Skip to main content
Top
Published in: BMC Endocrine Disorders 1/2009

Open Access 01-12-2009 | Research article

Self-care coping strategies in people with diabetes: a qualitative exploratory study

Authors: Margaret M Collins, Colin P Bradley, Tony O'Sullivan, Ivan J Perry

Published in: BMC Endocrine Disorders | Issue 1/2009

Login to get access

Abstract

Background

The management of diabetes self-care is largely the responsibility of the patient. With more emphasis on the prevention of complications, adherence to diabetes self-care regimens can be difficult. Diabetes self-care requires the patient to make many dietary and lifestyle changes. This study will explore patient perceptions of diabetes self-care, with particular reference to the burden of self-care and coping strategies among patients.

Methods

A maximum variation sample of 17 patients was selected from GP practices and diabetes clinics in Ireland to include patients with types 1 and 2 diabetes, various self-care regimens, and a range of diabetes complications. Data were collected by in-depth interviews; which were tape-recorded and transcribed. The transcripts were analysed using open and axial coding procedures to identify main categories, and were reviewed by an independent corroborator. Discussion of the results is made in the theoretical context of the health belief, health value, self-efficacy, and locus of control frameworks.

Results

Patients' perceptions of their self-care varied on a spectrum, displaying differences in self-care responsibilities such as competence with dietary planning, testing blood sugar and regular exercise. Three patient types could be distinguished, which were labeled: "proactive manager," a patient who independently monitors blood glucose and adjusts his/her self-care regime to maintain metabolic control; "passive follower," a patient who follows his/her prescribed self-care regime, but does not react autonomously to changes in metabolic control; and "nonconformist," a patient who does not follow most of his/her prescribed self-care regimen.

