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The Journal of Headache and Pain
Published in: The Journal of Headache and Pain 1/2022

Open Access 01-12-2022 | Headache | Review

The Global Campaign turns 18: a brief review of its activities and achievements

Authors: Timothy J. Steiner, Gretchen L. Birbeck, Rigmor H. Jensen, Paolo Martelletti, Lars Jacob Stovner, Derya Uluduz, Matilde Leonardi, Jes Olesen, Zaza Katsarava

Published in: The Journal of Headache and Pain | Issue 1/2022

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Abstract

The Global Campaign against Headache, as a collaborative activity with the World Health Organization (WHO), was formally launched in Copenhagen in March 2004. In the month it turns 18, we review its activities and achievements, from initial determination of its strategic objectives, through partnerships and project management, knowledge acquisition and awareness generation, to evidence-based proposals for change justified by cost-effectiveness analysis.
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Vosoughi K, Stovner LJ, Steiner TJ, Moradi-Lakeh M, Fereshtehnejad S-M, Farzadfar F, Heydarpour P, Malekzadeh R, Naghavi M, Sahraian MA, Sepanlou SG, Tehrani-Banihashemi A, Majdzadeh R, Feigin VL, Vos T, Mokdad AH, Murray CJL (2019) The burden of headache disorders in the Eastern Mediterranean Region, 1990–2016: findings from the Global Burden of Disease study 2016. J Headache Pain 20:40PubMedPubMedCentralCrossRef
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Stovner LJ, Hagen H, Linde M, Steiner TJ (2022) The global prevalence of headache: An update, with analysis of the influences of methodological factors on prevalence estimates. J Headache Pain; 23 (in press).
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Steiner TJ, Stovner LJ, Birbeck GL (2013) Migraine: The seventh disabler (editorial). Headache 53:227–229PubMedCrossRef
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Steiner TJ, Stovner LJ, Birbeck GL (2013) Migraine: The seventh disabler (editorial). Cephalalgia 33:289–290PubMedCrossRef
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Martelletti P, Birbeck GL, Katsarava Z, Jensen RH, Stovner LJ, Steiner TJ (2013) The Global Burden of Disease survey 2010, Lifting The Burden and thinking outside-the-box on headache disorders. J Headache Pain; 14: 13.PubMedPubMedCentralCrossRef
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Steiner TJ, Stovner LJ, Jensen R, Uluduz D, Katsarava Z, on behalf of Lifting The Burden: the Global Campaign against Headache (2020) Migraine remains second among the world’s causes of disability, and first among young women: findings from GBD2019. J Headache Pain 21:137
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Steiner TJ (2003) Integrating headache services across the primary/secondary-care interface. Ch 58 in: Reducing the Burden of Headache, ed Olesen J, Steiner TJ, Lipton RB. Oxford: Oxford University Press, pp 347–360.
117.
Steiner TJ (2003) Health-care systems for headache: patching the seam between primary and specialist care. J Headache Pain; 4 suppl 1: S70-74.
118.
Steiner TJ (2004) National and international action plans for improving headache diagnosis. In: Classification and Diagnosis of Headache Disorders, ed Olesen J. Oxford: Oxford University Press, pp 265–271.
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Steiner TJ (2007) National healthcare plans for headache? In: Headache Clinics: Organization, Patients and Treatment, ed Jensen R, Diener H-C, Olesen J. Oxford: Oxford University Press, pp 277–284.
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Lampl C, Steiner TJ, Mueller T, Mirvelashvili E, Djibuti M, Kukava M, Dzagnidze A, Jensen R, Stovner LJ, Katsarava Z (2012) Will (or can) people pay for headache care in a poor country? J Headache Pain; 13: 67–74.PubMedCrossRef
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Lebedeva ER, Olesen J, Osipova VV, Volkova LI, Tabeeva GR, Steiner TJ (2013) The Yekaterinburg headache initiative: an interventional project, within the Global Campaign against Headache, to reduce the burden of headache in Russia. J Headache Pain; 14: 101.PubMedPubMedCentralCrossRef
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Steiner TJ, Antonaci F, Queiroz LP, Van Belle S (2011) Organization of headache services. Ch 5 in: Handbook of Headache, ed Martelletti P, Steiner TJ. Milan: Springer, pp 59–67.
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Steiner TJ (2013) Headache in the world: public health and research priorities. Expert Rev Pharmacoecon Outcomes Res; 13: 51–57.PubMedCrossRef
