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Open Access 01-12-2018 | Position statement

Consensus statement on physical rehabilitation in children and adolescents with osteogenesis imperfecta

Authors: Brigitte Mueller, Raoul Engelbert, Frances Baratta-Ziska, Bart Bartels, Nicole Blanc, Evelise Brizola, Paolo Fraschini, Claire Hill, Caroline Marr, Lisa Mills, Kathleen Montpetit, Verity Pacey, Miguel Rodriguez Molina, Marleen Schuuring, Chantal Verhille, Olga de Vries, Eric Hiu Kwong Yeung, Oliver Semler

Published in: Orphanet Journal of Rare Diseases | Issue 1/2018

Abstract

On the occasion of the 13th International Conference on Osteogenesis imperfecta in August 2017 an expert panel was convened to develop an international consensus paper regarding physical rehabilitation in children and adolescents with Osteogenesis imperfecta. The experts were chosen based on their clinical experience with children with osteogenesis imperfecta and were identified by sending out questionnaires to specialized centers and patient organizations in 26 different countries. The final expert-group included 16 representatives (12 physiotherapists, two occupational therapists and two medical doctors) from 14 countries. Within the framework of a collation of personal experiences and the results of a literature search, the participating physiotherapists, occupational therapists and medical doctors formulated 17 expert-statements on physical rehabilitation in patients aged 0–18 years with osteogenesis imperfecta.

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Title: Consensus statement on physical rehabilitation in children and adolescents with osteogenesis imperfecta
Authors: Brigitte Mueller
Raoul Engelbert
Frances Baratta-Ziska
Bart Bartels
Nicole Blanc
Evelise Brizola
Paolo Fraschini
Claire Hill
Caroline Marr
Lisa Mills
Kathleen Montpetit
Verity Pacey
Miguel Rodriguez Molina
Marleen Schuuring
Chantal Verhille
Olga de Vries
Eric Hiu Kwong Yeung
Oliver Semler
Publication date: 01-12-2018
Publisher: BioMed Central
Published in: Orphanet Journal of Rare Diseases / Issue 1/2018
Electronic ISSN: 1750-1172
DOI: https://doi.org/10.1186/s13023-018-0905-4

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Consensus statement on physical rehabilitation in children and adolescents with osteogenesis imperfecta

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