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BMC Geriatrics

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Open Access 01-12-2021 | Care | Research

Health care transitions for persons living with dementia and their caregivers

Authors: Jessica Ashbourne, Veronique Boscart, Samantha Meyer, Catherine E. Tong, Paul Stolee

Published in: BMC Geriatrics | Issue 1/2021

Abstract

Background

Persons with dementia are likely to require care from various health care providers in multiple care settings, necessitating navigation through an often-fragmented care system. This study aimed to create a better understanding of care transition experiences from the perspectives of persons living with dementia and their caregivers in Ontario, Canada, through the development of a theoretical framework.

Methods

Constructivist grounded theory guided the study. Seventeen individual caregiver interviews, and 12 dyad interviews including persons with dementia and their caregivers, were recorded and transcribed verbatim. The data were coded using NVivo 10 software; analysis occurred iteratively until saturation was reached.

Results

A theoretical framework outlining the context, processes, and influencing factors of care transitions was developed and refined. Gaining an in-depth understanding of the complex care transitions of individuals with dementia and their caregivers is an important step in improving the quality of care and life for this population.

Conclusion

The framework developed in this study provides a focal point for efforts to improve the health care transitions of persons living with dementia.

Available only for authorised users

At the time of data collection for this study, these were the Local Health Integration Networks (LHINs); LHINS are currently evolving to a new organizational structure and identity.

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Title: Health care transitions for persons living with dementia and their caregivers
Authors: Jessica Ashbourne
Veronique Boscart
Samantha Meyer
Catherine E. Tong
Paul Stolee
Publication date: 01-12-2021
Publisher: BioMed Central
Keywords: Care
Dementia
Dementia
Published in: BMC Geriatrics / Issue 1/2021
Electronic ISSN: 1471-2318
DOI: https://doi.org/10.1186/s12877-021-02235-5

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Results

Conclusion

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