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Published in: AIDS and Behavior 10/2018

Open Access 01-10-2018 | Original Paper

Addressing Stigma Through a Virtual Community for People Living with HIV: A Mixed Methods Study of the PositiveLinks Mobile Health Intervention

Authors: Tabor E. Flickinger, Claire DeBolt, Alice Xie, Alison Kosmacki, Marika Grabowski, Ava Lena Waldman, George Reynolds, Mark Conaway, Wendy F. Cohn, Karen Ingersoll, Rebecca Dillingham

Published in: AIDS and Behavior | Issue 10/2018

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Abstract

Stigma has negative consequences for quality of life and HIV care outcomes. PositiveLinks is a mobile health intervention that includes a secure anonymous community message board (CMB). We investigated discussion of stigma and changes in stigma scores. Of 77 participants in our pilot, 63% were male, 49% Black, and 72% had incomes below the federal poverty level. Twenty-one percent of CMB posts (394/1834) contained stigma-related content including negative (experiencing stigma) and positive (overcoming stigma) posts addressing intrapersonal and interpersonal stigma. Higher baseline stigma was positively correlated with stress and negatively correlated with HIV care self-efficacy. 12-month data showed a trend toward more improved stigma scores for posters on the CMB versus non-posters (− 4.5 vs − 0.63) and for posters of stigma-related content versus other content (− 5.1 vs − 3.3). Preliminary evidence suggests that a supportive virtual community, accessed through a clinic-affiliated smartphone app, can help people living with HIV to address stigma.
Literature
1.
go back to reference Nachega JB, Morroni C, Zuniga JM, et al. HIV-related stigma, isolation, discrimination, and serostatus disclosure: a global survey of 2035 HIV-infected adults. J Int Assoc Physicians AIDS Care. 2012;11(3):172–8.CrossRef Nachega JB, Morroni C, Zuniga JM, et al. HIV-related stigma, isolation, discrimination, and serostatus disclosure: a global survey of 2035 HIV-infected adults. J Int Assoc Physicians AIDS Care. 2012;11(3):172–8.CrossRef
2.
go back to reference Shacham E, Rosenburg N, Önen NF, Donovan MF, Turner Overton E. Persistent HIV-related stigma among an outpatient US clinic population. Int J STD AIDS. 2015;26(4):243–50.CrossRefPubMed Shacham E, Rosenburg N, Önen NF, Donovan MF, Turner Overton E. Persistent HIV-related stigma among an outpatient US clinic population. Int J STD AIDS. 2015;26(4):243–50.CrossRefPubMed
3.
go back to reference Fletcher F, Ingram LA, Kerr J, Buchberg M, Bogdan-Lovis L, Philpott-Jones S. “She Told Them, Oh That Bitch Got AIDS”: experiences of multilevel HIV/AIDS-related stigma among African American women living with HIV/AIDS in the South. AIDS Patient Care STDS. 2016;30(7):349–56.CrossRefPubMedPubMedCentral Fletcher F, Ingram LA, Kerr J, Buchberg M, Bogdan-Lovis L, Philpott-Jones S. “She Told Them, Oh That Bitch Got AIDS”: experiences of multilevel HIV/AIDS-related stigma among African American women living with HIV/AIDS in the South. AIDS Patient Care STDS. 2016;30(7):349–56.CrossRefPubMedPubMedCentral
4.
go back to reference Sowell R, Seals B, Moneyham L, Demi A, Cohen L, Brake S. Quality of life in HIV-infected women in the south-eastern United States. AIDS Care. 1997;9(5):501–12.CrossRefPubMed Sowell R, Seals B, Moneyham L, Demi A, Cohen L, Brake S. Quality of life in HIV-infected women in the south-eastern United States. AIDS Care. 1997;9(5):501–12.CrossRefPubMed
5.
go back to reference Darlington CK, Hutson SP. Understanding HIV-related stigma among women in the Southern United States: a literature review. AIDS Behav. 2017;21(1):12–26.CrossRefPubMed Darlington CK, Hutson SP. Understanding HIV-related stigma among women in the Southern United States: a literature review. AIDS Behav. 2017;21(1):12–26.CrossRefPubMed
6.
