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Health and Quality of Life Outcomes
Published in: Health and Quality of Life Outcomes 1/2014

Open Access 01-12-2014 | Study protocol

Improving the experience of dementia and enhancing active life - living well with dementia: study protocol for the IDEAL study

Authors: Linda Clare, Sharon M Nelis, Catherine Quinn, Anthony Martyr, Catherine Henderson, John V Hindle, Ian R Jones, Roy W Jones, Martin Knapp, Michael D Kopelman, Robin G Morris, James A Pickett, Jennifer M Rusted, Nada M Savitch, Jeanette M Thom, Christina R Victor

Published in: Health and Quality of Life Outcomes | Issue 1/2014

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Abstract

Background

Enabling people with dementia and carers to ‘live well’ with the condition is a key United Kingdom policy objective. The aim of this project is to identify what helps people to live well or makes it difficult to live well in the context of having dementia or caring for a person with dementia, and to understand what ‘living well’ means from the perspective of people with dementia and carers.

Methods/Design

Over a two-year period, 1500 people with early-stage dementia throughout Great Britain will be recruited to the study, together with a carer wherever possible. All the participants will be visited at home initially and again 12 months and 24 months later. This will provide information about the way in which well-being, life satisfaction and quality of life are affected by social capitals, assets and resources, the challenges posed by dementia, and the ways in which people adjust to and cope with these challenges. A smaller group will be interviewed in more depth.

Discussion

The findings will lead to recommendations about what can be done by individuals, communities, health and social care practitioners, care providers and policy-makers to improve the likelihood of living well with dementia.
Appendix
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Metadata
Title
Improving the experience of dementia and enhancing active life - living well with dementia: study protocol for the IDEAL study
Authors
Linda Clare
Sharon M Nelis
Catherine Quinn
Anthony Martyr
Catherine Henderson
John V Hindle
Ian R Jones
Roy W Jones
Martin Knapp
Michael D Kopelman
Robin G Morris
James A Pickett
Jennifer M Rusted
Nada M Savitch
Jeanette M Thom
Christina R Victor
Publication date
01-12-2014
Publisher
BioMed Central
Published in
Health and Quality of Life Outcomes / Issue 1/2014
Electronic ISSN: 1477-7525
DOI
https://doi.org/10.1186/s12955-014-0164-6

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