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Quality of Life Research
Published in: Quality of Life Research 12/2017

Open Access 01-12-2017

A study of dyadic interdependence of control, social participation and occupation of adults who use long-term care services and their carers

Authors: Stacey Rand, Julien Forder, Juliette Malley

Published in: Quality of Life Research | Issue 12/2017

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Abstract

Purpose

Unpaid care is an important source of support of people with long-term conditions. Interdependence of carers’ and care recipients’ quality of life would be expected due to the relational nature of caregiving. This study aims to explore interdependence of quality of life in carer/care-recipient dyads, especially in relation to mutual interdependence due to social feedback in the caregiving relationship and also the partner effects of one partner’s experience of long-term care support on the other’s outcomes.

Methods

Using data collected in an interview survey of 264 adults with care support needs and their unpaid carers in England, we employed regression analysis to explore whether there is mutual interdependence of care-related quality of life within carer/care-recipient dyads for three quality of life attributes: Control over daily life, Social participation and Occupation. The influence of factors, including satisfaction with long-term care, were also considered on individuals’ and dyad partners’ care-related quality of life.

Results

We found mutual interdependence of quality of life at the dyad-level for Control over daily life, but not Occupation or Social participation. A partner effect of care recipients’ satisfaction with long-term care on carers’ Control over daily life was also observed. Higher care recipient satisfaction with care services was associated with higher Control over daily life. By contrast, for Social participation and Occupation, there were only significant effects of care recipients’ satisfaction with long-term care and their own quality of life.

Conclusions

These findings highlight the importance of considering the wider impact beyond the individual of long-term care on quality of life in the evaluation of long-term care policy and practice.
Footnotes
1
The dataset was structured such that each case represents an individual carer or care-recipient. Individuals were nested within dyads identified by a unique dyad code. Dyad members were also distinguishable using a dummy variable coded as care-recipient (0) or carer (1). The models included actor (within) and partner (between) fixed effects for both carers and care-recipients. The actor effects were captured using variables coded as zero (0) for the partner: for example, the actor variable for carers’ age was coded as zero (0) for carers aged 18–64 years, one (1) for carers aged 65 years or over, and zero (0) for all care-recipients. The partner effects were captured using variables coded as zero (0) for the actor: for example, the partner variable for carers age was coded as zero (0) for care-recipients whose carer was aged 18–64 years, one (1) for care-recipients who carer was aged 65 years or over, and zero (0) for all carers.
 
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Metadata
Title
A study of dyadic interdependence of control, social participation and occupation of adults who use long-term care services and their carers
Authors
Stacey Rand
Julien Forder
Juliette Malley
Publication date
01-12-2017
Publisher
Springer International Publishing
Published in
Quality of Life Research / Issue 12/2017
Print ISSN: 0962-9343
Electronic ISSN: 1573-2649
DOI
https://doi.org/10.1007/s11136-017-1669-3

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