7.
go back to reference Kerr JC, Valois RF, Diclemente RJ, et al. HIV-related stigma among African-American youth in the Northeast and Southeast US. AIDS Behav. 2014;18(6):1063–7.CrossRefPubMedPubMedCentral Kerr JC, Valois RF, Diclemente RJ, et al. HIV-related stigma among African-American youth in the Northeast and Southeast US. AIDS Behav. 2014;18(6):1063–7.CrossRefPubMedPubMedCentral
9.
go back to reference Arnold EA, Rebchook GM, Kegeles SM. ‘Triply cursed’: racism, homophobia and HIV-related stigma are barriers to regular HIV testing, treatment adherence and disclosure among young Black gay men. Culture Health Sex. 2014;16(6):710–22.CrossRef Arnold EA, Rebchook GM, Kegeles SM. ‘Triply cursed’: racism, homophobia and HIV-related stigma are barriers to regular HIV testing, treatment adherence and disclosure among young Black gay men. Culture Health Sex. 2014;16(6):710–22.CrossRef
10.
go back to reference Earnshaw VA, Smith LR, Cunningham CO, Copenhaver MM. Intersectionality of internalized HIV stigma and internalized substance use stigma: implications for depressive symptoms. J Health Psychol. 2015;20(8):1083–9.CrossRefPubMed Earnshaw VA, Smith LR, Cunningham CO, Copenhaver MM. Intersectionality of internalized HIV stigma and internalized substance use stigma: implications for depressive symptoms. J Health Psychol. 2015;20(8):1083–9.CrossRefPubMed
11.
go back to reference Logie CH, Jenkinson JI, Earnshaw V, Tharao W, Loutfy MR. A structural equation model of HIV-related stigma, racial discrimination, housing insecurity and wellbeing among African and Caribbean Black women living with HIV in Ontario, Canada. PLoS ONE. 2016;11(9):e0162826.CrossRefPubMedPubMedCentral Logie CH, Jenkinson JI, Earnshaw V, Tharao W, Loutfy MR. A structural equation model of HIV-related stigma, racial discrimination, housing insecurity and wellbeing among African and Caribbean Black women living with HIV in Ontario, Canada. PLoS ONE. 2016;11(9):e0162826.CrossRefPubMedPubMedCentral
12.
go back to reference Harsono D, Galletly CL, O’Keefe E, Lazzarini Z. Criminalization of HIV exposure: a review of empirical studies in the United States. AIDS Behav. 2017;21(1):27–50.CrossRefPubMedPubMedCentral Harsono D, Galletly CL, O’Keefe E, Lazzarini Z. Criminalization of HIV exposure: a review of empirical studies in the United States. AIDS Behav. 2017;21(1):27–50.CrossRefPubMedPubMedCentral
13.
go back to reference Xie A. Ethical and legal concerns of criminalizing HIV. Va J Bioeth. 2017;2(1):59–69. Xie A. Ethical and legal concerns of criminalizing HIV. Va J Bioeth. 2017;2(1):59–69.
14.
go back to reference Zukoski AP, Thorburn S. Experiences of stigma and discrimination among adults living with HIV in a low HIV-prevalence context: a qualitative analysis. AIDS Patient Care STDS. 2009;23(4):267–76.CrossRefPubMed Zukoski AP, Thorburn S. Experiences of stigma and discrimination among adults living with HIV in a low HIV-prevalence context: a qualitative analysis. AIDS Patient Care STDS. 2009;23(4):267–76.CrossRefPubMed
15.
go back to reference Logie C, Gadalla T. Meta-analysis of health and demographic correlates of stigma towards people living with HIV. AIDS Care. 2009;21(6):742–53.CrossRefPubMed Logie C, Gadalla T. Meta-analysis of health and demographic correlates of stigma towards people living with HIV. AIDS Care. 2009;21(6):742–53.CrossRefPubMed
16.
go back to reference Earnshaw VA, Lang SM, Lippitt M, Jin H, Chaudoir SR. HIV stigma and physical health symptoms: do social support, adaptive coping, and/or identity centrality act as resilience resources? AIDS Behav. 2015;19(1):41–9.CrossRefPubMedPubMedCentral Earnshaw VA, Lang SM, Lippitt M, Jin H, Chaudoir SR. HIV stigma and physical health symptoms: do social support, adaptive coping, and/or identity centrality act as resilience resources? AIDS Behav. 2015;19(1):41–9.CrossRefPubMedPubMedCentral
17.
go back to reference Liu Y, Canada K, Shi K, Corrigan P. HIV-related stigma acting as predictors of unemployment of people living with HIV/AIDS. AIDS Care. 2012;24(1):129–35.CrossRefPubMed Liu Y, Canada K, Shi K, Corrigan P. HIV-related stigma acting as predictors of unemployment of people living with HIV/AIDS. AIDS Care. 2012;24(1):129–35.CrossRefPubMed
18.
