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Journal of Cancer Survivorship
Published in: Journal of Cancer Survivorship 4/2011

01-12-2011

Survivorship care planning after the Institute of Medicine recommendations: how are we faring?

Authors: Carrie Tompkins Stricker, Linda A. Jacobs, Betsy Risendal, Alison Jones, Sarahlena Panzer, Patricia A. Ganz, Karen L. Syrjala, Mary S. McCabe, K. Scott Baker, Kenneth Miller, Jacqueline Casillas, Donald L. Rosenstein, Marci Campbell, Steven C. Palmer

Published in: Journal of Cancer Survivorship | Issue 4/2011

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Abstract

Introduction

This study evaluates the concordance of treatment summaries (TSs) and survivorship care plans (SCPs) delivered to breast cancer survivors within the LIVESTRONG™ Network of Survivorship Centers of Excellence with Institute of Medicine (IOM) recommendations and describes additional structure/process variables.

Method

Seven NCI-designated comprehensive cancer centers and six community-based centers participated. TS/SCPs for 65 patients were rated against IOM recommendations using a study-derived checklist, and surveys were administered to better understand the structure and process of delivering TSs/SCPs.

Results

On average, fewer than half of IOM content recommendations were met for TSs (M = 46%) and less than two thirds for SCPs (M = 59%). No sites achieved ≥75% overall concordance with IOM recommendations for TSs and only two of 13 met this criterion for SCPs. Content domain scores across sites varied widely, as did the number of sites addressing domain content with ≥75% concordance. Nonetheless, resources required for document preparation and delivery were substantial.

Discussion

Gaps in concordance with IOM recommendations exist even in dedicated survivorship centers. A substantial time burden was also noted. Further research is needed to determine which informational elements are essential, to develop and test strategies for improving efficiency and reach, and to determine if outcomes of survivorship care planning warrant the resources required in their preparation and delivery.

Implications for survivors

TSs and SCPs have been recommended for all cancer survivors. Essential elements must be determined, approaches made more efficient, outcome improvements demonstrated, and cost-benefit analyses determined before survivors should expect widespread implementation of this recommendation for survivorship care.
Appendix
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Metadata
Title
Survivorship care planning after the Institute of Medicine recommendations: how are we faring?
Authors
Carrie Tompkins Stricker
Linda A. Jacobs
Betsy Risendal
Alison Jones
Sarahlena Panzer
Patricia A. Ganz
Karen L. Syrjala
Mary S. McCabe
K. Scott Baker
Kenneth Miller
Jacqueline Casillas
Donald L. Rosenstein
Marci Campbell
Steven C. Palmer
Publication date
01-12-2011
Publisher
Springer US
Published in
Journal of Cancer Survivorship / Issue 4/2011
Print ISSN: 1932-2259
Electronic ISSN: 1932-2267
DOI
https://doi.org/10.1007/s11764-011-0196-4

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