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BMC Medical Informatics and Decision Making
Published in: BMC Medical Informatics and Decision Making 1/2019

Open Access 01-12-2019 | Research article

The effect of self-management education through weblogs on the quality of life of diabetic patients

Authors: Amal Mohammad Rasoul, Rostam Jalali, Alireza Abdi, Nader Salari, Mehrali Rahimi, Masoud Mohammadi

Published in: BMC Medical Informatics and Decision Making | Issue 1/2019

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Abstract

Background

Self-management education of diabetes which is one of the most important noncommunicable diseases worldwide involves facilitating knowledge, skills, and ability required for self-care in these patients. Concerning the progressive growth of use of Internet for educating patients and absence of different studies about education through use of weblogs in patients with diabetes in Iran, the present study was conducted with the aim of determining the effect of self-management education through weblogs on the quality of life of affect the patients.

Methods

This study was performed as intervention on patients referring to diabetes clinic of Talghani hospital in Kermanshah in winter 2018 and spring 2019. The samples consisted of 98 patients with diabetes chosen through available sampling and randomly assigned into study and control groups. For data collection, diabetes quality of life (DQOL) short form clinical questionnaire, Persian version, was used. The intervention involved training self-management conducted through 60 sessions via a designed weblog. The obtained information was introduced into SPSS 21, and analyzed through Mann-Whitney, t-test, and paired t-test.

Results

According to the results of this study, the mean age of the examined patients was 32.1 ± 4.9 years, where the major participants were male (n = 52 in the test group, 52.5%). The results showed that after the intervention, the test and control groups were different in terms of anthropometric variables and metabolic indicators; the mean waist circumference in the test and control groups was 98.6 ± 9.8 and 101.5 ± 7.8, respectively; the mean FBS following the intervention in the test and control groups was 131.08 ± 16.04 and 238.2 ± 40, respectively; and the mean BMI postintervention in the test and control groups was obtained as 27.3 ± 3.4 and 30.1 ± 3.8 respectively, where these differences were significant according to independent t-test (p < 0.05). The mean score of quality of life postintervention in the test and control groups was obtained as 56.1 and 49.9 respectively; according to Mann-Whitney test, the difference between the two groups was significant (p < 0.05).

