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Journal of Cancer Survivorship
Published in: Journal of Cancer Survivorship 4/2011

01-12-2011

Survivors of breast cancer: patient perspectives on survivorship care planning

Authors: Sally L. Smith, Savitri Singh-Carlson, Lindsay Downie, Nancy Payeur, Elaine S. Wai

Published in: Journal of Cancer Survivorship | Issue 4/2011

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Abstract

Introduction

Survivors of breast cancer (SBC) constitute the largest population of cancer survivors. Needs for survivorship care may vary according to life stage and urban/rural place of residence. This study was conducted to better understand patient preferences for survivorship care plans (SCP).

Methods

Patients were identified through cancer agency electronic records and invited to participate by mail. Sessions were stratified by age and rural/urban place of residence. Participants were asked about preferences for content and format of SCP. Focus groups were conducted using a semi-structured format with interviews being taped, transcribed, cross-checked for accuracy, and analyzed independently, using constant comparative methods.

Results

Preferred SCP key elements included treatment summary, information on nutrition/exercise, expected side effects, signs and symptoms of recurrence, recommended follow-up schedule, information sent to primary care physician, and updates on changes. SBC emphasized preference for individualized content depending upon physical and psychosocial effects. No difference was observed between preferred SCP content among patients residing in urban/rural areas. Rural participants preferred electronic formats for ongoing information bulletins and communication with health care providers.

Discussion/conclusions

SBC from all age groups identify common preferences for key SCP elements with individualized content reflecting the wide variation observed among physical and psychosocial effects of breast cancer. Patterns of key psychological, social, and physical effects observed at different life stages may help SCP customization.

Implications for cancer survivors

Results provide direction for designing key content and format of SCP and also provide information about elements of care planning that should be customized to individual patient needs.
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Metadata
Title
Survivors of breast cancer: patient perspectives on survivorship care planning
Authors
Sally L. Smith
Savitri Singh-Carlson
Lindsay Downie
Nancy Payeur
Elaine S. Wai
Publication date
01-12-2011
Publisher
Springer US
Published in
Journal of Cancer Survivorship / Issue 4/2011
Print ISSN: 1932-2259
Electronic ISSN: 1932-2267
DOI
https://doi.org/10.1007/s11764-011-0185-7

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