Skip to main content
Top
Published in: AIDS and Behavior 2/2010

01-04-2010 | Original Paper

Scoping the Field: Identifying Key Research Priorities in HIV and Rehabilitation

Authors: Kelly O’Brien, Annette Wilkins, Elisse Zack, Patricia Solomon

Published in: AIDS and Behavior | Issue 2/2010

Login to get access

Abstract

The purpose of this project was to identify key research priorities related to HIV and rehabilitation. We conducted a scoping study which included a literature review of published and grey literature, followed by focus group and interview consultations with 28 participants including people living with HIV, researchers, educators, clinicians, and policy makers with expertise in HIV and rehabilitation. Qualitative content analysis was used to identify emergent themes related to research priorities in HIV and rehabilitation. The resulting Framework of HIV and Rehabilitation Research provided an outline for approaching research in the field. The framework included three overlapping research priorities: (a) living with HIV across the lifespan, (b) disability, and (c) rehabilitation that should be viewed through environmental and/or personal contextual lenses, using different methodological approaches. Six key research priorities from this framework were identified through additional consultation with new and returning participants including: (1) disability and episodic disability, (2) concurrent health conditions aging with HIV, (3) HIV and the brain, (4) labour force and income support, (5) access to and effectiveness of rehabilitation, and (6) development and evaluation of outcome measurement tools. These priorities inform a future plan for HIV and rehabilitation research that will increase our knowledge to enhance practice, programming and policy for people living with HIV.
Literature
go back to reference Atchison, B. J., Beard, B. J., & Lester, L. B. (1990). Occupational therapy personnel and AIDS: Attitudes, knowledge, and fears. The American Journal of Occupational Therapy., 44(3), 212–217.PubMed Atchison, B. J., Beard, B. J., & Lester, L. B. (1990). Occupational therapy personnel and AIDS: Attitudes, knowledge, and fears. The American Journal of Occupational Therapy., 44(3), 212–217.PubMed
go back to reference Balogun, J. A., Kaplan, M. T., & Miller, T. M. (1998). The effect of professional education on the knowledge and attitudes of physical therapist and occupational therapist students about acquired immunodeficiency syndrome. Physical Therapy, 78(10), 1073–1082.PubMed Balogun, J. A., Kaplan, M. T., & Miller, T. M. (1998). The effect of professional education on the knowledge and attitudes of physical therapist and occupational therapist students about acquired immunodeficiency syndrome. Physical Therapy, 78(10), 1073–1082.PubMed
go back to reference Birk, T. J., McGrady, A., MacArthur, R. D., & Khuder, S. (2000). The effects of massage therapy alone and in combination with other complementary therapies on immune system measures and quality of life in human immunodeficiency virus. Journal of Alternative and Complementary Medicine (New York), 6(5), 405–414. doi:10.1089/acm.2000.6.405.CrossRef Birk, T. J., McGrady, A., MacArthur, R. D., & Khuder, S. (2000). The effects of massage therapy alone and in combination with other complementary therapies on immune system measures and quality of life in human immunodeficiency virus. Journal of Alternative and Complementary Medicine (New York), 6(5), 405–414. doi:10.​1089/​acm.​2000.​6.​405.CrossRef
go back to reference Braveman, B., Levin, M., Kielhofner, G., & Finlayson, M. (2006). HIV/AIDS and return to work: A literature review one-decade post-introduction of combination therapy (HAART). Work (Reading, Mass.), 27(3), 295–303. Braveman, B., Levin, M., Kielhofner, G., & Finlayson, M. (2006). HIV/AIDS and return to work: A literature review one-decade post-introduction of combination therapy (HAART). Work (Reading, Mass.), 27(3), 295–303.
