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Journal of Clinical Psychology in Medical Settings

Published in:

01-12-2010

Psychiatric Symptoms and Quality of Life in Patients Affected by Epidermolysis Bullosa

Authors: Francesco Margari, Paola A. Lecce, Wanda Santamato, Patrizia Ventura, Nicola Sportelli, Giuseppina Annicchiarico, Ernesto Bonifazi

Published in: Journal of Clinical Psychology in Medical Settings | Issue 4/2010

Abstract

The aim of our study was to provide a psychosocial and psychiatric evaluation of patients with epidermolysis bullosa (EB; a rare genetic disorder characterized by skin fragility), to assess psychological status, ascertain the presence of any psychiatric disorders and understand the impact of EB on quality of life. Twenty-five patients were assessed using a case record form and several standardized instruments. In 82% of patients, EB had a negative impact on quality of life and 80% of patients experienced psychiatric symptoms. Our findings revealed a high prevalence of psychosocial problems and psychiatric symptoms in patients with EB and suggested that a combined bio-psychosocial approach is the most appropriate therapeutic intervention.

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Title: Psychiatric Symptoms and Quality of Life in Patients Affected by Epidermolysis Bullosa
Authors: Francesco Margari
Paola A. Lecce
Wanda Santamato
Patrizia Ventura
Nicola Sportelli
Giuseppina Annicchiarico
Ernesto Bonifazi
Publication date: 01-12-2010
Publisher: Springer US
Published in: Journal of Clinical Psychology in Medical Settings / Issue 4/2010
Print ISSN: 1068-9583
Electronic ISSN: 1573-3572
DOI: https://doi.org/10.1007/s10880-010-9205-4

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Psychiatric Symptoms and Quality of Life in Patients Affected by Epidermolysis Bullosa

Abstract

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