Skip to main content
Top
Published in: Clinical Rheumatology 12/2008

Open Access 01-12-2008 | Original Article

Limited results of group self-management education for rheumatoid arthritis patients and their partners: explanations from the patient perspective

Authors: Christina Bode, Erik Taal, Pascale A. A. Emons, Mirjam Galetzka, Johannes J. Rasker, Mart A. F. J. Van de Laar

Published in: Clinical Rheumatology | Issue 12/2008

Login to get access

Abstract

This study aimed to identify the reasons for limited results of group self-management for RA patients and their partners from the patient perspective. Semi-structured interviews with ten male and ten female patients who had participated in group self-management with or without their partner were content analyzed with respect to motivation to participate and the effects of the program on them. The limited effects of the self-management program appear to be linked with low motivation to participate and to change health behavior. The data show that a decline in health and also stressful life events might be associated with the disappointing effects of the program. Three strategies were proposed for improving the program’s effects: (a) provide information about the program in advance to ensure that patients have appropriate expectations. (b) Enhance intrinsic motivation to change health behavior by counseling techniques. (c) Tailoring with respect to motivation and current concerns could help to form more homogeneous groups or could be the basis for a tailored online intervention.
Literature
1.
go back to reference Riemsma RP, Taal E, Rasker JJ (2003) Group education for patients with rheumatoid arthritis and their partners. Arthritis Care Res 49:556–566CrossRef Riemsma RP, Taal E, Rasker JJ (2003) Group education for patients with rheumatoid arthritis and their partners. Arthritis Care Res 49:556–566CrossRef
2.
go back to reference Lorig K, Ritter PL, Plant K (2005) A disease-specific self-help program compared with a generalized chronic disease self-help program for arthritis patients. Arthritis Care Res 53:950–957CrossRef Lorig K, Ritter PL, Plant K (2005) A disease-specific self-help program compared with a generalized chronic disease self-help program for arthritis patients. Arthritis Care Res 53:950–957CrossRef
3.
go back to reference Lorig K, Ritter PL, Laurent DD, Fries JF (2004) Long-term randomized controlled trials of tailored-print and small-group arthritis self-management interventions. Med Care 42:346–354PubMedCrossRef Lorig K, Ritter PL, Laurent DD, Fries JF (2004) Long-term randomized controlled trials of tailored-print and small-group arthritis self-management interventions. Med Care 42:346–354PubMedCrossRef
4.
go back to reference Barlow J, Turner A, Wright C (2000) A randomized controlled study of the arthritis self-management programme in the UK. Health Educ Res 15:665–680PubMedCrossRef Barlow J, Turner A, Wright C (2000) A randomized controlled study of the arthritis self-management programme in the UK. Health Educ Res 15:665–680PubMedCrossRef
5.
go back to reference Fries JF, Lorig K, Holman HR (2003) Patient self-management in arthritis? Yes!. J Rheumatol 30:1130–1132PubMed Fries JF, Lorig K, Holman HR (2003) Patient self-management in arthritis? Yes!. J Rheumatol 30:1130–1132PubMed
6.
go back to reference Solomon DH, Warsi A, Brown-Stevenson T, Farrell M, Gauthier S, Mikels D, Lee TH (2002) Does self-management education benefit all populations with arthritis? A randomized controlled trial in a primary care physician network. J Rheumatol 29:362–368PubMed Solomon DH, Warsi A, Brown-Stevenson T, Farrell M, Gauthier S, Mikels D, Lee TH (2002) Does self-management education benefit all populations with arthritis? A randomized controlled trial in a primary care physician network. J Rheumatol 29:362–368PubMed
7.