go back to reference Crepaz, N., Passin, W. F., Herbst, J. H., Rama, S. M., Malow, R. M., Purcell, D. W., et al. (2008). Meta-analysis of cognitive-behavioral interventions on HIV-positive persons’ mental health and immune functioning. Health Psychology, 27(1), 4–14. doi:10.1037/0278-6133.27.1.4.CrossRefPubMed Crepaz, N., Passin, W. F., Herbst, J. H., Rama, S. M., Malow, R. M., Purcell, D. W., et al. (2008). Meta-analysis of cognitive-behavioral interventions on HIV-positive persons’ mental health and immune functioning. Health Psychology, 27(1), 4–14. doi:10.​1037/​0278-6133.​27.​1.​4.CrossRefPubMed
go back to reference Crystal, S., & Sambamoorthi, U. (1996). Functional impairment trajectories among persons with HIV disease: A hierarchical linear models approach. Health Services Research, 31(4), 469–488.PubMed Crystal, S., & Sambamoorthi, U. (1996). Functional impairment trajectories among persons with HIV disease: A hierarchical linear models approach. Health Services Research, 31(4), 469–488.PubMed
go back to reference Emlet, C. A. (2006). “You’re awfully old to have this disease”: Experiences of stigma and ageism in adults 50 years and older living with HIV/AIDS. The Gerontologist, 46(6), 781–790.PubMed Emlet, C. A. (2006). “You’re awfully old to have this disease”: Experiences of stigma and ageism in adults 50 years and older living with HIV/AIDS. The Gerontologist, 46(6), 781–790.PubMed
go back to reference Fleishman, J. A., Hsia, D. C., & Hellinger, F. J. (1994). Correlates of medical service utilization among people with HIV infection. Health Services Research, 29(5), 527–548. see comment.PubMed Fleishman, J. A., Hsia, D. C., & Hellinger, F. J. (1994). Correlates of medical service utilization among people with HIV infection. Health Services Research, 29(5), 527–548. see comment.PubMed
go back to reference Karpiak, S. E., Shippy, R. A., & Cantor, M. H. (2006). Research on older adults with HIV. New York: AIDS Community Research Initiative of America. Karpiak, S. E., Shippy, R. A., & Cantor, M. H. (2006). Research on older adults with HIV. New York: AIDS Community Research Initiative of America.
go back to reference Kielhofner, G., Braveman, B., Finlayson, M., Paul-Ward, A., Goldbaum, L., & Goldstein, K. (2004). Outcomes of a vocational program for persons with AIDS. The American Journal of Occupational Therapy, 58(1), 64–72.PubMed Kielhofner, G., Braveman, B., Finlayson, M., Paul-Ward, A., Goldbaum, L., & Goldstein, K. (2004). Outcomes of a vocational program for persons with AIDS. The American Journal of Occupational Therapy, 58(1), 64–72.PubMed
go back to reference Levinson, S. F., & O’Connell, P. G. (1991). Rehabilitation dimensions of AIDS: A review. Archives of Physical Medicine and Rehabilitation, 72(9), 690–696.PubMed Levinson, S. F., & O’Connell, P. G. (1991). Rehabilitation dimensions of AIDS: A review. Archives of Physical Medicine and Rehabilitation, 72(9), 690–696.PubMed
go back to reference O’Brien, K., Bayoumi, A. M., Strike, C., Young, N. L., & Davis, A. M. (2008a). Exploring disability from the perspective of adults living with HIV/AIDS: Development of a conceptual framework. Health and Quality of Life Outcomes, 6, 76. doi:10.1186/1477-7525-6-76.CrossRefPubMed O’Brien, K., Bayoumi, A. M., Strike, C., Young, N. L., & Davis, A. M. (2008a). Exploring disability from the perspective of adults living with HIV/AIDS: Development of a conceptual framework. Health and Quality of Life Outcomes, 6, 76. doi:10.​1186/​1477-7525-6-76.CrossRefPubMed
