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Endocrine
Published in: Endocrine 1/2016

01-07-2016 | Editorial

Structured nursing educational programs improve quality of life outcomes in patients with Cushing’s syndrome

Authors: Sofia Llahana, Nicola Thomas

Published in: Endocrine | Issue 1/2016

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Excerpt

Impaired quality of life (QoL) has been reported in patients with Cushing’s syndrome even after biochemical cure, with worse QoL outcomes compared to patients with other pituitary adenomas [1]. A variety of physical, neuropsychosomatic, psychological, and sociodemographic factors have been found to influence QoL parameters in patients with Cushing’s syndrome [1, 2]. A systematic review by Andela et al. found that QoL outcomes such as physical functioning, bodily pain, and general health improved after surgical or pharmaceutical interventions in 6 of the 8 studies involving patients with Cushing’s syndrome [1]. …
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C.D. Andela, M. Scharloo, A.M. Pereira, A.A. Kaptein, N.R. Biermasz, Quality of life (QoL) impairments in patients with a pituitary adenoma: a systematic review of QoL studies. Pituitary 18(5), 752–776 (2015)CrossRefPubMed
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A. Carluccio, N.K. Sundaram, S. Chablani, L.G. Amrock, J.K. Lambert, K.D. Post, E.B. Geer, Predictors of quality of life in 102 patients with treated Cushing’s disease. Clin. Endocrinol. 82, 404–411 (2015)CrossRef
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M.A. Martinez-Momblan, C. Gomez, A. Santos, N. Porta, J. Esteve, I. Ubeda, I. Halperin, B. Campillo, M. Guillaumet, S.M. Webb, E. Resmini, A specific nursing educational program in patients with Cushing’s syndrome. Endocrine (2015). doi:10.​1007/​s12020-015-0737-0 PubMed
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K.M. Shea, C.P. O’Connor, E.G. Karafelis, G.W. Thorn, G.P. Kozak, Teaching a patient to live with adrenal insufficiency. Am. J. Nurs. 65(12), 80–85 (1965)PubMed
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H.J.W.J. Repping-Wuts, N.M.M.L. Stikkelbroeck, A. Noordzij, M. Kerstens, A.R.M.M. Hermus, A glucocorticoid education group meeting: an effective strategy for improving self-management to prevent adrenal crisis. Eur. J. Endocrinol. 169(1), 17–22 (2013)CrossRefPubMed
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I.A. Harsch, A. Schuller, E.G. Hahn, J. Hensen, Cortisone replacement therapy in endocrine disorders: quality of self-care. J. Eval. Clin. Pract. 16(3), 492–498 (2010)PubMed
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S.M. Webb, X. Badia, M.J. Barahona, A. Colao, C.J. Strasburger, A. Tabarin, M.O. van Aken, R. Pivonello, G. Stalla, S.W. Lamberts, J.E. Glusman, Evaluation of health-related quality of life in patients with Cushing’s syndrome with a new questionnaire. Eur. J. Endocrinol. 158(5), 623–630 (2008)CrossRefPubMed
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A.J. Friedman, R. Cosby, S. Boyko, J. Hatton-Bauer, G. Turnbull, Effective teaching strategies and methods of delivery for patient education: a systematic review and practice guideline recommendations. J. Cancer Educ. 26(1), 12–21 (2011)CrossRefPubMed
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J. Tiemensma, A.A. Kaptein, A.M. Pereira, J.W. Smit, J.A. Romijn, N.R. Biermasz, Negative illness perceptions are associated with impaired quality of life in patients after long-term remission of Cushing’s syndrome. Eur. J. Endocrinol. 165(4), 527–535 (2011)CrossRefPubMed
Metadata
Title
Structured nursing educational programs improve quality of life outcomes in patients with Cushing’s syndrome
Authors
Sofia Llahana
Nicola Thomas
Publication date
01-07-2016
Publisher
Springer US
Published in
Endocrine / Issue 1/2016
Print ISSN: 1355-008X
Electronic ISSN: 1559-0100
DOI
https://doi.org/10.1007/s12020-016-0934-5

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