Conclusion

The results of the present study revealed the positive effect of weblog based self-management on the quality of life of patients with diabetes following the intervention. Further, reduced levels of FBS, BMI, as well as systolic and diastolic blood pressure were also observed, which could be due to increased awareness of patients about their abilities, its risks, as well as the ways to control and treat it.
Literature
1.
2.
Shaw JE, Sicree RA, Zimmet PZ. Global estimates of the prevalence of diabetes. Diabetes Res Pract. 2009;87(1):4–14.CrossRef
3.
Palumbo C, Nicolaci N, La Manna AA, Branek N, Pissano MN. Association between central diabetes insipidus and type 2 diabetes mellitus. Medicina (B Aires). 2018;78(2):127–30.
4.
Redekop WK, Koopmanschap MA, Stolk RP, Rutten GEHM, Wolffenbuttel BHR, Niessen LW. Healthrelated quality of life and treatment satisfaction in Dutch patients with type 2 diabetes. Diabetes Care. 2002;25(3):458–63.PubMedCrossRef
5.
6.
Imayama I, Plotnikoff RC, Courneya KS, Johnson JA. Determinants of quality of life in adults with type 1 and type 2 diabetes. Health Qual Life Outcomes. 2011;9(1):115.PubMedPubMedCentralCrossRef
7.
Nesbitt T, Doctorvaladan S, Southard J, Singh S, Fekete A, Marie K, Moser D, Pelter M, Robinson S, Wilson M, Cooper L, Dracup K. Correlates of quality of life in rural heart failure patients. Circ Heart Fail. 2014;7(6):882–7.PubMedPubMedCentralCrossRef
8.
Issa BA, Baiyewu O. Quality of life of patients with diabetes mellitus in a Nigerian teaching hospital. Hong Kong J Psychiatry. 2007;16(1):27–33.
9.
Nisari M, Zakir M, Rajab A, Faghih Zadeh S, Bassampor S, Rahmani M. Effect of nurse telephone follow-up on glucose and lipid control, in patients with type 2 diabetes. Iranian Journal of Diabetes and Lipid Disorders. 2009;8(2):115–22 Persian.
10.
Gatt S, Sammut R. An exploratory study of predictors of self-care behaviour in persons with type 2 diabetes. Int J Nurs Stud. 2008 Oct;45(10):1525–33.PubMedCrossRef
11.
Jafarian AS, Zabihi A, Babaieasl F, Eshkevari N, Bijani A. Self-care behaviors in diabetic patients reffering to Diabetes Clinics in Babol City,Iran. J Babol Univ Med Sci. 2010;12(4):72–8 Persian.
12.
Bodenheimer T, Lorig K, Holman H, Grumbach K. Patient self-management of chronic disease in primary care. JAMA. 2002;288(19):2469–75.PubMedCrossRef
13.
White N, Manning ML, Brawer R, Plumb J. Using accreditation standards as a framework to evaluate and improve a community-based diabetes self-management education program. Popul Health Manag. 2013;17(1):8–12.PubMedCrossRef
14.
15.
Wattana C, Srisuphan W, Pothiban L, Upchurch SL. Effects of a diabetes self-management program on glycemic control, coronary heart disease risk, and quality of life among Thai patients with type 2 diabetes. Nurs Health Sci. 2007;9(2):135–41.PubMedCrossRef
16.
Nolte S, Elsworth GR, Sinclair AJ, Osborne RH. The extent and breadth of benefits from participating in chronic disease self-management courses: a national patient-reported outcomes survey. Patient Educ Couns. 2007;65(3):351–60.PubMedCrossRef
17.
Inouye J, Flannelly L, Flannelly KJ. The effectiveness of self-management training for individuals with HIV/AIDS. J Assoc Nurses AIDS Care. 2001;12(2):73–84.PubMedCrossRef
18.
Al-Maskari MY, Al-Shookri AO, Al-Adawi SH, Lin KG. Assessment of quality of life in patients with type 2 diabetes mellitus in Oman. Saudi Med J. 2011;32(12):1285–90.PubMed
19.
Nagpal J, Kumar A, Kakar S, Bhartia A. The development of quality of life instrument for Indian diabetes patients (QOLID): a validation and reliability study in middle and higher income groups. J Assoc Physicians India. 2010;58(5):295–304.PubMed
20.
Quah JH, Luo N, Ng WY, How CH, Tay EG. Healthrelated quality of life is associated with diabetic complications, but not with short-term diabetic control in primary care. Ann Acad Med Singapore. 2011;40(6):276–86.PubMed