go back to reference O’Brien, K., Bayoumi, A. M., Strike, C., Young, N. L., King, K., & Davis, A. M. (2007). How Do Existing HIV-Specific Instruments Measure Up? Evaluating the Ability of Instruments to Describe “Disability” Experienced by Adults Living with HIV. Canadian Journal of Infectious Diseases & Medical Microbiology 16th Annual Canadian Conference on HIV/AIDS Research (CAHR). March/April 2007, Volume 18, Supplement SB (Abstract #O077). O’Brien, K., Bayoumi, A. M., Strike, C., Young, N. L., King, K., & Davis, A. M. (2007). How Do Existing HIV-Specific Instruments Measure Up? Evaluating the Ability of Instruments to Describe “Disability” Experienced by Adults Living with HIV. Canadian Journal of Infectious Diseases & Medical Microbiology 16th Annual Canadian Conference on HIV/AIDS Research (CAHR). March/April 2007, Volume 18, Supplement SB (Abstract #O077).
go back to reference O’Brien, K., Bone, G., Zack, E., & Solomon, P. (2008b). HIV and Rehabilitation: Development of a conceptual framework for curriculum planning. International Journal of Rehabilitation Research. Internationale Zeitschrift fur Rehabilitationsforschung. Revue Internationale de Recherches de Readaptation, 31(3), 189–197.PubMed O’Brien, K., Bone, G., Zack, E., & Solomon, P. (2008b). HIV and Rehabilitation: Development of a conceptual framework for curriculum planning. International Journal of Rehabilitation Research. Internationale Zeitschrift fur Rehabilitationsforschung. Revue Internationale de Recherches de Readaptation, 31(3), 189–197.PubMed
go back to reference O’Brien, K., Nixon, S., Glazier, R. H., & Tynan, A. M. (2004). Progressive resistive exercise interventions for adults living with HIV/AIDS. Cochrane Database of Systematic Reviews (Online : Update Software), (4), CD004248. O’Brien, K., Nixon, S., Glazier, R. H., & Tynan, A. M. (2004). Progressive resistive exercise interventions for adults living with HIV/AIDS. Cochrane Database of Systematic Reviews (Online : Update Software), (4), CD004248.
go back to reference O’Brien, K., Nixon, S., Tynan, A. M., & Glazier, R. H. (2006). Aerobic exercise interventions for people living with HIV/AIDS: Implications for practice, education, and research. Physiotherapy Canada, 58(2), 114–129. doi:10.3138/ptc.58.2.114.CrossRef O’Brien, K., Nixon, S., Tynan, A. M., & Glazier, R. H. (2006). Aerobic exercise interventions for people living with HIV/AIDS: Implications for practice, education, and research. Physiotherapy Canada, 58(2), 114–129. doi:10.​3138/​ptc.​58.​2.​114.CrossRef
go back to reference O’Brien, K., Wilkins, A., Zack, E., Solomon, P., & Chegwidden, W. (2008c). Informing future research and best practices in HIV and rehabilitation: Research priorities and guiding principles for the development of best practice guidelines. Paper presented at the XVII International Conference on HIV/AIDS, Mexico City. O’Brien, K., Wilkins, A., Zack, E., Solomon, P., & Chegwidden, W. (2008c). Informing future research and best practices in HIV and rehabilitation: Research priorities and guiding principles for the development of best practice guidelines. Paper presented at the XVII International Conference on HIV/AIDS, Mexico City.
go back to reference O’Dell, M. W. (1996). HIV-related neurological disability and prospects for rehabilitation. Disability and Rehabilitation, 18(6), 285–292.CrossRefPubMed O’Dell, M. W. (1996). HIV-related neurological disability and prospects for rehabilitation. Disability and Rehabilitation, 18(6), 285–292.CrossRefPubMed
go back to reference Palella, F. J., Jr., Delaney, K. M., Moorman, A. C., Loveless, M. O., Fuhrer, J., Satten, G. A., et al. (1998). Declining morbidity and mortality among patients with advanced human immunodeficiency virus infection: HIV outpatient study investigators. The New England Journal of Medicine, 338(13), 853–860. doi:10.1056/NEJM199803263381301.CrossRefPubMed Palella, F. J., Jr., Delaney, K. M., Moorman, A. C., Loveless, M. O., Fuhrer, J., Satten, G. A., et al. (1998). Declining morbidity and mortality among patients with advanced human immunodeficiency virus infection: HIV outpatient study investigators. The New England Journal of Medicine, 338(13), 853–860. doi:10.​1056/​NEJM199803263381​301.CrossRefPubMed
