Skip to main content
Top
Published in: BMC Geriatrics 1/2009

Open Access 01-12-2009 | Research article

Challenges to conducting research with older people living in nursing homes

Authors: Sue Hall, Susan Longhurst, Irene J Higginson

Published in: BMC Geriatrics | Issue 1/2009

Login to get access

Abstract

Background

Although older people are increasingly cared for in nursing homes towards the end of life, there is a dearth of research exploring the views of residents. There are however, a number of challenges and methodological issues involved in doing this. The aim of this paper is to discuss some of these, along with residents' views on taking part in a study of the perceptions of dignity of older people in care homes and make recommendations for future research in these settings.

Methods

Qualitative interviews were used to obtain the views on maintaining dignity of 18 people aged 75 years and over, living in two private nursing homes in South East London. Detailed field notes on experiences of recruiting and interviewing participants were kept.

Results

Challenges included taking informed consent (completing reply slips and having a 'reasonable' understanding of their participation); finding opportunities to conduct interviews; involvement of care home staff and residents' families and trying to maintain privacy during the interviews. Most residents were positive about their participation in the study, however, five had concerns either before or during their interviews. Although 15 residents seemed to feel free to air their views, three seemed reluctant to express their opinions on their care in the home.

Conclusion

Although we experienced many challenges to conducting this study, they were not insurmountable, and once overcome, allowed this often unheard vulnerable group to express their views, with potential long-term benefits for future delivery of care.
Literature
1.
go back to reference Cartwright JC: Nursing homes and assisted living facilities as places for dying. Annual Review of Nursing Research: Focus on Geriatric Nursing. 2002, Springer, 8: 231-263. Cartwright JC: Nursing homes and assisted living facilities as places for dying. Annual Review of Nursing Research: Focus on Geriatric Nursing. 2002, Springer, 8: 231-263.
2.
go back to reference Froggatt KA, Wilson D, Justice C, MacAdam M, Leibovici K, Kinch J, et al: End-of-life care in long term care settings for older people: a literature review. International Journal of Older People Nursing. 2006, 1: 45-50.CrossRefPubMed Froggatt KA, Wilson D, Justice C, MacAdam M, Leibovici K, Kinch J, et al: End-of-life care in long term care settings for older people: a literature review. International Journal of Older People Nursing. 2006, 1: 45-50.CrossRefPubMed
3.
go back to reference Parker-Oliver D, Porock D, Zweig S: End-of-Life Care in U.S. Nursing Homes: A Review of the Evidence. Journal of the American Medical Directors Association. 2005, 5: 147-155.CrossRef Parker-Oliver D, Porock D, Zweig S: End-of-Life Care in U.S. Nursing Homes: A Review of the Evidence. Journal of the American Medical Directors Association. 2005, 5: 147-155.CrossRef
4.
go back to reference Uman GC, Urman HN: The challenges of conducting clinical nursing research with elderly populations. Association of Perioperative Registered Nurses Journal. 1990, 52: 400-406.CrossRef Uman GC, Urman HN: The challenges of conducting clinical nursing research with elderly populations. Association of Perioperative Registered Nurses Journal. 1990, 52: 400-406.CrossRef
5.
go back to reference Harris R, Dyson E: Recruitment of frail older people to research: lessons learned through experience. Journal of Advanced Nursing. 2001, 36: 643-651. 10.1046/j.1365-2648.2001.02029.x.CrossRefPubMed Harris R, Dyson E: Recruitment of frail older people to research: lessons learned through experience. Journal of Advanced Nursing. 2001, 36: 643-651. 10.1046/j.1365-2648.2001.02029.x.CrossRefPubMed
6.
go back to reference Maas ML, Kelley LS, Park M, Specht JP: Issues in conducting research in nursing homes. West J Nurs Res. 2002, 24 (4): 373-389. 10.1177/01945902024004006.CrossRefPubMed Maas ML, Kelley LS, Park M, Specht JP: Issues in conducting research in nursing homes. West J Nurs Res. 2002, 24 (4): 373-389. 10.1177/01945902024004006.CrossRefPubMed
