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BMC Geriatrics
Published in: BMC Geriatrics 1/2019

Open Access 01-12-2019 | Care | Study protocol

Ageing well: evaluation of social participation and quality of life tools to enhance community aged care (study protocol)

Authors: Lindsey Brett, Andrew Georgiou, Mikaela Jorgensen, Joyce Siette, Grace Scott, Edwina Gow, Gemma Luckett, Johanna Westbrook

Published in: BMC Geriatrics | Issue 1/2019

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Abstract

Background

Several outcome measures can be utilised to measure social participation and Quality of Life (QoL) in research and clinical practice. However there have been few large-scale trials of these tools in community care to identify their value to clients and providers. This study aims to evaluate the implementation of the Australian Community Participation Questionnaire (ACPQ) and the ICEpop CAPability measure for Older people (ICECAP-O) as tools to measure social participation and QoL for clients receiving community aged care services. The specific research questions focus on determining: (1) the levels and predictors of social participation and QoL among older adults using community aged care services; (2) the acceptability and feasibility of implementation of ACPQ and ICECAP-O tools into routine community aged care assessments; (3) if implementation of the tools change service provision and outcomes for older adults receiving community aged care services.

Methods

A mixed method design will be used to collect data from a large Australian aged care provider. Community aged care clients’ ACPQ and ICECAP-O scores, as well as other key outcomes (e.g. services used, hospitalisation and admission to permanent residential care), will be examined at baseline and 12-monthly follow-up assessments. Interviews and focus groups with community aged care clients and staff who administer the tools will also be completed. Descriptive statistics and multiple linear regression will be used to examine the levels and predictors of social participation and QoL. Thematic analysis of interviews and focus groups will be used to determine the acceptability and feasibility of implementing the ACPQ and ICECAP-O into routine needs assessments in community aged care. Case-controlled analyses will be used to determine whether the implementation of the ACPQ and ICECAP-O changes service use and outcomes.

Discussion

The novel use of the ACPQ and the ICECAP-O tools as part of routine needs assessments for community aged care clients has the potential to improve the quality and effectiveness of community aged care services and outcomes.

