Skip to main content
Top
Published in: AIDS and Behavior 12/2014

Open Access 01-12-2014 | Original Paper

Cognitive and Field Testing of a New Set of Medication Adherence Self-Report Items for HIV Care

Authors: Ira B. Wilson, Floyd J. Fowler Jr., Carol A. Cosenza, Joanne Michaud, Judy Bentkover, Aadia Rana, Laura Kogelman, William H. Rogers

Published in: AIDS and Behavior | Issue 12/2014

Login to get access

Abstract

We conducted four rounds of cognitive testing of self-report items that included 66 sociodemographically diverse participants, then field tested the three best items from the cognitive testing in a clinic waiting room (N = 351) and in an online social networking site for men who have sex with men (N = 6,485). As part of the online survey we conducted a randomized assessment of two versions of the adherence questionnaire—one which asked about adherence to a specific antiretroviral medication, and a second which asked about adherence to their “HIV medicines” as a group. Participants were better able to respond using adjectival and adverbial scales than visual analogue or percent items. The internal consistency reliability of the three item adherence scale was 0.89. Mean scores for the two different versions of the online survey were similar (91.0 vs. 90.2, p < 0.05), suggesting that it is not necessary, in general, to ask about individual medications in an antiretroviral therapy regimen when attempting to describe overall adherence.
Appendix
Available only for authorised users
Literature
1.
go back to reference Haubrich RH, Little SJ, Currier JS, Forthal DN, Kemper CA, Beall GN, et al. The value of patient-reported adherence to antiretroviral therapy in predicting virologic and immunologic response. AIDS. 1999;13:1099–107.PubMedCrossRef Haubrich RH, Little SJ, Currier JS, Forthal DN, Kemper CA, Beall GN, et al. The value of patient-reported adherence to antiretroviral therapy in predicting virologic and immunologic response. AIDS. 1999;13:1099–107.PubMedCrossRef
2.
go back to reference Paterson DL, Swindells S, Mohr J, Brester M, Vergis EN, Squier C, et al. Adherence to protease inhibitor therapy and outcomes in patients with HIV infection. Ann Intern Med. 2000;133(1):21–30.PubMedCrossRef Paterson DL, Swindells S, Mohr J, Brester M, Vergis EN, Squier C, et al. Adherence to protease inhibitor therapy and outcomes in patients with HIV infection. Ann Intern Med. 2000;133(1):21–30.PubMedCrossRef
3.
go back to reference Bangsberg DR, Hecht FM, Clague H, Charlebois ED, Ciccarone D, Chesney M, et al. Provider assessment of adherence to HIV antiretroviral therapy. J Acquir Immune Defic Syndr. 2001;26(5):435–42.PubMedCrossRef Bangsberg DR, Hecht FM, Clague H, Charlebois ED, Ciccarone D, Chesney M, et al. Provider assessment of adherence to HIV antiretroviral therapy. J Acquir Immune Defic Syndr. 2001;26(5):435–42.PubMedCrossRef
4.
go back to reference Gross R, Bilker WB, Friedman HM, Coyne JC, Strom BL. Provider inaccuracy in assessing adherence and outcomes with newly initiated antiretroviral therapy. AIDS. 2002;16(13):1835–7.PubMedCrossRef Gross R, Bilker WB, Friedman HM, Coyne JC, Strom BL. Provider inaccuracy in assessing adherence and outcomes with newly initiated antiretroviral therapy. AIDS. 2002;16(13):1835–7.PubMedCrossRef
5.
go back to reference Wendel CS, Mohler MJ, Kroesen K, Ampel NM, Gifford AL, Coons SJ. Barriers to use of electronic adherence monitoring in an HIV clinic. Ann Pharmacother. 2001;35(9):1010–5.PubMedCrossRef Wendel CS, Mohler MJ, Kroesen K, Ampel NM, Gifford AL, Coons SJ. Barriers to use of electronic adherence monitoring in an HIV clinic. Ann Pharmacother. 2001;35(9):1010–5.PubMedCrossRef
6.