Conclusion

Patients have different diabetes self-care coping strategies which are influenced by their self-care health value and consequently may affect their diet and exercise choices, frequency of blood glucose monitoring, and compliance with prescribed medication regimens. Particular attention should be paid to the patient's self-care coping strategy, and self-care protocols should be tailored to complement the different patient types.
Appendix
Available only for authorised users
Literature
1.
go back to reference Wagner EH, Austin BT, Davis C, Hindmarsh M, Schaefer J, Bonomi A: Improving chronic illness care: translating evidence into action. Health Aff (Millwood). 2001, 20 (6): 64-78. 10.1377/hlthaff.20.6.64.CrossRef Wagner EH, Austin BT, Davis C, Hindmarsh M, Schaefer J, Bonomi A: Improving chronic illness care: translating evidence into action. Health Aff (Millwood). 2001, 20 (6): 64-78. 10.1377/hlthaff.20.6.64.CrossRef
2.
go back to reference DCCT: The effect of intensive treatment of diabetes on the development and progression of long-term complications in insulin-dependent diabetes mellitus. The Diabetes Control and Complications Trial Research Group. N Engl J Med. 1993, 329 (14): 977-86. 10.1056/NEJM199309303291401.CrossRef DCCT: The effect of intensive treatment of diabetes on the development and progression of long-term complications in insulin-dependent diabetes mellitus. The Diabetes Control and Complications Trial Research Group. N Engl J Med. 1993, 329 (14): 977-86. 10.1056/NEJM199309303291401.CrossRef
3.
go back to reference Mazze RS, Bergenstal R, Ginsberg B: Intensified diabetes management: lessons from the diabetes control and complications trial. Int J Clin Pharmacol Ther. 1995, 33 (1): 43-51.PubMed Mazze RS, Bergenstal R, Ginsberg B: Intensified diabetes management: lessons from the diabetes control and complications trial. Int J Clin Pharmacol Ther. 1995, 33 (1): 43-51.PubMed
4.
go back to reference Ohkubo Y, Kishikawa H, Araki E, Miyata T, Isami S, Motoyoshi S, Kojima Y, Furuyoshi N, Shichiri M: Intensive insulin therapy prevents the progression of diabetic microvascular complications in Japanese patients with non-insulin-dependent diabetes mellitus: a randomized prospective 6-year study. Diabetes Res Clin Pract. 1995, 28 (2): 103-17. 10.1016/0168-8227(95)01064-K.CrossRefPubMed Ohkubo Y, Kishikawa H, Araki E, Miyata T, Isami S, Motoyoshi S, Kojima Y, Furuyoshi N, Shichiri M: Intensive insulin therapy prevents the progression of diabetic microvascular complications in Japanese patients with non-insulin-dependent diabetes mellitus: a randomized prospective 6-year study. Diabetes Res Clin Pract. 1995, 28 (2): 103-17. 10.1016/0168-8227(95)01064-K.CrossRefPubMed
5.
go back to reference UKPDS: Intensive blood-glucose control with sulphonylureas or insulin compared with conventional treatment and risk of complications in patients with type 2 diabetes (UKPDS 33). UK Prospective Diabetes Study (UKPDS) Group. Lancet. 1998, 352 (9131): 837-53. 10.1016/S0140-6736(98)07019-6.CrossRef UKPDS: Intensive blood-glucose control with sulphonylureas or insulin compared with conventional treatment and risk of complications in patients with type 2 diabetes (UKPDS 33). UK Prospective Diabetes Study (UKPDS) Group. Lancet. 1998, 352 (9131): 837-53. 10.1016/S0140-6736(98)07019-6.CrossRef
6.
go back to reference Grey M, Thurber FW: Adaptation to chronic illness in childhood: diabetes mellitus. J Pediatr Nurs. 1991, 6 (5): 302-9.PubMed Grey M, Thurber FW: Adaptation to chronic illness in childhood: diabetes mellitus. J Pediatr Nurs. 1991, 6 (5): 302-9.PubMed
7.
go back to reference Peel E, Douglas M, Lawton J: Self monitoring of blood glucose in type 2 diabetes: longitudinal qualitative study of patients' perspectives. Bmj. 2007, 335 (7618): 493-10.1136/bmj.39302.444572.DE.CrossRefPubMedPubMedCentral Peel E, Douglas M, Lawton J: Self monitoring of blood glucose in type 2 diabetes: longitudinal qualitative study of patients' perspectives. Bmj. 2007, 335 (7618): 493-10.1136/bmj.39302.444572.DE.CrossRefPubMedPubMedCentral
8.
