Skip to main content
Top
Published in: BMC Palliative Care 1/2024

Open Access 01-12-2024 | Research

Priorities for enhancing nurses' and social workers’ competence and confidence in helping families support dependent children through parental death. A classic-Delphi survey

Authors: Penny Franklin, Anne Arber, Emma Ream

Published in: BMC Palliative Care | Issue 1/2024

Login to get access

Abstract

Background

Annually, approximately five per cent of dependent children — aged under eighteen years — in the United Kingdom (UK), experience parental death. Nurses and social workers caring for parents with life-limiting illnesses, including cancer, help families support their children. However, these professionals have been found to lack confidence and competence in fulfilling this role.

Methods

We conducted three rounds of a classic-Delphi survey to identify and measure a panel of topic experts’ consensus on the priorities and issues for nurses and social workers when supporting families and children through parental death. The Delphi survey was conducted with a panel of UK topic experts (n=43) including lead health and social care professionals (n=30), parents bereaved of a partner whilst parenting dependent children (n=6), academics (n=4) and bereaved young adults (n=3).

Results

Ninety per cent (n=18/20) of the issues for nurses and social workers and all (7/7) of the priorities rated and ordered in the survey achieved consensus. Key priorities were 1) training in opening conversations with families about dependent children, 2) training and support for nurses and social workers to manage their own and others’ emotions arising from conversations with parents about children’s needs regarding parental death, and 3) increasing nurses’ and social workers’ knowledge of sources of information to support families before the death of a parent.