go back to reference Bangsberg DR, Hecht FM, Charlebois ED, Zolopa AR, Holodniy M, Sheiner L, et al. Adherence to protease inhibitors, HIV-1 viral load, and development of drug resistance in an indigent population. AIDS. 2000;14(4):357–66.PubMedCrossRef Bangsberg DR, Hecht FM, Charlebois ED, Zolopa AR, Holodniy M, Sheiner L, et al. Adherence to protease inhibitors, HIV-1 viral load, and development of drug resistance in an indigent population. AIDS. 2000;14(4):357–66.PubMedCrossRef
7.
go back to reference Kalichman SC, Amaral CM, Cherry C, Flanagan J, Pope H, Eaton L, et al. Monitoring medication adherence by unannounced pill counts conducted by telephone: reliability and criterion-related validity. HIV Clin Trials. 2008;9(5):298–308.PubMedCentralPubMedCrossRef Kalichman SC, Amaral CM, Cherry C, Flanagan J, Pope H, Eaton L, et al. Monitoring medication adherence by unannounced pill counts conducted by telephone: reliability and criterion-related validity. HIV Clin Trials. 2008;9(5):298–308.PubMedCentralPubMedCrossRef
8.
go back to reference Bova CA, Fennie KP, Knafl GJ, Dieckhaus KD, Watrous E, Williams AB. Use of electronic monitoring devices to measure antiretroviral adherence: practical considerations. AIDS Behav. 2005;9(1):103–10.PubMedCrossRef Bova CA, Fennie KP, Knafl GJ, Dieckhaus KD, Watrous E, Williams AB. Use of electronic monitoring devices to measure antiretroviral adherence: practical considerations. AIDS Behav. 2005;9(1):103–10.PubMedCrossRef
9.
go back to reference Chesney MA. The elusive gold standard: future perspectives for HIV adherence assessment and intervention. JAIDS. 2006;43:S149–55.PubMed Chesney MA. The elusive gold standard: future perspectives for HIV adherence assessment and intervention. JAIDS. 2006;43:S149–55.PubMed
10.
go back to reference Krousel-Wood M, Islam T, Webber LS, Re RN, Morisky DE, Muntner P. New medication adherence scale versus pharmacy fill rates in seniors with hypertension. Am J Manag Care. 2009;15(1):59–66.PubMedCentralPubMed Krousel-Wood M, Islam T, Webber LS, Re RN, Morisky DE, Muntner P. New medication adherence scale versus pharmacy fill rates in seniors with hypertension. Am J Manag Care. 2009;15(1):59–66.PubMedCentralPubMed
11.
go back to reference Morisky DE, Ang A, Krousel-Wood M, Ward HJ. Predictive validity of a medication adherence measure in an outpatient setting. J Clin Hypertens (Greenwich). 2008;10(5):348–54.CrossRef Morisky DE, Ang A, Krousel-Wood M, Ward HJ. Predictive validity of a medication adherence measure in an outpatient setting. J Clin Hypertens (Greenwich). 2008;10(5):348–54.CrossRef
12.
go back to reference Morisky DE, Green LW, Levine DM. Concurrent and predictive validity of a self-reported measure of medication adherence. Med Care. 1986;24(1):67–74.PubMedCrossRef Morisky DE, Green LW, Levine DM. Concurrent and predictive validity of a self-reported measure of medication adherence. Med Care. 1986;24(1):67–74.PubMedCrossRef
13.
go back to reference Morisky DE, Levine DM, Green LW, Shapiro S, Russell RP, Smith CR. Five-year blood pressure control and mortality following health education for hypertensive patients. Am J Public Health. 1983;73(2):153–62.PubMedCentralPubMedCrossRef Morisky DE, Levine DM, Green LW, Shapiro S, Russell RP, Smith CR. Five-year blood pressure control and mortality following health education for hypertensive patients. Am J Public Health. 1983;73(2):153–62.PubMedCentralPubMedCrossRef
14.
go back to reference Simoni JM, Kurth AE, Pearson CR, Pantalone DW, Merrill JO, Frick PA. Self-report measures of antiretroviral therapy adherence: a review with recommendations for HIV research and clinical management. AIDS Behav. 2006;10(3):227–45.PubMedCentralPubMedCrossRef Simoni JM, Kurth AE, Pearson CR, Pantalone DW, Merrill JO, Frick PA. Self-report measures of antiretroviral therapy adherence: a review with recommendations for HIV research and clinical management. AIDS Behav. 2006;10(3):227–45.PubMedCentralPubMedCrossRef
