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Open Access 01-12-2014 | Oral presentation

OSSE – open source registry software solution

Authors: Marita Muscholl, Martin Lablans, Thomas OF Wagner, Frank Ückert

Published in: Orphanet Journal of Rare Diseases | Special Issue 1/2014

Excerpt

OSSE (Open Source-Registersystem für Seltene Erkrankungen in der EU / Open Source Registry System for Rare Diseases in the EU) provides patient organizations, physicians and scientists with open-source software for the creation of patient registries. As a result, the national registry landscape is improved to comply with European principles regarding e.g. minimum data set and data quality, as summarized in the EUCERD recommendation on rare disease registries. Also, the necessary interoperability is achieved to facilitate federation of those registries on a national and international level. …

Title: OSSE – open source registry software solution
Authors: Marita Muscholl
Martin Lablans
Thomas OF Wagner
Frank Ückert
Publication date: 01-12-2014
Publisher: BioMed Central
Published in: Orphanet Journal of Rare Diseases / Issue Special Issue 1/2014
Electronic ISSN: 1750-1172
DOI: https://doi.org/10.1186/1750-1172-9-S1-O9

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OSSE – open source registry software solution

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