: Elderly people's accounts of home care rationing: missing voices in long-term care policy debates. Ageing & Society 2002, 22: 399–418.CrossRef
25.
go back to reference Young AF, Russell A, Powers JR: The sense of belonging to a neighbourhood: can it be measured and is it related to health and well being in older women? Social Science & Medicine 2004, 59: 2627–2637. 10.1016/j.socscimed.2004.05.001CrossRef Young AF, Russell A, Powers JR: The sense of belonging to a neighbourhood: can it be measured and is it related to health and well being in older women? Social Science & Medicine 2004, 59: 2627–2637. 10.1016/j.socscimed.2004.05.001CrossRef
26.
go back to reference Flynn T, Chan P, Coast J, Peters TJ: Assessing quality of life among British older people using the ICECAP-O capability measure. Applied Health Economics and Health Policy 2011, 9(5):317–29.CrossRefPubMed Flynn T, Chan P, Coast J, Peters TJ: Assessing quality of life among British older people using the ICECAP-O capability measure. Applied Health Economics and Health Policy 2011, 9(5):317–29.CrossRefPubMed
27.
go back to reference Jones K, Netten A, Francis J, Bebbington A: Using older home care user experiences in performance monitoring. Health & Social Care in the Community 2007, 15: 322–332. 10.1111/j.1365-2524.2006.00687.xCrossRef Jones K, Netten A, Francis J, Bebbington A: Using older home care user experiences in performance monitoring. Health & Social Care in the Community 2007, 15: 322–332. 10.1111/j.1365-2524.2006.00687.xCrossRef
28.
go back to reference Andresen EM, Meyers AR: Health-related quality of life outcomes measures. Archives of Physical Medicine and Rehabilitation 2000, 81: S30-S45. 10.1053/apmr.2000.20621CrossRefPubMed Andresen EM, Meyers AR: Health-related quality of life outcomes measures. Archives of Physical Medicine and Rehabilitation 2000, 81: S30-S45. 10.1053/apmr.2000.20621CrossRefPubMed
29.
go back to reference Forder JE, Caiels J: Measuring the outcomes of long-term care. Social Science & Medicine 2011, 73: 1766–1774. 10.1016/j.socscimed.2011.09.023CrossRef Forder JE, Caiels J: Measuring the outcomes of long-term care. Social Science & Medicine 2011, 73: 1766–1774. 10.1016/j.socscimed.2011.09.023CrossRef
30.
go back to reference Ellis B, Bannister W, Cox J, Fowler B, Shannon E, Drachman D, Adams R, Giordano L: Utilization of the propensity score method: an exploratory comparison of proxy-completed to self-completed responses in the Medicare Health Outcomes Survey. Health and Quality of Life Outcomes 2003, 1: 47. 10.1186/1477-7525-1-47PubMedCentralCrossRefPubMed Ellis B, Bannister W, Cox J, Fowler B, Shannon E, Drachman D, Adams R, Giordano L: Utilization of the propensity score method: an exploratory comparison of proxy-completed to self-completed responses in the Medicare Health Outcomes Survey. Health and Quality of Life Outcomes 2003, 1: 47. 10.1186/1477-7525-1-47PubMedCentralCrossRefPubMed
31.
go back to reference Epstein AM, Hall JA, Tognetti J, Son LH, Conant L Jr: Using Proxies to Evaluate Quality of Life: Can They Provide Valid Information about Patients' Health Status and Satisfaction with Medical Care? Medical Care 1989, 27: S91-S98. 10.1097/00005650-198903001-00008CrossRefPubMed Epstein AM, Hall JA, Tognetti J, Son LH, Conant L Jr: Using Proxies to Evaluate Quality of Life: Can They Provide Valid Information about Patients' Health Status and Satisfaction with Medical Care? Medical Care 1989, 27: S91-S98. 10.1097/00005650-198903001-00008CrossRefPubMed
32.
