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Published in: BMC Geriatrics 1/2024

Open Access 01-12-2024 | Dementia | Research

Health conditions in spousal caregivers of people with dementia and their relationships with stress, caregiving experiences, and social networks: longitudinal findings from the IDEAL programme

Authors: Serena Sabatini, Anthony Martyr, Anna Hunt, Laura D. Gamble, Fiona E. Matthews, Jeanette M. Thom, Roy W. Jones, Louise Allan, Martin Knapp, Catherine Quinn, Christina Victor, Claire Pentecost, Jennifer M. Rusted, Robin G. Morris, Linda Clare

Published in: BMC Geriatrics | Issue 1/2024

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Abstract

Objectives

Longitudinal evidence documenting health conditions in spousal caregivers of people with dementia and whether these influence caregivers’ outcomes is scarce. This study explores type and number of health conditions over two years in caregivers of people with dementia and subgroups based on age, sex, education, hours of care, informant-rated functional ability, neuropsychiatric symptoms, cognition of the person with dementia, and length of diagnosis in the person with dementia. It also explores whether over time the number of health conditions is associated with caregivers’ stress, positive experiences of caregiving, and social networks

Methods

Longitudinal data from the IDEAL (Improving the experience of Dementia and Enhancing Active Life) cohort were used. Participants comprised spousal caregivers (n = 977) of people with dementia. Self-reported health conditions using the Charlson Comorbidity Index, stress, positive experiences of caregiving, and social network were assessed over two years. Mixed effect models were used

Results

On average participants had 1.5 health conditions at baseline; increasing to 2.1 conditions over two years. More health conditions were reported by caregivers who were older, had no formal education, provided 10 + hours of care per day, and/or cared for a person with more neuropsychiatric symptoms at baseline. More baseline health conditions were associated with greater stress at baseline but not with stress over time. Over two years, when caregivers’ health conditions increased, their stress increased whereas their social network diminished

Discussion

Findings highlight that most caregivers have their own health problems which require management to avoid increased stress and shrinking of social networks
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Metadata
Title
Health conditions in spousal caregivers of people with dementia and their relationships with stress, caregiving experiences, and social networks: longitudinal findings from the IDEAL programme
Authors
Serena Sabatini
Anthony Martyr
Anna Hunt
Laura D. Gamble
Fiona E. Matthews
Jeanette M. Thom
Roy W. Jones
Louise Allan
Martin Knapp
Catherine Quinn
Christina Victor
Claire Pentecost
Jennifer M. Rusted
Robin G. Morris
Linda Clare
Publication date
01-12-2024
Publisher
BioMed Central
Keywords
Dementia
Dementia
Published in
BMC Geriatrics / Issue 1/2024
Electronic ISSN: 1471-2318
DOI
https://doi.org/10.1186/s12877-024-04707-w

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