21.
Chaturvedi R, Desai C, Patel P, Shah A, Dikshit RK. An evaluation of the impact of antidiabetic medication on treatment satisfaction and quality of life in patients of diabetes mellitus. Perspect Clin Res. 2018;9(1):15–22.PubMedPubMedCentralCrossRef
22.
Derouiche S, Kechrid Z. Zinc Supplementation Overcomes Effects of Copper on Zinc Status, Carbohydrate Metabolism and Some Enzyme Activities in Diabetic and Nondiabetic Rats. Can J Diabetes. 2016;40(4):342–7.PubMedCrossRef
23.
Shirani F, Salehi-Abargouei A, Azadbakht L. Effects of Dietary Approaches to Stop Hypertension (DASH) diet on some risk for developing type 2 diabetes: A systematic review and meta-analysis on controlled clinical trials. Nutrition. 2013;29(7–8):939–47.PubMedCrossRef
24.
25.
Ju SY, Choi WS, Ock SM, et al. Dietary Magnesium Intake and Metabolic Syndrome in the Adult Population: Dose-Response Meta-Analysis and Meta-Regression. Nutrients. 2014;6(12):6005–19.PubMedPubMedCentralCrossRef
26.
Hawley JA, Lessard SJ. Exercise training-induced improvements in insulin action. Acta Physiol (Oxf). 2008;192(1):127–35.CrossRef
27.
Pedersen BK, Saltin B. Exercise as medicine - evidence for prescribing exercise as therapy in 26 different chronic diseases. Scand J Med Sci Sports. 2015;25(Suppl 3):1–72.PubMedCrossRef
28.
Hordern MD, Dunstan DW, Prins JB, Baker MK, Singh MA, Coombes JS. Exercise prescription for patients with type 2 diabetes and pre-diabetes: a position statement from exercise and sport science Australia. J Sci Med Sport. 2012;15(1):25–31.PubMedCrossRef
29.
Plotnikoff RC, Taylor LM, Wilson PM, Courneya KS, Sigal RJ, Birkett N, et al. Factors associated with physical activity in Canadian adults with diabetes. Med Sci Sports Exerc. 2006;38(8):1526–34.PubMedCrossRef
30.
Vancampfort D, Stubbs B. Physical activity and metabolic disease among people with affective disorders: prevention, management and implementation. J Affect Disord. 2017;224:87–94.PubMedCrossRef
31.
Segel SA, Paramore DS, Cryer PE. Hypoglycemia-associated autonomic failure in advanced type 2 diabetes. Diabetes. 2002;51(3):724–33.PubMedCrossRef
32.
Samdal GB, Eide GE, Barth T, et al. Effective behaviour change techniques for physical activity and healthy eating in overweight and obese adults; systematic review and meta-regression analyses. Int J Behav Nutr Phys Act. 2017;4:42–6.CrossRef
33.
Guerci B, Drouin P, Grange V, et al. Self-monitoring of blood glucose significantly improves metabolic control in patients with type 2 diabetes mellitus: the auto-surveillance intervention active (ASIA) study. Diab Metab. 2003;29:587–94.CrossRef
34.
Michie S, Abrahan C, Whittington C, et al. Effective techniques in healthy eating and physical activity interventions: a meta-regression. Health Psychol. 2009;28:690–701.PubMedCrossRef
35.
McAndrew L, Schneider SH, Burns E, et al. Does patient blood glucose monitoring improve diabetes control? A systematic review of the literature. Diabetes Educ. 2007;33:991–1011.PubMedCrossRef
36.
Yoo HJ, An HG, Park SY, et al. Use of a real time continuous glucose monitoring system as a motivational device for poorly controlled type 2 diabetes. Diabetes Res Clin Pract. 2008;82:73–9.PubMedCrossRef
37.
Bailey KJ, Little PJ, Jung ME. Self-monitoring using continuous glucose monitors with real-time feedback improves exercise adherence in individuals with impaired blood glucose: a pilot study. Diabetes Technol Ther. 2016;18:185–93.PubMedCrossRef
38.
Wallston K, Rothman R, Cherrington A. Psychometric properties of the perceived diabetes self-management scale (PDSMS). J Behav Med. 2007;30:395–401.PubMedCrossRef
39.
Sarkar U, Fisher L, Schillinger D. Is selfefficacy associated with diabetes self-management across race/ethnicity and health literacy? Diabetes Care. 2006;29:823–9.PubMedCrossRef