Conclusion

We identified priorities for UK nurses and social workers. Further research is needed to identify which of these nurses and social workers would benefit most from support, and how any resultant interventions could enhance confidence and competence in helping families to support children through parental death.
Appendix
Available only for authorised users
Literature
7.
go back to reference Office for National Statistics (2023) Birth characteristics in England and Wales: 2021. Birth characteristics in England and Wales - Office for National Statistics (ons.gov.uk) [Accessed 23rd March 2024]. Office for National Statistics (2023) Birth characteristics in England and Wales: 2021. Birth characteristics in England and Wales - Office for National Statistics (ons.gov.uk) [Accessed 23rd March 2024].
10.
go back to reference Farrell C, Molassiotis A, Beaver K, Heaven C. Exploring the scope of oncology specialist nurses’ practice in the UK. Eur J Oncol Nurs. 2011;15:160–6.CrossRefPubMed Farrell C, Molassiotis A, Beaver K, Heaven C. Exploring the scope of oncology specialist nurses’ practice in the UK. Eur J Oncol Nurs. 2011;15:160–6.CrossRefPubMed
14.
go back to reference Head B, Peters B, Middleton A, Friedman C, Guman N. Results of a nationwide hospice and palliative care social work job analysis. J Soc Work End Life Palliat Care. 2019;15(1):16–33.CrossRefPubMed Head B, Peters B, Middleton A, Friedman C, Guman N. Results of a nationwide hospice and palliative care social work job analysis. J Soc Work End Life Palliat Care. 2019;15(1):16–33.CrossRefPubMed
20.
go back to reference Fearnley R. Supporting children when a parent has a life-threatening illness: the role of the community practitioner. Community Pract. 2012;85:22-25.21.PubMed Fearnley R. Supporting children when a parent has a life-threatening illness: the role of the community practitioner. Community Pract. 2012;85:22-25.21.PubMed
21.
go back to reference Punziano AC, Piredda M, Mastroianni C, Mastroianni C, Fiorelli FR, De Marinis MG. Health professional’s experiences of supporting teenagers who have lost a parent. J Hospice Palliat Nurs. 2017;19(5):415–23.CrossRef Punziano AC, Piredda M, Mastroianni C, Mastroianni C, Fiorelli FR, De Marinis MG. Health professional’s experiences of supporting teenagers who have lost a parent. J Hospice Palliat Nurs. 2017;19(5):415–23.CrossRef
23.
go back to reference Golsäter M, Henricson M, Enskär K, Knutsson S. Are children as relatives our responsibility?–How nurses perceive their role in caring for children as relatives of seriously ill patients. Eur J Oncol Nurs. 2016;1(25):33–9.CrossRef Golsäter M, Henricson M, Enskär K, Knutsson S. Are children as relatives our responsibility?–How nurses perceive their role in caring for children as relatives of seriously ill patients. Eur J Oncol Nurs. 2016;1(25):33–9.CrossRef
24.
go back to reference Dalkey N, Helmer O. An Experimental Application of the DELPHI Method to the Use of Experts. Manage Sci. 1963;9:458–67.CrossRef Dalkey N, Helmer O. An Experimental Application of the DELPHI Method to the Use of Experts. Manage Sci. 1963;9:458–67.CrossRef
30.
go back to reference Taylor RM, Feltbower RG, Aslam N, Raine R, Whelan JS, Gibson F. Modified international e-Delphi survey to define healthcare professional competencies for working with teenagers and young adults with cancer. BMJ Open. 2016;6(5):e011361.CrossRefPubMedPubMedCentral Taylor RM, Feltbower RG, Aslam N, Raine R, Whelan JS, Gibson F. Modified international e-Delphi survey to define healthcare professional competencies for working with teenagers and young adults with cancer. BMJ Open. 2016;6(5):e011361.CrossRefPubMedPubMedCentral
31.
go back to reference Teherani A, Nishimura H, Apatira L, Newman T, Ryan S. Identification of core objectives for teaching sustainable healthcare education. Med Educ Online. 2017;22(1):1386042.CrossRefPubMedPubMedCentral Teherani A, Nishimura H, Apatira L, Newman T, Ryan S. Identification of core objectives for teaching sustainable healthcare education. Med Educ Online. 2017;22(1):1386042.CrossRefPubMedPubMedCentral
32.
go back to reference Foth T, Efstathiou N, Vanderspank-Wright B, Ufholz LA, Dütthorn N, Zimansky M, Humphrey-Murto S. The use of Delphi and Nominal Group Technique in nursing education: A review. Int J Nurs Stud. 2016;1(60):112–20.CrossRef Foth T, Efstathiou N, Vanderspank-Wright B, Ufholz LA, Dütthorn N, Zimansky M, Humphrey-Murto S. The use of Delphi and Nominal Group Technique in nursing education: A review. Int J Nurs Stud. 2016;1(60):112–20.CrossRef
36.
go back to reference Jünger S, Payne SA, Brine J, Radbruch L, Brearley SG. Guidance on Conducting and REporting DElphi Studies (CREDES) in palliative care: Recommendations based on a methodological systematic review. Palliat Med. 2017;31(8):684–706.CrossRefPubMed Jünger S, Payne SA, Brine J, Radbruch L, Brearley SG. Guidance on Conducting and REporting DElphi Studies (CREDES) in palliative care: Recommendations based on a methodological systematic review. Palliat Med. 2017;31(8):684–706.CrossRefPubMed
