Multiple sclerosis (MS) is a chronic autoimmune disease of the central nervous system [ 1 , 2 ]. More than two million people worldwide live with MS, and it is the most common inflammatory neurological disease in young adults [ 3 , 4 ]. MS symptoms …
Authors:
Alexander Keenan, Chiara Whichello, Hoa H. Le, David M. Kern, Gabriela S. Fernandez, Vicky Turner, Anup Das, Matthew Quaife, Amy Perrin Ross
Choice-based preference elicitation methods such as the discrete choice experiment (DCE) present hypothetical choices to respondents, with an expectation that these hypothetical choices accurately reflect a ‘real world’ health-related decision …
Authors:
Jennifer A. Whitty, Emily Lancsar, Richard De Abreu Lourenco, Kirsten Howard, Elly A. Stolk
The development and availability of therapies for skin conditions that fulfill patients’ needs is of utmost importance, as these disorders negatively affect patients’ physical and mental well-being [ 1 – 5 ]. Atopic dermatitis (AD) is a chronic …
Authors:
Katja C. Heinz, Charlotte Beaudart, Damon Willems, Mickaël Hiligsmann
Open Access
03-05-2024 | Original Research Article
The aim of follow-up clinical care for cancer focuses on the detection of recurrence and metastases after treatment [ 1 ]. With an ageing population leading to increasing numbers of cancer patients and advances in treatment leading to improved …
Human papillomavirus (HPV) vaccines are highly effective against cervical and other HPV-related cancers, while additionally having a good safety profile and having the capacity for effecting herd immunity [ 1 ]. In France, the percentage of …
Authors:
Sandra Chyderiotis, Jonathan Sicsic, Amandine Gagneux-Brunon, Jocelyn Raude, Anne-Sophie Barret, Sébastien Bruel, Aurélie Gauchet, Anne-Sophie Le Duc Banaszuk, Morgane Michel, Bruno Giraudeau, Nathalie Thilly, Judith E. Mueller, for the PrevHPV Consortium
This paper focuses on survey administration and data collection methods employed for stated-preference studies in health applications. First, it describes different types of survey administration methods, encompassing web-based surveys …
Authors:
Semra Ozdemir, Matthew Quaife, Ateesha F. Mohamed, Richard Norman
Diabetes is a global health issue, affecting more than 440 million people worldwide [ 1 ]. China has a population of 1.38 billion and an estimated 110 million people suffer from diabetes, making it the country with the largest number of diabetic …
The interest in quantifying stated preferences for health and healthcare continues to grow, as does the technology available to support and improve health preference studies. Technological advancements in the last two decades have implications and …
Authors:
Caroline Vass, Marco Boeri, Gemma Shields, Jaein Seo
Malignant pleural mesothelioma (MPM) is a rare and usually fatal malignancy frequently linked to occupational exposure to asbestos [ 1 ], with a latency period of between 20 and 60 years. Specialised advice is often needed to confirm a diagnosis …
Authors:
Adam E. J. Gibson, Waqas Ahmed, Louise Longworth, Bryan Bennett, Melinda Daumont, Liz Darlison
Open Access
11-04-2024 | Original Research Article
Unplanned non-attendance, referring to instances where patients do not attend scheduled healthcare appointments, is considered a major source of waste within healthcare systems [ 1 ]. Within the reported literature, there is a wide range of …
Authors:
Shayma Mohammed Selim, Sameera Senanayake, Steven M. McPhail, Hannah E. Carter, Sundresan Naicker, Sanjeewa Kularatna
The history of clinical trials has been fraught with unethical practices. The atrocities of World War II are well documented [ 1 ] but from these tragedies came the first concrete steps towards patient consent and safety in clinical trials. The …
Human immunodeficiency virus (HIV) is a retrovirus that attacks the body’s immune system, thus weakening the body against other infections and illnesses. When left untreated, HIV progresses to acquired immune deficiency syndrome (AIDS), a …
Authors:
Natalie V. J. Aldhouse, Eric K. H. Chan, Tamara Al-zubeidi, Stephanie McKee, Valérie Oriol Mathieu, Antoine C. El khoury, Helen Kitchen
Open Access
06-04-2024 | Type 1 Diabetes | Original Research Article
Diabetes is a global health priority, presenting a significant challenge to the health and well-being of individuals living with the condition, their families and societies [ 1 , 2 ]. In Australia, more than 1.5 million people have diabetes, with …
Authors:
Christel Hendrieckx, Sienna Russell-Green, Timothy Skinner, Ashley H. Ng, Chris Lee, Siobhan Barlow, Alan Davey, Caitlin Rogers, Elizabeth Holmes-Truscott, Jane Speight
β-thalassemia is a hereditary hemoglobinopathy diagnosed in over 40,000 newborns worldwide each year, approximately 25,500 of whom have transfusion-dependent β-thalassemia (TDT) [ 1 , 2 ]. In England, approximately 26 newborns had confirmed …
Authors:
Jennifer Drahos, Adriana Boateng-Kuffour, Melanie Calvert, Laurice Levine, Neelam Dongha, Nanxin Li, Zahra Pakbaz, Farrukh Shah, Antony P. Martin
Open Access
18-03-2024 | Dementia | Original Research Article
Palliative care policies in most high-income countries aim to support patient preferences for the care they receive toward the end of life, including the place of death, with the focus on providing most care outside of the acute hospital setting [ …
Authors:
Patricia Kenny, Deborah J. Street, Jane Hall, Meera R. Agar, Jane Phillips
Open Access
15-03-2024 | Original Research Article
A discrete choice experiment (DCE) is a quantitative method that measures the preferences of individuals and allows for the examination of the trade-offs that individuals make for different healthcare service and intervention options [ 1 ]. DCEs …
Authors:
Kathleen Beusterien, Oliver Will, Emuella Flood, Susan McCutcheon, deMauri S. Mackie, Stella Mokiou
Harrington et al. define patient engagement (PE) in research as “the active, meaningful, and collaborative interaction between patients and researchers across all stages of the research process, where research decision making is guided by …
Authors:
Deborah A. Marshall, Nitya Suryaprakash, Danielle C. Lavallee, Tamara L. McCarron, Sandra Zelinsky, Karis L. Barker, Gail MacKean, Maria J. Santana, Paul Moayyedi, Stirling Bryan
14-03-2024 | Breast Cancer | Original Research Article
According to the worldwide estimates of incidence and mortality rates for 36 cancers in 185 countries in 2020, female breast cancer was estimated to be the top of the ten most common cancer types [ 1 , 2 ]. A total of 2.3 million new cases were …
Discordance between patient and healthcare provider (e.g. physicians) preferences regarding treatment decision making is common and has been reported for different diseases, including cancer [ 1 ]. Such discrepancies can lead to failure of …
Authors:
Lilly Sophia Brandstetter, Steffi Jírů-Hillmann, Stefan Störk, Peter Ulrich Heuschmann, Achim Wöckel, Jens-Peter Reese
