Published in:
01-01-2016 | Original Article
Addressing psychosocial needs of partners of breast cancer patients: a pilot program using social workers to improve communication and psychosocial support
Published in: Supportive Care in Cancer | Issue 1/2016
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Introduction
Psychosocial (PsySoc) distress in caregivers is a well-described entity, with some caregivers experiencing more distress than patients themselves. The American College of Surgeons’ Commission on Cancer mandates that psychosocial services be provided to all cancer patients and their caregivers, through the entire continuum of cancer care.
Methods
We developed a program for newly diagnosed breast cancer patients and their partners. Both were screened for biopsychosocial stressors. The couple was then paired with two clinican-educators trained in communication and gender differences, who educated the couple in communication-based problem solving and provided referrals to supportive services.
Results
Eighty-six patients and 82 partners returned surveys. Compared to partners, patients were more likely to report feeling anxious or fearful (59 vs. 38 %, p = 0.014), report difficulty in managing their emotions (46 vs. 11 %, p = 0.003), and experience distress over being unable to take care of themselves (37 vs. 6 %, p = 0.000). Interestingly, there was no difference between patients and partners in feeling unsupported by their partner (6 vs. 5 %, p = 0.85) or in feeling down or depressed (29 vs. 30 %, p = 0.96).
Discussion
Both patients and partners experience significant distress after a breast cancer diagnosis. We found that partners are equally likely to feel unsupported by their partner (patient) and feel down or depressed. Further study is needed to learn about both patients’ and partners’ significant distress over lack of support. Partner-focused PsySoc interventions should be initiated in all cancer centers to address the emotional needs of both breast cancer patients and their partners.