go back to reference Rueda S, Mitra S, Chen S, et al. Examining the associations between HIV-related stigma and health outcomes in people living with HIV/AIDS: a series of meta-analyses. BMJ Open. 2016;6(7):e011453.CrossRefPubMedPubMedCentral Rueda S, Mitra S, Chen S, et al. Examining the associations between HIV-related stigma and health outcomes in people living with HIV/AIDS: a series of meta-analyses. BMJ Open. 2016;6(7):e011453.CrossRefPubMedPubMedCentral
19.
go back to reference Sweeney SM, Vanable PA. The association of HIV-related stigma to HIV medication adherence: a systematic review and synthesis of the literature. AIDS Behav. 2016;20(1):29–50.CrossRefPubMed Sweeney SM, Vanable PA. The association of HIV-related stigma to HIV medication adherence: a systematic review and synthesis of the literature. AIDS Behav. 2016;20(1):29–50.CrossRefPubMed
20.
go back to reference Seghatol-Eslami VC, Dark HE, Raper JL, Mugavero MJ, Turan JM, Turan B. Brief report: interpersonal and intrapersonal factors as parallel independent mediators in the association between internalized HIV stigma and ART adherence. J Acquir Immune Defic Syndr. 2017;74(1):e18–22.CrossRefPubMedPubMedCentral Seghatol-Eslami VC, Dark HE, Raper JL, Mugavero MJ, Turan JM, Turan B. Brief report: interpersonal and intrapersonal factors as parallel independent mediators in the association between internalized HIV stigma and ART adherence. J Acquir Immune Defic Syndr. 2017;74(1):e18–22.CrossRefPubMedPubMedCentral
21.
go back to reference Katz IT, Ryu AE, Onuegbu AG, et al. Impact of HIV related stigma on treatment adherence: systematic review and meta synthesis. J Int AIDS Soc. 2013;16((3S2)):18640.CrossRefPubMedPubMedCentral Katz IT, Ryu AE, Onuegbu AG, et al. Impact of HIV related stigma on treatment adherence: systematic review and meta synthesis. J Int AIDS Soc. 2013;16((3S2)):18640.CrossRefPubMedPubMedCentral
22.
go back to reference Kinsler JJ, Wong MD, Sayles JN, Davis C, Cunningham WE. The effect of perceived stigma from a health care provider on access to care among a low-income HIV-positive population. AIDS Patient Care STDS. 2007;21(8):584–92.CrossRefPubMed Kinsler JJ, Wong MD, Sayles JN, Davis C, Cunningham WE. The effect of perceived stigma from a health care provider on access to care among a low-income HIV-positive population. AIDS Patient Care STDS. 2007;21(8):584–92.CrossRefPubMed
23.
go back to reference Sayles JN, Wong MD, Kinsler JJ, Martins D, Cunningham WE. The association of stigma with self-reported access to medical care and antiretroviral therapy adherence in persons living with HIV/AIDS. J Gen Intern Med. 2009;24(10):1101.CrossRefPubMedPubMedCentral Sayles JN, Wong MD, Kinsler JJ, Martins D, Cunningham WE. The association of stigma with self-reported access to medical care and antiretroviral therapy adherence in persons living with HIV/AIDS. J Gen Intern Med. 2009;24(10):1101.CrossRefPubMedPubMedCentral
24.
go back to reference Arnold EA, Weeks J, Benjamin M, et al. Identifying social and economic barriers to regular care and treatment for Black men who have sex with men and women (BMSMW) and who are living with HIV: a qualitative study from the Bruthas cohort. BMC Health Serv Res. 2017;17(1):90.CrossRefPubMedPubMedCentral Arnold EA, Weeks J, Benjamin M, et al. Identifying social and economic barriers to regular care and treatment for Black men who have sex with men and women (BMSMW) and who are living with HIV: a qualitative study from the Bruthas cohort. BMC Health Serv Res. 2017;17(1):90.CrossRefPubMedPubMedCentral
25.
go back to reference Turan B, Budhwani H, Fazeli PL, et al. How does stigma affect people living with HIV? The mediating roles of internalized and anticipated HIV stigma in the effects of perceived community stigma on health and psychosocial outcomes. AIDS Behav. 2017;21(1):283–91.CrossRefPubMedPubMedCentral Turan B, Budhwani H, Fazeli PL, et al. How does stigma affect people living with HIV? The mediating roles of internalized and anticipated HIV stigma in the effects of perceived community stigma on health and psychosocial outcomes. AIDS Behav. 2017;21(1):283–91.CrossRefPubMedPubMedCentral
26.