go back to reference Buszewicz M, Rait G, Griffin M, Nazareth I, Patel A, Atkinson A, Barlow J, Haines A (2006) Self-management of arthritis in primary care: randomized controlled trial. BMJ 333:879–882PubMedCrossRef Buszewicz M, Rait G, Griffin M, Nazareth I, Patel A, Atkinson A, Barlow J, Haines A (2006) Self-management of arthritis in primary care: randomized controlled trial. BMJ 333:879–882PubMedCrossRef
8.
go back to reference Riemsma RP, Taal E, Kirwan JR, Rasker JJ (2002) Patient education programmes for adults with rheumatoid arthritis. BMJ 325:558–559 (Editorial)PubMedCrossRef Riemsma RP, Taal E, Kirwan JR, Rasker JJ (2002) Patient education programmes for adults with rheumatoid arthritis. BMJ 325:558–559 (Editorial)PubMedCrossRef
9.
go back to reference Taal E, Riemsma RP, Brus HLM, Seydel ER, Rasker JJ, Wiegman O (1993) Group education for patients with rheumatoid arthritis. Patient Educ Couns 20:177–187PubMedCrossRef Taal E, Riemsma RP, Brus HLM, Seydel ER, Rasker JJ, Wiegman O (1993) Group education for patients with rheumatoid arthritis. Patient Educ Couns 20:177–187PubMedCrossRef
10.
go back to reference Martire LM, Schulz R, Keefe FJ, Starz TW, Osial Jr TA, Dew MA, Reynolds CF III (2003) Feasibility of a dyadic intervention for management of osteoarthritis: a pilot study with older patients and their spousal caregivers. Aging Ment Health 7:53–60PubMedCrossRef Martire LM, Schulz R, Keefe FJ, Starz TW, Osial Jr TA, Dew MA, Reynolds CF III (2003) Feasibility of a dyadic intervention for management of osteoarthritis: a pilot study with older patients and their spousal caregivers. Aging Ment Health 7:53–60PubMedCrossRef
11.
go back to reference van Lankveld W, van Helmond T, Näring G, de Rooij DJ, van den Hoogen F (2004) Partner participation in cognitive-behavioral self-management group treatment for patients with rheumatoid arthritis. J Rheumatol 31:1738–1745PubMed van Lankveld W, van Helmond T, Näring G, de Rooij DJ, van den Hoogen F (2004) Partner participation in cognitive-behavioral self-management group treatment for patients with rheumatoid arthritis. J Rheumatol 31:1738–1745PubMed
12.
go back to reference Keefe FJ, Blumenthal J, Baucom D, Affleck G, Waugh R, Caldwell DS, Beaupre P, Kashikar-Zuck S, Wright K, Egbert J, Lefebvre J (2004) Effects of spouse-assisted coping skills training and exercise training in patients with osteoarthritic knee pain: a randomized controlled study. Pain 110:539–549PubMedCrossRef Keefe FJ, Blumenthal J, Baucom D, Affleck G, Waugh R, Caldwell DS, Beaupre P, Kashikar-Zuck S, Wright K, Egbert J, Lefebvre J (2004) Effects of spouse-assisted coping skills training and exercise training in patients with osteoarthritic knee pain: a randomized controlled study. Pain 110:539–549PubMedCrossRef
13.
go back to reference Prochaska JO, Velicer WF, Rossi JS, Goldstein MG, Marcus BH, Rakowski W, Fiore C, Harlow LL, Redding CA, Rosenbloom D, Rossi SR (1994) Stages of change and decisional balance for 12 problem behaviors. Health Psychol 3:39–46CrossRef Prochaska JO, Velicer WF, Rossi JS, Goldstein MG, Marcus BH, Rakowski W, Fiore C, Harlow LL, Redding CA, Rosenbloom D, Rossi SR (1994) Stages of change and decisional balance for 12 problem behaviors. Health Psychol 3:39–46CrossRef
14.
go back to reference Bridle C, Riemsma RP, Pattenden J, Sowden AJ, Mather L, Watt IS, Walker A (2005) Systematic review of the effectiveness of health behavior interventions based on the transtheoretical model. Psychol Health 20:283–301CrossRef Bridle C, Riemsma RP, Pattenden J, Sowden AJ, Mather L, Watt IS, Walker A (2005) Systematic review of the effectiveness of health behavior interventions based on the transtheoretical model. Psychol Health 20:283–301CrossRef
15.
go back to reference Taylor SE (2003) Health psychology. Mc Graw-Hill, New York Taylor SE (2003) Health psychology. Mc Graw-Hill, New York
16.
