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01-04-2020 | Care | Editorial

An Ethical Argument for Professional Regulation and Regionalization of Care in Pediatric Cardiology and Cardiac Surgery

Authors: Angira Patel, Rupali Gandhi

Published in: Pediatric Cardiology | Issue 4/2020

Excerpt

Survival for children with congenital heart disease (CHD) has improved significantly over the last three decades. From 1979 to 1993, only 67% percent of infants with the most severe forms survived to one year of age, whereas from 1994 to 2005, 82.5% survived [1]. Nevertheless, data show that mortality improvements for infants with CHD are not uniform across institutions and centers that perform fewer surgeries typically have higher mortality rates [2]. …

Oster ME, Lee KA, Honein MA et al (2013) Temporal trends in survival among infants with critical congenital heart defects. Pediatrics 131(5):1502–1508CrossRef

Pasquali SK, Li JS, Burstein DS et al (2012) Association of center volume with mortality and complications in pediatric heart surgery. Pediatrics 129(2):e370–e376CrossRef

Doctors were Alarmed: ‘Would I Have My Children Have Surgery Here?’ (2019) https://www.nytimes.com/interactive/2019/05/30/us/children-heart-surgery-cardiac.html

Daenen W, Lacour-Gayet F, Aberg T et al (2003) Optimal structure of a congenital surgery department in Europe: by EACTS congenital heart disease committee. Eur J Cardio-Thorac Surg 24(3):343–351CrossRef

Troubled Children’s Hospital is Sued Over Toddler Who Died After Surgery (2019) https://www.nytimes.com/2019/12/05/us/heart-surgery-death-lawsuit.html

Heartbroken (2018) https://projects.tampabay.com/projects/2018/investigations/heartbroken/all-childrens-heart-institute/

Derse AR (2017) Flying too close to the sun: lessons learned from the judicial expansion of the objective patient standard for informed consent in Wisconsin. J Law Med Ethics 45:51–59CrossRef

Collins RT, Shin AY, Hanley FL (2020) Sacrificing the future for the sake of the present. Ann Surg 271(2):225–226CrossRef

Pasquali SK, Dimick JB, Ohye RG (2015) Time for more unified approach to pediatric health care policy? The case of congenital heart care. JAMA 324(10):1689–1690CrossRef

10.

Backer CL, Karamlou T, Welke KF (2019) More evidence for regionalization. JACC 74(23):2919–2920CrossRef

11.

Welke KF, Pasquali SK, Lin P et al (2019) Regionalization of congenital heart surgery in the United States. Semin Thorac Cardiovasc Surg. https://doi.org/10.1053/j.semtcvs.2019.09.005 CrossRefPubMed

12.

Backer CL, Pasquali SK, Dearanhi JA (2020) Improving national outcomes in congenital heart surgery: the time has come for regionalization of care. Circulation. https://doi.org/10.1161/CIRCULATIONNAHA.119.045542 CrossRefPubMed

Title: An Ethical Argument for Professional Regulation and Regionalization of Care in Pediatric Cardiology and Cardiac Surgery
Authors: Angira Patel
Rupali Gandhi
Publication date: 01-04-2020
Publisher: Springer US
Keywords: Care
Pediatric Cardiac Surgery
Published in: Pediatric Cardiology / Issue 4/2020
Print ISSN: 0172-0643
Electronic ISSN: 1432-1971
DOI: https://doi.org/10.1007/s00246-020-02329-8

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