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01-10-2010 | Original Research

Women’s Experience of Telehealth Cancer Genetic Counseling

Authors: Elvira M. Zilliacus, Bettina Meiser, Elizabeth A. Lobb, Judy Kirk, Linda Warwick, Katherine Tucker

Published in: Journal of Genetic Counseling | Issue 5/2010

Abstract

Telegenetics offers an alternative model of delivering genetic counseling to rural and outreach areas; however there is a dearth of qualitative research into the patient’s experience. Twelve women who had received telemedicine genetic counseling for hereditary breast and/or ovarian cancer (HBOC) within the previous 12 months participated in a semi-structured telephone interview. The interview explored women’s experience with telegenetics, satisfaction, perceived advantages and disadvantages and quality of the interaction with their genetic professionals. Overall women were highly satisfied with telegenetics. Telegenetics offered them convenience and reduced travel and associated costs. The majority of women described feeling a high degree of social presence, or rapport, with the off-site genetic clinician. One woman with a recent cancer diagnosis, reported that telemedicine was unable to meet her needs for psychosocial support. This finding highlights the need to be mindful of the psychosocial support needs of women with a recent diagnosis being seen via telegenetics. Patients attending for HBOC genetic counseling are generally highly satisfied with the technology and the interaction. Care should be taken, however, with patients with more complex psychosocial needs.

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Title: Women’s Experience of Telehealth Cancer Genetic Counseling
Authors: Elvira M. Zilliacus
Bettina Meiser
Elizabeth A. Lobb
Judy Kirk
Linda Warwick
Katherine Tucker
Publication date: 01-10-2010
Publisher: Springer US
Published in: Journal of Genetic Counseling / Issue 5/2010
Print ISSN: 1059-7700
Electronic ISSN: 1573-3599
DOI: https://doi.org/10.1007/s10897-010-9301-5

At a glance: The STEP trials

Springer Medicine

Women’s Experience of Telehealth Cancer Genetic Counseling

Abstract

At a glance: The STEP trials

Springer Medicine

Abstract

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