Trial registration

Australian and New Zealand clinical trial registry number: ACTRN12617001212​347. Registered 18/08/2017
Appendix
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Literature
1.
2.
Grenade L, Boldy D. Social isolation and loneliness among older people: issues and future challenges in community and residential settings. Aust Health Rev. 2008;32(3):468–78.CrossRef
3.
Aged and Community Services Australia. Social isolation and loneliness among older Australians. Deakin; 2015. Contract No.: 1.
4.
Franklin A, Tranter B. AHURI Essay Housing, loneliness and health. Australian Institute of Housing and Urban Research Institute; 2011. Contract No.: AHURI Final Report no. 164, 6.
5.
Fleischer S, Roling G, Beutner K, Hanns S, Behrens J, Luck T, et al. Growing old at home – a randomized controlled trial to investigate the effectiveness and cost-effectiveness of preventive home visits to reduce nursing home admissions: study protocol [NCT00644826]. BMC Public Health. 2008;8(1):185.CrossRef
6.
Turcotte P-L, Larivière N, Desrosiers J, Voyer P, Champoux N, Carbonneau H, et al. Participation needs of older adults having disabilities and receiving home care: met needs mainly concern daily activities, while unmet needs mostly involve social activities. BMC Geriatr. 2015;15(1):95.CrossRef
7.
Bölenius K, Lämås K, Sandman P-O, Edvardsson D. Effects and meanings of a person-centred and health-promoting intervention in home care services - a study protocol of a non-randomised controlled trial. BMC Geriatr. 2017;17(1):57.CrossRef
8.
Kapan A, Winzer E, Haider S, Titze S, Schindler K, Lackinger C, et al. Impact of a lay-led home-based intervention programme on quality of life in community-dwelling pre-frail and frail older adults: a randomized controlled trial. BMC Geriatr. 2017;17(1):154.CrossRef
9.
Berry HL. Social capital elite, excluded participators, busy working parents and aging, participating less: types of community participators and their mental health. Soc Psychiatry Psychiatr Epidemiol. 2008;43(7):527–37.CrossRef
10.
Berry H. Social capital and mental health among Indigenous Australians, New Australians and Other Australians living in a coastal region. Australian e-journal for the advancement of mental health. 2009;8(2):142-54.
11.
Berry H, Rickwood D. Measuring social capital at the indivdual level: personal social capital, values and psychological distress. Journal of Public Mental Health. 2000;2(3):35–44.CrossRef
12.
Berry H, Rodgers B. Trust and distress in three generations of rural Australians. Australasian Psychiatry. 2003;11(sup1):S131–S7.CrossRef
13.
Berry HL, Rodgers B, Dear KBG. Preliminary development and validation of an Australian community participation questionnaire: types of participation and associations with distress in a coastal community. Soc Sci Med. 2007;64(8):1719–37.CrossRef
14.
Economou M, Madianos M, Peppou LE, Souliotis K, Patelakis A, Stefanis C. Cognitive social capital and mental illness during economic crisis: a nationwide population-based study in Greece. Soc Sci Med. 2014;100:141–7.CrossRef
15.
Kim BJ, Auh E, Lee YJ, Ahn J. The impact of social capital on depression among older Chinese and Korean immigrants: similarities and differences. Aging Ment Health. 2013;17(7):844–52.CrossRef
16.
Litwin H. The association between social network relationships and depressive symptoms among older Americans: what matters most? Int Psychogeriatr. 2011;23(6):930–40.CrossRef
17.
Murayama H, Nishi M, Matsuo E, Nofuji Y, Shimizu Y, Taniguchi Y, et al. Do bonding and bridging social capital affect self-rated health, depressive mood and cognitive decline in older Japanese? A prospective cohort study. Soc Sci Med. 2013;98:247–52.CrossRef
18.
Chemaitelly H, Kanaan C, Beydoun H, Chaaya M, Kanaan M, Sibai AM. The role of gender in the association of social capital, social support, and economic security with self-rated health among older adults in deprived communities in Beirut. Qual Life Res Int J Qual Life Asp Treat Care Rehab. 2013;22(6):1371–9.
19.
Giordano GN, Björk J, Lindström M. Social capital and self-rated health – a study of temporal (causal) relationships. Soc Sci Med. 2012;75(2):340–8.CrossRef
20.
Unger JB, McAvay G, Bruce ML, Berkman L, Seeman T. Variation in the impact of social network characteristics on physical functioning in elderly persons: MacArthur studies of successful aging. The Journals of Gerontology: Series B. 1999;54B(5):S245–S51.CrossRef
21.