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Giorgadze G, Mania M, Kukava M, Dzagnidze A, Mirvelashvili E, Steiner TJ, Katsarava Z (2018) Implementation of effective, self-sustaining headache services in the Republic of Georgia: Evaluation of their impact on headache-related disability and quality of life of people with headache. Cephalalgia; 38: 639–645.PubMedCrossRef
126.
Steiner TJ, Jensen R, Katsarava Z, Uluduz D, Tinelli M, Thomas H, Stovner LJ (2019) The healthcare solution to headache. Ch 15 in: Steiner TJ, Stovner LJ (eds). Societal impact of headache. Burden, costs and response. Cham, Switzerland: Springer Nature, pp 203–224,.CrossRef
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128.
Steiner TJ, Jensen R, Katsarava Z, Stovner LJ, Uluduz D, Adarmouch L, Al Jumah M, Al Khathaami AM, Ashina M, Braschinsky M, Broner S, Eliasson JH, Gil-Gouveia R, Gómez-Galván JB, Gudmundsson LS, Herekar AA, Kawatu N, Kissani N, Kulkarni GB, Lebedeva ER, Leonardi M, Linde M, Luvsannorov O, Maiga Y, Milanov I, Mitsikostas DD, Musayev T, Olesen J, Osipova V, Paemeleire K, Peres MFP, Quispe G, Rao GN, Risal A, Ruiz de la Torre E, Saylor D, Togha M, Yu S-Y, Zebenigus M, ZenebeZewde Y, Zidverc-Trajković J, Tinelli M, on behalf of Lifting The Burden: the Global Campaign against Headache (2021) Structured headache services as the solution to the ill-health burden of headache. 1. Rationale and description. J Headache Pain. 22:78
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Katsarava Z, Steiner TJ (2012) Neglected headache: ignorance, arrogance or insouciance? (editorial). Cephalalgia 32:1019–1020PubMedCrossRef
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Katsarava Z, Mania M, Lampl C, Herberhold J, Steiner TJ (2018) Poor medical care for people with migraine in Europe – evidence from the Eurolight study. J Headache Pain; 19: 10.PubMedPubMedCentralCrossRef
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Steiner TJ, Katsarava Z, Olesen J (2019) Barriers to care. Ch 13 in: Steiner TJ, Stovner LJ (eds). Societal impact of headache. Burden, costs and response. Cham, Switzerland: Springer Nature, pp 173–183.CrossRef
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Steiner TJ, Jensen R, Martelletti P, Stovner LJ, Katsarava Z (2019) Dismantling the barriers. Ch 14 in: Steiner TJ, Stovner LJ (eds). Societal impact of headache. Burden, costs and response. Cham, Switzerland: Springer Nature, pp 185–201.CrossRef
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Steiner TJ, Olesen J (2019) Advocacy for patients with headache. Ch 30 in: Grisold W, Struhal W, Grishold T (eds). Advocacy in neurology. Oxford: Oxford University Press, pp 339–346.
134.
Steiner TJ, Göbel H, Jensen R, Lampl C, Paemeleire K, Linde M, Braschinsky M, Mitsikostas D, Gil-Gouveia R, Katsarava Z, on behalf of the European Headache Federation and Lifting The Burden: the Global Campaign against Headache (2019) Headache service quality: the role of specialized headache centres within structured headache services, and suggested standards and criteria as centres of excellence. J Headache Pain 20:24
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Martelletti P, Steiner TJ (eds). Handbook of headache. Milan: Springer, 2011.
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Braschinsky M, Haldre S, Kals M, Iofik A, Kivisild A, Korjas J, Koljal S, Katsarava Z, Steiner TJ (2016) Structured education can improve primary-care management of headache: the first empirical evidence, from a controlled interventional study. J Headache Pain; 17: 24.PubMedPubMedCentralCrossRef
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Braschinsky M, Haldre S, Kals M, Arge M, Saar B, Niibek M, Katsarava Z, Steiner TJ (2018) Structured education to improve primary-care management of headache: how long do the benefits last? A follow-up observational study. Eur J Neurol; 25: 497–502.PubMedCrossRef
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Steiner TJ, Martelletti P (2007) Aids for management of common headache disorders in primary care. J Headache Pain 8(suppl 1):S1–S47
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Steiner TJ, Jensen R, Katsarava Z, Linde M, MacGregor EA, Osipova V, Paemeleire K, Olesen J, Peters M, Martelletti P, on behalf of the European Headache Federation and Lifting The Burden: the Global Campaign against Headache (2019) Aids to management of headache disorders in primary care (2nd edition). J Headache Pain 20:57
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Steiner TJ, Paemeleire K, Jensen R, Valade D, Savi L, Lainez MJA, Diener H-C, Martelletti P, Couturier EGM, on behalf of the European Headache Federation and Lifting The Burden: The Global Campaign to Reduce the Burden of Headache Worldwide (2007) European principles of management of common headache disorders in primary care. J Headache Pain. 8(suppl 1):S3–S21
