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Open Access 01-12-2014 | Oral presentation

Perspective having a Centre of Expertise that covers more than one rare disease

Author: John R Ostergaard

Published in: Orphanet Journal of Rare Diseases | Special Issue 1/2014

Excerpt

The vast majority of rare diseases affect more than one organ of the body, and eighty-five percent of the patients have symptoms within the initial five years of life. In childhood, the medical specialty, i.e. pediatrics, is not confined to one organ, but by age. In adulthood, the medical specialties are defined by an organ (e.g. heart, eye, urinary system, etc). As rare diseases do not respect borders for either age or organ, the organizational approach of healthcare for rare diseases need to take that into consideration. …

Title: Perspective having a Centre of Expertise that covers more than one rare disease
Author: John R Ostergaard
Publication date: 01-12-2014
Publisher: BioMed Central
Published in: Orphanet Journal of Rare Diseases / Issue Special Issue 1/2014
Electronic ISSN: 1750-1172
DOI: https://doi.org/10.1186/1750-1172-9-S1-O2

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