Rubio E, Lázaro A, Sánchez-Sánchez A. Social participation and independence in activities of daily living: a cross sectional study. BMC Geriatr. 2009;9(1):26.CrossRef
22.
Rodriguez-Laso A, Zunzunegui MV, Otero A. The effect of social relationships on survival in elderly residents of a southern European community: a cohort study. BMC Geriatr. 2007;7(1):19.CrossRef
23.
Jiang S, Li P. Current development in elderly comprehensive assessment and research methods. Biomed Res Int. 2016;2016:3528248.
24.
Netten A, Burge P, Malley J, Potoglou D, Towers A, Brazier J, et al. Outcomes of social Care for Adults: developing a preference-weighted measure. Health Technol Assess. 2012;16(16):1–165.CrossRef
25.
Flynn TN, Chan P, Coast J, Peters TJ. Assessing quality of life among British older people using the ICEPOP CAPability (ICECAP-O) measure. Applied Health Economics and Health Policy. 2011;9(5):317–29.CrossRef
26.
Ware JE, Sherbourne CD. The MOS 36-item short-form health survey (SF-36): I. Conceptual framework and item selection. Med Care. 1992;30(6):473–83.CrossRef
27.
Johnson C. Outcome measures for research and clinical practice. J Manip Physiol Ther. 2008;31(5):329–30.CrossRef
28.
Coombs T, Nicholas A, Pirkis J. A review of social inclusion measures. Australian & New Zealand Journal of Psychiatry. 2013;47(10):906–19.CrossRef
29.
Bulamu NB, Kaambwa B, Ratcliffe J. A systematic review of instruments for measuring outcomes in economic evaluation within aged care. Health Qual Life Outcomes. 2015;13(1):179.CrossRef
30.
van Leeuwen KM, Bosmans JE, Jansen APD, Hoogendijk EO, van Tulder MW, van der Horst HE, et al. Comparing measurement properties of the EQ-5D-3L, ICECAP-O, and ASCOT in frail older adults. Value Health. 2015;18(1):35–43.CrossRef
31.
Siette J, Georgiou A, Jorgensen M, O'Donnell C, Westbrook JI. Integrating social engagement instruements into aged care assessments to enhance service provision. Health & Social Care in the Community. 2018;26(6):810-818.
32.
Siette J, Jorgensen M, O'Donnell C, Gow E, editors. Reimagining service provision in community care: the value of social connectedness and wellbeing tools. Better Practice 2017; 2017 20-21/ 07/2017; Adelaide.
33.
Craig P, Dieppe P, Macintyre S, Michie S, Nazareth I, Petticrew M. Developing and evaluating complex interventions: the new Medical Research Council guidance. BMJ. 2008;337:a1655.
34.
35.
Benchimol EI, Smeeth L, Guttmann A, Harron K, Moher D, Petersen I, et al. The REporting of studies Conducted using Observational Routinely-collected health Data (RECORD) statement. Plos Medicine. 2015;12(10):e1001885-e.CrossRef
36.
Tong A, Sainsbury P, Craig J. Consolidated criteria for reporting qualitative research (COREQ): a 32-item checklist for interviews and focus groups. Int J Qual Health Care. 2007;19(6):349–57.CrossRef
37.
38.
39.
40.
Berry H, Shipley M. In: Department of Families H, Community Services and Indigenous Affairs, editor. Longing to belong: personal social capital and psychological distress in an Australian coastal region. Canberra: Commonwealth of Australia; 2009.
41.
Ratcliffe J, Lester LH, Couzner L, Crotty M. An assessment of the relationship between informal caring and quality of life in older community-dwelling adults – more positives than negatives? Health & Social Care in the Community. 2013;21(1):35–46.CrossRef
42.
Comans TA, Peel NM, Gray LC, Scuffham PA. Quality of life of older frail persons receiving a post-discharge program. Health Qual Life Outcomes. 2013;11(1):58.CrossRef
43.
Couzner L, Ratcliffe J, Crotty M. The relationship between quality of life, health and care transition: an empirical comparison in an older post-acute population. Health and Quality of Life Outcomes. 2012;10:69.CrossRef
44.
Rubin DB. Estimating causal effects from large data sets using propensity scores. Annals of Internal Medicine. 1997;127(8_Part_2):757–63.CrossRef
45.
Bowling A. Research methods in health. Third edition ed. New York: Open university Press; 2009.
Metadata
Title
Ageing well: evaluation of social participation and quality of life tools to enhance community aged care (study protocol)
Authors
Lindsey Brett
Andrew Georgiou
Mikaela Jorgensen
Joyce Siette
Grace Scott
Edwina Gow
Gemma Luckett
Johanna Westbrook
Publication date
01-12-2019
Publisher
BioMed Central
Keyword
Care
Published in
BMC Geriatrics / Issue 1/2019
Electronic ISSN: 1471-2318
DOI
https://doi.org/10.1186/s12877-019-1094-2

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