go back to reference Piette, J. D., Fleishman, J. A., Stein, M. D., Mor, V., & Mayer, K. (1993). Perceived needs and unmet needs for formal services among people with HIV disease. Journal of Community Health, 18(1), 11–23. doi:10.1007/BF01321517.CrossRefPubMed Piette, J. D., Fleishman, J. A., Stein, M. D., Mor, V., & Mayer, K. (1993). Perceived needs and unmet needs for formal services among people with HIV disease. Journal of Community Health, 18(1), 11–23. doi:10.​1007/​BF01321517.CrossRefPubMed
go back to reference Public Health Agency of Canada. (2007a). HIV and AIDS in Canada. Selected Surveillance Tables to 30 June 2007: Surveillance and Risk Assessment Division, Centre for Infectious Disease Prevention and Control, Public Health Agency of Canada. Public Health Agency of Canada. (2007a). HIV and AIDS in Canada. Selected Surveillance Tables to 30 June 2007: Surveillance and Risk Assessment Division, Centre for Infectious Disease Prevention and Control, Public Health Agency of Canada.
go back to reference Public Health Agency of Canada. (2007b). HIV/AIDS Epi Updates, November 2007: Surveillance and Risk Assessment Division, Centre for Infectious Disease Prevention and Control, Public Health Agency of Canada. Public Health Agency of Canada. (2007b). HIV/AIDS Epi Updates, November 2007: Surveillance and Risk Assessment Division, Centre for Infectious Disease Prevention and Control, Public Health Agency of Canada.
go back to reference Rusch, M., Nixon, S., Schilder, A., Braitstein, P., Chan, K., & Hogg, R. S. (2004a). Impairments, activity limitations and participation restrictions: Prevalence and associations among persons living with HIV/AIDS in British Columbia. Health and Quality of Life Outcomes, 2, 46. doi:10.1186/1477-7525-2-46.CrossRefPubMed Rusch, M., Nixon, S., Schilder, A., Braitstein, P., Chan, K., & Hogg, R. S. (2004a). Impairments, activity limitations and participation restrictions: Prevalence and associations among persons living with HIV/AIDS in British Columbia. Health and Quality of Life Outcomes, 2, 46. doi:10.​1186/​1477-7525-2-46.CrossRefPubMed
go back to reference Rusch, M., Nixon, S., Schilder, A., Braitstein, P., Chan, K., & Hogg, R. S. (2004b). Prevalence of activity limitation among persons living with HIV/AIDS in British Columbia. Canadian Journal of Public Health, 95(6), 437–440. Rusch, M., Nixon, S., Schilder, A., Braitstein, P., Chan, K., & Hogg, R. S. (2004b). Prevalence of activity limitation among persons living with HIV/AIDS in British Columbia. Canadian Journal of Public Health, 95(6), 437–440.
go back to reference Shor-Posner, G., Hernandez-Reif, M., Miguez, M.-J., Fletcher, M., Quintero, N., Baez, J., et al. (2006). Impact of a massage therapy clinical trial on immune status in young Dominican children infected with HIV-1. Journal of Alternative and Complementary Medicine (New York), 12(6), 511–516. doi:10.1089/acm.2006.12.511.CrossRef Shor-Posner, G., Hernandez-Reif, M., Miguez, M.-J., Fletcher, M., Quintero, N., Baez, J., et al. (2006). Impact of a massage therapy clinical trial on immune status in young Dominican children infected with HIV-1. Journal of Alternative and Complementary Medicine (New York), 12(6), 511–516. doi:10.​1089/​acm.​2006.​12.​511.CrossRef
go back to reference Shor-Posner, G., Miguez, M.-J., Hernandez-Reif, M., Perez-Then, E., & Fletcher, M. (2004). Massage treatment in HIV-1 infected Dominican children: A preliminary report on the efficacy of massage therapy to preserve the immune system in children without antiretroviral medication. Journal of Alternative and Complementary Medicine (New York), 10(6), 1093–1095. doi:10.1089/acm.2004.10.1093. see comment.CrossRef Shor-Posner, G., Miguez, M.-J., Hernandez-Reif, M., Perez-Then, E., & Fletcher, M. (2004). Massage treatment in HIV-1 infected Dominican children: A preliminary report on the efficacy of massage therapy to preserve the immune system in children without antiretroviral medication. Journal of Alternative and Complementary Medicine (New York), 10(6), 1093–1095. doi:10.​1089/​acm.​2004.​10.​1093. see comment.CrossRef
