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01-04-2007 | Original Research

Risk Perception, Worry and Satisfaction Related to Genetic Counseling for Hereditary Cancer

Authors: Cathrine Bjorvatn, Geir Egil Eide, Berit Rokne Hanestad, Nina Øyen, Odd E. Havik, Anniken Carlsson, Gunilla Berglund

Published in: Journal of Genetic Counseling | Issue 2/2007

Abstract

In this multi center study, genetic counseling for hereditary cancer was evaluated by assessing patients’ worry, perceived risk of developing cancer and satisfaction with genetic counseling. An overall aim was to identify characteristics of vulnerable patients in order to customize genetic counseling. In addition, agreement between patients’ and counselors’ scores was measured. A total of 275 Norwegian patients were consecutively recruited, and 213 completed questionnaires before and after genetic counseling. Patients’ perceived risk decreased after the genetic counseling session. There was incongruence between risk perception expressed as a percentage and in words. Patients were significantly less worried after counseling. Higher levels of worry were predicted by low instrumental satisfaction with counseling, high degree of perceived risk of developing cancer and younger age. In conclusion, counselors met the patients’ psychological needs to a satisfactory degree during counseling. However, patients did not fully understand their risk of developing cancer.

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Title: Risk Perception, Worry and Satisfaction Related to Genetic Counseling for Hereditary Cancer
Authors: Cathrine Bjorvatn
Geir Egil Eide
Berit Rokne Hanestad
Nina Øyen
Odd E. Havik
Anniken Carlsson
Gunilla Berglund
Publication date: 01-04-2007
Publisher: Kluwer Academic Publishers-Plenum Publishers
Published in: Journal of Genetic Counseling / Issue 2/2007
Print ISSN: 1059-7700
Electronic ISSN: 1573-3599
DOI: https://doi.org/10.1007/s10897-006-9061-4

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