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Steiner TJ (2007) The HALT and HART indices. J Headache Pain; 8 suppl 1: S22-S25.
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Buse DC, Sollars CM, Steiner TJ, Jensen RH, Al Jumah MA, Lipton RB (2012) Why HURT? A review of clinical instruments for headache management. Curr Pain Headache Reports; 16: 237–254.CrossRef
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Westergaard MLS, Steiner TJ, MacGregor EA, Antonaci F, Tassorelli C, Buse DC, Lipton RB, Jensen RH (2013) The Headache Under-Response to Treatment (HURT) Questionnaire: assessment of utility in headache specialist care. Cephalalgia 33:245–255PubMedCrossRef
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Steiner TJ, Lipton RB, on behalf of Lifting The Burden: The Global Campaign against Headache (2018) The Headache-Attributed Lost Time (HALT) Indices: measures of burden for clinical management and population-based research. J Headache Pain 19:12PubMedPubMedCentralCrossRef
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Steiner TJ, Buse DC, Al Jumah M, Westergaard ML, Jensen RH, Reed ML, Prilipko L, Mennini FS, Láinez MJA, Ravishankar K, Sakai F, Yu S-Y, Fontebasso M, Al Khathami A, MacGregor EA, Antonaci F, Tassorelli C, Lipton RB, on behalf of Lifting The Burden: The Global Campaign against Headache (2018) The headache under-response to treatment (HURT) questionnaire, an outcome measure to guide follow-up in primary care: development, psychometric evaluation and assessment of utility. J Headache Pain 19:15
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Al Khathaami AM, Abo Al Samh D, Al Jumah M, Alotaibi N, Kojan S, Khan A, Steiner TJ (2019) Does primary-care use of the HURT questionnaire aid the reduction of headache burden? Lessons for study design from an evaluation in primary care of the Arabic version. Health Prim Care; 3: 1–5.
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Steiner TJ (2007) Information for patients. J Headache Pain 8 suppl 1: S26-S39.
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Steiner TJ, Martelletti P (2011) What to tell patients about migraine. Ch 18 in: Handbook of Headache, ed Martelletti P, Steiner TJ. Milan: Springer, pp 265–270.CrossRef
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Steiner TJ, Martelletti P (2011) What to tell patients about tension-type headache. Ch 22 in: Handbook of Headache, ed Martelletti P, Steiner TJ. Milan: Springer, pp 307–310.CrossRef
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Steiner TJ, Martelletti P (2011) What to tell patients about cluster headache. Ch 27 in: Handbook of Headache, ed Martelletti P, Steiner TJ. Milan: Springer, pp 363–366.
151.
Steiner TJ, Martelletti P (2011) What to tell patients about headache occurring on more days than not. Ch 35 in: Handbook of Headache, ed Martelletti P, Steiner TJ. Milan: Springer, pp 453–457.CrossRef
152.
Peters M, Bertolote JM, Houchin C, Kandoura T, Steiner TJ (2007) Translation protocol for technical documents. J Headache Pain; 8 suppl 1: S41-S42.
153.
Peters M, Bertolote JM, Houchin C, Kandoura T, Steiner TJ (2007) Translation protocol for lay documents. J Headache Pain; 8 suppl 1: S43-S44.
154.
Peters M, Bertolote JM, Houchin C, Kandoura T, Steiner TJ (2007) Translation protocol for hybrid documents. J Headache Pain; 8 suppl 1: S45-S47.
155.
156.
Peters M, Perera S, Loder E, Jenkinson C, Gil Gouveia R, Jensen R, Katsarava Z, Steiner TJ (2012) Quality in the provision of headache care. 1: systematic review of the literature and commentary. J Headache Pain; 13: 437–447.PubMedPubMedCentralCrossRef
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Peters M, Jenkinson C, Perera S, Loder E, Jensen R, Katsarava Z, Gil Gouveia R, Broner S, Steiner T (2012) Quality in the provision of headache care. 2: defining quality and its indicators. J Headache Pain; 13: 449–457.PubMedPubMedCentralCrossRef
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Katsarava Z, Gil Gouveia R, Jensen R, Gaul C, Schramm S, Schoppe A, Steiner TJ (2015) Evaluation of headache service quality indicators: pilot implementation in two specialist-care centres J Headache Pain; 16: 53.PubMedCentralCrossRef
159.
Schramm S, Uluduz D, Gil Gouveia R, Jensen R, Siva A, Uygunoglu U, Gvantsa G, Mania M, Braschinsky M, Filatova E, Latysheva N, Osipova V, Skorobogatykh K, Azimova J, Straube A, Emre Eren O, Martelletti P, De Angelis V, Negro A, Linde M, Hagen K, Radojicic A, Zidverc-Trajkovic J, Podgorac A, Paemeleire K, De Pue A, Lampl C, Steiner TJ, Katsarava Z (2016) Headache service quality: evaluation of quality indicators in 14 specialist-care centres. J Headache Pain; 17: 111.PubMedPubMedCentralCrossRef
