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Published in: Journal of Genetic Counseling 3/2015

01-06-2015 | PROFESSIONAL ISSUES

Genetic Counselors and Health Literacy: The Role of Genetic Counselors in Developing a Web-Based Resource About the Affordable Care Act

Authors: Sylvia Mann, Pauline Mui, Jennifer Boomsma, Lianne Hasegawa

Published in: Journal of Genetic Counseling | Issue 3/2015

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Abstract

The Western States Genetic Services Collaborative (WSGSC) recognized the need for clear and understandable information about the Affordable Care Act (ACA) for families throughout the life course. The genetic counselors working in the WSGSC developed, tested, and implemented a web resource (http://​www.​westernstatesgen​etics.​org/​ACA_​home.​htm) to help families navigate information about the ACA tailored to their life situation. The training and experience of genetic counselors provide the skills needed to translate complicated information, like that of the ACA, into formats that the general public can comprehend. The website went public in October 2013, and it has been positively received. The development of this website is a good case study in how genetic counseling skills can be applied to public health education and improving health literacy.
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Metadata
Title
Genetic Counselors and Health Literacy: The Role of Genetic Counselors in Developing a Web-Based Resource About the Affordable Care Act
Authors
Sylvia Mann
Pauline Mui
Jennifer Boomsma
Lianne Hasegawa
Publication date
01-06-2015
Publisher
Springer US
Published in
Journal of Genetic Counseling / Issue 3/2015
Print ISSN: 1059-7700
Electronic ISSN: 1573-3599
DOI
https://doi.org/10.1007/s10897-014-9799-z

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