37.
go back to reference Boulkedid R, Abdoul H, Loustau M, Sibony O, Alberti C. Using and reporting the Delphi method for selecting healthcare quality indicators: a systematic review. PloS one. 2011;6(6):e20476.CrossRefPubMedPubMedCentral Boulkedid R, Abdoul H, Loustau M, Sibony O, Alberti C. Using and reporting the Delphi method for selecting healthcare quality indicators: a systematic review. PloS one. 2011;6(6):e20476.CrossRefPubMedPubMedCentral
39.
go back to reference Etikan I, Musa SA, Alkassim RS. Comparison of convenience sampling and purposive sampling. Am J Theoret Appl Statistics. 2016;5:1–4.CrossRef Etikan I, Musa SA, Alkassim RS. Comparison of convenience sampling and purposive sampling. Am J Theoret Appl Statistics. 2016;5:1–4.CrossRef
40.
go back to reference Akard TF, Gilmer MJ, Miller K, Steele AC, Hancock K, Barrera M, Compas B, Davies B, Dietrich MS, Fairclough DL, Hogan NS. Factors affecting recruitment and participation of bereaved parents and siblings in grief research. Prog Palliat Care. 2014;22(2):75–9.CrossRefPubMedPubMedCentral Akard TF, Gilmer MJ, Miller K, Steele AC, Hancock K, Barrera M, Compas B, Davies B, Dietrich MS, Fairclough DL, Hogan NS. Factors affecting recruitment and participation of bereaved parents and siblings in grief research. Prog Palliat Care. 2014;22(2):75–9.CrossRefPubMedPubMedCentral
41.
go back to reference Diamond IR, Grant RC, Feldman BM, Pencharz PB, Ling SC, Moore AM, Wales PW. Defining consensus: a systematic review recommends methodologic criteria for reporting of Delphi studies. J Clin Epidemiol. 2014;67(4):401–9.CrossRefPubMed Diamond IR, Grant RC, Feldman BM, Pencharz PB, Ling SC, Moore AM, Wales PW. Defining consensus: a systematic review recommends methodologic criteria for reporting of Delphi studies. J Clin Epidemiol. 2014;67(4):401–9.CrossRefPubMed
42.
go back to reference Keeney S, Hasson F, McKenna HP. A critical review of the Delphi technique as a research methodology for nursing. Int J Nurs Stud. 2001;38:195–200.CrossRefPubMed Keeney S, Hasson F, McKenna HP. A critical review of the Delphi technique as a research methodology for nursing. Int J Nurs Stud. 2001;38:195–200.CrossRefPubMed
43.
go back to reference Qualtrics XM, Development Company: Qualtrics, First release: 2005, Copyright year. Provo: Qualtrics XM; 2018. Qualtrics XM, Development Company: Qualtrics, First release: 2005, Copyright year. Provo: Qualtrics XM; 2018.
44.
go back to reference Clegg F. Simple statistics: a course book for the social sciences. Cambridge: Cambridge University Press; 1982. Clegg F. Simple statistics: a course book for the social sciences. Cambridge: Cambridge University Press; 1982.
45.
go back to reference Hutchings A, Raine R, Sanderson C, Black N. An experimental study of determinants of the extent of disagreement within clinical guideline development groups. Qual Saf Health Care. 2005;14(4):240–5.CrossRefPubMedPubMedCentral Hutchings A, Raine R, Sanderson C, Black N. An experimental study of determinants of the extent of disagreement within clinical guideline development groups. Qual Saf Health Care. 2005;14(4):240–5.CrossRefPubMedPubMedCentral
46.
go back to reference Scott EA, Black N. When does consensus exist in expert panels? J Public Health Med. 1991;13:35–9.CrossRefPubMed Scott EA, Black N. When does consensus exist in expert panels? J Public Health Med. 1991;13:35–9.CrossRefPubMed
47.
go back to reference Imamura K, Gair R, McKee M, Black N. Appropriateness of total hip replacement in the United Kingdom. World Hosp Health Serv. 1996;32(2):10–4.PubMed Imamura K, Gair R, McKee M, Black N. Appropriateness of total hip replacement in the United Kingdom. World Hosp Health Serv. 1996;32(2):10–4.PubMed
48.
go back to reference Vella K, Goldfrad C, Rowan K, Bion J, Black N. Use of consensus development to establish national research priorities in critical care. Bmj. 2000;320(7240):976–80.CrossRefPubMedPubMedCentral Vella K, Goldfrad C, Rowan K, Bion J, Black N. Use of consensus development to establish national research priorities in critical care. Bmj. 2000;320(7240):976–80.CrossRefPubMedPubMedCentral
49.
go back to reference del Moral MJ, Chiclana F, Garcia JT, Herrera-Viedma E. An alternative calculation of the consensus degree in group decision making problems. Procedia Computer Sci. 2017;1(122):735–42.CrossRef del Moral MJ, Chiclana F, Garcia JT, Herrera-Viedma E. An alternative calculation of the consensus degree in group decision making problems. Procedia Computer Sci. 2017;1(122):735–42.CrossRef
50.
go back to reference IBM Corp. Released 2017. IBM SPSS Statistics for Windows, Version 25.0. Armonk, NY: IBM Corp. IBM Corp. Released 2017. IBM SPSS Statistics for Windows, Version 25.0. Armonk, NY: IBM Corp.
51.
go back to reference Crisp J, Pelletier D, Duffield C, Adams A, Nagy SU. The delphi method? Nurs Res. 1997;46(2):116–8.CrossRefPubMed Crisp J, Pelletier D, Duffield C, Adams A, Nagy SU. The delphi method? Nurs Res. 1997;46(2):116–8.CrossRefPubMed