go back to reference Norris SL, Lau J, Smith SJ, Schmid CH, Engelgau MM: Self-management education for adults with type 2 diabetes: a meta-analysis of the effect on glycemic control. Diabetes Care. 2002, 25 (7): 1159-71. 10.2337/diacare.25.7.1159.CrossRefPubMed Norris SL, Lau J, Smith SJ, Schmid CH, Engelgau MM: Self-management education for adults with type 2 diabetes: a meta-analysis of the effect on glycemic control. Diabetes Care. 2002, 25 (7): 1159-71. 10.2337/diacare.25.7.1159.CrossRefPubMed
9.
go back to reference Bradley C, Speight J: Patient perceptions of diabetes and diabetes therapy: assessing quality of life. Diabetes Metab Res Rev. 2002, 18 (Suppl 3): S64-9. 10.1002/dmrr.279.CrossRefPubMed Bradley C, Speight J: Patient perceptions of diabetes and diabetes therapy: assessing quality of life. Diabetes Metab Res Rev. 2002, 18 (Suppl 3): S64-9. 10.1002/dmrr.279.CrossRefPubMed
10.
go back to reference Williams GC, Freedman ZR, Deci EL: Supporting autonomy to motivate patients with diabetes for glucose control. Diabetes Care. 1998, 21 (10): 1644-51. 10.2337/diacare.21.10.1644.CrossRefPubMed Williams GC, Freedman ZR, Deci EL: Supporting autonomy to motivate patients with diabetes for glucose control. Diabetes Care. 1998, 21 (10): 1644-51. 10.2337/diacare.21.10.1644.CrossRefPubMed
11.
go back to reference Glasgow RE, Hiss RG, Anderson RM, Friedman NM, Hayward RA, Marrero DG, Taylor CB, Vinicor F: Report of the health care delivery work group: behavioral research related to the establishment of a chronic disease model for diabetes care. Diabetes Care. 2001, 24 (1): 124-30. 10.2337/diacare.24.1.124.CrossRefPubMed Glasgow RE, Hiss RG, Anderson RM, Friedman NM, Hayward RA, Marrero DG, Taylor CB, Vinicor F: Report of the health care delivery work group: behavioral research related to the establishment of a chronic disease model for diabetes care. Diabetes Care. 2001, 24 (1): 124-30. 10.2337/diacare.24.1.124.CrossRefPubMed
12.
go back to reference Ockleford E, Shaw RL, Willars J, Dixon-Woods M: Education and self-management for people newly diagnosed with type 2 diabetes: a qualitative study of patients' views. Chronic Illn. 2008, 4 (1): 28-37. 10.1177/1742395307086673.CrossRefPubMed Ockleford E, Shaw RL, Willars J, Dixon-Woods M: Education and self-management for people newly diagnosed with type 2 diabetes: a qualitative study of patients' views. Chronic Illn. 2008, 4 (1): 28-37. 10.1177/1742395307086673.CrossRefPubMed
13.
go back to reference Bandura A: Self-efficacy: toward a unifying theory of behavioral change. Psychol Rev. 1977, 84 (2): 191-215. 10.1037/0033-295X.84.2.191.CrossRefPubMed Bandura A: Self-efficacy: toward a unifying theory of behavioral change. Psychol Rev. 1977, 84 (2): 191-215. 10.1037/0033-295X.84.2.191.CrossRefPubMed
14.
go back to reference Rotter JB: Generalized Expectancies for Internal Verses External Control of Reinforcement. Psychological Monographs: General and Applied. 1966, 80 (1): 1-28.CrossRef Rotter JB: Generalized Expectancies for Internal Verses External Control of Reinforcement. Psychological Monographs: General and Applied. 1966, 80 (1): 1-28.CrossRef
15.
go back to reference Hayes D, Ross CE: Concern with appearance, health beliefs, and eating habits. J Health Soc Behav. 1987, 28 (2): 120-30. 10.2307/2137126.CrossRefPubMed Hayes D, Ross CE: Concern with appearance, health beliefs, and eating habits. J Health Soc Behav. 1987, 28 (2): 120-30. 10.2307/2137126.CrossRefPubMed
16.
go back to reference Rosenstock IM, Strecher VJ, Becker MH: Social learning theory and the Health Belief Model. Health Educ Q. 1988, 15 (2): 175-83.CrossRefPubMed Rosenstock IM, Strecher VJ, Becker MH: Social learning theory and the Health Belief Model. Health Educ Q. 1988, 15 (2): 175-83.CrossRefPubMed
17.
go back to reference Denzin NK, Lincoln YS, editors: Handbook of qualitative research. 2000, Thousand Oaks, California: Sage Publications, Inc, 2 Denzin NK, Lincoln YS, editors: Handbook of qualitative research. 2000, Thousand Oaks, California: Sage Publications, Inc, 2
18.
go back to reference Bradley C, Todd C, Gorton T, Symonds E, Martin A, Plowright R: The development of an individualized questionnaire measure of perceived impact of diabetes on quality of life: the ADDQoL. Qual Life Res. 1999, 8 (1–2): 79-91. 10.1023/A:1026485130100.CrossRefPubMed Bradley C, Todd C, Gorton T, Symonds E, Martin A, Plowright R: The development of an individualized questionnaire measure of perceived impact of diabetes on quality of life: the ADDQoL. Qual Life Res. 1999, 8 (1–2): 79-91. 10.1023/A:1026485130100.CrossRefPubMed