40.
Cox RH, Carpenter JP, Bruce FA, Poole KP, Gaylord CK. Characteristics of low-income African-American and Caucasian adults that are important in self-management of type 2 diabetes. J Community Health. 2004;29(2):155–70.PubMedCrossRef
41.
Krichbaum K, Aarestad V, Buethe M. Exploring the connection between self-efficacy and effective diabetes self-management. Diabetes Educ. 2003;29:653–62.PubMedCrossRef
42.
Glasgow RE, Toobert DJ, Gillette CD. Psychosocial barriers to diabetes self management and quality of life. Diabetes Spectr. 2001;14:33–41.CrossRef
43.
Brunisholz KD, Briot P, Hamilton S, et al. Diabetes self-management education improves quality of care and clinical outcomes determined by a diabetes bundle measure. J Multidiscip Healthc. 2014;7:533–42.PubMedPubMedCentralCrossRef
44.
Weaver RG, Hemmelgarn BR, Rabi DM, et al. Association between participation in a brief diabetes education programme and glycaemic control in adults with newly diagnosed diabetes. Diabet Med. 2014;31(12):1610–4.PubMedCrossRef
45.
Steinsbekk A, Rygg LØ, Lisulo M, Rise MB, Fretheim A. Group based diabetes selfmanagement education compared to routine treatment for people with type 2 diabetes mellitus. A systematic review with meta-analysis. BMC Health Serv Res. 2012;12:213.PubMedPubMedCentralCrossRef
46.
Duncan I, Birkmeyer C, Coughlin S, Li Q, Sherr D, Boren S. Assessing the value of diabetes education. Diabetes Educ. 2009;35(5):752–60.PubMedCrossRef
47.
Fan L, Sidani S. Effectiveness of diabetes self-management education intervention elements: a meta-analysis. Can J Diabetes. 2009;33:18–26.CrossRef
48.
Ellis SE, Speroff T, Dittus RS, Brown A, Pichert JW, Elasy TA. Diabetes patient education: a meta-analysis and metaregression. Patient Educ Couns. 2004;52(1):97–105.PubMedCrossRef
49.
Norris SL, Lau J, Smith SJ, Schmid CH, Engelgau MM. Self-management education for adults with type 2 diabetes: a meta-analysis of the effect on glycemic control. Diabetes Care. 2002;25(7):1159–71.PubMedCrossRef
50.
Margaret A. Powers, Joan Bardsley, Marjorie cypress, Paulina Duker, Martha M. Funnell, Amy Hess Fischl, Melinda D. Maryniuk, Linda Siminerio, Eva Vivian, PharmD, diabetes self-management education and support in type 2 diabetes: a joint position statement of the American Diabetes Association, the American Association of Diabetes Educators, and the academy of nutrition and dietetics. J Acad Nutr Diet. 2015;115(8):1323–34.CrossRef
51.
Cochrane J, Conn VS. Meta-analysis of quality of life outcomes following self-management training. Diabetes Educ. 2008;34:815–23.CrossRef
52.
Minet L, Møller S, Vach W, Wagner L, Henriksen JE. Mediating the effect of self-care management intervention in type 2 diabetes: a meta-analysis of 47 randomised controlled trials. Patient Educ Couns. 2010;80:29–41.PubMedCrossRef
53.
54.
Shaw K, Killeen M, Sullivan E, Bowman P. Disparities in diabetes self-management education for uninsured and underinsured adults. Diabetes Educ. 2011;37:813–9.PubMedCrossRef
55.
Shekelle PG, Morton SC, Keeler EB. Costs and Benefits of Health Information Technology. Rockville: Agency for Healthcare Research and Quality (US); 2006.CrossRef
56.
Yu CH, Bahniwal R, Laupacis A, Leung E, Orr MS, Straus SE. Systematic review and evaluation of web-accessible tools for management of diabetes and related cardiovascular risk factors by patients and healthcare providers. J Am Med Inform Assoc. 2012;19:514–22.PubMedPubMedCentralCrossRef
57.
Bull SS, Gaglio B, McKay HG, Glasgow RE. Harnessing the potential of the internet to promote chronic illness self-management: diabetes as an example of how well we are doing. Chronic Illness. 2005;1:143–55.PubMedCrossRef
58.
Mohammadi H, Valiee S, Nouri B, Fallahi A, Zehni K. The effect of self-care education through social networks on the patients’ quality of life with type 1 diabetes, in Sanandaj City. Iran Creative Education. 2018;9:322–32.CrossRef
