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Published in: Clinical Research in Cardiology 5/2015

01-05-2015 | ORIGINAL PAPER

Psychosocial functioning of adults with congenital heart disease: outcomes of a 30–43 year longitudinal follow-up

Authors: Petra Opić, Jolien W. Roos-Hesselink, Judith A. A. Cuypers, Maarten Witsenburg, Annemien van den Bosch, Ron T. van Domburg, Ad J. J. C. Bogers, Elisabeth M. W. J. Utens

Published in: Clinical Research in Cardiology | Issue 5/2015

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Abstract

Objective

Investigating long-term psychosocial and emotional outcomes, 30–43 years after cardiothoracic surgery during childhood.

Methods

Adult patients (N = 252, aged 33–55 years) all operated between 1968 and 1980 for atrial septal defect, ventricular septal defect, pulmonary stenosis, tetralogy of Fallot or transposition of the great arteries (TGA, all Mustard) were evaluated in the Erasmus MC. Psychosocial and emotional functioning were measured using standardized, validated questionnaires. Results in 2011 were compared with those found in 2001.

Results

Compared with normative data, the total sample showed significant impairments on living conditions, relationships, occupational level and income, but a better quality of life and emotional functioning. Patients with moderate/complex ConHD reported significantly more physical restrictions and felt more often at a disadvantage because of their ConHD compared with those with simple ConHD. From 2001 to 2011, outcomes on biographical characteristics (living conditions, marital status and income) improved significantly, though still impairments were found.

Conclusion

At 30–43 year follow-up, compared to normative data, patients had a better quality of life and emotional functioning, despite impairments on occupational level and income. Compared to patients with simple defects, patients with moderate/complex ConHD scored worse on multiple outcomes, which warrants special attention for these patients.
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Metadata
Title
Psychosocial functioning of adults with congenital heart disease: outcomes of a 30–43 year longitudinal follow-up
Authors
Petra Opić
Jolien W. Roos-Hesselink
Judith A. A. Cuypers
Maarten Witsenburg
Annemien van den Bosch
Ron T. van Domburg
Ad J. J. C. Bogers
Elisabeth M. W. J. Utens
Publication date
01-05-2015
Publisher
Springer Berlin Heidelberg
Published in
Clinical Research in Cardiology / Issue 5/2015
Print ISSN: 1861-0684
Electronic ISSN: 1861-0692
DOI
https://doi.org/10.1007/s00392-014-0792-1

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