Skip to main content
Top
Published in: BMC Geriatrics 1/2018

Open Access 01-12-2018 | Study protocol

Investigating falls in adults with intellectual disability living in community settings and their experiences of post-fall care services: protocol for a prospective observational cohort study

Authors: Portia Ho, Caroline Bulsara, Shane Patman, Max Bulsara, Jenny Downs, Anne-Marie Hill

Published in: BMC Geriatrics | Issue 1/2018

Login to get access

Abstract

Background

Falls among older adults with intellectual disability (ID) are recognised as a serious health problem potentially resulting in reduced health-related quality of life and premature placement in residential care. However there are limited studies that have investigated this problem and thus falls rates among older adults with ID remain uncertain. Furthermore, people with ID rely heavily on familial and professional care support to address health problems, such as after having a fall. No studies have explored the post-fall care that people with ID receive.

Method

This research will be carried out in two phases using a convergent mixed methods design. The aim of Phase 1 is to estimate the falls rate by prospectively observing a cohort of older adults (≥ 35 years) with ID (n = 90) for six months. Phase 1 will be conducted according to STROBE guidelines. In Phase 2, participants from Phase 1 who have experienced a fall(s) will be asked to participate in a semi-structured interview to explore their post-fall experience.

Discussion

This study will determine the rate of falls among older adults with ID living in community based settings, which will assist to identify the extent of this problem. Data collected from the study will also aid in understanding the circumstance of falls and related falls risk factors in this cohort. This will include exploring any barriers that older adults with ID may encounter when seeking or undertaking recommended post-fall care advice. Findings from this research will potentially inform future development of falls prevention services for older adults with ID. This study has been approved by the University Human Research Ethics Committee.