go back to reference Helms CB, Turan JM, Atkins G, et al. Interpersonal mechanisms contributing to the association between HIV-related internalized stigma and medication adherence. AIDS Behav. 2017;21(1):238–47.CrossRefPubMedCentral Helms CB, Turan JM, Atkins G, et al. Interpersonal mechanisms contributing to the association between HIV-related internalized stigma and medication adherence. AIDS Behav. 2017;21(1):238–47.CrossRefPubMedCentral
27.
go back to reference Earnshaw VA, Smith LR, Chaudoir SR, Amico KR, Copenhaver MM. HIV stigma mechanisms and well-being among PLWH: a test of the HIV stigma framework. AIDS Behav. 2013;17(5):1785–95.CrossRefPubMedPubMedCentral Earnshaw VA, Smith LR, Chaudoir SR, Amico KR, Copenhaver MM. HIV stigma mechanisms and well-being among PLWH: a test of the HIV stigma framework. AIDS Behav. 2013;17(5):1785–95.CrossRefPubMedPubMedCentral
28.
go back to reference Turan B, Hatcher AM, Weiser SD, Johnson MO, Rice WS, Turan JM. Framing mechanisms linking HIV-related stigma, adherence to treatment, and health outcomes. Am J Public Health. 2017;107(6):863–9.CrossRefPubMedPubMedCentral Turan B, Hatcher AM, Weiser SD, Johnson MO, Rice WS, Turan JM. Framing mechanisms linking HIV-related stigma, adherence to treatment, and health outcomes. Am J Public Health. 2017;107(6):863–9.CrossRefPubMedPubMedCentral
29.
go back to reference Turan B, Smith W, Cohen MH, et al. Mechanisms for the negative effects of internalized HIV-related stigma on antiretroviral therapy adherence in women: the mediating roles of social isolation and depression. J Acquir Immune Defic Syndr. 2016;72(2):198–205.CrossRefPubMedPubMedCentral Turan B, Smith W, Cohen MH, et al. Mechanisms for the negative effects of internalized HIV-related stigma on antiretroviral therapy adherence in women: the mediating roles of social isolation and depression. J Acquir Immune Defic Syndr. 2016;72(2):198–205.CrossRefPubMedPubMedCentral
30.
go back to reference Overstreet NM, Earnshaw VA, Kalichman SC, Quinn DM. Internalized stigma and HIV status disclosure among HIV-positive black men who have sex with men. AIDS Care. 2013;25(4):466–71.CrossRefPubMed Overstreet NM, Earnshaw VA, Kalichman SC, Quinn DM. Internalized stigma and HIV status disclosure among HIV-positive black men who have sex with men. AIDS Care. 2013;25(4):466–71.CrossRefPubMed
31.
go back to reference Gaskins SW, Payne Foster P, Sowell RL, Lewis TL, Gardner A, Parton JM. Making decisions: the process of HIV disclosure for rural African American men. Am J Men’s Health. 2012;6(6):442–52.CrossRef Gaskins SW, Payne Foster P, Sowell RL, Lewis TL, Gardner A, Parton JM. Making decisions: the process of HIV disclosure for rural African American men. Am J Men’s Health. 2012;6(6):442–52.CrossRef
32.
go back to reference Marino P, Simoni JM, Silverstein LB. Peer support to promote medication adherence among people living with HIV/AIDS: the benefits to peers. Soc Work Health Care. 2007;45(1):67–80.CrossRefPubMedPubMedCentral Marino P, Simoni JM, Silverstein LB. Peer support to promote medication adherence among people living with HIV/AIDS: the benefits to peers. Soc Work Health Care. 2007;45(1):67–80.CrossRefPubMedPubMedCentral
33.
go back to reference Chaudoir SR, Norton WE, Earnshaw VA, Moneyham L, Mugavero MJ, Hiers KM. Coping with HIV stigma: do proactive coping and spiritual peace buffer the effect of stigma on depression? AIDS Behav. 2012;16(8):2382–91.CrossRefPubMed Chaudoir SR, Norton WE, Earnshaw VA, Moneyham L, Mugavero MJ, Hiers KM. Coping with HIV stigma: do proactive coping and spiritual peace buffer the effect of stigma on depression? AIDS Behav. 2012;16(8):2382–91.CrossRefPubMed
34.
go back to reference Kerr JC, Valois RF, DiClemente RJ, et al. The effects of a mass media HIV-risk reduction strategy on HIV-related stigma and knowledge among African American adolescents. AIDS Patient Care STDS. 2015;29(3):150–6.CrossRefPubMedPubMedCentral Kerr JC, Valois RF, DiClemente RJ, et al. The effects of a mass media HIV-risk reduction strategy on HIV-related stigma and knowledge among African American adolescents. AIDS Patient Care STDS. 2015;29(3):150–6.CrossRefPubMedPubMedCentral
35.