go back to reference Gonzalez VM, Goeppinger J, Lorig K (1990) Four psychosocial theories and their applications to patient education and clinical practice. Arthritis Care Res 3:132–143PubMed Gonzalez VM, Goeppinger J, Lorig K (1990) Four psychosocial theories and their applications to patient education and clinical practice. Arthritis Care Res 3:132–143PubMed
17.
go back to reference Taal E, Rasker JJ, Wiegman O (1996) Patient education and self-management in the rheumatic diseases: a self-efficacy approach. Arthritis Care Res 9:229–238PubMedCrossRef Taal E, Rasker JJ, Wiegman O (1996) Patient education and self-management in the rheumatic diseases: a self-efficacy approach. Arthritis Care Res 9:229–238PubMedCrossRef
18.
go back to reference Helgeson VS, Gottlieb BH (2000) Support groups. In: Cohen S, Underwood LG, Gottlieb BH (eds) Social support measurement and intervention. A guide for social scientists. University Press, Oxford, pp 221–245 Helgeson VS, Gottlieb BH (2000) Support groups. In: Cohen S, Underwood LG, Gottlieb BH (eds) Social support measurement and intervention. A guide for social scientists. University Press, Oxford, pp 221–245
19.
go back to reference Dracup K (1985) A controlled trial of couples group counseling in cardiac rehabilitation. J Cardiopulm Rehab 5:436–42CrossRef Dracup K (1985) A controlled trial of couples group counseling in cardiac rehabilitation. J Cardiopulm Rehab 5:436–42CrossRef
20.
go back to reference Lorig K, Chastain R, Ung E, Shoor S, Holman HR (1989) Development and evaluation of a scale to measure the perceived self-efficacy of people with arthritis. Arthritis Rheum 32:37–44PubMedCrossRef Lorig K, Chastain R, Ung E, Shoor S, Holman HR (1989) Development and evaluation of a scale to measure the perceived self-efficacy of people with arthritis. Arthritis Rheum 32:37–44PubMedCrossRef
21.
go back to reference Pope C, Ziebland S, Mays N (2000) Qualitative research in health care. Analysing qualitative data. BMJ 320:114–116PubMedCrossRef Pope C, Ziebland S, Mays N (2000) Qualitative research in health care. Analysing qualitative data. BMJ 320:114–116PubMedCrossRef
22.
go back to reference Bode C, de Ridder DTD (2007) Investing in the future—identifying participants in an educational program for middle-aged and older adults. Health Educ Res 22:483–499 Bode C, de Ridder DTD (2007) Investing in the future—identifying participants in an educational program for middle-aged and older adults. Health Educ Res 22:483–499
23.
go back to reference Miller WR, Rollnick S (2002) Motivational interviewing: preparing people for change, 2nd edn. Guilford Press, New York Miller WR, Rollnick S (2002) Motivational interviewing: preparing people for change, 2nd edn. Guilford Press, New York
24.
go back to reference Giraudet-Le Quintrec J-S, Mayoux-Benhamou A, Ravaud P, Champion K, Dernis E, Zerkak D, Ouslimani A, Courpied J-P, Revel M, Kahan A, Dougados M (2007) Effect of a collective educational program for patients with rheumatoid arthritis: a prospective 12-month randomized controlled trial. J Rheumatol 34:1684–1691PubMed Giraudet-Le Quintrec J-S, Mayoux-Benhamou A, Ravaud P, Champion K, Dernis E, Zerkak D, Ouslimani A, Courpied J-P, Revel M, Kahan A, Dougados M (2007) Effect of a collective educational program for patients with rheumatoid arthritis: a prospective 12-month randomized controlled trial. J Rheumatol 34:1684–1691PubMed
Metadata
Title
Limited results of group self-management education for rheumatoid arthritis patients and their partners: explanations from the patient perspective
Authors
Christina Bode
Erik Taal
Pascale A. A. Emons
Mirjam Galetzka
Johannes J. Rasker
Mart A. F. J. Van de Laar
Publication date
01-12-2008
Publisher
Springer-Verlag
Published in
Clinical Rheumatology / Issue 12/2008
Print ISSN: 0770-3198
Electronic ISSN: 1434-9949
DOI
https://doi.org/10.1007/s10067-008-0961-6

Other articles of this Issue 12/2008

Clinical Rheumatology 12/2008 Go to the issue