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Journal of Genetic Counseling
Published in: Journal of Genetic Counseling 5/2010

01-10-2010 | Original Research

“The Cancer Bond”: Exploring the Formation of Cancer Risk Perception in Families with Lynch Syndrome

Authors: Aunchalee E. L. Palmquist, Laura M. Koehly, Susan K. Peterson, Margarette Shegog, Sally W. Vernon, Ellen R. Gritz

Published in: Journal of Genetic Counseling | Issue 5/2010

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Abstract

This study explores the social context of hereditary cancer risk perception in three families, an African-American family, a Mexican-American family, and a Caucasian family, each with Lynch Syndrome documented by a mismatch repair gene mutation. Communication network assessments measured family communication about cancer experiences and genetic testing information among a total of 26 participants. Participant narratives were evaluated to gain insight into how family cancer experiences and genetic testing information have shaped perceptions of cancer risk. Analysis of communication networks indicated that some families discussed cancer experiences to a greater extent than genetic testing information, and vice-versa. Interviews elucidated that sharing both types of health information led participants to conceptualize linkages among a strong family history of cancer, genetic testing information, and cancer prevention strategies. Understanding how different types of family communication influence the formation of perceived hereditary disease risk may enhance efforts to tailor genetic counseling services for families.
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Metadata
Title
“The Cancer Bond”: Exploring the Formation of Cancer Risk Perception in Families with Lynch Syndrome
Authors
Aunchalee E. L. Palmquist
Laura M. Koehly
Susan K. Peterson
Margarette Shegog
Sally W. Vernon
Ellen R. Gritz
Publication date
01-10-2010
Publisher
Springer US
Published in
Journal of Genetic Counseling / Issue 5/2010
Print ISSN: 1059-7700
Electronic ISSN: 1573-3599
DOI
https://doi.org/10.1007/s10897-010-9299-8

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