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Orphanet Journal of Rare Diseases
Published in: Orphanet Journal of Rare Diseases 1/2014

Open Access 01-12-2014 | Oral presentation

Specific social challenges for rare diseases: the French experience, 2005-2014

Author: Christel Nourissier

Published in: Orphanet Journal of Rare Diseases | Special Issue 1/2014

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Excerpt

The first strategic Plan in the world with a comprehensive approach for rare diseases was implemented in France from 2005 to 2008, followed by a second Plan in 2011 [1]. The 1st Plan had one objective: ensuring equity in the access to diagnosis, treatment and provision of care. The Second Plan aims at improving patient’s and carers’ health and social care, as well as developing research and European and international cooperation. …
Literature
1.
Plan National Maladies Rares, assurer l’égalité d’accès au diagnostic, aux traitements et aux soins 2005-2008. Plan National Maladies Rares : qualité de la prise en charge, recherche, Europe, une ambition renouvelée. 2011, -2014
2.
3.
INSERM Expertise collective « Handicaps rares: contexte, enjeux et perspectives ». 2013
Metadata
Title
Specific social challenges for rare diseases: the French experience, 2005-2014
Author
Christel Nourissier
Publication date
01-12-2014
Publisher
BioMed Central
Published in
Orphanet Journal of Rare Diseases / Issue Special Issue 1/2014
Electronic ISSN: 1750-1172
DOI
https://doi.org/10.1186/1750-1172-9-S1-O30

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