go back to reference Loutfy M, Tharao W, Logie C, et al. Systematic review of stigma reducing interventions for African/Black diasporic women. J Int AIDS Soc. 2015;18(1):19835.CrossRefPubMedPubMedCentral Loutfy M, Tharao W, Logie C, et al. Systematic review of stigma reducing interventions for African/Black diasporic women. J Int AIDS Soc. 2015;18(1):19835.CrossRefPubMedPubMedCentral
36.
go back to reference Paudel V, Baral KP. Women living with HIV/AIDS (WLHA), battling stigma, discrimination and denial and the role of support groups as a coping strategy: a review of literature. Reprod Health. 2015;12(1):53.CrossRefPubMedPubMedCentral Paudel V, Baral KP. Women living with HIV/AIDS (WLHA), battling stigma, discrimination and denial and the role of support groups as a coping strategy: a review of literature. Reprod Health. 2015;12(1):53.CrossRefPubMedPubMedCentral
37.
go back to reference Stangl AL, Lloyd JK, Brady LM, Holland CE, Baral S. A systematic review of interventions to reduce HIV related stigma and discrimination from 2002 to 2013: how far have we come? J Int AIDS Soc. 2013;16((3S2)):18734.CrossRefPubMedPubMedCentral Stangl AL, Lloyd JK, Brady LM, Holland CE, Baral S. A systematic review of interventions to reduce HIV related stigma and discrimination from 2002 to 2013: how far have we come? J Int AIDS Soc. 2013;16((3S2)):18734.CrossRefPubMedPubMedCentral
38.
go back to reference Yeshua-Katz D. Online stigma resistance in the pro-ana community. Qual Health Res. 2015;25(10):1347–58.CrossRefPubMed Yeshua-Katz D. Online stigma resistance in the pro-ana community. Qual Health Res. 2015;25(10):1347–58.CrossRefPubMed
39.
go back to reference Ali K, Farrer L, Gulliver A, Griffiths KM. Online peer-to-peer support for young people with mental health problems: a systematic review. JMIR Ment Health. 2015;2(2):e19.CrossRefPubMedPubMedCentral Ali K, Farrer L, Gulliver A, Griffiths KM. Online peer-to-peer support for young people with mental health problems: a systematic review. JMIR Ment Health. 2015;2(2):e19.CrossRefPubMedPubMedCentral
40.
go back to reference Carron-Arthur B, Reynolds J, Bennett K, Bennett A, Cunningham JA, Griffiths KM. Community structure of a mental health internet support group: modularity in user thread participation. JMIR Ment Health. 2016;3(2):e20.CrossRefPubMedPubMedCentral Carron-Arthur B, Reynolds J, Bennett K, Bennett A, Cunningham JA, Griffiths KM. Community structure of a mental health internet support group: modularity in user thread participation. JMIR Ment Health. 2016;3(2):e20.CrossRefPubMedPubMedCentral
41.
42.
go back to reference Gliddon E, Barnes SJ, Murray G, Michalak EE. Online and mobile technologies for self-management in bipolar disorder: a systematic review. Psychiatr Rehabil J. 2017;40(3):309.CrossRefPubMed Gliddon E, Barnes SJ, Murray G, Michalak EE. Online and mobile technologies for self-management in bipolar disorder: a systematic review. Psychiatr Rehabil J. 2017;40(3):309.CrossRefPubMed
43.
go back to reference Mo PK, Coulson NS. Online support group use and psychological health for individuals living with HIV/AIDS. Patient Educ Couns. 2013;93(3):426–32.CrossRefPubMed Mo PK, Coulson NS. Online support group use and psychological health for individuals living with HIV/AIDS. Patient Educ Couns. 2013;93(3):426–32.CrossRefPubMed
44.
go back to reference Mo PK, Coulson NS. Developing a model for online support group use, empowering processes and psychosocial outcomes for individuals living with HIV/AIDS. Psychol Health. 2012;27(4):445–59.CrossRefPubMed Mo PK, Coulson NS. Developing a model for online support group use, empowering processes and psychosocial outcomes for individuals living with HIV/AIDS. Psychol Health. 2012;27(4):445–59.CrossRefPubMed
45.
go back to reference Adam BD, Murray J, Ross S, Oliver J, Lincoln SG, Rynard V. Hivstigma.com, an innovative web-supported stigma reduction intervention for gay and bisexual men. Health Educ Res. 2011;26(5):795–807.CrossRefPubMed Adam BD, Murray J, Ross S, Oliver J, Lincoln SG, Rynard V. Hivstigma.com, an innovative web-supported stigma reduction intervention for gay and bisexual men. Health Educ Res. 2011;26(5):795–807.CrossRefPubMed
46.
