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Published in: BMC Geriatrics 1/2022

Open Access 01-12-2022 | Care | Research

Lifeworld perspectives of people with dementia: a meta-aggregation of qualitative studies

Authors: Siren Eriksen, Knut Engedal, Ellen Karine Grov

Published in: BMC Geriatrics | Issue 1/2022

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Abstract

Objectives

This meta-aggregation aims to interpret and synthesize present knowledge on the lifeworld perspectives of people with dementia and develop a model for guidance in clinical practice.

Method

The data consist of four meta-syntheses describing different lifeworld perspectives in accordance with van Manen’s existentials: lived relations, lived space, lived time and lived body. The meta-aggregation summarizes a range of views expressed by people with dementia in qualitative, interview-based studies, with the aim of generating a reliable model based on the studies’ findings.

Results

In total, 88 studies among 1,191 persons with dementia were included. Sixteen areas of focus were found, representing four perspectives: (a) lived relations, consisting of connectedness, independence, equality and competence; (b) lived space, consisting of belonging, meaningfulness, safety and security, and autonomy; (c) lived time, consisting of being rooted in the past, being in the present, viewing the future and being in process; and (d) lived body, consisting of being functional, trustworthy, adaptable and presentable. A model shaped as a tree trunk captures the lifeworld perspectives of people with dementia.

