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Open Access 01-11-2012 | Meeting abstract

First German Academy for Further Medical Training on Rare Diseases (FAKSE,http://www.fakse.info)

Authors: Julia Giehl, Holm Graessner, Olaf Riess

Published in: Orphanet Journal of Rare Diseases | Special Issue 2/2012

Excerpt

On average it will take up to seven years to be diagnosed with an orphan disease. During thistime, patients will have seen several doctors, received a large number of changing diagnoses,consulted the internet various times and will have undergone many forms of treatment. Since themajority of rare disorders affect more than one organ system, it is almost impossible for physiciansnot specialising in rare disorders or working in this area on a daily basis to diagnose an orphandisease. …

Title: First German Academy for Further Medical Training on Rare Diseases (FAKSE,http://www.fakse.info)
Authors: Julia Giehl
Holm Graessner
Olaf Riess
Publication date: 01-11-2012
Publisher: BioMed Central
Published in: Orphanet Journal of Rare Diseases / Issue Special Issue 2/2012
Electronic ISSN: 1750-1172
DOI: https://doi.org/10.1186/1750-1172-7-S2-A41

Keynote webinar | Spotlight on medication adherence

Springer Medicine

First German Academy for Further Medical Training on Rare Diseases (FAKSE,http://www.fakse.info)

Excerpt

Keynote webinar | Spotlight on medication adherence

Springer Medicine

Excerpt

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Other articles of this Special Issue 2/2012

How reference networks develop, implement, and monitor guidelines

The Italian project to increase health professionals’ training and awareness on rare diseases

Scope of centres of expertise for rare diseases in European countries where they exist

The psychological processes involved in patient empowerment

Fighting for the cures of rare genetic diseases: worthy ideas and promising results demand for strategic research management and for integration of competences and efforts

Leveraging existing opportunities for improved Orphan Drug approval in the EU