Issue 3/2015
Public Health Genetics and Genomics
Content (18 Articles)
Introduction to the Special Issue: Public Health Genetics and Genomics
Kirsty McWalter, Amy Gaviglio
Creation of a National, At-home Model for Ashkenazi Jewish Carrier Screening
Karen Arnovitz Grinzaid, Patricia Zartman Page, Jessica Johnson Denton, Jessica Ginsberg
Aligning Policy to Promote Cascade Genetic Screening for Prevention and Early Diagnosis of Heritable Diseases
Rani George, Karen Kovak, Summer L. Cox
Education and Parental Involvement in Decision-Making About Newborn Screening: Understanding Goals to Clarify Content
Beth K. Potter, Holly Etchegary, Stuart G. Nicholls, Brenda J. Wilson, Samantha M. Craigie, Makda H. Araia
Applying Public Health Screening Criteria: How Does Universal Newborn Screening Compare to Universal Tumor Screening for Lynch Syndrome in Adults with Colorectal Cancer?
Deborah Cragun, Rita D. DeBate, Tuya Pal
Creation of a Network to Promote Universal Screening for Lynch Syndrome: The Lynch Syndrome Screening Network
Sarah Mange, Cecelia Bellcross, Deborah Cragun, Deb Duquette, Lisa Gorman, Heather Hampel, Kory Jasperson
Ethical Considerations in Biobanks: How a Public Health Ethics Perspective Sheds New Light on Old Controversies
Alice Hawkins Virani, Holly Longstaff
Genetic Counselors and Health Literacy: The Role of Genetic Counselors in Developing a Web-Based Resource About the Affordable Care Act
Sylvia Mann, Pauline Mui, Jennifer Boomsma, Lianne Hasegawa
Public Health Genetic Counselors: Activities, Skills, and Sources of Learning
Kirsty M. McWalter, Mallory R. Sdano, Gaurav Dave, Karen P. Powell, Nancy Callanan
Genetics Professionals’ Opinions of Whole-Genome Sequencing in the Newborn Period
Elizabeth Ulm, W. Gregory Feero, Richard Dineen, Joel Charrow, Catherine Wicklund
Congenital Hypothyroidism Long-Term Follow-up Project: Navigating the Rough Waters of a Multi-Center, Multi-State Public Health Project
Kupper Wintergerst, Gina Gembel, Tracey Kreipe, Patrick Zeller, Erica Eugster, Bill Young, Karen Andruszewski, Mary Kleyn, Troi Cunningham, Sandy Fawbush, Nancy Vanderburg, Joe Sockalosky, Ram Menon, Sharon Linard, Gary Hoffman, Lisa Gorman
Assessment of Parental Understanding of Positive Newborn Screening Results and Carrier Status for Cystic Fibrosis with the use of a Short Educational Video
R. Temme, A. Gruber, M. Johnson, L. Read, Y. Lu, J. McNamara
Storage and use of Newborn Screening Blood Specimens for Research: Assessing Public Opinion in Illinois
Alexa Hart, Michael Petros, Joel Charrow, Claudia Nash, Catherine Wicklund
Increasing Participation in Genomic Research and Biobanking Through Community-Based Capacity Building
Elizabeth Gross Cohn, Maryam Husamudeen, Elaine L. Larson, Janet K. Williams
Perceptions of Tissue Storage in a Dementia Population Among Spouses and Offspring
Megan M. Martin, Erin W. Rothwell, Vickie L. Venne, Norman L. Foster
Public Awareness of Genetic Nondiscrimination Laws in Four States and Perceived Importance of Life Insurance Protections
Alicia A. Parkman, Joan Foland, Beth Anderson, Debra Duquette, Holly Sobotka, Mary Lynn, Shelley Nottingham, William David Dotson, Katherine Kolor, Summer L. Cox
A Genetic Lung Cancer Susceptibility Test may have a Positive Effect on Smoking Cessation
Tammy Kammin, Andrew K. Fenton, Kathryn Thirlaway
Congruence-Incongruence Patterns in Alpha-1 Antitrypsin Deficiency Couples’ Genetic Determinist Beliefs and Perceived Control over Genes: Implications for Clinical and Public Health Genomic Communication
Roxanne L. Parrott, Rachel A. Smith, Soo Jung Hong, Amber Worthington