Conclusion

Sixteen areas were revealed from this meta-aggregation and form the basis of a model. This model may be used as a guide for health care personnel to ensure the overall lifeworld-perspectives of people with dementia in care for the target group and conduct lifeworld-preserving care with a person-centred approach.
Literature
1.
go back to reference Livingston G, Huntley J, Sommerlad A, et al. Dementia prevention, intervention, and care: 2020 report of the Lancet Commission. Lancet. 2020;396(10248):413–46.CrossRef Livingston G, Huntley J, Sommerlad A, et al. Dementia prevention, intervention, and care: 2020 report of the Lancet Commission. Lancet. 2020;396(10248):413–46.CrossRef
2.
go back to reference Kleinman A. The Illness Narratives. New York: Basic Books Inc, Publishers; 1988. Kleinman A. The Illness Narratives. New York: Basic Books Inc, Publishers; 1988.
3.
go back to reference Hofmann B. Disease, illness and sickness (ch. 2) IN: Solomon M, Simon JR & Kincaid H. The Routledge Companion to Philosophy of Medicine. Published February 25, 2020 by Routledge 578 p, ISBN 9780367360368 Hofmann B. Disease, illness and sickness (ch. 2) IN: Solomon M, Simon JR & Kincaid H. The Routledge Companion to Philosophy of Medicine. Published February 25, 2020 by Routledge 578 p, ISBN 9780367360368
4.
go back to reference Kitwood T. A dialectical framework for dementia. In: Baldwin C, editor. IN Kitwood T Dementia – A Reader and A Critical Commentary. Berkshire: Open University Press; 1995. p. 73–86. Kitwood T. A dialectical framework for dementia. In: Baldwin C, editor. IN Kitwood T Dementia – A Reader and A Critical Commentary. Berkshire: Open University Press; 1995. p. 73–86.
5.
go back to reference van Manen M. Researching Lived Experience. Human Science for an Action Sensitive Pedagogy. 2nd ed. Ontario, Canada: The Althouse Press; 1997. van Manen M. Researching Lived Experience. Human Science for an Action Sensitive Pedagogy. 2nd ed. Ontario, Canada: The Althouse Press; 1997.
6.
go back to reference Husserl E. Logical Investigations. Volume I. Prolegomena to Pure Logic, Translation from the German Authorized by the Author by Berstein EA, Edition and Preface by Frank SL. Editions ‘Obrazovanie’, St. Petersburg, 1909. London: Routledge; 2001, p. 224. ISBN 0-415-24189-8. Husserl E. Logical Investigations. Volume I. Prolegomena to Pure Logic, Translation from the German Authorized by the Author by Berstein EA, Edition and Preface by Frank SL. Editions ‘Obrazovanie’, St. Petersburg, 1909. London: Routledge; 2001, p. 224. ISBN 0-415-24189-8.
8.
go back to reference Lindseth A, Norberg A. A phenomenological hermeneutical method for researching lived experience. Scand J Caring Sci. 2004;18(2):145–53.CrossRef Lindseth A, Norberg A. A phenomenological hermeneutical method for researching lived experience. Scand J Caring Sci. 2004;18(2):145–53.CrossRef
9.
go back to reference Eriksen S, Helvik AS, Juvet LK, et al. The experience of relations in persons with dementia: A systematic meta-synthesis. J Dement Geriatr Cogn Disord. 2016;42:342–68.CrossRef Eriksen S, Helvik AS, Juvet LK, et al. The experience of relations in persons with dementia: A systematic meta-synthesis. J Dement Geriatr Cogn Disord. 2016;42:342–68.CrossRef
10.
go back to reference Førsund LH, Helvik AS, Juvet LK, et al. The experience of space in persons with dementia: A systematic meta-synthesis. Journal of Aging and Mental health. BMC Geriatrics. 2018;18:33.CrossRef Førsund LH, Helvik AS, Juvet LK, et al. The experience of space in persons with dementia: A systematic meta-synthesis. Journal of Aging and Mental health. BMC Geriatrics. 2018;18:33.CrossRef
11.
go back to reference Eriksen S, Bartlett R, Grov EK, et al. The experience of lived time in people with dementia: a systematic meta-synthesis. Dement Geriatr Cogn Disord. 2020;49(5):435–55.CrossRef Eriksen S, Bartlett R, Grov EK, et al. The experience of lived time in people with dementia: a systematic meta-synthesis. Dement Geriatr Cogn Disord. 2020;49(5):435–55.CrossRef
12.
go back to reference Eriksen S, Grov EK, Ibsen TL, et al. The Experience of Lived Body in People with Dementia: A Systematic Meta-Synthesis. Dementia. 2022;0(0):1–29. Eriksen S, Grov EK, Ibsen TL, et al. The Experience of Lived Body in People with Dementia: A Systematic Meta-Synthesis. Dementia. 2022;0(0):1–29.
13.
go back to reference Shamseer L, Moher D, Clarke M, Ghersi D, Liberati A, Petticrew M, Shekelle P, Stewart LA; PRISMA-P Group. Preferred reporting items for systematic review and meta-analysis protocols (PRISMA-P) 2015: elaboration and explanation. BMJ. 2015;350:g7647. https://doi.org/10.1136/bmj.g7647. Erratum in: BMJ. 2016;354:i4086. Shamseer L, Moher D, Clarke M, Ghersi D, Liberati A, Petticrew M, Shekelle P, Stewart LA; PRISMA-P Group. Preferred reporting items for systematic review and meta-analysis protocols (PRISMA-P) 2015: elaboration and explanation. BMJ. 2015;350:g7647. https://​doi.​org/​10.​1136/​bmj.​g7647. Erratum in: BMJ. 2016;354:i4086. 
15.
go back to reference Thorne S, Jensen L, Kearney MH, Noblit G, Sandelowski M. Qualitative metasynthesis: reflections on methodological orientation and ideological agenda. Qual Health Res. 2014;14(10):1342–65.CrossRef Thorne S, Jensen L, Kearney MH, Noblit G, Sandelowski M. Qualitative metasynthesis: reflections on methodological orientation and ideological agenda. Qual Health Res. 2014;14(10):1342–65.CrossRef
16.
go back to reference Lockwood C, Munn Z, Porritt K. Qualitative research synthesis: methodological guidance for systematic reviewers utilizing meta-aggregation. Int J Evid Based Healthc. 2015;13(3):179–87.CrossRef Lockwood C, Munn Z, Porritt K. Qualitative research synthesis: methodological guidance for systematic reviewers utilizing meta-aggregation. Int J Evid Based Healthc. 2015;13(3):179–87.CrossRef
18.
go back to reference Staats K, Grov EK, Husebø BS, Tranvåg O. Dignity and loss of dignity: Experiences of older women living with incurable cancer at home. Health Care Women Int. 2020;41(9):1036–58.CrossRef Staats K, Grov EK, Husebø BS, Tranvåg O. Dignity and loss of dignity: Experiences of older women living with incurable cancer at home. Health Care Women Int. 2020;41(9):1036–58.CrossRef
19.
go back to reference Alzheimer’s Disease International. World Alzheimer Report 2019: Attitudes to dementia. London: Alzheimer’s Disease International; 2019. Alzheimer’s Disease International. World Alzheimer Report 2019: Attitudes to dementia. London: Alzheimer’s Disease International; 2019.
20.
go back to reference Rewerska-Juśko M, Rejdak K. Social Stigma of People with Dementia. J Alzheimers Dis. 2020;78(4):1339–43.CrossRef Rewerska-Juśko M, Rejdak K. Social Stigma of People with Dementia. J Alzheimers Dis. 2020;78(4):1339–43.CrossRef
21.
go back to reference Kelly F, Innes A. Human rights, citizenship and dementia care nursing. Int J Older People Nurs. 2013;8(1):61–70.CrossRef Kelly F, Innes A. Human rights, citizenship and dementia care nursing. Int J Older People Nurs. 2013;8(1):61–70.CrossRef
22.
go back to reference Townsend P. Policies for the aged in the 21st century: more ‘structured dependency’ or the realization of human rights? Ageing Soc. 2006;26:161–79.CrossRef Townsend P. Policies for the aged in the 21st century: more ‘structured dependency’ or the realization of human rights? Ageing Soc. 2006;26:161–79.CrossRef
Metadata
Title
Lifeworld perspectives of people with dementia: a meta-aggregation of qualitative studies
Authors
Siren Eriksen
Knut Engedal
Ellen Karine Grov
Publication date
01-12-2022
Publisher
BioMed Central
Published in
BMC Geriatrics / Issue 1/2022
Electronic ISSN: 1471-2318
DOI
https://doi.org/10.1186/s12877-022-03660-w

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