go back to reference Ingersoll K, Dillingham R, Reynolds G, et al. Development of a personalized bidirectional text messaging tool for HIV adherence assessment and intervention among substance abusers. J Subst Abuse Treat. 2014;46(1):66–73.CrossRefPubMed Ingersoll K, Dillingham R, Reynolds G, et al. Development of a personalized bidirectional text messaging tool for HIV adherence assessment and intervention among substance abusers. J Subst Abuse Treat. 2014;46(1):66–73.CrossRefPubMed
47.
go back to reference Ingersoll KS, Dillingham RA, Hettema JE, et al. Pilot RCT of bidirectional text messaging for ART adherence among nonurban substance users with HIV. Health Psychol. 2015;34:1305.CrossRefPubMedCentral Ingersoll KS, Dillingham RA, Hettema JE, et al. Pilot RCT of bidirectional text messaging for ART adherence among nonurban substance users with HIV. Health Psychol. 2015;34:1305.CrossRefPubMedCentral
48.
go back to reference Mayer JE, Fontelo P. Meta-analysis on the effect of text message reminders for HIV-related compliance. AIDS Care. 2017;29(4):409–17.CrossRefPubMed Mayer JE, Fontelo P. Meta-analysis on the effect of text message reminders for HIV-related compliance. AIDS Care. 2017;29(4):409–17.CrossRefPubMed
49.
go back to reference Rana AI, van den Berg JJ, Lamy E, Beckwith CG. Using a mobile health intervention to support HIV treatment adherence and retention among patients at risk for disengaging with care. AIDS Patient Care STDS. 2016;30(4):178–84.CrossRefPubMedPubMedCentral Rana AI, van den Berg JJ, Lamy E, Beckwith CG. Using a mobile health intervention to support HIV treatment adherence and retention among patients at risk for disengaging with care. AIDS Patient Care STDS. 2016;30(4):178–84.CrossRefPubMedPubMedCentral
50.
go back to reference Horvath T, Azman H, Kennedy GE, Rutherford GW. Mobile phone text messaging for promoting adherence to antiretroviral therapy in patients with HIV infection. London: The Cochrane Library; 2012. Horvath T, Azman H, Kennedy GE, Rutherford GW. Mobile phone text messaging for promoting adherence to antiretroviral therapy in patients with HIV infection. London: The Cochrane Library; 2012.
51.
go back to reference Schnall R, Mosley JP, Iribarren SJ, Bakken S, Carballo-Dieguez A, Brown Iii W. Comparison of a user-centered design, self-management app to existing mhealth apps for persons living with HIV. JMIR Mhealth Uhealth. 2015;3(3):e91.CrossRefPubMedPubMedCentral Schnall R, Mosley JP, Iribarren SJ, Bakken S, Carballo-Dieguez A, Brown Iii W. Comparison of a user-centered design, self-management app to existing mhealth apps for persons living with HIV. JMIR Mhealth Uhealth. 2015;3(3):e91.CrossRefPubMedPubMedCentral
52.
go back to reference Flickinger TE, DeBolt C, Waldman AL, et al. Social support in a virtual community: analysis of a clinic-affiliated online support group for persons living with HIV/AIDS. AIDS Behav. 2017;21(11):3087–99.CrossRefPubMed Flickinger TE, DeBolt C, Waldman AL, et al. Social support in a virtual community: analysis of a clinic-affiliated online support group for persons living with HIV/AIDS. AIDS Behav. 2017;21(11):3087–99.CrossRefPubMed
53.
go back to reference Flickinger TE, DeBolt C, Wispelwey E, et al. Content analysis and user characteristics of a smartphone-based online support group for people living with HIV. Telemedicine and e-Health. 2016;22(9):746–54.CrossRefPubMed Flickinger TE, DeBolt C, Wispelwey E, et al. Content analysis and user characteristics of a smartphone-based online support group for people living with HIV. Telemedicine and e-Health. 2016;22(9):746–54.CrossRefPubMed
54.
go back to reference Laurence C, Wispelwey E, Plews-Ogan E et al. Developing mHealth strategies to promote linkage to care in PLWH. Laurence C, Wispelwey E, Plews-Ogan E et al. Developing mHealth strategies to promote linkage to care in PLWH.
55.
go back to reference Waldman AL, Laurence C, Wispelwey E et al. Positive Links: Tailored Mobile App Improves Engagement in Care. Waldman AL, Laurence C, Wispelwey E et al. Positive Links: Tailored Mobile App Improves Engagement in Care.