go back to reference Pierre U, Wood-Dauphinee S, Korner-Bitensky N, Gayton D, Hanley J: Proxy Use of the Canadian SF-36 in Rating Health Status of the Disabled Elderly. Journal of Clinical Epidemiology 1998, 51: 983–990. 10.1016/S0895-4356(98)00090-0CrossRefPubMed Pierre U, Wood-Dauphinee S, Korner-Bitensky N, Gayton D, Hanley J: Proxy Use of the Canadian SF-36 in Rating Health Status of the Disabled Elderly. Journal of Clinical Epidemiology 1998, 51: 983–990. 10.1016/S0895-4356(98)00090-0CrossRefPubMed
33.
go back to reference Andresen EM, Vahle VJ, Lollar D: Proxy Reliability: Health-Related Quality of Life (HRQoL) Measures for People with Disability. Quality of Life Research 2001, 10: 609–619. 10.1023/A:1013187903591CrossRefPubMed Andresen EM, Vahle VJ, Lollar D: Proxy Reliability: Health-Related Quality of Life (HRQoL) Measures for People with Disability. Quality of Life Research 2001, 10: 609–619. 10.1023/A:1013187903591CrossRefPubMed
34.
go back to reference Malley J, Caiels J, Fox D, McCarthy M, Smith N, Beadle-Brown J, Netten A, Towers A-M: A Report on the Development Studies for the National Adult Social Care User Experience Survey, PSSRU Discussion Paper 2721. Canterbury: Personal Social Services Research Unit, University of Kent; 2010. Malley J, Caiels J, Fox D, McCarthy M, Smith N, Beadle-Brown J, Netten A, Towers A-M: A Report on the Development Studies for the National Adult Social Care User Experience Survey, PSSRU Discussion Paper 2721. Canterbury: Personal Social Services Research Unit, University of Kent; 2010.
35.
go back to reference Malley J: A Comparison of Options for Performance Indicators from the Adult Social Care Survey (ASCS), PSSRU Discussion Paper 2736. Canterbury: Personal Social Services Research Unit, University of Kent; 2010. Malley J: A Comparison of Options for Performance Indicators from the Adult Social Care Survey (ASCS), PSSRU Discussion Paper 2736. Canterbury: Personal Social Services Research Unit, University of Kent; 2010.
36.
go back to reference Bowling A, Iliffe S: Psychological approach to successful ageing predicts future quality of life in older adults. Health and Quality of Life Outcomes 2011, 9: 13. 10.1186/1477-7525-9-13PubMedCentralCrossRefPubMed Bowling A, Iliffe S: Psychological approach to successful ageing predicts future quality of life in older adults. Health and Quality of Life Outcomes 2011, 9: 13. 10.1186/1477-7525-9-13PubMedCentralCrossRefPubMed
37.
go back to reference Bilotta C, Bowling A, Case A, Nicolini P, Mauri S, Castelli M, Vergani C: Dimensions and correlates of quality of life according to frailty status: a cross-sectional study on community-dwelling older adults referred to an outpatient geriatric service in Italy. Health and Quality of Life Outcomes 2010, 8: 56. 10.1186/1477-7525-8-56PubMedCentralCrossRefPubMed Bilotta C, Bowling A, Case A, Nicolini P, Mauri S, Castelli M, Vergani C: Dimensions and correlates of quality of life according to frailty status: a cross-sectional study on community-dwelling older adults referred to an outpatient geriatric service in Italy. Health and Quality of Life Outcomes 2010, 8: 56. 10.1186/1477-7525-8-56PubMedCentralCrossRefPubMed
38.
go back to reference Ormel J, Lindenberg S, Steverink N, Vonkorff M: Quality of life and social production functions: A framework for understanding health effects. Social Science & Medicine 1997, 45: 1051–1063. 10.1016/S0277-9536(97)00032-4CrossRef Ormel J, Lindenberg S, Steverink N, Vonkorff M: Quality of life and social production functions: A framework for understanding health effects. Social Science & Medicine 1997, 45: 1051–1063. 10.1016/S0277-9536(97)00032-4CrossRef
39.