15.
go back to reference Wilson IB, Carter AE, Berg KM. Improving the self-report of HIV antiretroviral medication adherence: is the glass half full or half empty? Curr HIV/AIDS Rep. 2009;6(4):177–86.PubMedCentralPubMedCrossRef Wilson IB, Carter AE, Berg KM. Improving the self-report of HIV antiretroviral medication adherence: is the glass half full or half empty? Curr HIV/AIDS Rep. 2009;6(4):177–86.PubMedCentralPubMedCrossRef
16.
go back to reference Lu M, Safren SA, Skolnik PR, Rogers WH, Coady W, Hardy H, et al. Optimal recall period and response task for self-reported HIV medication adherence. AIDS Behav. 2008;12(1):86–94.PubMedCrossRef Lu M, Safren SA, Skolnik PR, Rogers WH, Coady W, Hardy H, et al. Optimal recall period and response task for self-reported HIV medication adherence. AIDS Behav. 2008;12(1):86–94.PubMedCrossRef
18.
go back to reference Feldman BJ, Fredericksen RJ, Crane PK, Safren SA, Mugavero MJ, Willig JH, et al. Evaluation of the single-item self-rating adherence scale for use in routine clinical care of people living with HIV. AIDS Behav. 2012;17(1):307–18.CrossRef Feldman BJ, Fredericksen RJ, Crane PK, Safren SA, Mugavero MJ, Willig JH, et al. Evaluation of the single-item self-rating adherence scale for use in routine clinical care of people living with HIV. AIDS Behav. 2012;17(1):307–18.CrossRef
19.
go back to reference Wilson IB, Tchetgen E, Spiegelman D. Patterns of adherence with antiretroviral medications: an examination of between-medication differences. J Acquir Immune Defic Syndr. 2001;28(3):259–63.PubMedCrossRef Wilson IB, Tchetgen E, Spiegelman D. Patterns of adherence with antiretroviral medications: an examination of between-medication differences. J Acquir Immune Defic Syndr. 2001;28(3):259–63.PubMedCrossRef
20.
go back to reference McNabb JJ, Nicolau DP, Stoner JA, Ross J. Patterns of adherence to antiretroviral medications: the value of electronic monitoring. AIDS. 2003;17(12):1763–7.PubMedCrossRef McNabb JJ, Nicolau DP, Stoner JA, Ross J. Patterns of adherence to antiretroviral medications: the value of electronic monitoring. AIDS. 2003;17(12):1763–7.PubMedCrossRef
21.
go back to reference Gardner EM, Burman WJ, Maravi ME, Davidson AJ. Selective drug taking during combination antiretroviral therapy in an unselected clinic population. J Acquir Immune Defic Syndr Human Retrovirol. 2005;40(3):294–300.CrossRef Gardner EM, Burman WJ, Maravi ME, Davidson AJ. Selective drug taking during combination antiretroviral therapy in an unselected clinic population. J Acquir Immune Defic Syndr Human Retrovirol. 2005;40(3):294–300.CrossRef
22.
go back to reference Gardner EM, Sharma S, Peng G, Hullsiek KH, Burman WJ, MacArthur RD, et al. Differential adherence to combination antiretroviral therapy is associated with virological failure with resistance. AIDS. 2008;22(1):75–82.PubMedCentralPubMedCrossRef Gardner EM, Sharma S, Peng G, Hullsiek KH, Burman WJ, MacArthur RD, et al. Differential adherence to combination antiretroviral therapy is associated with virological failure with resistance. AIDS. 2008;22(1):75–82.PubMedCentralPubMedCrossRef
23.
go back to reference Deschamps AE. de GS, Vandamme AM, Bobbaers H, Peetermans WE, van WE. Diagnostic value of different adherence measures using electronic monitoring and virologic failure as reference standards. AIDS Patient Care STDS. 2008;22(9):735–43.PubMedCrossRef Deschamps AE. de GS, Vandamme AM, Bobbaers H, Peetermans WE, van WE. Diagnostic value of different adherence measures using electronic monitoring and virologic failure as reference standards. AIDS Patient Care STDS. 2008;22(9):735–43.PubMedCrossRef
24.
