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Published in: Quality of Life Research 7/2016

Open Access 01-07-2016

Translation, validity and reliability of the British Sign Language (BSL) version of the EQ-5D-5L

Authors: Katherine D. Rogers, Mark Pilling, Linda Davies, Rachel Belk, Catherine Nassimi-Green, Alys Young

Published in: Quality of Life Research | Issue 7/2016

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Abstract

Purpose

To translate the health questionnaire EuroQol EQ-5D-5L into British Sign Language (BSL), to test its reliability with the signing Deaf population of BSL users in the UK and to validate its psychometric properties.

Methods

The EQ-5D-5L BSL was developed following the international standard for translation required by EuroQol, with additional agreed features appropriate to a visual language. Data collection used an online platform to view the signed (BSL) version of the tests. The psychometric testing included content validity, assessed by interviewing a small sample of Deaf people. Reliability was tested by internal consistency of the items and test–retest, and convergent validity was assessed by determining how well EQ-5D-5L BSL correlates with CORE-10 BSL and CORE-6D BSL.

Results

The psychometric properties of the EQ-5D-5L BSL are good, indicating that it can be used to measure health status in the Deaf signing population in the UK. Convergent validity between EQ-5D-5L BSL and CORE-10 BSL and CORE-6D BSL is consistent, demonstrating that the BSL version of EQ-5D-5L is a good measure of the health status of an individual. The test–retest reliability of EQ-5D-5L BSL, for each dimension of health, was shown to have Cohen’s kappa values of 0.47–0.61; these were in the range of moderate to good and were therefore acceptable.