19.
go back to reference Strauss A, Corbin J: Basics of qualitative research: techniques and procedures for developing grounded theory. Second ed. 1998, Thousand Oaks, CA: Sage Publications, Inc, Second Strauss A, Corbin J: Basics of qualitative research: techniques and procedures for developing grounded theory. Second ed. 1998, Thousand Oaks, CA: Sage Publications, Inc, Second
20.
21.
go back to reference Fade SA: Communicating and judging the quality of qualitative research: the need for a new language. J Hum Nutr Diet. 2003, 16 (3): 139-49. 10.1046/j.1365-277X.2003.00433.x.CrossRefPubMed Fade SA: Communicating and judging the quality of qualitative research: the need for a new language. J Hum Nutr Diet. 2003, 16 (3): 139-49. 10.1046/j.1365-277X.2003.00433.x.CrossRefPubMed
22.
go back to reference Aron R: Main currents in sociological thought II. 1970, New York: Anchor Books Aron R: Main currents in sociological thought II. 1970, New York: Anchor Books
23.
go back to reference Coser LA, editor: Masters of sociological thought: ideas in historical and social context. 1977, New York: Harcourt Brace Jovanovich, 2 Coser LA, editor: Masters of sociological thought: ideas in historical and social context. 1977, New York: Harcourt Brace Jovanovich, 2
24.
go back to reference Gerth H, Wright-Mills C, editors: From Max Weber: essays in sociology. 1958, New York: Galaxy Books, 2 Gerth H, Wright-Mills C, editors: From Max Weber: essays in sociology. 1958, New York: Galaxy Books, 2
25.
go back to reference Glasgow RE, Ruggiero L, Eakin EG, Dryfoos J, Chobanian L: Quality of life and associated characteristics in a large national sample of adults with diabetes. Diabetes Care. 1997, 20 (4): 562-7. 10.2337/diacare.20.4.562.CrossRefPubMed Glasgow RE, Ruggiero L, Eakin EG, Dryfoos J, Chobanian L: Quality of life and associated characteristics in a large national sample of adults with diabetes. Diabetes Care. 1997, 20 (4): 562-7. 10.2337/diacare.20.4.562.CrossRefPubMed
26.
go back to reference Petterson T, Lee P, Hollis S, Young B, Newton P, Dornan T: Well-being and treatment satisfaction in older people with diabetes. Diabetes Care. 1998, 21 (6): 930-5. 10.2337/diacare.21.6.930.CrossRefPubMed Petterson T, Lee P, Hollis S, Young B, Newton P, Dornan T: Well-being and treatment satisfaction in older people with diabetes. Diabetes Care. 1998, 21 (6): 930-5. 10.2337/diacare.21.6.930.CrossRefPubMed
27.
go back to reference Ward J, Lin M, Heron G, Lajoie V: Comprehensive audit of quality-of-care and quality-of-life for patients with diabetes. J Qual Clin Pract. 1997, 17 (2): 91-100. discussion 1-2.PubMed Ward J, Lin M, Heron G, Lajoie V: Comprehensive audit of quality-of-care and quality-of-life for patients with diabetes. J Qual Clin Pract. 1997, 17 (2): 91-100. discussion 1-2.PubMed
28.
go back to reference Lignowska I: The impact of environmental factors upon patient attitudes and behaviour. A sociological study from Poland. Soc Sci Med. 1989, 29 (5): 681-10.1016/0277-9536(89)90189-5.CrossRefPubMed Lignowska I: The impact of environmental factors upon patient attitudes and behaviour. A sociological study from Poland. Soc Sci Med. 1989, 29 (5): 681-10.1016/0277-9536(89)90189-5.CrossRefPubMed
29.
go back to reference Rubin RR, Peyrot M: Men and diabetes:psychosocial and behavioral issues. Diabetes Spectrum. 1998, 11 (2): 81-7. Rubin RR, Peyrot M: Men and diabetes:psychosocial and behavioral issues. Diabetes Spectrum. 1998, 11 (2): 81-7.
30.
go back to reference Becker MH, Maiman LA, Kirscht JP, Haefner DP, Drachman RH: The Health Belief Model and prediction of dietary compliance: a field experiment. J Health Soc Behav. 1977, 18 (4): 348-66. 10.2307/2955344.CrossRefPubMed Becker MH, Maiman LA, Kirscht JP, Haefner DP, Drachman RH: The Health Belief Model and prediction of dietary compliance: a field experiment. J Health Soc Behav. 1977, 18 (4): 348-66. 10.2307/2955344.CrossRefPubMed
31.
go back to reference Wallston KA, Wallston BS, De Vellis R: Development of the multidimensional health locus of control (MHLC) scales. Health Education Monographs. 1978, 6: 160-70.CrossRefPubMed Wallston KA, Wallston BS, De Vellis R: Development of the multidimensional health locus of control (MHLC) scales. Health Education Monographs. 1978, 6: 160-70.CrossRefPubMed