52.
go back to reference Boughanem M, Loiseau Y, Prade H. Rank-Ordering Documents According to Their Relevance in Information Retrieval Using Refinements of Ordered-Weighted Aggregations. Berlin, Heidelberg: Springer Berlin Heidelberg; 2006. p. 44- 54.[46]. Boughanem M, Loiseau Y, Prade H. Rank-Ordering Documents According to Their Relevance in Information Retrieval Using Refinements of Ordered-Weighted Aggregations. Berlin, Heidelberg: Springer Berlin Heidelberg; 2006. p. 44- 54.[46].
53.
go back to reference Grant L, Sangha A, Lister S, Wiseman T. Cancer and the family: assessment, communication and brief interventions—the development of an educational programme for healthcare professionals when a parent has cancer. BMJ Support Palliat Care. 2016;6(4):493–9.CrossRefPubMed Grant L, Sangha A, Lister S, Wiseman T. Cancer and the family: assessment, communication and brief interventions—the development of an educational programme for healthcare professionals when a parent has cancer. BMJ Support Palliat Care. 2016;6(4):493–9.CrossRefPubMed
54.
go back to reference Turner J, Clavarino A, Yates P, Hargraves M, Connors V, Hausmann S. Enhancing the supportive care of parents with advanced cancer: development of a self-directed educational manual. Eur J Cancer. 2008;44(12):1625–31.CrossRefPubMed Turner J, Clavarino A, Yates P, Hargraves M, Connors V, Hausmann S. Enhancing the supportive care of parents with advanced cancer: development of a self-directed educational manual. Eur J Cancer. 2008;44(12):1625–31.CrossRefPubMed
55.
go back to reference Turner J, Clavarino A, Butow P, Yates P, Hargraves M, Connors V, Hausmann S. Enhancing the capacity of oncology nurses to provide supportive care for parents with advanced cancer: evaluation of an educational intervention. Eur J Cancer. 2009;45(10):1798–806.CrossRefPubMed Turner J, Clavarino A, Butow P, Yates P, Hargraves M, Connors V, Hausmann S. Enhancing the capacity of oncology nurses to provide supportive care for parents with advanced cancer: evaluation of an educational intervention. Eur J Cancer. 2009;45(10):1798–806.CrossRefPubMed
57.
go back to reference Semple CJ, McCaughan E. Developing and testing a theory-driven e-learning intervention to equip healthcare professionals to communicate with parents impacted by parental cancer. Eur J Oncol Nurs. 2019;41:126–34.CrossRefPubMed Semple CJ, McCaughan E. Developing and testing a theory-driven e-learning intervention to equip healthcare professionals to communicate with parents impacted by parental cancer. Eur J Oncol Nurs. 2019;41:126–34.CrossRefPubMed
59.
go back to reference Dalton L, Rapa E, Ziebland S, Rochat T, Kelly B, Hanington L, Bland R, Yousafzai A, Stein A, Betancourt T, Bluebond-Langner M. Communication with children and adolescents about the diagnosis of a life-threatening condition in their parent. Lancet. 2019;393(10176):1164–76.CrossRefPubMed Dalton L, Rapa E, Ziebland S, Rochat T, Kelly B, Hanington L, Bland R, Yousafzai A, Stein A, Betancourt T, Bluebond-Langner M. Communication with children and adolescents about the diagnosis of a life-threatening condition in their parent. Lancet. 2019;393(10176):1164–76.CrossRefPubMed
60.
go back to reference Hanna JR, McCaughan E, Beck ER, Semple CJ. Providing care to parents dying from cancer with dependent children: health and social care professionals’ experience. Psycho-Oncol. 2021;30(3):331–9.CrossRef Hanna JR, McCaughan E, Beck ER, Semple CJ. Providing care to parents dying from cancer with dependent children: health and social care professionals’ experience. Psycho-Oncol. 2021;30(3):331–9.CrossRef
63.
go back to reference Keane S, Ryan A, Adams N, Dowling M. Palliative care nurses’ experiences of clinical supervision: A qualitative evidence synthesis. Int J Palliat Nurs. 2020;26(8):413–23.CrossRefPubMed Keane S, Ryan A, Adams N, Dowling M. Palliative care nurses’ experiences of clinical supervision: A qualitative evidence synthesis. Int J Palliat Nurs. 2020;26(8):413–23.CrossRefPubMed
64.
go back to reference Thiel M, Mattison D, Goudie E, Licata S, Brewster J, Montagnini M. Social work training in palliative care: addressing the gap. Am J Hospice Palliat Med®. 2021;38(8):893–8.CrossRef Thiel M, Mattison D, Goudie E, Licata S, Brewster J, Montagnini M. Social work training in palliative care: addressing the gap. Am J Hospice Palliat Med®. 2021;38(8):893–8.CrossRef
65.
Metadata
Title
Priorities for enhancing nurses' and social workers’ competence and confidence in helping families support dependent children through parental death. A classic-Delphi survey
Authors
Penny Franklin
Anne Arber
Emma Ream
Publication date
01-12-2024
Publisher
BioMed Central
Published in
BMC Palliative Care / Issue 1/2024
Electronic ISSN: 1472-684X
DOI
https://doi.org/10.1186/s12904-024-01452-0

Other articles of this Issue 1/2024

BMC Palliative Care 1/2024 Go to the issue