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Published in: Rheumatology International 1/2018

Open Access 01-04-2018 | Validation Studies

The French version of the Juvenile Arthritis Multidimensional Assessment Report (JAMAR)

Authors: Pierre Quartier, Michael Hofer, Carine Wouters, Thi Thanh Thao Truong, Ngoc-Phoi Duong, Kokou-Placide Agbo-Kpati, Florence Uettwiller, Isabelle Melki, Richard Mouy, Brigitte Bader-Meunier, Alessandro Consolaro, Francesca Bovis, Nicolino Ruperto, For the Paediatric Rheumatology International Trials Organisation (PRINTO)

Published in: Rheumatology International | Special Issue 1/2018

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Abstract

The Juvenile Arthritis Multidimensional Assessment Report (JAMAR) is a new parent/patient reported outcome measure that enables a thorough assessment of the disease status in children with juvenile idiopathic arthritis (JIA). We report the results of the cross-cultural adaptation and validation of the parent and patient versions of the JAMAR in the French language. The reading comprehension of the questionnaire was tested in 10 JIA parents and patients. Each participating centre was asked to collect demographic, clinical data and the JAMAR in 100 consecutive JIA patients or all consecutive patients seen in a 6-month period and to administer the JAMAR to 100 healthy children and their parents. The statistical validation phase explored descriptive statistics and the psychometric issues of the JAMAR: the three Likert assumptions, floor/ceiling effects, internal consistency, Cronbach’s alpha, interscale correlations and construct validity (convergent and discriminant validity). A total of 100 JIA patients (23% systemic, 45% oligoarticular, 20% RF negative polyarthritis, 12% other categories) and 122 healthy children, were enrolled at the paediatric rheumatology centre of the Necker Children’s Hospital in Paris. Notably, none of the enrolled JIA patients is affected with psoriatic arthritis. The JAMAR components discriminated well healthy subjects from JIA patients. All JAMAR components revealed good psychometric performances. In conclusion, the French version of the JAMAR is a valid tool for the assessment of children with JIA and is suitable for use both in routine clinical practice and clinical research.
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Metadata
Title
The French version of the Juvenile Arthritis Multidimensional Assessment Report (JAMAR)
Authors
Pierre Quartier
Michael Hofer
Carine Wouters
Thi Thanh Thao Truong
Ngoc-Phoi Duong
Kokou-Placide Agbo-Kpati
Florence Uettwiller
Isabelle Melki
Richard Mouy
Brigitte Bader-Meunier
Alessandro Consolaro
Francesca Bovis
Nicolino Ruperto
For the Paediatric Rheumatology International Trials Organisation (PRINTO)
Publication date
01-04-2018
Publisher
Springer Berlin Heidelberg
Published in
Rheumatology International / Issue Special Issue 1/2018
Print ISSN: 0172-8172
Electronic ISSN: 1437-160X
DOI
https://doi.org/10.1007/s00296-018-3951-2

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