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Pellesi L, Benemei S, Favoni V, Lupi C, Mampreso E, Negro A, Paolucci M, Steiner TJ, Ulivi M, Cevoli S, Guerzoni S (2017) Quality indicators in headache care: an implementation study in six Italian specialist-care centres. J Headache Pain; 18: 55.PubMedPubMedCentralCrossRef
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Steiner TJ, Jensen R, Gil-Gouveia R, Katsarava Z (2019) Evaluation: quality in headache services. Ch 16 in: Steiner TJ, Stovner LJ (eds). Societal impact of headache. Burden, costs and response. Cham, Switzerland: Springer Nature, pp 225–236.CrossRef
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Lenz B, Katsarava Z, Gil-Gouveia R, Karelis G, Kaynarkaya B, Meksa L, Oliveira E, Palavra F, Rosendo I, Sahin M, Silva B, Uludüz D, Ural YZ, Varsberga-Apsite I, Zengin ST, Zvaune L, Steiner TJ, on behalf of European Headache Federation and Lifting The Burden: the Global Campaign against Headache (2021) Headache service quality evaluation: implementation of quality indicators in primary care in Europe. J Headache Pain 22:33
163.
164.
Selekler HM, Gökmen G, Alvur TM, Steiner TJ (2015) Productivity losses attributable to headache, and their attempted recovery, in a heavy-manufacturing workforce in Turkey: implications for employers and politicians. J Headache Pain; 16: 96.PubMedPubMedCentralCrossRef
165.
Kothari SF, Jensen RH, Steiner TJ (2021) The relationship between headache-attributed disability and lost productivity: 1. A review of the literature. J Headache Pain; 22: 73.PubMedPubMedCentralCrossRef
166.
Thomas H, Kothari SF, Husøy A, Jensen RH, Katsarava Z, Tinelli M, Steiner TJ (2021) The relationship between headache-attributed disability and lost productivity: 2. Empirical evidence from population-based studies in nine disparate countries. J Headache Pain; 22: 153.PubMedPubMedCentralCrossRef
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Steiner TJ, Linde M, Schnell-Inderst P (2021) A universal outcome measure for headache treatments, care-delivery systems and economic analysis. J Headache Pain; 22: 63.PubMedPubMedCentralCrossRef
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169.
Linde M, Steiner TJ, Chisholm D (2015) Cost-effectiveness analysis of interventions for migraine in four low- and middle-income countries. J Headache Pain; 16: 15.PubMedPubMedCentralCrossRef
170.
Tinelli M, Leonardi M, Paemeleire K, Mitsikostas D, Ruiz de la Torre E, Steiner TJ, on behalf of the European Brain Council Value of Treatment Headache Working Group, the European Headache Federation, the European Federation of Neurological Associations and Lifting The Burden: the Global Campaign against Headache (2021) Structured headache services as the solution to the ill-health burden of headache. 2. Modelling effectiveness and cost-effectiveness of implementation in Europe: Methodology. J Headache Pain 22:99
171.
Tinelli M, Leonardi M, Paemeleire K, Raggi A, Mitsikostas D, Ruiz de la Torre E, Steiner TJ, on behalf of the European Brain Council Value of Treatment Headache Working Group, the European Headache Federation, the European Federation of Neurological Associations and Lifting The Burden: the Global Campaign against Headache (2021) Structured headache services as the solution to the ill-health burden of headache. 3. Modelling effectiveness and cost-effectiveness of implementation in Europe: Findings and conclusions. J Headache Pain 22:90
172.
Steiner TJ, Stovner LJ (2019) The way forward. Ch 17 in: Steiner TJ, Stovner LJ (eds). Societal impact of headache. Burden, costs and response. Cham, Switzerland: Springer Nature, pp 239–244.CrossRef
173.
Ashina M, Katsarava Z, Do TP, Buse DC, Pozo-Rosich P, Özge A, Krymchantowski AV, Lebedeva ER, Ravishankar K, Yu S, Sacco S, Ashina S, Younis S, Steiner TJ, Lipton RB (2021) Migraine: epidemiology and systems of care. Lancet; 397: 1485–1495.PubMedCrossRef
174.
Metadata
Title
The Global Campaign turns 18: a brief review of its activities and achievements
Authors
Timothy J. Steiner
Gretchen L. Birbeck
Rigmor H. Jensen
Paolo Martelletti
Lars Jacob Stovner
Derya Uluduz
Matilde Leonardi
Jes Olesen
Zaza Katsarava
Publication date
01-12-2022
Publisher
Springer Milan
Keyword
Headache
Published in
The Journal of Headache and Pain / Issue 1/2022
Print ISSN: 1129-2369
Electronic ISSN: 1129-2377
DOI
https://doi.org/10.1186/s10194-022-01420-0

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