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01-06-2019 | Alzheimer's Disease | Symposium: Dementia

Learning From the Cultural Challenge of Dementia

Authors: Michael Chapman, Jennifer Philip, Paul Komesaroff

Published in: Journal of Bioethical Inquiry | Issue 2/2019

Abstract

Learning from the profound challenge of dementia is an urgent priority. Success will require a critical deconstruction of current cultural and linguistic representations of this condition, and a kindling of novel and courageous approaches to re-conceptualise dementia's meaning and experience. This symposium collects provocative ideas arising from various discourses, theoretical perspectives, and methodolgical approaches to explore new ways to understand dementia.

Angus, J., and S. Bowen. 2011. Quiet please, there’s a lady on stage:. Centering the person with dementia in life story narrative. Journal of Aging Studies 25(2): 110–117.CrossRef

Bartlett, R., and D. O’Connor. 2007. From personhood to citizenship: Broadening the lens for dementia practice and research. Journal of Aging Studies 21(2):107–118. https://doi.org/10.1016/j.jaging.2006.09.002.CrossRef

Behuniak, S.M. 2011. The living dead? The construction of people with Alzheimer’s disease as zombies. Ageing and Society 31(1): 70–92.CrossRef

____. 2010. Toward a political model of dementia : Power as compassionate care. Journal of Aging Studies 24(4): 231–240.CrossRef

Brennan, F. 2019. A response to “Fragile objects: A visual essay.” Journal of Bioethical Inquiry 16(2): https://doi.org/10.1007/s11673-019-09911-7.

Burke, L. 2007. The poetry of dementia: Art, ethics and Alzheimer’s disease in Tony Harrison’s Black Daisies for the Bride. Journal of Literary Disability 1(1): 61–73.CrossRef

Burke, L. 2019. Dementia and the paradigm of the camp: Thinking beyond Giorgio Agamben’s concept of “bare life”. Bioethical Inquiry 16(2). https://doi.org/10.1007/s11673-019-09913-5.

Chapman, M., J. Philip, S. Gardner, and P. Komesaroff. 2019a. Fragile objects: Avisual essay. Journal of Bioethical Inquiry 16(2). https://doi.org/10.1007/s11673-019-09911-7.

Chapman, M., J. Philip, and P. Komesaroff. 2019b. Towards an ecology of dementia: A manifesto. Journal of Bioethical Inquiry 16(2): https://doi.org/10.1007/s11673-019-09910-8.

Cummings, J.L., G. Tong, and C. Ballard. 2019. Treatment combinations for Alzheimer’s disease: Current and future pharmacotherapy options. Journal of Alzheimer’s Disease 67(3): 1–16.

Edvardsson, D., B. Winblad, and P.O. Sandman. 2008. Person-centred care of people with severe Alzheimer’s disease: Current status and ways forward. The Lancet Neurology 7(4): 362–367.CrossRef

Franzen, J. 2010. The corrections. London: HarperCollins Publishers.

Genova, L. 2009. Still Alice. London: Pocket Books.

George, D.R., and P.J. Whitehouse. 2014. The war (on terror) on Alzheimer’s. Dementia 13(1): 120–130.CrossRef

George, D.R., S.H. Qualls, C.J. Camp, and P.J. Whitehouse. 2013. Renovating Alzheimer’s: “Constructive” reflections on the new clinical and research diagnostic guidelines.” Gerontologist 53(3): 378–387.CrossRef

George, D.R., P.J. Whitehouse, and J. Ballenger. 2011. The evolving classification of dementia: Placing the DSM-V in a meaningful historical and cultural context and pondering the future of “Alzheimer’s”. Culture, Medicine, and Psychiatry 35 (3):417–435.CrossRef

Grigorovich, A., P. Kontos, and A.P. Kontos. 2019. The “violent resident”: A critical exploration of the ethics of resident-to-resident aggression. Journal of Bioethical Inquiry 16(2): https://doi.org/10.1007/s11673-019-09898-1.

Kitwood, T.M. 1997. Dementia reconsidered: The person comes first. Open University Press.

Kitwood, T.M., and K. Bredin. 1992. Towards a theory of dementia care: Personhood and well-being. Ageing and Society 12(3): 269–287.CrossRef

Kontos, P.C. 2005. Embodied selfhood in Alzheimer’s disease: Rethinking person-centred care. Dementia 4(4): 553–570.CrossRef

Kontos, P., and W. Martin. 2013. Embodiment and dementia: Exploring critical narratives of selfhood, surveillance, and dementia care. Dementia 12(3): 288–302.CrossRef

Lane, H.P., S. McLachlan, and J. Philip. 2013. The war against dementia: Are we battle weary yet? Age and Ageing 42(3): 281–283.CrossRef

Little, M., and P. Vincent. 2019. The liminal world of dementia. Bioethical Inquiry, 16(2). https://doi.org/10.1007/s11673-019-09917-1.

Nolan, M.R., S. Davies, J. Brown, J. Keady, and J. Nolan. 2004. Beyond “person-centred” care: A new vision for gerontological nursing. Journal of Clinical Nursing 13(s1): 45–53.CrossRef

Panza, F., M. Lozupone, G. Logroscino, and B.P. Imbimbo. 2019. A critical appraisal of amyloid-β-targeting therapies for Alzheimer disease. Nature Reviews Neurology 15(2): 73–88.CrossRef

Sabat, S.R. 2001. The experience of Alzheimer’s disease : Life through a tangled veil. Blackwell Publishers.

____. 2019. Dementia beyond pathology: What people diagnosed can teach us about our shared humanity. Journal of Bioethical Inquiry 16(2): https://doi.org/10.1007/s11673-019-09899-0.

Zeilig, H. 2014a. Dementia as a cultural metaphor. The Gerontologist 54(2): 258–267.CrossRef

____. 2014b. Gaps and spaces: Representations of dementia in contemporary British poetry. Dementia 13(2): 160–175.CrossRef

Title: Learning From the Cultural Challenge of Dementia
Authors: Michael Chapman
Jennifer Philip
Paul Komesaroff
Publication date: 01-06-2019
Publisher: Springer Singapore
Keywords: Alzheimer's Disease
Dementia
Alzheimer's Disease
Dementia
Published in: Journal of Bioethical Inquiry / Issue 2/2019
Print ISSN: 1176-7529
Electronic ISSN: 1872-4353
DOI: https://doi.org/10.1007/s11673-019-09916-2

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Learning From the Cultural Challenge of Dementia

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Other articles of this Issue 2/2019

Fragile objects: A visual essay

A Return Journey: Hope and Strength in the Aftermath of Alzheimer’s

Exploring Ethical Issues Related to Patient Engagement in Healthcare: Patient, Clinician and Researcher’s Perspectives

The liminal world of dementia

Gene Editing, the Mystic Threat to Human Dignity

Realigning the Neural Paradigm for Death