Top

Published in:

Open Access 01-11-2012 | Meeting abstract

The Italian project to increase health professionals’ training and awareness on rare diseases

Author: Simona Bellagambi

Published in: Orphanet Journal of Rare Diseases | Special Issue 2/2012

Excerpt

The scarce knowledge of rare diseases among family pediatricians and general practitioners who operate at local level and in frequent contact with rare disease patients is seen in Italy as one of the causes leading to delay in diagnosis and to the lack of reference to a centre of competence. …

Title: The Italian project to increase health professionals’ training and awareness on rare diseases
Author: Simona Bellagambi
Publication date: 01-11-2012
Publisher: BioMed Central
Published in: Orphanet Journal of Rare Diseases / Issue Special Issue 2/2012
Electronic ISSN: 1750-1172
DOI: https://doi.org/10.1186/1750-1172-7-S2-A16

Keynote webinar | Spotlight on medication adherence

Springer Medicine

The Italian project to increase health professionals’ training and awareness on rare diseases

Excerpt

Keynote webinar | Spotlight on medication adherence

Springer Medicine

Excerpt

Please log in to get access to this content

Other articles of this Special Issue 2/2012

Value and specificity of rare diseases business model-is the pursuit of this societal priority sustainable?

Scope of centres of expertise for rare diseases in European countries where they exist

The democratic problem in the knowledge society of today: Rare Disorders Denmark’s documentation strategy

Transition from childhood to adulthood in Duchenne muscular dystrophy (DMD)

First German Academy for Further Medical Training on Rare Diseases (FAKSE,http://www.fakse.info)

National plans: case study Belgium