Trial registration

The protocol for this study is registered with the Australian New Zealand Clinical Trial Registry (ACTRN12615000926538) on 7 September 2015. www.​anzctr.​org.​au/​Trial/​Registration/​TrialReview.​aspx?​id=​368990&​isReview=​true
Literature
1.
go back to reference Milat AJ, Watson WL, Monger C, Barr M, Giffin M, Reid M. Prevalence, circumstances and consequences of falls among community-dwelling older people: results of the 2009 NSW falls prevention baseline survey. New South Wales Public Health Bulletin. 2011;22(3–4):43–8. https://doi.org/10.1071/NB10065.CrossRefPubMed Milat AJ, Watson WL, Monger C, Barr M, Giffin M, Reid M. Prevalence, circumstances and consequences of falls among community-dwelling older people: results of the 2009 NSW falls prevention baseline survey. New South Wales Public Health Bulletin. 2011;22(3–4):43–8. https://​doi.​org/​10.​1071/​NB10065.CrossRefPubMed
3.
go back to reference Tovell A, Harrison JE, Pointer S. Hospitalised injury in older Australians, 2011-12. Injury research and statistics series no. 90. Cat.No. INJCAT 166. Canberra: AIHW. Tovell A, Harrison JE, Pointer S. Hospitalised injury in older Australians, 2011-12. Injury research and statistics series no. 90. Cat.No. INJCAT 166. Canberra: AIHW.
4.
go back to reference Australian Commission on Safety and Quality in Healthcare (ACSQHC). Preventing falls and harm from falls in older people. Commonwealth of Australia. 2009; Australian Commission on Safety and Quality in Healthcare (ACSQHC). Preventing falls and harm from falls in older people. Commonwealth of Australia. 2009;
5.
go back to reference Connolly BH. General effects of aging on persons with developmental disabilities. Top Geriatr Rehabil. 1998;13(3):1–18.CrossRef Connolly BH. General effects of aging on persons with developmental disabilities. Top Geriatr Rehabil. 1998;13(3):1–18.CrossRef
11.
go back to reference Bruckner J, Herge EA. Assessing the risk of falls in elders with mental retardation and developmental disabilities. Top Geriatr Rehabil. 2003;19(3):206–11.CrossRef Bruckner J, Herge EA. Assessing the risk of falls in elders with mental retardation and developmental disabilities. Top Geriatr Rehabil. 2003;19(3):206–11.CrossRef
22.
go back to reference Smulders E, Enkelaar L, Schoon Y, Geurts AC, van Schrojenstein Lantman-de Valk H, Weerdesteyn V. Falls prevention in persons with intellectual disabilities: development, implementation, and process evaluation of a tailored multifactorial fall risk assessment and intervention strategy. Res Dev Disabil. 2013;34(9):2788–28. https://doi.org/10.1016/j.ridd.2013.05.041.CrossRefPubMed Smulders E, Enkelaar L, Schoon Y, Geurts AC, van Schrojenstein Lantman-de Valk H, Weerdesteyn V. Falls prevention in persons with intellectual disabilities: development, implementation, and process evaluation of a tailored multifactorial fall risk assessment and intervention strategy. Res Dev Disabil. 2013;34(9):2788–28. https://​doi.​org/​10.​1016/​j.​ridd.​2013.​05.​041.CrossRefPubMed
23.
go back to reference Creswell JW. Research design: qualitative, quantitative, and mixed method approaches. 4th ed. Thousand Oaks, California: Sage Publications Inc; 2013. Creswell JW. Research design: qualitative, quantitative, and mixed method approaches. 4th ed. Thousand Oaks, California: Sage Publications Inc; 2013.
25.
go back to reference Liamputtong P. Research methods in health: foundations for evidence-based practice. 2nd ed. South Melbourne: Oxford University Press; 2013. Chapter 9. Liamputtong P. Research methods in health: foundations for evidence-based practice. 2nd ed. South Melbourne: Oxford University Press; 2013. Chapter 9.
28.
go back to reference American Psychiatric Association. Diagnostic and statistical manual of mental disorders (DSM-5). 5th ed. Arlington, US: American Psychiatric Publishing; 2013.CrossRef American Psychiatric Association. Diagnostic and statistical manual of mental disorders (DSM-5). 5th ed. Arlington, US: American Psychiatric Publishing; 2013.CrossRef
30.
go back to reference Rocky Bay Inc.: About our customers. 2016. http://www.rockybay.org.au/about-us/our-customers/. Accessed 14 Jan 2017. Rocky Bay Inc.: About our customers. 2016. http://​www.​rockybay.​org.​au/​about-us/​our-customers/​.​ Accessed 14 Jan 2017.
31.
32.
go back to reference Hill AM, Hoffmann T, McPhail S, Beer C, Hill KD, Oliver D, Brauer SG, Haines TP. Evaluation of the sustained effect of inpatient falls prevention education and predictors of falls after hospital discharge--follow-up to a randomised controlled trial. J Gerontol A Biol Sci Med Sci. 2011;66(9):1001–12. https://doi.org/10.1093/gerona/glr085.CrossRefPubMed Hill AM, Hoffmann T, McPhail S, Beer C, Hill KD, Oliver D, Brauer SG, Haines TP. Evaluation of the sustained effect of inpatient falls prevention education and predictors of falls after hospital discharge--follow-up to a randomised controlled trial. J Gerontol A Biol Sci Med Sci. 2011;66(9):1001–12. https://​doi.​org/​10.​1093/​gerona/​glr085.CrossRefPubMed
33.
go back to reference Patton MQ. Qualitative research and evaluation methods. 4th ed. Thousand Oaks, California: Sage Publications Inc.; 2015. p. 244–5. Patton MQ. Qualitative research and evaluation methods. 4th ed. Thousand Oaks, California: Sage Publications Inc.; 2015. p. 244–5.
34.
go back to reference Liamputtong P. Research methods in health: foundations for evidence-based practice. 2nd ed. South Melbourne: Oxford University Press; 2013. Chapter 1, p. 19. Liamputtong P. Research methods in health: foundations for evidence-based practice. 2nd ed. South Melbourne: Oxford University Press; 2013. Chapter 1, p. 19.
40.
go back to reference Salb J, Finlayson J, Almutaseb S, Scharfenberg B, Becker C, Sieber C, et al. Test-retest reliability and agreement of physical fall risk assessment tools in adults with intellectual disabilities. 2015; 59 (12): 1121–29. doi:10.111/jir.12216. Salb J, Finlayson J, Almutaseb S, Scharfenberg B, Becker C, Sieber C, et al. Test-retest reliability and agreement of physical fall risk assessment tools in adults with intellectual disabilities. 2015; 59 (12): 1121–29. doi:10.111/jir.12216.
42.
go back to reference Cummins RA, Lau ALD. Personal wellbeing index - intellectual disability. 3rd ed. School of Psychology: Deakin University Australian Centre on Quality of Life; 2005. Cummins RA, Lau ALD. Personal wellbeing index - intellectual disability. 3rd ed. School of Psychology: Deakin University Australian Centre on Quality of Life; 2005.
43.
go back to reference Diaz-Redondo A, Rodriguez-Blazquez C, Ayala A, Martinez-Martin P, Forjaz MJ. Spanish Research Group on Quality of Life and Aging. EQ-5D rated by proxy in institutionalized older adults with dementia: Psychometric pros and cons. Geriatr Gerontol Int. 2014;14(2):346–53. https://doi.org/10.1111/ggi.12108.CrossRefPubMed Diaz-Redondo A, Rodriguez-Blazquez C, Ayala A, Martinez-Martin P, Forjaz MJ. Spanish Research Group on Quality of Life and Aging. EQ-5D rated by proxy in institutionalized older adults with dementia: Psychometric pros and cons. Geriatr Gerontol Int. 2014;14(2):346–53. https://​doi.​org/​10.​1111/​ggi.​12108.CrossRefPubMed
44.
go back to reference Department of Health, Western Australia. Falls Prevention Model of Care. Perth: Health Strategy and Networks, Department of Health, Western Australia. 2014. Department of Health, Western Australia. Falls Prevention Model of Care. Perth: Health Strategy and Networks, Department of Health, Western Australia. 2014.
50.
go back to reference Foran S, McCarron M, McCallion P. Expanding Assessment of Fear of Falling among Older Adults with an Intellectual Disability: A Pilot Study to Assess the Value of Proxy Responses. ISRN Geriatr. 2013; Article ID 493042, 9 pages. doi.org/https://doi.org/10.1155/2013/493042 Foran S, McCarron M, McCallion P. Expanding Assessment of Fear of Falling among Older Adults with an Intellectual Disability: A Pilot Study to Assess the Value of Proxy Responses. ISRN Geriatr. 2013; Article ID 493042, 9 pages. doi.org/https://​doi.​org/​10.​1155/​2013/​493042
Metadata
Title
Investigating falls in adults with intellectual disability living in community settings and their experiences of post-fall care services: protocol for a prospective observational cohort study
Authors
Portia Ho
Caroline Bulsara
Shane Patman
Max Bulsara
Jenny Downs
Anne-Marie Hill
Publication date
01-12-2018
Publisher
BioMed Central
Published in
BMC Geriatrics / Issue 1/2018
Electronic ISSN: 1471-2318
DOI
https://doi.org/10.1186/s12877-018-0862-8

Other articles of this Issue 1/2018

BMC Geriatrics 1/2018 Go to the issue