7.
go back to reference Addington-Hall J: Research sensitivities to palliative care patients. European Journal of Cancer Care. 2002, 11 (3): 220-224. 10.1046/j.1365-2354.2002.00343.x.CrossRefPubMed Addington-Hall J: Research sensitivities to palliative care patients. European Journal of Cancer Care. 2002, 11 (3): 220-224. 10.1046/j.1365-2354.2002.00343.x.CrossRefPubMed
8.
go back to reference Chouliara Z, Kearney N, Worth A, Stott D: Challenges in conducting research with hospitalized older people with cancer: drawing from the experience of an ongoing interview-based project. Eur J Cancer Care (Engl). 2004, 13 (5): 409-415. 10.1111/j.1365-2354.2004.00543.x.CrossRef Chouliara Z, Kearney N, Worth A, Stott D: Challenges in conducting research with hospitalized older people with cancer: drawing from the experience of an ongoing interview-based project. Eur J Cancer Care (Engl). 2004, 13 (5): 409-415. 10.1111/j.1365-2354.2004.00543.x.CrossRef
9.
go back to reference Hutchinson SA, Wilson ME, Wilson HS: Benefits of participating in research interviewing. Image: Journal of Nursing Scholarship. 1994, 26: 161-164. 10.1111/j.1547-5069.1994.tb00937.x. Hutchinson SA, Wilson ME, Wilson HS: Benefits of participating in research interviewing. Image: Journal of Nursing Scholarship. 1994, 26: 161-164. 10.1111/j.1547-5069.1994.tb00937.x.
10.
go back to reference Pleschberger S: Dignity and the challenges of dying in nursing homes: the residents' view. Age and Ageing. 2007, 36: 197-202. 10.1093/ageing/afl152.CrossRefPubMed Pleschberger S: Dignity and the challenges of dying in nursing homes: the residents' view. Age and Ageing. 2007, 36: 197-202. 10.1093/ageing/afl152.CrossRefPubMed
11.
go back to reference Hall S, Longhurst S, Higginson IJ: Living and dying with dignity: A qualitative study of the views of older people in care homes. Age and Ageing. 2009, 38: 411-416. 10.1093/ageing/afp069.CrossRefPubMed Hall S, Longhurst S, Higginson IJ: Living and dying with dignity: A qualitative study of the views of older people in care homes. Age and Ageing. 2009, 38: 411-416. 10.1093/ageing/afp069.CrossRefPubMed
12.
go back to reference Mahoney FI, Barthel DW: Functional evaluation: The Barthel Index. Maryland State Medical Journal. 1965, 14: 61-65.PubMed Mahoney FI, Barthel DW: Functional evaluation: The Barthel Index. Maryland State Medical Journal. 1965, 14: 61-65.PubMed
13.
go back to reference Chochinov HM, Hack T, McClement S, Kristjanson L, Harlos M: Dignity in the terminally ill: a developing empirical model. Soc Sci Med. 2002, 54 (3): 433-443. 10.1016/S0277-9536(01)00084-3.CrossRefPubMed Chochinov HM, Hack T, McClement S, Kristjanson L, Harlos M: Dignity in the terminally ill: a developing empirical model. Soc Sci Med. 2002, 54 (3): 433-443. 10.1016/S0277-9536(01)00084-3.CrossRefPubMed
14.
go back to reference Hall S, Chochinov H, Harding R, Murray S, Richardson A, Higginson IJ: A phase II randomised controlled trial of the feasibility, acceptability and potential effectiveness of Dignity Therapy for older people in care homes: Study protocol. BMC Geriatrics. 2009, 9 (1): 9-10.1186/1471-2318-9-9.CrossRefPubMedPubMedCentral Hall S, Chochinov H, Harding R, Murray S, Richardson A, Higginson IJ: A phase II randomised controlled trial of the feasibility, acceptability and potential effectiveness of Dignity Therapy for older people in care homes: Study protocol. BMC Geriatrics. 2009, 9 (1): 9-10.1186/1471-2318-9-9.CrossRefPubMedPubMedCentral
15.
go back to reference Applegate M, Morse JM: Personal privacy and interactional patterns in a nursing home. Journal of Aging Studies. 1994, 8: 413-434. 10.1016/0890-4065(94)90012-4.CrossRef Applegate M, Morse JM: Personal privacy and interactional patterns in a nursing home. Journal of Aging Studies. 1994, 8: 413-434. 10.1016/0890-4065(94)90012-4.CrossRef
Metadata
Title
Challenges to conducting research with older people living in nursing homes
Authors
Sue Hall
Susan Longhurst
Irene J Higginson
Publication date
01-12-2009
Publisher
BioMed Central
Published in
BMC Geriatrics / Issue 1/2009
Electronic ISSN: 1471-2318
DOI
https://doi.org/10.1186/1471-2318-9-38

Other articles of this Issue 1/2009

BMC Geriatrics 1/2009 Go to the issue