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Orphanet Journal of Rare Diseases
Published in: Orphanet Journal of Rare Diseases 1/2014

Open Access 01-12-2014 | Poster presentation

The RE(ACT) Initiative and the use of an online community to enhance research on rare diseases

Author: Olivier Menzel

Published in: Orphanet Journal of Rare Diseases | Special Issue 1/2014

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Excerpt

There is a striking need for increased international cooperation in scientific research on rare diseases (RDs). Existing research efforts are in fact still scattered and fragmented research is being performed with little coordination between research laboratories. This lack of coordination is particularly detrimental to the increase of knowledge and to the delivery of new therapies for RDs because the resources are very limited and the patient population is small for each disease. Moreover, traditional funding mechanisms based on natural market conditions and access to public funds, do not fit the reality of research requirements on RDs. …
Metadata
Title
The RE(ACT) Initiative and the use of an online community to enhance research on rare diseases
Author
Olivier Menzel
Publication date
01-12-2014
Publisher
BioMed Central
Published in
Orphanet Journal of Rare Diseases / Issue Special Issue 1/2014
Electronic ISSN: 1750-1172
DOI
https://doi.org/10.1186/1750-1172-9-S1-P8

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