32.
go back to reference Ruggiero L, Glasgow R, Dryfoos JM, Rossi JS, Prochaska JO, Orleans CT, Prokhorov AV, Rossi SR, Greene GW, Reed GR, Kelly K, Chobanian L, Johnson S: Diabetes self-management. Self-reported recommendations and patterns in a large population. Diabetes Care. 1997, 20 (4): 568-76. 10.2337/diacare.20.4.568.CrossRefPubMed Ruggiero L, Glasgow R, Dryfoos JM, Rossi JS, Prochaska JO, Orleans CT, Prokhorov AV, Rossi SR, Greene GW, Reed GR, Kelly K, Chobanian L, Johnson S: Diabetes self-management. Self-reported recommendations and patterns in a large population. Diabetes Care. 1997, 20 (4): 568-76. 10.2337/diacare.20.4.568.CrossRefPubMed
33.
go back to reference Campbell R, Pound P, Pope C, Britten N, Pill R, Morgan M, Donovan J: Evaluating meta-ethnography: a synthesis of qualitative research on lay experiences of diabetes and diabetes care. Soc Sci Med. 2003, 56 (4): 671-84. 10.1016/S0277-9536(02)00064-3.CrossRefPubMed Campbell R, Pound P, Pope C, Britten N, Pill R, Morgan M, Donovan J: Evaluating meta-ethnography: a synthesis of qualitative research on lay experiences of diabetes and diabetes care. Soc Sci Med. 2003, 56 (4): 671-84. 10.1016/S0277-9536(02)00064-3.CrossRefPubMed
34.
go back to reference Tattersall RL: The expert patient: a new approach to chronic disease management for the twenty-first century. Clin Med. 2002, 2 (3): 227-9.CrossRef Tattersall RL: The expert patient: a new approach to chronic disease management for the twenty-first century. Clin Med. 2002, 2 (3): 227-9.CrossRef
35.
go back to reference Parry O, Peel E, Douglas M, Lawton J: Issues of cause and control in patient accounts of Type 2 diabetes. Health Educ Res. 2006, 21 (1): 97-107. 10.1093/her/cyh044.CrossRefPubMed Parry O, Peel E, Douglas M, Lawton J: Issues of cause and control in patient accounts of Type 2 diabetes. Health Educ Res. 2006, 21 (1): 97-107. 10.1093/her/cyh044.CrossRefPubMed
36.
go back to reference Schlenk EA, Hart LK: Relationship between health locus control, health value, and social support and compliance of persons with diabetes mellitus. Diabetes Care. 1984, 7: 566-74. 10.2337/diacare.7.6.566.CrossRefPubMed Schlenk EA, Hart LK: Relationship between health locus control, health value, and social support and compliance of persons with diabetes mellitus. Diabetes Care. 1984, 7: 566-74. 10.2337/diacare.7.6.566.CrossRefPubMed
37.
go back to reference Given CW, Given BA, Gallin RS, Condon JW: Development of Scales to Measure Beliefs of Diabetic Patients. Research in Nursing and Health. 1983, 6: 127-41. 10.1002/nur.4770060306.CrossRefPubMed Given CW, Given BA, Gallin RS, Condon JW: Development of Scales to Measure Beliefs of Diabetic Patients. Research in Nursing and Health. 1983, 6: 127-41. 10.1002/nur.4770060306.CrossRefPubMed
38.
go back to reference Jacobson AM, de Groot M, Samson JA: The evaluation of two measures of quality of life in patients with type I and type II diabetes. Diabetes Care. 1994, 17 (4): 267-74. 10.2337/diacare.17.4.267.CrossRefPubMed Jacobson AM, de Groot M, Samson JA: The evaluation of two measures of quality of life in patients with type I and type II diabetes. Diabetes Care. 1994, 17 (4): 267-74. 10.2337/diacare.17.4.267.CrossRefPubMed
39.
go back to reference Gillies V, Willig C, editor: An analysis of the discursive positions of women smokers: implications for practical interventions. Applied Discourse Analysis: Social and Psychological Interventions. 1999, Buckingham: Open University Press, 66-86. Gillies V, Willig C, editor: An analysis of the discursive positions of women smokers: implications for practical interventions. Applied Discourse Analysis: Social and Psychological Interventions. 1999, Buckingham: Open University Press, 66-86.
Metadata
Title
Self-care coping strategies in people with diabetes: a qualitative exploratory study
Authors
Margaret M Collins
Colin P Bradley
Tony O'Sullivan
Ivan J Perry
Publication date
01-12-2009
Publisher
BioMed Central
Published in
BMC Endocrine Disorders / Issue 1/2009
Electronic ISSN: 1472-6823
DOI
https://doi.org/10.1186/1472-6823-9-6

Other articles of this Issue 1/2009

BMC Endocrine Disorders 1/2009 Go to the issue