56.
go back to reference Dillingham R. Design and Impact of Positive Links: A Mobile Platform to Support People Living with HIV in Virginia. Dillingham R. Design and Impact of Positive Links: A Mobile Platform to Support People Living with HIV in Virginia.
57.
go back to reference Schnall R, Rojas M, Travers J, Brown W, Bakken S. Use of design science for informing the development of a mobile app for persons living with HIV. AMIA Annu Symp Proc. 2014;2014:1037–45.PubMedPubMedCentral Schnall R, Rojas M, Travers J, Brown W, Bakken S. Use of design science for informing the development of a mobile app for persons living with HIV. AMIA Annu Symp Proc. 2014;2014:1037–45.PubMedPubMedCentral
58.
go back to reference Schnall R, Bakken S, Brown Iii W, Carballo-Dieguez A, Iribarren S. Usabilty evaluation of a prototype mobile app for health management for persons living with HIV. Stud Health Technol Inform. 2016;225:481–5.PubMedPubMedCentral Schnall R, Bakken S, Brown Iii W, Carballo-Dieguez A, Iribarren S. Usabilty evaluation of a prototype mobile app for health management for persons living with HIV. Stud Health Technol Inform. 2016;225:481–5.PubMedPubMedCentral
59.
go back to reference Schnall R, Higgins T, Brown W, Carballo-Dieguez A, Bakken S. Trust, perceived risk, perceived ease of use and perceived usefulness as factors related to mhealth technology use. Stud Health Technol Inform. 2015;216:467–71.PubMedPubMedCentral Schnall R, Higgins T, Brown W, Carballo-Dieguez A, Bakken S. Trust, perceived risk, perceived ease of use and perceived usefulness as factors related to mhealth technology use. Stud Health Technol Inform. 2015;216:467–71.PubMedPubMedCentral
60.
go back to reference Schnall R, Bakken S, Rojas M, Travers J, Carballo-Dieguez A. mHealth technology as a persuasive tool for treatment, care and management of persons living with HIV. AIDS Behav. 2015;19(2):81–9.CrossRefPubMedPubMedCentral Schnall R, Bakken S, Rojas M, Travers J, Carballo-Dieguez A. mHealth technology as a persuasive tool for treatment, care and management of persons living with HIV. AIDS Behav. 2015;19(2):81–9.CrossRefPubMedPubMedCentral
61.
go back to reference Goldenberg T, McDougal SJ, Sullivan PS, Stekler JD, Stephenson R. Preferences for a mobile HIV prevention app for men who have sex with men. JMIR Mhealth Uhealth. 2014;2(4):e47.CrossRefPubMedPubMedCentral Goldenberg T, McDougal SJ, Sullivan PS, Stekler JD, Stephenson R. Preferences for a mobile HIV prevention app for men who have sex with men. JMIR Mhealth Uhealth. 2014;2(4):e47.CrossRefPubMedPubMedCentral
62.
go back to reference Mitchell JW, Torres MB, Joe J, Danh T, Gass B, Horvath KJ. Formative work to develop a tailored HIV Testing smartphone app for diverse, at-risk, HIV-negative men who have sex with men: a focus group study. JMIR Mhealth Uhealth. 2016;4(4):e128.CrossRefPubMedPubMedCentral Mitchell JW, Torres MB, Joe J, Danh T, Gass B, Horvath KJ. Formative work to develop a tailored HIV Testing smartphone app for diverse, at-risk, HIV-negative men who have sex with men: a focus group study. JMIR Mhealth Uhealth. 2016;4(4):e128.CrossRefPubMedPubMedCentral
63.
go back to reference Horvath KJ, Alemu D, Danh T, Baker JV, Carrico AW. Creating effective mobile phone apps to optimize antiretroviral therapy adherence: perspectives from stimulant-using HIV-positive men who have sex with men. JMIR Mhealth Uhealth. 2016;4(2):e48.CrossRefPubMedPubMedCentral Horvath KJ, Alemu D, Danh T, Baker JV, Carrico AW. Creating effective mobile phone apps to optimize antiretroviral therapy adherence: perspectives from stimulant-using HIV-positive men who have sex with men. JMIR Mhealth Uhealth. 2016;4(2):e48.CrossRefPubMedPubMedCentral
64.
go back to reference Casaletto KB, Cattie J, Franklin DR, et al. The Wide Range Achievement Test–4 Reading subtest “holds” in HIV-infected individuals. J Clin Exp Neuropsychol. 2014;36(9):992–1001.CrossRefPubMedPubMedCentral Casaletto KB, Cattie J, Franklin DR, et al. The Wide Range Achievement Test–4 Reading subtest “holds” in HIV-infected individuals. J Clin Exp Neuropsychol. 2014;36(9):992–1001.CrossRefPubMedPubMedCentral
65.