go back to reference Tourangeau R. Cognitive science and survey methods. In: Jabine T, editor. Cognitive aspects of survey methodology: Building a bridge between disciplines. Washington, DC: National Academy Press; 1984. p. 73–100. Tourangeau R. Cognitive science and survey methods. In: Jabine T, editor. Cognitive aspects of survey methodology: Building a bridge between disciplines. Washington, DC: National Academy Press; 1984. p. 73–100.
25.
go back to reference Tourangeau R, Rips LJ, Rasinski K. The psychology of survey response. New York: Cambridge University Press; 2000.CrossRef Tourangeau R, Rips LJ, Rasinski K. The psychology of survey response. New York: Cambridge University Press; 2000.CrossRef
26.
go back to reference Gaito J. Measurement scales and statistics: resurgence of an old misconception. Psychol Bull. 1982;87:564–7. Gaito J. Measurement scales and statistics: resurgence of an old misconception. Psychol Bull. 1982;87:564–7.
27.
go back to reference Townsend JT, Hu GG, Evans RJ. Modeling feature perception in brief displays with evidence for positive interdependencies. Percept Psychophys. 1984;36(1):35–49. Townsend JT, Hu GG, Evans RJ. Modeling feature perception in brief displays with evidence for positive interdependencies. Percept Psychophys. 1984;36(1):35–49.
28.
go back to reference Ohl ME, Perencevich E, McInnes DK, Kim N, Rimland D, Akgun K, et al. Antiretroviral adherence among rural compared to urban veterans with HIV infection in the United States. AIDS Behav. 2012;17(1):174–80.CrossRef Ohl ME, Perencevich E, McInnes DK, Kim N, Rimland D, Akgun K, et al. Antiretroviral adherence among rural compared to urban veterans with HIV infection in the United States. AIDS Behav. 2012;17(1):174–80.CrossRef
29.
go back to reference Beer L, Heffelfinger J, Frazier E, Mattson C, Roter B, Barash E, et al. Use of and adherence to antiretroviral therapy in a Large U.S. Sample of HIV-infected adults in care, 2007–2008. Open AIDS J. 2012;6:213–23.PubMedCentralPubMedCrossRef Beer L, Heffelfinger J, Frazier E, Mattson C, Roter B, Barash E, et al. Use of and adherence to antiretroviral therapy in a Large U.S. Sample of HIV-infected adults in care, 2007–2008. Open AIDS J. 2012;6:213–23.PubMedCentralPubMedCrossRef
30.
go back to reference Bauermeister JA, Giguere R, Carballo-Dieguez A, Ventuneac A, Eisenberg A. Perceived risks and protective strategies employed by young men who have sex with men (YMSM) when seeking online sexual partners. J Health Commun. 2010;15(6):679–90.PubMedCentralPubMedCrossRef Bauermeister JA, Giguere R, Carballo-Dieguez A, Ventuneac A, Eisenberg A. Perceived risks and protective strategies employed by young men who have sex with men (YMSM) when seeking online sexual partners. J Health Commun. 2010;15(6):679–90.PubMedCentralPubMedCrossRef
31.
go back to reference Harkness JA, Van de Vijver FJR, Mohler PP. fur Umfragen Z. Cross-cultural survey methods. New York: Wiley; 2003. Harkness JA, Van de Vijver FJR, Mohler PP. fur Umfragen Z. Cross-cultural survey methods. New York: Wiley; 2003.
32.
go back to reference Marin G, Marin BVO. Research with hispanic populations. Newbury Park: Sage Publications, Inc.; 1991. Marin G, Marin BVO. Research with hispanic populations. Newbury Park: Sage Publications, Inc.; 1991.
Metadata
Title
Cognitive and Field Testing of a New Set of Medication Adherence Self-Report Items for HIV Care
Authors
Ira B. Wilson
Floyd J. Fowler Jr.
Carol A. Cosenza
Joanne Michaud
Judy Bentkover
Aadia Rana
Laura Kogelman
William H. Rogers
Publication date
01-12-2014
Publisher
Springer US
Published in
AIDS and Behavior / Issue 12/2014
Print ISSN: 1090-7165
Electronic ISSN: 1573-3254
DOI
https://doi.org/10.1007/s10461-013-0610-1

Other articles of this Issue 12/2014

AIDS and Behavior 12/2014 Go to the issue