Conclusions

This is the first time EQ-5D-5L has been translated into a signed language for use with Deaf people and is a significant step forward towards conducting studies of health status and cost-effectiveness in this population.
Literature
2.
go back to reference Kvam, M. H., Loeb, M., & Tambs, K. (2007). Mental health in Deaf adults: Symptoms of anxiety and depression among hearing and Deaf individuals. Journal of Deaf Studies and Deaf Education, 12(1), 1–7. doi:10.1093/deafed/enl015.CrossRefPubMed Kvam, M. H., Loeb, M., & Tambs, K. (2007). Mental health in Deaf adults: Symptoms of anxiety and depression among hearing and Deaf individuals. Journal of Deaf Studies and Deaf Education, 12(1), 1–7. doi:10.​1093/​deafed/​enl015.CrossRefPubMed
3.
go back to reference Rogers, K. D., & Young, A. (In press). Is there an association between deaf children’s mental health difficulties and their adult well-being? The state of the evidence. In: L. Leeson and M. Vermeerbergen (Eds.), Working with the Deaf Community: Education, Mental Health & Interpreting. Dublin, Ireland: Intersources Group (Ireland) Limited. Rogers, K. D., & Young, A. (In press). Is there an association between deaf children’s mental health difficulties and their adult well-being? The state of the evidence. In: L. Leeson and M. Vermeerbergen (Eds.), Working with the Deaf Community: Education, Mental Health & Interpreting. Dublin, Ireland: Intersources Group (Ireland) Limited.
7.
go back to reference Herdman, M., Gudex, C., Lloyd, A., Janssen, M. F., Kind, P., Parkin, D., et al. (2011). Development and preliminary testing of the new five-level version of EQ-5D (EQ-5D-5L). Quality of Life Research, 10, 1727–1736. doi:10.1007/s11136-011-9903-x.CrossRef Herdman, M., Gudex, C., Lloyd, A., Janssen, M. F., Kind, P., Parkin, D., et al. (2011). Development and preliminary testing of the new five-level version of EQ-5D (EQ-5D-5L). Quality of Life Research, 10, 1727–1736. doi:10.​1007/​s11136-011-9903-x.CrossRef
8.
go back to reference Kind, P., Hardman, G., & Macran, S. (1999). UK population norms for EQ-5D. York: Centre for Health Economics, University of York. Kind, P., Hardman, G., & Macran, S. (1999). UK population norms for EQ-5D. York: Centre for Health Economics, University of York.
9.
go back to reference Ladd, P. (2003). Understanding Deaf culture: in search of Deafhood. Clevedon: Multilingual Matters. Ladd, P. (2003). Understanding Deaf culture: in search of Deafhood. Clevedon: Multilingual Matters.
10.
go back to reference Sutton-Spence, R., & Woll, B. (1999). The linguistics of British Sign Language: An introduction. Cambridge: Cambridge University Press.CrossRef Sutton-Spence, R., & Woll, B. (1999). The linguistics of British Sign Language: An introduction. Cambridge: Cambridge University Press.CrossRef
12.
go back to reference Leigh, I. (2009). A lens on deaf identities. New York: Oxford University Press.CrossRef Leigh, I. (2009). A lens on deaf identities. New York: Oxford University Press.CrossRef
16.
go back to reference Rogers, K. D., Young, A., Lovell, K., & Evans, C. (2013). The challenges of translating the Clinical Outcomes in Routine Evaluation—Outcome Measure (CORE–OM) into British Sign Language. Journal of Deaf Studies and Deaf Education, 18(3), 287–298. doi:10.1093/deafed/ent002.CrossRefPubMed Rogers, K. D., Young, A., Lovell, K., & Evans, C. (2013). The challenges of translating the Clinical Outcomes in Routine Evaluation—Outcome Measure (CORE–OM) into British Sign Language. Journal of Deaf Studies and Deaf Education, 18(3), 287–298. doi:10.​1093/​deafed/​ent002.CrossRefPubMed
17.
go back to reference Rogers, K. D., Young, A., Lovell, K., Campbell, M., Scott, P. R., & Kendal, S. (2013). The British Sign Language Versions of the Patient Health Questionnaire, the Generalized Anxiety Disorder 7-Item Scale, and the Work and Social Adjustment Scale. Journal of Deaf Studies and Deaf Education, 18(1), 110–122. doi:10.1093/deafed/ens040.CrossRefPubMedPubMedCentral Rogers, K. D., Young, A., Lovell, K., Campbell, M., Scott, P. R., & Kendal, S. (2013). The British Sign Language Versions of the Patient Health Questionnaire, the Generalized Anxiety Disorder 7-Item Scale, and the Work and Social Adjustment Scale. Journal of Deaf Studies and Deaf Education, 18(1), 110–122. doi:10.​1093/​deafed/​ens040.CrossRefPubMedPubMedCentral
18.
go back to reference The EuroQol Group. (2013). Translation guidelines for the EQ-5D developed by the EuroQol Group. EuroQol Group. The EuroQol Group. (2013). Translation guidelines for the EQ-5D developed by the EuroQol Group. EuroQol Group.
20.
go back to reference Nunnally, J. C. (1978). Psychometric theory (2nd ed.). New York: McGraw-Hill. Nunnally, J. C. (1978). Psychometric theory (2nd ed.). New York: McGraw-Hill.
21.
go back to reference Rogers, K., Evans, C., Campbell, M., Young, A., & Lovell, K. (2013). The reliability of British Sign Language and English versions of the Clinical Outcomes in Routine Evaluation—Outcome Measure with d/Deaf populations in the UK: an initial study. Health and Social Care in the Community, 22(3), 278–289. doi:10.1111/hsc.12078.CrossRefPubMed Rogers, K., Evans, C., Campbell, M., Young, A., & Lovell, K. (2013). The reliability of British Sign Language and English versions of the Clinical Outcomes in Routine Evaluation—Outcome Measure with d/Deaf populations in the UK: an initial study. Health and Social Care in the Community, 22(3), 278–289. doi:10.​1111/​hsc.​12078.CrossRefPubMed
22.
go back to reference Barkham, M., Bewick, B., Mullin, T., Gilbody, S., Connell, J., Cahill, J., et al. (2013). The CORE-10: a short measure of psychological distress for routine use in the psychological therapies. Counselling and Psychotherapy Research: Linking research with practice, 13(1), 3–13. doi:10.1080/14733145.2012.729069.CrossRef Barkham, M., Bewick, B., Mullin, T., Gilbody, S., Connell, J., Cahill, J., et al. (2013). The CORE-10: a short measure of psychological distress for routine use in the psychological therapies. Counselling and Psychotherapy Research: Linking research with practice, 13(1), 3–13. doi:10.​1080/​14733145.​2012.​729069.CrossRef
25.
go back to reference Szende, A., Janssen, B., & Cabases, J. (Eds.). (2014). Self-reported population health: An international perspective based on EQ-5D. Netherlands: Springer. Szende, A., Janssen, B., & Cabases, J. (Eds.). (2014). Self-reported population health: An international perspective based on EQ-5D. Netherlands: Springer.
26.
go back to reference McDowell, I. (2006). Measuring health: A guide to rating scales and questionnaire (3rd ed.). New York, NY: Oxford University Press.CrossRef McDowell, I. (2006). Measuring health: A guide to rating scales and questionnaire (3rd ed.). New York, NY: Oxford University Press.CrossRef
27.
go back to reference Altman, D. G. (1991). Practical statistics for medical research. London, UK: Chapman and Hall. Altman, D. G. (1991). Practical statistics for medical research. London, UK: Chapman and Hall.
28.
go back to reference George, D., & Mallery, P. (2003). SPSS for windows step by steps: A simple guide and reference. Boston, MA: Allyn and Bacon. George, D., & Mallery, P. (2003). SPSS for windows step by steps: A simple guide and reference. Boston, MA: Allyn and Bacon.
29.
go back to reference Cohen, J. (1988). Statistical power analysis for the behavioral sciences (2nd ed.). New Jersey: Lawrence Erlbaum. Cohen, J. (1988). Statistical power analysis for the behavioral sciences (2nd ed.). New Jersey: Lawrence Erlbaum.
Metadata
Title
Translation, validity and reliability of the British Sign Language (BSL) version of the EQ-5D-5L
Authors
Katherine D. Rogers
Mark Pilling
Linda Davies
Rachel Belk
Catherine Nassimi-Green
Alys Young
Publication date
01-07-2016
Publisher
Springer International Publishing
Published in
Quality of Life Research / Issue 7/2016
Print ISSN: 0962-9343
Electronic ISSN: 1573-2649
DOI
https://doi.org/10.1007/s11136-016-1235-4

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