go back to reference Strauss, A., & Corbin, J. (1998). Basics of qualitative research: Techniques and procedures for developing grounded theory (Vol. 2). Thousand Oaks, CA: Sage Publications. Strauss, A., & Corbin, J. (1998). Basics of qualitative research: Techniques and procedures for developing grounded theory (Vol. 2). Thousand Oaks, CA: Sage Publications.
go back to reference Valcour, V. G., Shikuma, C. M., Watters, M. R., & Sacktor, N. C. (2004). Cognitive impairment in older HIV-1-seropositive individuals: prevalence and potential mechanisms. AIDS (London, England), 18(Suppl. 1), S79–S86. doi:10.1097/00002030-200401001-00012. Valcour, V. G., Shikuma, C. M., Watters, M. R., & Sacktor, N. C. (2004). Cognitive impairment in older HIV-1-seropositive individuals: prevalence and potential mechanisms. AIDS (London, England), 18(Suppl. 1), S79–S86. doi:10.​1097/​00002030-200401001-00012.
go back to reference Vincent, T. A., & Schkade, J. K. (1990). Knowledge and attitudes of occupational therapy students regarding AIDS. The American Journal of Occupational Therapy, 44(3), 205–210.PubMed Vincent, T. A., & Schkade, J. K. (1990). Knowledge and attitudes of occupational therapy students regarding AIDS. The American Journal of Occupational Therapy, 44(3), 205–210.PubMed
go back to reference Watters, M. R., Poff, P. W., Shiramizu, B. T., Holck, P. S., Fast, K. M., Shikuma, C. M., et al. (2004). Symptomatic distal sensory polyneuropathy in HIV after age 50. Neurology, 62(8), 1378–1383.PubMed Watters, M. R., Poff, P. W., Shiramizu, B. T., Holck, P. S., Fast, K. M., Shikuma, C. M., et al. (2004). Symptomatic distal sensory polyneuropathy in HIV after age 50. Neurology, 62(8), 1378–1383.PubMed
go back to reference World Health Organization. (2001). International classification of functioning, disability and health (ICF). Geneva: The World Health Organization. World Health Organization. (2001). International classification of functioning, disability and health (ICF). Geneva: The World Health Organization.
go back to reference Worthington, C., Myers, T., O’Brien, K., Cockerill, R., Nixon, S., & Bereket, T. (2006). HIV health professional referrals to community services and views of service challenges in a nationally-funded health-care system. XVI International Conference on HIV/AIDS. eJournal of the International AIDS Society. Worthington, C., Myers, T., O’Brien, K., Cockerill, R., Nixon, S., & Bereket, T. (2006). HIV health professional referrals to community services and views of service challenges in a nationally-funded health-care system. XVI International Conference on HIV/AIDS. eJournal of the International AIDS Society.
go back to reference Worthington, C., Myers, T., O’Brien, K., Nixon, S., Cockerill, R., & Bereket, T. (2008). Rehabilitation professionals and human immunodeficiency virus care: Results of a national Canadian survey. Archives of Physical Medicine and Rehabilitation, 89(1), 105–113. doi:10.1016/j.apmr.2007.10.009.CrossRefPubMed Worthington, C., Myers, T., O’Brien, K., Nixon, S., Cockerill, R., & Bereket, T. (2008). Rehabilitation professionals and human immunodeficiency virus care: Results of a national Canadian survey. Archives of Physical Medicine and Rehabilitation, 89(1), 105–113. doi:10.​1016/​j.​apmr.​2007.​10.​009.CrossRefPubMed
Metadata
Title
Scoping the Field: Identifying Key Research Priorities in HIV and Rehabilitation
Authors
Kelly O’Brien
Annette Wilkins
Elisse Zack
Patricia Solomon
Publication date
01-04-2010
Publisher
Springer US
Published in
AIDS and Behavior / Issue 2/2010
Print ISSN: 1090-7165
Electronic ISSN: 1573-3254
DOI
https://doi.org/10.1007/s10461-009-9528-z

Other articles of this Issue 2/2010

AIDS and Behavior 2/2010 Go to the issue