59.
Cooper A, Kar P. A new dawn: the role of social media in diabetes education. J Diabetes Nurs. 2014;18:68–71.
60.
61.
Yu, et al. A web-based intervention to support self-management of patients with type 2 diabetes mellitus: effect on self-efficacy, self-care and diabetes distress. BMC Med Inform Decis Mak. 2014;14:117.PubMedPubMedCentralCrossRef
62.
Borhani F, Ranjbar H, Abbaszadeh A, Abazari F, Ranjbar A. The effect of telenursing (cellphone software) on A1C hemoglobin in patients with type 2 diabetes mellitus. J Arm Univ Med Sic. 2013;11(2):130–7.
63.
Saeid pour J, Jafari M, Ghazi Asgar M, Dayani Dardashti H. Effect of educational program on quality of life in diabetic patients. J Health Admin. 2013;16:26–36.
64.
65.
Kiadaliri, et al. Quality of life in people with diabetes: a systematic review of studies in Iran. J Diabetes Metab Dis. 2013;12:54.CrossRef
66.
Nasitkon A, Pishva A, Habibzadeh F, Tabatabaei M, Ghashgheizadeh MT, Hojat F. Determination of Reliability and Validity of Clinical Questionnaire Summary of Diabetic Patients' Quality of Life (DQOL) in the Persian language. Iran Lipid Diab J. 2012;11(5):483–7 (Persian).
67.
Heidari M, Alhani F, Kazemnejad A, Tol A, Moezi F. Assessing the effect of educational program based on empowerment model on HbA1C among adolescents with type 1 diabetes. Health Syst Res. 2012;8(7):1376–84.
68.
Zianezhad U, Heidari M, Ghodusi Borujeni M, Naseh L. A comparative study on the effects of verbal and non-verbal Educa-tion on the knowledge and attitude of soldiers regarding the Transmis-Sion and prevention of AIDS. J Mil Med. 2014;16(3):169–77.
69.
Rezvani HR, Dargahi H. Identifying and categorization of e-learning system’s characteristics based on the Kano model in Iran’s virtual universities. Bimonthly Educ Strategies Med Sci. 2012;5(3):149–55.
70.
Grajales FJ III, Sheps S, Ho K, Novak-Lauscher H, Eysenbach G. Social media: a review and tutorial of applications in medicine and health care. J Med Internet Res. 2014;16(2):e13.PubMedCrossRef
71.
Vluggen S, Hoving C, Schaper NC, de Vries H. A web-based program to improve treatment adherence in patients with type 2 diabetes: Development and study protocol. Contemp Clin Trials. 2018;74:38–45.PubMedCrossRef
72.
73.
Mody R, Kalsekar I, Kavookjian J, Lyer S, Rajagopalan R, Pawar V. Economic impact of cardiovascular co-morbidity in patients with type 2Diabetes. J Diabetes Complicat. 2007;21(2):75–83.CrossRef
74.
Burroughs TE, Raghika D, Waterman BM, Gilin D, McGill J. Development and validation of the diabetes quality of life brief clinical inventory. Diabetes Spectrum. 2004;17(1):91–7.CrossRef
75.
Nundy S, Dick JJ, Chou C-H, Nocon RS, Chin MH, Peek ME. Mobile phone diabetes project led to improved glycemic control and net savings for chicago plan participants. Health Aff. 2014;33(2):265–72.CrossRef
76.
Mano RS. Social media and online health services: a health empowerment perspective to online health information. Comput Hum Behav. 2014;39:404–12.CrossRef
77.
Kate L. Ritter Philip L., Laurent Diana D., plant Kathryn, green Maurice, bird Jernigan Valarie blue, case Siobhan, online diabetes self-management program. Diabetes Care. 2010;33:1275–81.CrossRef
78.
Solymani Z, Barati H, Mozafari Jovin A, Ershadimoghadam H, Mohammadi M. The quality of life of patients with diabetes from the City of Sabzevar during year 2016. MCS. 2017;3(4):264–71.CrossRef
79.
Ghiyasvandian S, Salimi A, Navidhamidi M, Ebrahimi H. Assessing the effect of self-management education on quality of life of patients with diabetes mellitus type 2. J Knowledge Health. 2017;12(1):50–6.
80.
Saeid pour J, Jafari M, Ghazi Asgar M, Dayani Dardashti H, Teymoorzadeh E. Effect of educational program on quality of life in diabetic patients. J Health Adm. 2013;16(52):26–36.