go back to reference Koopman C, Gore-Felton C, Marouf F, et al. Relationships of perceived stress to coping, attachment and social support among HIV-positive persons. AIDS Care. 2000;12(5):663–72.CrossRefPubMed Koopman C, Gore-Felton C, Marouf F, et al. Relationships of perceived stress to coping, attachment and social support among HIV-positive persons. AIDS Care. 2000;12(5):663–72.CrossRefPubMed
66.
go back to reference Bandura A. Guide for constructing self-efficacy scales. Self-efficacy beliefs of adolescents. charlotte: Information Age Publishing; 2006. Bandura A. Guide for constructing self-efficacy scales. Self-efficacy beliefs of adolescents. charlotte: Information Age Publishing; 2006.
67.
go back to reference Berger BE, Ferrans CE, Lashley FR. Measuring stigma in people with HIV: psychometric assessment of the HIV stigma scale. Res Nurs Health. 2001;24(6):518–29.CrossRefPubMed Berger BE, Ferrans CE, Lashley FR. Measuring stigma in people with HIV: psychometric assessment of the HIV stigma scale. Res Nurs Health. 2001;24(6):518–29.CrossRefPubMed
69.
go back to reference Hennink M, Hutter I, Bailey A. Qualitative research methods. Thousand Oaks: Sage; 2010. Hennink M, Hutter I, Bailey A. Qualitative research methods. Thousand Oaks: Sage; 2010.
70.
go back to reference Buseh AG, Kelber ST, Stevens PE, Park CG. Relationship of symptoms, perceived health, and stigma with quality of life among Urban HIV-infected African American men. Public Health Nurs. 2008;25(5):409–19.CrossRefPubMed Buseh AG, Kelber ST, Stevens PE, Park CG. Relationship of symptoms, perceived health, and stigma with quality of life among Urban HIV-infected African American men. Public Health Nurs. 2008;25(5):409–19.CrossRefPubMed
71.
go back to reference Schnall R, Cho H, Webel A. Predictors of willingness to use a smartphone for research in underserved persons living with HIV. Int J Med Inf. 2017;99:53–9.CrossRef Schnall R, Cho H, Webel A. Predictors of willingness to use a smartphone for research in underserved persons living with HIV. Int J Med Inf. 2017;99:53–9.CrossRef
72.
go back to reference Mo PK, Coulson NS. Are online support groups always beneficial? A qualitative exploration of the empowering and disempowering processes of participation within HIV/AIDS-related online support groups. Int J Nurs Stud. 2014;51(7):983–93.CrossRefPubMed Mo PK, Coulson NS. Are online support groups always beneficial? A qualitative exploration of the empowering and disempowering processes of participation within HIV/AIDS-related online support groups. Int J Nurs Stud. 2014;51(7):983–93.CrossRefPubMed
73.
go back to reference Kraemer HC, Mintz J, Noda A, Tinklenberg J, Yesavage JA. Caution regarding the use of pilot studies to guide power calculations for study proposals. Arch Gen Psychiatry. 2006;63(5):484–9.CrossRefPubMed Kraemer HC, Mintz J, Noda A, Tinklenberg J, Yesavage JA. Caution regarding the use of pilot studies to guide power calculations for study proposals. Arch Gen Psychiatry. 2006;63(5):484–9.CrossRefPubMed
74.
go back to reference Leon AC, Davis LL, Kraemer HC. The role and interpretation of pilot studies in clinical research. J Psychiatr Res. 2011;45(5):626–9.CrossRefPubMed Leon AC, Davis LL, Kraemer HC. The role and interpretation of pilot studies in clinical research. J Psychiatr Res. 2011;45(5):626–9.CrossRefPubMed
Metadata
Title
Addressing Stigma Through a Virtual Community for People Living with HIV: A Mixed Methods Study of the PositiveLinks Mobile Health Intervention
Authors
Tabor E. Flickinger
Claire DeBolt
Alice Xie
Alison Kosmacki
Marika Grabowski
Ava Lena Waldman
George Reynolds
Mark Conaway
Wendy F. Cohn
Karen Ingersoll
Rebecca Dillingham
Publication date
01-10-2018
Publisher
Springer US
Published in
AIDS and Behavior / Issue 10/2018
Print ISSN: 1090-7165
Electronic ISSN: 1573-3254
DOI
https://doi.org/10.1007/s10461-018-2174-6

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