go back to reference Wilson IB, Cleary PD: Linking clinical variables with health-related quality of life: a conceptual model of patient outcomes. JAMA 1995, 273: 59–65. 10.1001/jama.1995.03520250075037CrossRefPubMed Wilson IB, Cleary PD: Linking clinical variables with health-related quality of life: a conceptual model of patient outcomes. JAMA 1995, 273: 59–65. 10.1001/jama.1995.03520250075037CrossRefPubMed
40.
go back to reference Tanner B, Tilse C, de Jonge D: Restoring and Sustaining Home: The Impact of Home Modifications on the Meaning of Home for Older People. Journal of Housing For the Elderly 2008, 22: 195–215. 10.1080/02763890802232048CrossRef Tanner B, Tilse C, de Jonge D: Restoring and Sustaining Home: The Impact of Home Modifications on the Meaning of Home for Older People. Journal of Housing For the Elderly 2008, 22: 195–215. 10.1080/02763890802232048CrossRef
41.
go back to reference Gitlin LN, Corcoran M, Winter L, Boyce A, Hauck WW: A Randomized, Controlled Trial of a Home Environmental Intervention. The Gerontologist 2001, 41: 4–14. 10.1093/geront/41.1.4CrossRefPubMed Gitlin LN, Corcoran M, Winter L, Boyce A, Hauck WW: A Randomized, Controlled Trial of a Home Environmental Intervention. The Gerontologist 2001, 41: 4–14. 10.1093/geront/41.1.4CrossRefPubMed
42.
go back to reference Bannister J, Fyfe N: Fear and the City. Urban Studies (Routledge) 2001, 38: 807–813. 10.1080/00420980123505CrossRef Bannister J, Fyfe N: Fear and the City. Urban Studies (Routledge) 2001, 38: 807–813. 10.1080/00420980123505CrossRef
43.
go back to reference Box S, Hale C, Andrews G: EXPLAINING FEAR OF CRIME. British Journal of Criminology 1988, 28: 340–356. Box S, Hale C, Andrews G: EXPLAINING FEAR OF CRIME. British Journal of Criminology 1988, 28: 340–356.
44.
go back to reference Victor CR, Scambler SJ, Bowling A, Bond J: The prevalence of, and risk factors for, loneliness in later life: a survey of older people in Great Britain. Ageing & Society 2005, 25: 357–375. 10.1017/S0144686X04003332CrossRef Victor CR, Scambler SJ, Bowling A, Bond J: The prevalence of, and risk factors for, loneliness in later life: a survey of older people in Great Britain. Ageing & Society 2005, 25: 357–375. 10.1017/S0144686X04003332CrossRef
45.
go back to reference Victor C, Scambler S, Bond J, Bowling A: Being alone in later life: loneliness, social isolation and living alone. Reviews in Clinical Gerontology 2000, 10: 407–417. 10.1017/S0959259800104101CrossRef Victor C, Scambler S, Bond J, Bowling A: Being alone in later life: loneliness, social isolation and living alone. Reviews in Clinical Gerontology 2000, 10: 407–417. 10.1017/S0959259800104101CrossRef
46.
go back to reference de Jong Gierveld J: A review of loneliness: concept and definitions, determinants and consequences. Reviews in Clinical Gerontology 1998, 8: 73–80. 10.1017/S0959259898008090CrossRef de Jong Gierveld J: A review of loneliness: concept and definitions, determinants and consequences. Reviews in Clinical Gerontology 1998, 8: 73–80. 10.1017/S0959259898008090CrossRef
Metadata
Title
An assessment of the construct validity of the ASCOT measure of social care-related quality of life with older people
Authors
Juliette N Malley
Ann-Marie Towers
Ann P Netten
John E Brazier
Julien E Forder
Terry Flynn
Publication date
01-12-2012
Publisher
BioMed Central
Published in
Health and Quality of Life Outcomes / Issue 1/2012
Electronic ISSN: 1477-7525
DOI
https://doi.org/10.1186/1477-7525-10-21

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