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Published in: International Journal for Equity in Health 1/2019

Open Access 01-12-2019 | Breast Cancer | Research

Realizing the right to health in Brazil’s Unified Health System through the lens of breast and cervical cancer

Authors: Fabiana da Mota Almeida Peroni, Magnus Lindelow, David Oliveira De Souza, Mirja Sjoblom

Published in: International Journal for Equity in Health | Issue 1/2019

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Abstract

Background

Health is recognized as a fundamental right in Brazil’s constitution. In the absence of a clearly defined benefit packages of healthcare services that are financed under the Unified Health System (Sistema Único de Saúde, SUS), courts have become important in adjudicating coverage decisions. Empirical assessments of equity and the right to health tend to focus on simple measures of access. However, these empirical perspectives belie the significant inequalities and rights violations that arise in the case of more complex health needs such as cancer. To shed light on these issues, this paper focuses on the care pathways for breast and cervical cancer and explores access and quality issues that arise at different points along the care pathway with implications for the realization of the right to health in Brazil.

Method

A mixed method approach is used. The analysis is primarily based on a quantitative analysis of national representative administrative data principally from the cervical and breast cancer information systems and the hospital cancer registry. To gain more insights into the organization of cancer care, qualitative data was collected from the state of Bahia, through document analysis, direct observation, roundtable discussions with health workers (HWs), and structured interviews with health care administrators.

Results

The paper reveals that the volume of completed screening exams is well below the estimated need, and a tendency toward lower breast cancer screening rates in poorer states and for women in the lowest income brackets. Only 26% of breast cancer cases and 29% of cervical cancer cases are diagnosed at an early stage (stage 0 or I), thereby reducing the survival prospects of patients. Waiting times between confirmed diagnosis and treatment are long, despite new legislation that guarantees a maximum of 60 days. The waiting times are significantly longer for patients that follow the recommended patient pathways, and who are diagnosed outside the hospital.

Conclusion

The study reveals that there are large variations between states and patients, where the poorest states and patients fare worse on key indicators. More broadly, the paper shows the importance of collecting data both on patient characteristics and health system performance and carry out detailed health system analysis for exposing, empirically, rights violations and for identifying how they can be addressed.
Appendix
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Footnotes
1
Brazil has made significant progress in reducing inequality, the most commonly used inequality measure – the Gini coefficient (the closer to 1, the more unequal) – declined from 0.60 in 1990 to 0.51 in 2014 [35], but regional inequalities remain. For instance, moderate poverty was 15.1% and 17.6% in the north and northeast regions, while the same number for the south and southeast regions was 3.3% and 4.4%, respectively [36]
 
2
Biehl et al. [37] challenge this research based on their analysis of 1262 lawsuits from Rio Grande do Sul and find that most patient-litigants are poor and older individuals. They conclude that there are regional differences that should not be fit into one singular narrative.
 
3
Existing cancer registries in Brazil record data from specific capital cities, which is then used to estimate incidence and mortality rates across a larger sample of the population. However, this evidence presents a narrow perspective of select population-based cancer registries within a small segment of the population living in areas of Brazil with higher economic status. This data is not nationally representative and therefore problematic for cross-country comparisons. The authors explored using the data. However, the quality of the data was poor. There were large discrepancies among the capitals in terms of reporting information. Some of the registries had not been fed for years. Furthermore, for the registries with more recent data, data management was sometimes outsourced to third parties and without standardized guidelines for managing the data this led to inconsistencies in data reporting. For all these reasons, the authors decided to not use the data in this study.
 
4
MOH Ordinance on cancer treatment waiting time guarantee (Portaria No 876 de 16/5/2014).
 
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Metadata
Title
Realizing the right to health in Brazil’s Unified Health System through the lens of breast and cervical cancer
Authors
Fabiana da Mota Almeida Peroni
Magnus Lindelow
David Oliveira De Souza
Mirja Sjoblom
Publication date
01-12-2019
Publisher
BioMed Central
Published in
International Journal for Equity in Health / Issue 1/2019
Electronic ISSN: 1475-9276
DOI
https://doi.org/10.1186/s12939-019-0938-x

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