81.
Aghili SV, Ghasemzadeh Iraqi M. Social media, cases, functions and challenges. J Iranian Soc Dev Stud. 2015;8(1):21–36.
82.
Baghiani Moghadam M, Afkhami AM. The effect of educational intervention on quality of life of diabetic patients type 2, referee to diabetic research center of Yazd. Ofogh-E-Danesh. 2008;13:21–9.
83.
Aghamolaei T, Eftekhar H, Mohammad K, Sobhani A, Shojaeizadeh D, Nakhjavani M, et al. Influence of educational intervention using interaction approach on behavior change, hemoglobin alc and health- related quality of life in diabetic patients. SJSPH. 2005;3:1–2.
84.
Balanjani S, Rahimi Z, Sasan A. The effect of self-management programs on the quality of life in patients undergoing hemodialysis. J Urmia Nurs Midwifery Fac. 2014;12:815–24.
85.
Murray E, Sweeting M, Dack C, Pal K, Modrow K, Hudda M, Li J, Ross J, Alkhaldi G, Barnard M, Farmer A, Michie S, Yardley L, May C, Parrott S, Stevenson F, Knox M, Patterson D. Web-based self-management support for people with type 2 diabetes (HeLP-diabetes): randomised controlled trial in English primary care. BMJ Open. 2017;7(9):e016009.PubMedPubMedCentralCrossRef
86.
Hofmann M, Dack CH, Barker CH, Murray E. The Impact of an Internet-Based Self-Management Intervention (HeLP-Diabetes) on the Psychological Well-Being of Adults withType 2 Diabetes: A Mixed-Method Cohort Study. J Diabetes Res. 2016;2016:1–13.CrossRef
87.
Tahir MJ, Timmerman GM, Lewis RM, Samoson D, Temple H, Forman MR. A Mindful Eating Intervention to Improve Self-Management of Dietary Intake for Early Stage Chronic Kidney Disease Patients, The FASEB journal. 2017;31(1):345–52.
88.
Horner Sh D, Timmerman GM, McWilliams BC. Feasibility study of a combined lifestyle behaviors and asthma self-management intervention for school-aged children. J Spec Pediatr Nur. 2018;23(3):e12224.CrossRef
89.
Singh RF, Kelly P, Tam A, Bronner J, Morello CM, Hirsch JD. Evaluation of a short, interactive diabetes self-management program by pharmacists for type 2 diabetes. BMC Res Notes. 2018;11(1):828.
90.
Simanjuntak EY, Siregar Ch T. self efficacy pasien hipertensi di unit hemodialisa melalui edukasi pengendalian tekanan darah. Jurnal Mutiara Ners. 2019;2(1):150–7.
91.
Zimbudzi E, Lo C, Misso ML, Ranasinha S, Kerr PG, Teede HJ, Zoungas S. Effectiveness of self-management support interventions for people with comorbid diabetes and chronic kidney disease: a systematic review and meta analysis. BMC. 2018;7:84.
92.
Feng WH, Cai YW, Xiao Ying K, Sh L, Xiao YW, Wen WW, Qiu Quan L, Xiao Duo L, et al. A7365 Effectiveness of self-management patient education combined with family doctor team service among Chinese type 2 diabetic patients in urban-rural fringe area a randomised controlled trial. J Hypertens. 2018;36:e 307.
93.
Balcha Hailu F, Hjortdah P, Moen A. Nurse-led diabetes self-management education improves clinical parameters in Ethiopia. Front Public Health. 2018;6:302.CrossRef
94.
Kisokanth G, Indrakumar J, Prathapan S, Joseph J, Ilankoon IMPS. A preliminary study on diabetes self-management education and glycemic control among patients with diabetes mellitus. J Nurs Educ Prac. 2019;9(9):98–103.CrossRef
95.
96.
Wilmoth SR, Carrillo L, Pan M, Chavarria D, Wilhite B, Parra-Medina D, He M. Building a healthy temple: a faith-based diabetes self-management support program. Diabetes. 2019;68:1.CrossRef
Metadata
Title
The effect of self-management education through weblogs on the quality of life of diabetic patients
Authors
Amal Mohammad Rasoul
Rostam Jalali
Alireza Abdi
Nader Salari
Mehrali Rahimi
Masoud Mohammadi
Publication date
01-12-2019
Publisher
BioMed Central
Published in
BMC Medical Informatics and Decision Making / Issue 1/2019
Electronic ISSN: 1472-6947
DOI
https://doi.org/10.1186/s12911-019-0941-6

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